PRESENTATION: World Alzheimer Report 2015

7/24/2019 PRESENTATION: World Alzheimer Report 2015

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Global Fight Against Dementia

MARC WORTMANNExecutive Director, Alzheimers Disease International (ADI)

Disclaimer: The views expressed in this paper/presentation are the views of the author and do not necessarily

reflect the views or policies of the Asian Development Bank (ADB), or its Board of Governors, or the

governments they represent. ADB does not guarantee the accuracy of the data included in this paper and

accepts no responsibility for any consequence of their use. Terminology used may not necessarily be

consistent with ADB official terms.


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Overview

What is dementia and Alzheimers

disease

Impact on person, family, society Solutions: awareness, education,

health system response, dementia

friendly communityno cure yet Policy action: UN, WHO, G7, OECD

What can we do for LMIC


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Alzheimers and dementia

Dementia: cognitive collapse -syndrome

Dementia Alzheimers disease (AD) Vascular dementia (VD)

Lew body dementia (LBD)

Frontotemporal dementia (FTD)

First signs

Probably no single cause


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Alois Alzheimer


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Plaques and tangles

Under microscope

Neurofibrillary tangles Neuritic plaques


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Amyloid-

accumulation

CSF/PET)

Synaptic dysfunction FDG-PET/fMRI)

Tau-mediated neuronal injury CSF)

Brain structure volumetric MRI)

Cognition

Clinical function

Clinical Disease Stage

Normal

Abnormal

MCIreclinical Dementia

Figure adapted from Jack et al. 2010

Sperling et al Alzheimer & Dementia


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Research results

Some drugs from A theory

Lots of drugs in pipeline

Anti amyloid, tau Immune approach

Prevalence research

Earlier diagnosis: neuroimaging Risk factors

Good quality care and non-medical

treatments


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From the online newspaper of Prof Yasser Metwally

http://yassermetwally.wordpress.com/dementia-alzheimer-type-and-others/neuroimaging-of-

dementia/

PiB-PET Scans: AD vs MCI vs control


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The impact of dementia

Lot of impact on family and primarycaregiver

Both people with dementia and carersreport stigma, loss of contacts and friends

Family carers giving up their job

High levels of psychological morbidity,depression in carers

Caring positives: companionship, fulfilment

Impact on children


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Societal impact: World Alz Report 15

Systematic review of globaldata on prevalence,

incidence and cost of

dementia

Based on results of more

than 200 studies Key recommendations to

provide a global framework

for action on dementia

Independently researched

by Kings College Londonand Karolinska Institute

www.worldalzreport2015.org


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Estimated increase of people living

with dementia globally



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The global incidence of dementia



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The global prevalence of dementia



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The cost of global dementia care



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Impact on low and middle income

countries (LMICs)



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WHO reporton dementia

Launched on 11 April 2012

Joint ADI and WHO report

Recommends every countryto make a national plan

Also:awareness raising, timelydiagnosis, better qualitycontinuing of care, caregiversupport, workforce training,social and financial support,prevention and research andcreating a dementia-friendlysociety

www.alz.co.uk/WHO-dementia-report

Dementia: a public health priority


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First Ministerial Conference on

Dementia

World Health Organization 16-17 March 2015

80 countries attended Strong commitment from

WHO leadership Many LMIC speaking China: dementia growing

problem in our ageingsociety; need for more

awareness, education andtraining Declaration accepted Resolution and action plan

now prepared


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September 2015: Agreement on

sustainable development goals

Health priorities included innew SustainableDevelopment Goals (SDG) for

2030 SDG 3: Health and wellbeing

for everyone at all ages

Infectious diseases like HIV

Maternal and child health

Non Communicable Diseases(NCD): cancer, diabetes, heart,lung, dementia

Discussion on indicators stillgoing

United Nations (UN)


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About Alzheimers

Disease International (ADI)

Established 1984

The umbrella organisation ofAlzheimer associations

around the world83 member associations

Full partner in NCD Alliance

UN and WHO partnerships

Aims to help establish and strengthen associations,

raise global awareness about Alzheimer's disease and

other dementias and be the global voice representing

people with dementia and their families


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Member map 2014-15


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What do we do

ADI reports provide information and evidence for policy

Tracking of national plans in other countries on ADI-website

(www.alz.co.uk/national-plans)

Work with WHO in WPRO and SEARO regions

Full partner in NCD Alliance

Alzheimer University: training for staff and volunteers of

Alzheimer associations

Twinning Programme to link more and less establishedassociations

Train the Trainer to reach out with education to both family

carers and primary health care professionals
http://www.alz.co.uk/national-planshttp://www.alz.co.uk/national-planshttp://www.alz.co.uk/national-planshttp://www.alz.co.uk/national-plans


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Alzheimer University

Training programme forAlzheimer associations

Appropriate and reliable

information for

developingorganisational capacity

Annual programme for

emerging associations

Special programmes onadvocacy, fundraising,

organisational growth

and leadership

www.alz.co.uk/alzheimer-university


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ADI Twinning Programme

Twins include(d):India and UK

Indonesia and the Netherlands

Bangladesh and Western

AustraliaTurkey and Germany

Nepal and Australia Vic

Joins an established Alzheimer association and a

developing association in a mutually beneficial

relationship


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World Alzheimers Month 2015

Over 60 countriesparticipated

Memory Walks, mediaappearances andfundraising events

#WorldAlzheimersDaytrending on Twitter

www.worldalzmonth.org


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Involvement of

People with Dementia

Involved in conference,

Alzheimer University

and advocacy work

Personal stories featuredin every Global

Perspect ive newsletter

Specific position for

person with dementiaon Elected Board

Partnership with

Dementia Alliance

Internationalwww.alz.co.uk/icaniwill


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Stages of Acceptance(from ADI/WHO 2012)

Ignoring theproblem

Some awarenessFirst mediareporting

First caregiversupport

Buildingdementia

infrastructure:

Alzheimerassociation

Professionalmeetings

Training ofcaregivers

Advocacy efforts

More establishedassociation

Publication ofdata

Developingprofessionalguidelines

Policies andAlzheimer plans

or strategies

Standards ofdementia care

Legal framework

Public healthperspective

Normalisation

Acceptance ofdementia as a

disability


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Dementia Friendly Communities: New

domains and global examples

DFC efforts response to stigma and

exclusion

Six domains:

Public awareness and information access

Planning processes

The physical environment

Access and consideration for dementia among

local businesses and public services

Community-based innovation services through

local action

Access to transportation

Key strategic considerations


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