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Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ. Kidney Research UK is a limited company registered in England. Registered Company No. 905963 Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014) Your kidneys – looking after them A meeting for people who would like to know more about their kidneys
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Page 1: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Your kidneys – looking after them

A meeting for people who would like to know more

about their kidneys

Page 2: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• Explore benefits of self-care• Learn more about looking after yourself

and your kidneys• Get the best out of your appointments at

your surgery• And of course a chance to ask questions

Objectives of this meeting

Page 3: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Timing of the meetingIntroductionLearning about self-careFinding our more about your kidneysHaving a good appointmentFurther questionsFinish

Page 4: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Benefits of learning more about your kidneys

and how self-care can help youImproved self-care can result in improved health:•Improvements in general health and quality of life•Increased life expectancy•Stopping the kidney damage getting worse

Page 5: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

What is ‘self-care’?

• Taking an active interest in your health• Making small changes that you can do• Reading the Information booklet• This is part of it!

Page 6: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

What do the kidneys do?

Page 7: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

What do the kidneys do?

• Filter – remove waste and water from the blood (as urine, via the bladder)

• Clean the blood• Keep the bones healthy• Look after blood pressure

So, they are very important to our well being

Page 8: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Your kidney function: what your eGFR* blood test result means

*eGFR = estimated Glomerular Filtration Rate = how well your kidneys are working

STAGE eGFR KIDNEY FUNCTION

Stage 1-2 60-100 Normal

Stage 3a 45-60 Mild kidney damage - often related to age if the result is stable

Stage 3b 30-45 At risk of further damage - you can do a lot to help yourself

Stage 4-5 Below 30 You may be asked to see a specialist to help manage the things that can make kidney damage worse, such as high blood pressure

Page 9: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Classification of CKD (rev 2014)CKD is now classified by both estimated GFR (eGFR)

andthe level of protein in your urine (albumin:creatinine

ratioor ACR),

'G' denotes the GFR category and 'A' is used for the ACR

Category (A1–A3)

Both are an important measure of how well your kidneys are working and whether they are likely to get worse in the future

Page 10: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• Know your blood pressure• There are two numbers to know:

a top and a bottom number• Most people should have a top number

below 140 and a bottom number below 90

• If you have diabetes, the numbers should be below 130 and below 80

Looking after your kidneys:

:blood pressure

Page 11: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Consider checking your blood pressure at home

Looking after your kidneys: blood pressure

Page 12: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Ask your doctor or nurse about:• Ways to stop smoking• Self-management• Additional information resources• Support groups

Looking after your kidneys: stop smoking

Page 13: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• Understanding your tablets

Looking after your kidneys: tablets

Page 14: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• Blood sugar management• Annual urine test

Looking after your kidneys: diabetes

Page 15: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• Eating well for your kidneys• Reduce salt in your diet• Avoid low-protein diets• Lifestyle – exercise and weight

Looking after your kidneys: diet & exercise

Page 16: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Looking after your kidneys: finding out more

• Kidney education• Additional information resources• Remember to let other doctors

and nurses or chemists know that you have kidney problems

Page 17: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Summary• Know your kidney numbers (what stage are you?)• Look after your blood pressure• Look after your blood sugar (if you have diabetes)

• Reduce salt in the your diet• No smoking• More exercise• ......and ask more questions!

Page 18: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Timing reviewIntroductionLearning about self-careFinding our more about your kidneysHaving a good appointmentFurther questionsFinish

Page 19: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Having a good appointment

Getting the most out of your 10 minutes at the surgery

Page 20: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

The person with kidney disease is the one who:

• Makes the choices• Takes control• Lives with the results

Page 21: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

The reality of health care

3 hours / year of professional care leaves 8757 hours / year of self-care

Page 22: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

People who work with their doctor and nurse:

• Feel happier• Feel more informed• Feel more confident• Are more likely to stick with treatment•And tend to be more satisfied

Page 23: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Planning your appointment

• Take a friend along

• Jot down some questions

Page 24: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Planning your questions

Keep it simple – you only have 10 minutes What’s

theproblem?

Why is itimportant

?What can

wedo about

it?

Page 25: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

• First things first• Repeat back answers• Ask about meanings• Be clear

Asking your questions

Page 26: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

After today…

What might I do to become more involved in my kidney care?

Is there one particular thing I plan to do?

Page 27: Project supported by A Package of Innovation for Managing kidney disease in primary care Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2.

Project supported by

A Package of Innovation forManaging kidney disease in primary care

Registered Office: Nene Hall, Lynch Wood Park, Peterborough PE2 6FZ.

Kidney Research UK is a limited company registered in England. Registered Company No. 905963

Registered Charity No. 252892. Registered Scottish Charity No. SC039245 Slide Set 4 (rev Sept2014)

Thank you

Questions?


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