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Agenda Introduction to WCBR
Project
Introduction to Digital
Storytelling
Screening of 4 Videos
Q & A with Video
Participants Panel
Group Discussion:
Innovative Ideas for Knowledge
Mobilization in Community
Research
The WCBR ProjectInvolving Ontario HIV-positive Women And
Their Service Providers In Determining Their Research Needs And Priorities
The WCBR Project Mixed method study funded by the Canadian Institute of Health
Research (CIHR) between 2007 – 2010
Implementation team:
2 Principle investigators
5 Co-investigators
25 CAB members
12 women living with HIV as Peer Research Assistants
Think Tank of experts in between the two phases to
determine direction for phase II
WCBR - Phase 1 15 focus groups were conducted with women living with HIV (n=104)
across Ontario, Canada including:
Aboriginal, African/Caribbean, South Asian, Latina, sex worker,
injection drug user, lesbian/bisexual/queer, and transgender
women
5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay
Peer Research Assistants (PRAs) from targeted populations were
trained as a component of study development and implementation
4 focus groups were also done with service provides and
researchers (n=45) in Ottawa, Hamilton and Toronto
WCBR - Phase 2 A quantitative survey was developed to further investigate themes and
priorities of women living with HIV
A total of 166 women ranging from 18 – 69 years of age
Three regions: Ottawa, Toronto, Southwestern Ontario
1. What is the influence of HIV-related stigma, gender-based discrimination
and racial discrimination on quality of life, depression and access to care
among Black, African, Caribbean and Canadian women?
2. What is the influence of social support and resilient coping on quality of
life, depression and access to care among Black, African, Caribbean and
Canadian women?
KTE ActivitiesRange of KTE Activities targeted to multiple
audiences:
1. Scientific community:
18 conference presentations
6 papers published in peer reviewed journal
1 paper in review
2 in preparation
2. Service providers and communities of
women living with HIV
Community report
Forums – 7 done across Ontario
3. Multiple audiences
7 Digital Story Telling videos
What is Digital Storytelling?
Digital storytelling
combines the traditional
art of storytelling with
multimedia features such
as: photography,
animation, text, audio,
voiceover, and video
“New Folklore of the Digital Age”
Why Digital Stories?
Initial: ~25 min full video
Final: 7 digital storytelling videos (~3 mins each)
Individual vs. collective experiences in research
Reflexive Process
Using own voice – individual ownership of video
Social Media Strategy