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R O G E R Z E M E K , M D , F R C P C
C H I L D R E N ’ S H O S P I TA L O F E A S T E R N O N TA R I O
M A R T I N O S M O N D , M D , F R C P C
C H I L D R E N ’ S H O S P I TA L O F E A S T E R N O N TA R I O
5P: Predicting and Preventing Postconcussive Problems in Pediatrics
What are key accomplishments in the past year?
IWK Health Sciences Centre
CHU Sainte-Justine Montreal Children’ s HospitalChildren’ s Hospital of Eastern Ontario
The Hospital for Sick ChildrenChildren’ s Hospital of Western Ontario
Children’ s Hospital of Winnipeg
Stollery Children’ s HospitalAlberta Children’ s Hospital
12
3
45
6
78
9
Not Eligible (n=1681)Eligible but cannot complete follow-up (n=34)Missing eligibility (n=52)
Eligible Patients (n=2199)
Consented (n=1708)English: (n=1468)French: (n=240)
Withdrew (n=68) Baseline (n=1640)
1 week follow-up (n=1408)
8 weeks follow-up (n=1089)
2 weeks follow-up (n=1335)
4 weeks follow-up (n=1245)
12 weeks follow-up (n=893)
Screened (n=3966)
Did not consent (n=479)1
Declined participation (n=434) RA not available to consent family
(n=43) Missing reason for non-consent (n=2)Missing Consent (n=12)
1 week follow-up not yet due (n=34); 87% rate
2 weeks follow-up not yet due (n=78); 85% rate
4 weeks follow-up not yet due (n=168); 85% rate
12 weeks follow-up not yet due (n=482); 77% rate
8 weeks follow-up not yet due (n=304); 82% rate
Baseline Characteristics
Characteristic Patients (n=1640)
Age (mean (SD)) 11.7 (3.4)
Female (%) 624 (38.0)
Previous number of concussions
0 1235 (75.3)
1 238 (14.5)
2 89 (5.4)
3 35 (2.1)
4 11 (0.7)
5 4 (0.2)
6 or more 5 (0.3)
Baseline Characteristics (continued)
Characteristic Patients (n=1640)
Longest symptom duration of previous concussion
Less than 1 week 159 (9.7)
1-2 weeks 90 (5.5)
3-4 weeks 58 (3.5)
5-8 weeks 24 (1.5)
8 weeks or more 46 (2.8)
Migraine 201 (12.4)
Family history of migraine 763 (46.5)
Learning disabilities 146 (8.9)
ADD/ ADHD 161 (9.8)
What are the major challenges or issues, if any?
Organizing neuropsychological testing English and French testing materials Possible bias to those still symptomatic
Contracts/Ethics at 9 hospitals Some delays up to 7 months
What percentage of your data is comprised of the International TBI Common Data Elements and what percentage are unique data elements?
100% overlap with Pediatric Concussion/mTBI data elements for acute setting (Isabelle Gagnon)PCSI (5-7, 8-12, 13-18)
95-99% overlap with International TBI CDE Unique to pediatric concussion
Child SCAT3 elements: BESS, cognitive screen