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PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes...

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PARTNERS IN HEALING: INVITING FAMILY INTO THE HEALTHCARE TEAM Michelle Van De Graaff, RN BSN Intermountain Healthcare
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Page 1: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

PARTNERS IN HEALING: INVITING FAMILY INTO THE

HEALTHCARE TEAM

Michelle Van De Graaff, RN BSN

Intermountain Healthcare

Page 2: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

What is Partners in Healing®?Voluntary program to:• Engage patients and family as partners in

hospital care • Improve family communication with the

healthcare team• Incorporate patient and family preferences

into care• Increase efficiency and responsiveness• Prepare patients and families to manage

health at home

Page 3: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:
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Page 5: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Kiribati

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ORIGINAL PARTNERS IN HEALING PROGRAM

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PROGRESSION THROUGH PARTNERS IN HEALING

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Original Partners in Healing

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EXPLAINING THE PURPOSE• We hope to help you learn how to do specific

cares so that when you take your loved one home, you will feel comfortable with that transition.

• We wish to have you as a partner in care so that current needs and potential discharge needs of your loved one can be met more efficiently.

• We also want to partner with you to give and receive important information about your loved one.

Page 13: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

OPEN HEART SURGERY PATHWAY FOR RAPID RECOVERY PATIENTS AND FAMILIES

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STERNAL PRECAUTIONS

FOLLOWING OPEN HEART SURGERY

Page 15: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

CHECKLIST

Page 16: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

HOW TO APPLY TED

HOSE

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SAMPLE CHECKLIST

Page 18: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

OLD CHECKLIST

Page 19: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Partners in Healing®

Poster, Brochure and Videoin the

TICU Waiting Room

Page 20: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

PARTNERS IN HEALING SURVEY1. The partners in Healing program greatly

enhanced our transition to home.

2. I would highly recommend this program.

3. Please write your general suggestions or concerns below.

Rating Scale: 1-5 (5 completely agree, 1 completely discagree)

Page 21: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

PARTNERS IN HEALING SURVEY RESULTS1. The Partners in Healing program

greatly enhanced our transition to home.

• 1 = 2 responses

• 2 = 1 response

• 3 = 6 responses

• 4 = 23 responses (22%)

• 5 = 74 responses (70%)

97/106 = 92% of respondents rated it a 4 or 5

2. I would highly recommend this program to other patients and families.

• 1 = 1 response

• 2 = 0 responses

• 3 = 5 responses

• 4 = 6 responses

• 5 = 94 responses (89%)

100/106 = 94% of respondents rated it a 4 or 5

Page 22: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

POSITIVE PERCEPTION OF PROGRAM

• “We (wife and I) thank you for allowing us the dignity to be part of each other’s lives.”

• “I have participated in this program twice in the past 8 months and would highly recommend it to anyone. It really distinguishes IMC as a facility for total care.”

Page 23: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

• “The opportunity to assist the medical team by brining drinks and warm blankets to the patient made him feel much more comfortable and me feeling like I contributed to his healing.”

• “I loved it because I could get things for my husband without waiting.”

ACTIVITIES AND SKILLS INCREASE CARE

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INCREASE FEELING OF EMPOWERMENT AND CONFIDENCE

• “Partners in Healing empowered me during such a difficult time. It also allowed my husband to recover faster…”

• “Also, I felt I was really helping and useful rather than just “sitting and waiting” all the time. The nurses and CNAs treated me like a true partner.”

Page 25: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

• “I think this should be mandatory rather than optional.”

• “It would be good to give this to family at the beginning so they know what is expected during recovery. I got it the day before dismissal.”

PARTICIPANTS STRONGLY RECOMMEND THE PROGRAM

Page 26: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Partners in Healing® – Clinical Outcomes StudySeptember 2008– October 2016

• Retrospective review of thoracic surgery patients:

• 465 participants in Partners in Healing, 200 were matched with control patients

• Controls exactly matched by surgical procedure, age, attending surgeon, year of procedure

• Reduction in 30 day all-cause readmissions

Coronary bypass

Open valve repair or replacement

Pericardial window

Thoracotomies

Video assisted thoracotomies

LVAD implantations

Heart transplants

Ascending aortic aneurysm repairs

Esophagogastrectomies

Esophageal repairs

Sympathectomies

Pectus excavatum repair

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HISTORICAL APPROACHES• Relatives/family members should

(mostly) stay out of the ICU because they may:• Distract nurses or physicians• Agitate the patient• Bother other patients• Hurt themselves, emotionally or

physically• Dislodge equipment and/or hurt the

patients• Decrease work satisfaction for nurses,

contribute to burnout and high turnover

Page 29: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

DEHUMANIZATION

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PROBLEMS FOR PATIENTS• Patients experience anxiety, depression, traumatic stress (both acute

and post-acute)

• They also experience powerlessness and learned helplessness

• They also experience dehumanization

• Being separated from loved ones makes the distress worse

Page 31: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

PROBLEMS FOR FAMILIES• Families experience anxiety, depression, traumatic stress (both acute

and post-acute): PICS-F

• They also experience powerlessness and learned helplessness

• Being excluded and made to feel more powerless may make the stress of the ICU even worse

Page 32: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

PICS IS COMMON• More than a third of family members have PICS-F

• Complicated bereavement is common

• Probably two-thirds of patients have PICS-P; perhaps half have psychological distress

Page 33: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

LEARNED HELPLESSNESS IS COMMON

•About half of ICU families have it

Normal Abnormal

Page 34: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Humanizing the Patient• Relatives are often the world authorities on the

humanity of the individual patients

• The humanity of the patient is often threatened in the ICU• They are confused or unconscious

• Often unable to manage their own waste

• ICU procedures are painful and often disfiguring

• Relatives can rehumanize patients for clinicians

Page 35: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

GOALS• Build real collaboration

• Humanize patients and families

• Help relatives have a sense of control

• Avoid needless anxiety related to arbitrary exclusion

• Allow loved ones to calm and reassure the patient

Page 36: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

“FACILITATED SENSEMAKING”• Judy Davidson’s concept• Give families tasks to do, so

that they can feel a little bit of control and “make sense” of the crisis

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Page 38: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

How does Partners in Healing®

work?

1. Admit packet

2. Activity checklist

3. Tour of unit

Page 39: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

BADGE

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SUPPLY ROOM DOOR SIGNS (BLANKETS, FOOD)

Page 41: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Partners in Healing

DOOR MAGNET STICKERS

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PARTICIPATION LOG

Page 43: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Benefits to the Nursing Staff

• “It takes some of the burden off of us.”

• “It helps assure the patient is moving forward.

• “The family knows the patient better than we do.”

• “The Partners in Healing patients don’t call you as much.”

• “They go home knowing how to help. They get their questions answered while they are in the hospital.”

• “They learn when to call the doctor after they get home and probably avoid a readmission.”

Page 44: PARTNERS IN HEALING: INVITING FAMILY INTO THE … · Partners in Healing® –Clinical Outcomes Study September 2008–October 2016 •Retrospective review of thoracic surgery patients:

Videos and TranscriptionsYouTube Channel Name is Partners in Healing ACVU

Chapter 1

https://youtu.be/sUp8Rosj1Lg

Chapter 2

https://youtu.be/fVZkkpQmHtM

Chapter 3

https://youtu.be/K_qtdT4ANRc

Chapter 4

https://youtu.be/0hykWMGLcAs

Chapter 5

https://youtu.be/9es6vdAE1Y4

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Questions?

Email your experiences/feedback [email protected]


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