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Seizure Aid

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    What to do when someone has a seizure

    epilepsy

    rst aid

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    A large print text only version of

    this leaet is available from the

    Epilepsy Helpline on:01494 601 400

    (Monday - Friday 10am - 4pm)

    rst aidUsually when a person has an epilepticseizure there is no need to call an

    ambulance. However you should alwaysdial 999 for an ambulance if:

    it is the persons rst seizure;

    they have injured themselves badly;

    they have trouble breathing after the seizurehas stopped;

    one seizure immediately follows another with

    no recovery in between;

    the seizure lasts two minutes longer than is

    usual for them; or the seizure lasts for more than ve minutes

    and you do not know how long their seizures

    usually last.

    These guidelines are particularly relevant for

    tonic clonic (convulsive) seizures (see page 8).

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    What to do when someone has aseizure

    Knowing how to help someone during and

    after an epileptic seizure may help you, and

    them, feel more condent if a seizure

    happens. How you can help the person may

    depend on the type of seizures they have.

    If you know the person, they may have told

    you about their epilepsy and how you can

    help them if they have a seizure. If you dont

    know about their epilepsy, this leaet gives

    you some general guidance on how you can

    help if they have a seizure.

    Epileptic seizures

    The brain is made up of millions of nerve

    cells which control the way we think, move

    and feel. The nerve cells do this by passingelectrical signals to each other. In some

    people, these signals may suddenly be

    interrupted, and this can cause an epileptic

    seizure (sometimes called a t or attack).

    Are all epileptic seizures the same?

    There are many different kinds of epileptic

    seizure. How epilepsy affects one person can

    be different to how it affects someone else.

    Some people have more than one type

    of seizure.

    Some people only have seizures when

    they are awake.

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    Some people have nocturnal seizures.

    Nocturnal seizures happen when the

    person is sleeping. The name does not

    explain what type of seizures they are,

    only that they happen when the person is

    asleep.

    Some people have seizures when they

    are awake and when they are asleep.

    Most seizures happen suddenly, without

    warning, last a short time (a few seconds

    or minutes) and stop by themselves.

    Injuries can happen during a seizure, but

    most people do not hurt themselves and

    do not usually need to go to hospitalor see a doctor. (See inside front cover

    for details about when to call for an

    ambulance).

    Types of epileptic seizures and what to doEpileptic seizures can be divided into two

    main types: partial seizures and generalised

    seizures. Seizures can vary from one person

    to another and how people are affected and

    how they recover after seizures also varies.See NSE leaet epilepsy - seizures for

    more information about seizure types.

    Partial seizures

    In partial seizures the seizure starts in, and

    affects, just part of the brain. What happens

    during the seizure depends on where in the

    brain the seizure happens and what this part

    of the brain does.

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    Simple partial seizures

    In a simple partial seizure (SPS) the person

    is conscious (awake) and aware of what is

    happening to them. A SPS could be

    twitching of one limb or part of a limb, an

    unusual smell or taste, a strange feeling such

    as a rising sensation in the stomach or pins

    and needles in part of the body, or a sudden

    intense feeling of fear or joy.

    What to do during the seizure:

    although the person is awake and aware,

    SPS can feel unsettling so giving gentle

    reassurance may be helpful.

    Complex partial seizures

    A complex partial seizure (CPS) affects a

    bigger part of the brain than a SPS. In a

    CPS the persons consciousness is affectedand they may be confused. You might

    notice them wandering around or behaving

    strangely and they may not know what they

    are doing. They may pick objects up for no

    reason, ddle with their clothes or makechewing movements with their mouth.

    Afterwards, they may need to sleep; or they

    might be confused for some time. CPS may

    last from a few seconds to a few minutes.

    What to do during the seizure:

    do not restrain them as this may upset or

    confuse them;

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    gently guide them away from dangerous

    situations (such as walking into the

    road); and

    speak quietly and calmly so that they are

    not startled. They may be confused, so if

    you speak loudly or act forcefully this

    may confuse them more. They may

    mistake your help for being hostile, and

    respond in an upset or aggressive way.

    After the seizure stops:

    they may feel tired and need to sleep;

    they may be confused and not fully

    aware of their surroundings so it mayhelp to remind them where they are; and

    stay with them until they have recovered,

    and can safely return to what they were

    doing before the seizure.

    Some people recover quite quickly after theirseizures, others may take longer to feel

    normal again.

    Secondarily generalised seizures

    For some people SPS and CPS develop intoa generalised seizure (see below). When this

    happens the person becomes unconscious

    and will usually have a tonic clonic seizure.

    This is called a secondarily generalised

    seizure because it starts as a partial seizure

    and then becomes generalised. Some people

    call their partial seizure an aura or warning

    because it warns them that a generalised

    seizure may follow.

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    What to do during the seizure:

    if they are aware of an aura, they may

    need help to make themselves safe

    before the generalised seizure starts.

    Generalised seizures

    Generalised seizures affect all of the brain at

    once. The person becomes unconscious and

    afterwards will not remember what happened

    during the seizure.

    Absences (sometimes called petit mal)

    During an absence a person becomes

    unconscious for a short amount of time,usually a few seconds. They may look blank

    and not respond to what is happening around

    them. For example, if they are walking they

    may continue to walk, but will not be aware

    of what they are doing during the absence.

    What to do during the seizure:

    stay with them, and if necessary, gently

    guide them away from any danger.

    Tonic and atonic seizures

    In a tonic seizure the persons muscles

    suddenly become stiff. If they are standing

    they often fall backwards and may injure the

    back of their head. In an atonic seizure

    (also called a drop attack) the persons

    muscles suddenly relax, and they become

    oppy. If they are standing they often fall

    forwards and may injure their face or head.

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    Tonic and atonic seizures tend to be very

    brief and happen without warning. People

    usually recover quickly.

    What to do after the seizure:

    as they recover they may need

    reassurance. If they have been injured,

    they may need medical help.

    Myoclonic seizures

    Myoclonic seizures involve the jerking of a

    limb or part of a limb. They are brief and can

    happen in clusters with many happeningclose together in time. They often happen

    shortly after waking up from sleep. As they

    are so brief, there is nothing that needs to be

    done to help the person other than making

    sure they havent hurt themselves.

    Tonic clonic (convulsive) seizures

    (sometimes called grand mal seizures)

    When a person has a tonic clonic seizure

    they usually fall to the ground and makeshaking or jerking movements. During the

    seizure their breathing might be affected and

    they may go pale or blue, especially around

    their mouth. They may also bite their tongue.

    Although this can be frightening to see,

    these seizures are not usually a medical

    emergency. Usually, once the jerking has

    stopped, the person recovers and their

    breathing goes back to normal.

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    What to do during the seizure:

    try to stay calm;

    note the time to check how long the

    seizure is going on (because there may

    be a risk of status - see page 11);

    move objects, such as furniture, away

    from the person if there is a risk of

    injury. Only move the person if they are

    in a dangerous place; for example, at the

    top of stairs or in the road. See photo 1;

    put something soft (like a jacket or

    cushion) under their head, or cup their

    head in your hands, to stop their headhitting the ground. See photo 2;

    do not restrain them, allow the seizure to

    happen;

    do not put anything in their mouth - there

    is no danger of them swallowing theirtongue during the seizure; and

    try to stop other people from crowding

    around.

    photo 1 photo 2

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    10

    What to do when the jerking (convulsing)

    has stopped (recovery):

    roll them on to their side into the

    recovery position (see page 15);

    wipe away any spit and if their breathingis difcult check their mouth to see that

    nothing is blocking their airway, like food;

    try to minimise any embarrassment. If

    they have wet themselves, deal with this

    as privately as possible; and stay with them, giving reassurance, until

    they have fully recovered.

    Some people recover quickly after these

    seizures but more often the person will be

    very tired, may want to sleep and may not

    feel back to normal for several hours or

    sometimes days.

    Status epilepticus

    Most peoples seizures last the same length

    of time each time they happen, and usually

    stop by themselves. However, sometimes

    seizures do not stop, or one seizure followsanother without the person recovering in

    between. When a seizure goes on for 30

    minutes or more it is called status epilepticus,

    or status for short.

    Usually when a person has a tonic clonicseizure there is no need to call for an

    ambulance. However you should always dial

    999 for an ambulance if:

    it is their rst seizure;

    they have injured themselves badly; they have trouble breathing after the seizure

    has stopped;

    one seizure immediately follows another with

    no recovery in between;

    the seizure lasts two minutes longer than

    usual for them; or

    the seizure last for more than ve minutes

    and you do not know how long their seizures

    usually last.

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    11

    Status epilepticus

    Most peoples seizures last the same length

    of time each time they happen, and usually

    stop by themselves. However, sometimes

    seizures do not stop, or one seizure followsanother without the person recovering in

    between. When a seizure goes on for 30

    minutes or more it is called status epilepticus,

    or status for short.

    Status can occur in any type ofseizure and the person may need to see a

    doctor. However, status in a tonic clonic

    (convulsive) seizure is a medical emergency.

    It is important to call for an ambulance before

    the seizure goes on too long. Do not wait

    until it has lasted 30 minutes before calling

    for help.

    See the information box on page 10

    for when to call for an ambulance.

    Some people who go into status areprescribed a form of emergency (or rescue)

    medication called diazepam to stop their

    seizures. Sometimes this is given rectally

    (into the persons bottom). Carers will need

    training on how to give rectal diazepam and itis important to have a written protocol (plan)

    for each individual, for the carer to follow.

    See NSE leaets epilepsy medication

    for adults or epilepsy medication

    for children for more information aboutmedication for status.

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    How else can I help?

    Because people are often not fully aware

    during their seizures they might not know

    what happens to them. Other people who

    have seen the seizures can often provideuseful information for the GP or neurologist.

    An eyewitness description like this may

    help to diagnose and identify what type of

    seizures a person is having.

    If you see someone having a seizure, it can

    be helpful to note the following things.

    Where were they and what were they

    doing before the seizure?

    Did you notice their mood change - were

    they excited, anxious or quiet?

    Were there any triggers for the seizure

    did they feel tired, hungry or unwell?

    Did they have any warning that the

    seizure was going to happen?

    Did they have any unusual sensations,such as an odd smell or taste?

    What made you notice the seizure (a

    noise, did they fall or did their eyes roll)?

    Did they appear to be blank or stare

    into space? Did they lose consciousness or were

    they confused?

    Did they do anything unusual such as

    mumble, wander about or ddle with their

    clothing? Did their colour change (become pale or

    ushed) and if so, where (face or lips)?

    Did their breathing change (e.g. become

    noisy, or look difcult)?

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    Did any part of their body move, jerk or

    twitch?

    Did they fall down, or go stiff or oppy?

    Did they wet themselves?

    Did they bite their tongue or cheek? How long did the seizure last?

    What were they like after the seizure?

    Did they need to sleep?

    How long was it before they were able to

    carry on as normal? Did you notice anything else?

    What do I need to know about someones

    epilepsy?

    There are some things it can be useful to

    know about someones epilepsy, so you can

    help them if they have a seizure.

    What types of seizures do they have?

    For example, complex partial seizures or

    absences.

    How long do their seizures normally last?Epileptic seizures usually stop by

    themselves. Although the length of

    seizures is different from person to

    person a seizure usually lasts the same

    length of time for each person. How often do they have seizures?

    Some people keep a note of when their

    seizures happen, in a seizure diary.

    Contact NSE for a free seizure diary.

    Are their seizures usually triggered orbrought on by anything, such as stress

    or tiredness?

    Do they have a history of status? If so,

    do they need emergency medication?

    (See page 11).

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    onalS

    ocietyforEpilepsyMay20

    07

    Join NSEs Associate Membership Scheme

    to receive regular information about epilepsy.

    Please contact the Associate Membership

    Co-ordinator on 01494 601 402 for details.

    For other information please write to

    Epilepsy Information Services

    National Society for Epilepsy

    Chesham Lane

    Chalfont St. Peter

    Bucks SL9 0RJTelephone 01494 601 300

    Fax 01494 601 337

    www.epilepsynse.org.uk

    Epilepsy Helpline

    01494 601 400Monday - Friday 10am - 4pm

    Every effort is made to ensure that all our information is

    correct and up to date. Please note that some information

    may change after the date of printing. This information is not

    intended to be a substitute for medical guidance from your

    own doctors. NSE cannot be held responsible for any actions

    taken as a result of using NSE information resources.

    Registered Charity Number 206186.

    Founded in 1892. Patron Her Majesty The Queen.


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