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Fiona McKenzie, Patient Insight and Involvement, UCL Partners

Patient Insight and Involvement at UCLP

24th June 2014

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Designing and creating with users

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Patient Insight and Involvement

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Our (draft) vision

• Patients and the public will identify UCLPartners as a leader in involvement and engagement.

• Partners and members will view UCLPartners as synonymous with continuous improvement and innovation in patient, carer and public involvement and engagement.

• UCLPartners will be known worldwide for developing research and health services where patient behaviour and insight are central to innovation, planning and development.

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Why?

• We believe that improvements in health and care need to be rooted in the needs and experiences of our population – patients, families, carers and the public.

• We believe that the best articulation of these clinical, behavioural and emotional needs and experiences comes from our population working in partnership with us.

• We believe that meaningful partnership with our community and patients is the way to translate cutting-edge research and innovation into measureable health and wealth gains for patients and populations.

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Our (draft) principles

• We will involve and engage patients, carers and the public in everything we do, including, but not limited to:o Governanceo Strategic developmento Substantive improvement planning and worko Across all programmes and designationso Events and event planningo Clinical care

• We will recognise the contributions patients, carers and the public make to our work, in terms of:o Financial reimbursemento Supporting skill developmento Recognition Awardso Accountability and transparency around ‘you said, we did’ o Website case studies

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(Draft) Commitment to our population

UCLPartners is committed to using a partnership approach to continuously improve patient-centred health services and research

• We commit to:o listening to our populationo involve and engage our population throughout our work and events, from start to

end, in the planning and development, delivery, and evaluationo work to find the best practical ways to involve and engage, whether in person or

not, ensuring we involve and engage in finding out what works besto ask about what matterso ask how we could be better and work for continuous improvemento always think about how we could do engagement and involvement better, learning

from others and striving for better partnershipso sharing our learning with our partnerso work in partnership to think about how we best measure and evaluate success in

this areao role modelling best practice at every opportunity

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How? A few examples…

• Patient, carer and public involvement and engagement in Future of Health 2014 as:o members of steering groupo involved in development of agendao speakers on their owno speakers in partnership with staff / managers / clinicianso chairs for discussions, workshops, panels throughout the dayo People’s Panelo attendeeso Commentators

• Patients and carers on recruitment panels• Patients and carers providing ad hoc expert advice on specific issues• Patients and carers defining what matters to them and co-creating action

plans

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Areas for coordinated UCLP focus

• Accesso Recruitment – particularly in hard-to-reach communities

• Wraparound consultancy support and guidance – how to be the best at thiso Website with ‘live’ guidance, opportunities, and helpo Education and leadership, including:

• Training• Capability• Patient leadership work

• Evaluation and measuremento How do we know we’re doing this well?o What does others’ research tell us?

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Our (draft) objectives

• Share best practice and learn across UCLPartnerso Identify areas for development - weaknesses and opportunitieso Develop alignment across programmes and designations

• Develop focus and added value for UCLPartners• Develop principles, opportunities, vision and commitments into short, mid and

long-term actions• Provide help and assistance to programmes and designations as they work to

improve their patient, carer and public involvement and engagement • Ensure we are leading the field on particular areas:

o Access and recruitmento Recognition of value of involvement and engagemento Wraparound support, including education and capabilityo Evaluation and measurement

• Consistently challenge the ‘norm’ for patient involvement

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For more information please contact:

www.uclpartners.com @uclpartners

Fiona McKenziefiona.mckenzie@uclpartners.com020767995253rd Floor, 170 Tottenham Court Rd, W1T 7HA@fkmckenzie