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Helping you to live life well
Sickle Cell & Thalassaemia Service
Anndeloris Chacon R.N.Clinical Co-ordinator
Helping you to live life well
Listening to the Sickle Cell and Thalassaemia
Clients
Helping you to live life well
Aim:To look at how Sickle Cell and
Thalassaemia affect the lives of those with the disorder, their family, education and other aspects.
Helping you to live life well
Major themes identified afterlistening to the clients were and are:
1.FearDeathStigmaDisruption
Helping you to live life well
2.Continuous education for the clientsConditionsMedicationComplicationsSelf Management
Helping you to live life well
3.Raising awareness of the clients’ perceptions with professionals and families
Professionals/family disbeliefLabels (lazy, drug addict, etc)
Helping you to live life well
4. How physical and socio-economic stressors affect these disorders
HousingEducationEmploymentSocialising
Helping you to live life well
These themes were addressed through
1. Educational sessions for clients, families/carers, professionals and others
Helping you to live life well
2. Psychological Support Psychotherapy [1 to 1 and a group
session]ReflexologyAqua massage (dry hydrotherapy)Psychology
Helping you to live life well
3. Trial of home care support when managing crises at home alone
Cleaning of the home
Collection of medication
Someone to visit after discharge
Helping you to live life well
How can we help the clients to live to their optimum level of well-being?
LISTEN
DISCUSS
Helping you to live life well
ASK QUESTIONS do not ASSUME
BE MINDFUL OF THE LABELS we give to the clients – this stays with them for life
Helping you to live life well
Solution:Provide individualised, client centred holistic care
Helping you to live life well
Vision:Sickle Cell and Thalassaemia
Services will provide for each client with coordinated services which deliver access and support to maintain/increase their optimum level of well-being.
Helping you to live life well
Outcome:An empowered client with
excellent self management who receives support and advice for the service.
Helping you to live life well
Client at the centre
Services around to support well-being
Coordination of Hierarchy of
Needs
Helping you to live life well
Thank you for listening