Patient awareness campaigns 2013-14

What’s happened, what’s coming up and how you can get involved

Daniel Spiers – NIHR Clinical Research Network Communications Manager

So far this year...

Mystery shopper

Campaign IMystery shopper

Background• Traditionally, research engagement has a

clinician-based approach– Hugely successful– Over 630,000 patients participated during 2012-13– 99% per cent of Trusts now support clinical research

• BUT patients often unaware of research unless they are approached (Source: CRN OnePoll consumer survey 2012)

Support for Trusts post-shopper

• “We do clinical research” brochure: outlines existing and new materials to help Trusts to raise patient awareness about research– Resources can be

branded with Trust logo– Some things paid-for,

some free– Can be ordered online – Examples of good

practice and a check-list

Campaign II

Only 21% of patients feel very confident of asking clinician about research (NIHR CRN OnePoll consumer survey 2013).

International Clinical Trials day 2013 campaign, the NIHR decided to address this through “OK to ask”.

This campaign is aimed at patients, medical professionals and the public. Everyone can get involved and help spread the word that it's OK to ask about clinical research.

Background

What happened

What happened:Social media

• Used #nihroktoask• Pointed patients to the

facebook page to share their questions and experiences

• Shared videos and photographs with a patient audience

• Encouraged support through likes, comments and shares

• Promoted use of Vine

Press

Impact

Feedback

Things you can do right now

1. “Like” the CRN page on facebook www.facebook.com/nihrcrn

2. “Like” the NIHR OK to ask page on facebook www.facebook.com/nihroktoask

3. Follow @NIHRCRN on twitter www.twitter.com/NIHRCRN

4. Sign up for the CRN patient awareness e-newsletter and help us take “OK to ask” forward

daniel.spiers@nihr.ac.uk