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Pioneer Informatics Network Webinar 02.10.2015 Programme supported By:
Welcome and Purpose of the Pioneer Informatics Network
Dylan Roberts – Chair and Leeds Pioneer
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Purpose of the Webinar
The purpose of the Webinar is to:
1. Provide an overview to Pioneers on the work underway around digital, technology and
information;
2. To feedback on the programme of work underway – gaps or opportunities for collaboration;
3. To highlight how Pioneers can get involved in the activity that is underway;
4. To shape the next steps for the Pioneer Informatics Network and how we can strengthen
engagement with local sites;
Throughout the webinar we will refer to the Pioneer Informatics Prospectus that you will have
hopefully received yesterday.
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Structure of the Webinar
The Webinar will focus on:
1. Purpose of the Pioneer Informatics Network – Dylan Roberts
2. Scope of the Programme and Prospectus – Mark Golledge
3. Information Sharing and Information Governance – Mark Golledge
4. Interoperability and Integrated Digital Care Records
Michael Bewell and Indi Singh – NHS England
Tony Shannon – Ripple
5. Networks and Infrastructure – Dylan Roberts
6. Other Activity to Note – Mark Golledge
7. Pioneer Feedback and Next Steps
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October
November
December
January Pioneer Assembly:
Digital Theme
(21st)
Relay Publication
February
March Informatics Event
(14th)
Relay Publication
Over the course of 2015-16 we will be supporting Pioneers and communicating progress
across this area of work.
A forward plan for the Pioneer Informatics Network can be found below.
You can access Pioneer Relay here: http://pioneerrelay.org.uk/category/technology-and-
information-sharing.
If you aren’t registered for Pioneer Relay you can sign-up by contacting:
Informatics
Webinar:
Prospectus (2nd)
Relay Publication
Relay Publication
Relay Publication Relay Publication
Informatics
Webinar: Digital
Roadmaps (17th)
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Purpose of the Pioneer Informatics Network See Prospectus: Pages 3-5
Simplify
Standardise
Share
The Pioneers have highlighted that the existing technical and information
arena that we work within is complex and not always fit for purpose for an
integrated health and care system. The aim is therefore to work to simplify.
A key focus is design of approaches which can be adopted nationally. There is
very rarely one single approach but the intention of activity by Pioneers is to
develop approaches which can be adopted and used by others.
As a result, a key role for the Pioneer Informatics Network is encouraging
sharing and learning both across the Pioneer community as well as the health
and care community more broadly.
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Purpose of the Pioneer Informatics Network See Prospectus: Pages 3-5
Scope of the Programme and Relevance for Pioneers
Mark Golledge – Local Government Association
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What are we collectively seeking to achieve? Person centred care enabled by digital, technology and information:
“I have the information, and support to use it, that I need to
make decisions and choices about my care and support.”
“I have information, and support to use it, that helps me manage
my condition(s).”
“I can see my health and care records at any time. I can decide
who to share them with. I can correct any mistakes in the
information.”
“Information is given to me at the right times. It is appropriate to
my condition and circumstances. It is provided in a way that I
can understand.”
“I am told about the other services that are available to someone
in my circumstances, including support organisations.”
“I am not left alone to make sense of information. I can
meet/phone/email a professional when I need to ask more
questions or discuss the options.”
Perspective of the
Patient, Service User
and Carer
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What are we collectively seeking to achieve? Person centred care enabled by digital, technology and information:
“I have the information, and support to use it, that I need to
make decisions and choices about the person to whom I
providing care and support.”
“I know what other professionals are supporting the care of an
individual and I can effectively communicate with them.”
“If I need to transfer the person I am working with to another
care setting this happens quickly and efficiently without the need
for paper records.”
“I am alerted quickly to deteriorating health and care needs of
my patients / service users.”
“I have can write into my work system when I am working
remotely.”
“I have access to the relevant and appropriate information to
help me evaluate, commission and pay for services”
Perspective of the
Professional
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There are a series of key technology and information building blocks needed for
integration of health and care. These are the focus for the Informatics Network:
3. Inter-
Connected
Networks and
Infrastructure
Programme of Work: Building blocks
2. System
Interoperability
& Integrated
Digital Care
Records
4. Use of a
Common
Identifier (NHS
Number) across
Health and Care
1. Effective
Information
Sharing across
health and care
5. Digital
methods of
communicating
between
professionals &
with citizens
6. Digital
Strategy: Local
Digital
Roadmaps
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Information Sharing and Governance
Mark Golledge – Local Government Association
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See Prospectus: Pages 9-14
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Information Sharing: Work to Date
• National Summit held in February 2015 bringing together national organisations and
Pioneer sites;
• The Summit led to a number of actions (identified in the prospectus) which have been
taken forward over the last few months;
• This has included task and finish group work with four Pioneer sites – primarily has
focused on integrated digital care records / interoperability (work carried out with the IG
Alliance);
• Further work has now been commissioned around capitated budgets and a strategic
stock-take will take place in the next few months – now that we are 6 months on from
the Summit;
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1
3
Creating an Integrated Dataset
Sharing for
Direct Care
Sharing for
Commissioning &
Research
A. Sharing of Patient
Medical Records,
Care History and
Prescriptions
Electronically:
Integrated Digital Care
Records
C. Risk
Stratification for
Case Finding:
Identifying people at
risk of an adverse
event;
E. Developing a
Capitated Budget and
New Care Model:
Profiling and
segmenting the
population & developing
a Capitated Budget
Risk Strat. for
Case Finding Risk Strat. for
Commissioning
B. Caseload
Matching and
Planning:
Supporting
coordination of
care across
providers
F. Understanding
Current and Future
Population Needs:
Strategic and
Commissioning Needs
Analysis
D. Tracking
Outcomes across a
Pathway of Care
Setting: Tracking
particular cohort
groups
Information Sharing: Purposes and Requirements A reminder of the purposes:
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Information Sharing: Work to Date
Action 1 and 4:
Establish a task and finish group to work with
between 2-4 sites on implementing solutions
to the specific data use requirements:
Commission to ensure products developed
from the Summit are disseminated to
Pioneers and others
• Blueprints, templates and materials
produced – arising from the work with
Pioneers (mainly focused on IDCR);
• Framework produced to assist with
navigation of the different materials;
• Being finalised and intending to be
published in the next fortnight;
• Work commissioned on capitated budgets;
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Information Sharing: Next Steps
There is an opportunity for Pioneers to engage in this work:
1. Feedback on the draft framework and materials when they are published – do
they support your work locally?
2. Attend regional events which will be organised with the Better Care Fund team –
to support with dissemination and use of materials;
3. Action 8: Engage in a workshop around ONS data (we are aware that some
localities are having issues around data access);
4. Action 9: Engage in task and finish group work on social care data (working
with NW London & South West);
Interoperability and Integrated Digital Care Records
Michael Bewell and Indi Singh – NHS England
Tony Shannon - Ripple
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See Prospectus: Pages 15-20
Electronic record/case file Capture information
electronically for use by me
and others, at the point of
care
Population health & care
management Analyse data effectively for the
benefit of
the wider population
Decision Support Receive automatic alerts and
notifications to help me make
the right decisions
Remote & assistive care Use technology to provide care
remotely
Transfer of care Seamlessly transfer
information between and
within care settings, to
follow my patient
Asset & resource
optimisation Use technology to
understand what is
happening and where, at all
times
As a Clinician, Paper-Free Health and Care will mean I can:
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the development of an open environment for information sharing supporting emerging models of care based on open interfaces and open standards.
Transfers
of Care
NHS
Number
Key Priorities
Procurement
Guide
Interoperability
Handbook
Tools
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Open Requirements - A de facto business case for use to support an Integrated Digital
Care Record (IDCR)
Open Governance - endorsed templates with supporting guidance you can use for your
IDCR initiative
Open Citizen- common information and tools to support citizen engagement for your
IDCR initiative
Open Viewer - Web based IDCR application for both care professionals and citizens to
use
Open Integration - re-usable interfaces and integration engine to bring systems together
into your IDCR
Open Architecture - Infrastructure and tools to support both structured and unstructured
IDCR information
Our offers
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Platform Progress 22
What’s coming up What When
Open Requirements Draft Open Requirement Document September
Open Governance Primary use plain language ISA and DPC kite marked by IGA
/ PMCF IG Group
Secondary use plain language ISA produced
September
October
Open Citizen White label communication and engagement materials for
other IDCR initiatives to use
Wider PHR engagement (online)
October
November
Open Viewer Enhancements to the platform including:
• Search Functionality
• Business reporting / intelligence
• Multi Patient view
• Telehealth demonstration (WebRTC)
October
October
October
November
Open Integration Testing and linking of Endeavour integration engine and API’s
with Ripple platform
Oct-Nov
Open Architecture Testing and migration onto Open Source OpenEHR
architecture
Oct-Nov
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Collaborate : Innovate : Open Towards an open health & care platform
@RippleOSI www.RippleOSI.org
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Networks and Infrastructure
Dylan Roberts – Leeds Pioneer
See Prospectus: Pages 21-23
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Other Activity to Note
Mark Golledge – Local Government Association
See Prospectus: Pages 24-32
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Use of a
Common
Identifier
(NHS Number)
Digital
Strategy: Local
Digital
Roadmaps
This area of work focuses on 3 activities:
1. HSCIC access arrangements for NHS Number tracing (social care);
2. Basis to trace the NHS Number;
3. Increasing NHS Number adoption;
This area of work focuses on 3 activities (all part of HSCIC programmes):
1. Secure Email development
2. Care Home pilot
3. Adapter Demonstrator
This focuses on supporting local areas in establishing the Local Digital
Roadmaps.
We want to hear from Pioneers who might be interested in peer-to-peer
learning & evaluation of roadmaps across the Pioneer community
Other Activity to Note
Digital methods of
communication
between citizens
& professionals
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Pioneer Feedback and Next Steps
Dylan Roberts – Leeds Pioneer
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Pioneer Feedback and Next Steps
We want to know from you:
1. Are the areas we have described tackling / co-designing / promoting the right areas i.e. will
this support your work locally?
2. How should we best be communicating with you and what information would support you
locally (i.e. Relay / face-to-face events)?
3. What further things should we be doing to promote and strengthen the Pioneer Informatics
Network?
And Finally:
• Please hold 21st January 2015 for the Pioneer Assembly in Kent – this will have a
digital and technology theme;
• Please sign-up for Pioneer Relay if you aren’t already receiving this -
• Please contact the leads identified in the prospectus if you want to find out more
information;
• We will be sending you a short survey for feedback on the webinar and on the
prospectus;
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