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aprojectof
Taking Charge:
Tips for Self-Advocates
Presented by Self Advocates Becoming
Empowered
8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Taking Charge: Tips for Self-Advocates
If you find it hard to give
feedback to your support
staff This webinar is for you!
By Self-Advocates Becoming Empowered
Max Barrows, Nicole LeBlanc and Katy Griffith hire and supervise their own
staff. The experience can be a rewarding one. Learn how to get your support
staff to do what you need them to do. We share tips on how to be your ownboss. Learn about hiring and firing staff and being in charge of your services.
It is important to be proactive (not just reactive) in managing your staff.
Presenters draw from personal experience to provide tips on training,
supervising, giving feedback to your team and guide you through challenging
situations that you may potentially encounter. This webinar may be helpful for
family members who hire and supervise support staff. 2
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ResourcesA toolkit For People With Disabilities: Find, Choose and Keep Direct Support
Professionals
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf
Self-Directing Supports in North Dakota
http://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdf
Oregons - How Do I Hire and Direct Employment Support Providers?
http://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdf
Your Life Your WaySelf-Directed Supports in Florida
http://www.fddc.org/sites/default/files/file/publications/10001009.PDF
A Guide For Self-Directing Services from Georgia
http://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF
%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdf
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http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://www.fddc.org/sites/default/files/file/publications/10001009.PDFhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/SELF%20DIRECTING%20GUIDE%20FOR%20FAMILIES%20Final.pdfhttp://www.fddc.org/sites/default/files/file/publications/10001009.PDFhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://cow.waisman.wisc.edu/Documents/SDS_WI%20stuff/employ_toolkit.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://www.nd.gov/dhs/services/disabilities/docs/self-directed-support-workbook.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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ResourcesNational Resource Center for Participant-Directed Services
http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.html
University of Minnesota: Consumer/self-directed services
http://ici.umn.edu/index.php?topics/view/29/
We Have Choices: A free video by Self Advocates of New York State
Http://rtc.umn.edu/rtcmedia/wehavechoices/
Connecticut Self-Directed Supports Free Toolkit
https://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asp
Self-Directed Services ToolkitNew Yorkhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdf
Kansas Self-Direction Tool Kit
http://www.kacil.org/self-direction-toolkit/
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http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.htmlhttp://ici.umn.edu/index.php?topics/view/29/http://rtc.umn.edu/rtcmedia/wehavechoices/https://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://www.kacil.org/self-direction-toolkit/http://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttp://cwinc.org/assets/pdf_files/Self%20Directing%20Tool%20Kit-Handbook%20Version.pdfhttps://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttps://www.ctcommunitycare.org/Content/Self_Directed_Supports_Program_1.asphttp://rtc.umn.edu/rtcmedia/wehavechoices/http://rtc.umn.edu/rtcmedia/wehavechoices/http://rtc.umn.edu/rtcmedia/wehavechoices/http://ici.umn.edu/index.php?topics/view/29/http://ici.umn.edu/index.php?topics/view/29/http://www.bc.edu/content/bc/schools/gssw/nrcpds/whoweare.html8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Webinar Agenda:1. The Basics: Knowing Yourself (What You Want To Do And
What You Need Help With) And Advocating For Yourself
2. Communicating With Your Support Worker
3. Role Play Communicating When Things Are NOT Going Well
4. Finding And Hiring Someone To Assist You
5. Role Play How To Communicate What You Need During An
Interview
6. Max Barrows Interviews Katie Griffith From Arizona
7. Training And Evaluating
8. You Have Choices
9. Realities And Responsibilities Of Being An Employer
10. The Pros And Cons Of Managing Your Own Services
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So You Want To Be In Charge
When It Comes To Your Support Staff?
Begin by asking yourself
What do I need?
How do I want someone to
assist me?
Am I going to get along with
the person?
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It Is All About Building Relationships!
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The Hard Stuff
Communicating while things
are NOT going well!
Making an I Statement.
I feel____________
when you_______________.I need you ______________.
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Role Play
You have set the expectation that there will be no cellphone use on your time. Your support worker is
texting or talking on the phone all the time. How
would this make you feel?
Happy
Annoyed
Frustrated
I feel annoyedwhen youre on the
phone all the time.
I need you not to do that
when you on the clock. 10
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Communicating when things are going well is
just as important. You may ask why?
Creates a better work environment
Show trust
It helps your support worker feel they aredoing their job well
Helps them continue doing things the wayYOU want.
Helps maintain a good relationship.
Communicating with your
Support Worker
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Steps To Figure Out What Kind Of Person You Want To Hire
Step 1: Describe your current and past staff.
What do you think they liked about working with you?
What do you think they disliked about working with you?
What was important to them?
Step 2: Describe yourself
What is important to you?
What do you like to do?
What are the good and hard parts about working with you?
Step 3: Identify reasons people have left their job with you
Why have people left their job with you in the past?
Is there anything you can change so this will not happen again?
Step 4: Where can you find the people you are looking for?
Step 5: Here are some ways to let people know about the job
Spread the word by talking to friends, family members, relatives and co-workers. If you meet someone who seems right for the job, ask them to consider interviewing for it.
Post flyers that describe who you are, the type of support needs you have and the kind of person
you want to work with you.
Write and place articles in local newspapers or bulletins about who you are and what type of
support you are looking for.
Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionalshttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 12
Before
You
Interview
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Nicoles Hiring Tips
Think about your favorite staff personWhat did you like about the person?
What was going on in their life?
Where did they live?
Were they a man
or a woman?
How old were they?
When did they leave
and why?
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Before
You
Interview
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Maxs Hiring TipsMake a list of what you want the person
to know and be able to do? Be Good with computers
Interested in traveling
Make of list of your requirements Be on time
Be willing to work extra if my other staff are not
available
Be specific, describe what is really
important to you What things do you do everyday?
What accommodations work best for you?
What really bothers you?
What embarrasses you? 14
Before
You
Interview
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More Tools For Recruiting Support StaffCircle the qualities you are looking for in a person!
Assertive
Balanced
Calm
Caring
Committed
Common sense
Communicative
Compassionate
Conscientious
Consistent Cooperative
Creative
Decisive
Dependable
Determined
Diplomatic
Empathetic
Encouraging
Enthusiastic
Flexible
Good sense of
humor
Honest
Insightful
Takes initiative
Mature
Modest
Objective
Organized
Patient
Positive
Professional
Punctual
Resourceful
Respectful
Self-directed
Sincere
Smart
Understanding
Visionary ______________
______________
______________
Adapted from: A toolkit for people with disabilities looking for
quality, caring and committed direct support professionals
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf15
Before
You
Interview
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Describe the Job
Interviews
Check references
Find out what experiences a person has that
are directly related to what your needs are
Criminal background checks
Learn about Non-Discrimination
Finding and Hiring Support Staff
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A Few of Nicoles Interview Questions
1. Tell me about Yourself2. I see you have experience with
working with adults with ASD andyou are computer savvy can youtell me more about this?
3. Give me an example of how youhandled a person with ASD have apanic attack, energy release, andor exhibiting extreme stress?
4. Do you have experience withdealing with adults who are pickyeaters?
5. Are you good at teaching people
how to deal with finances? 17
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More Sample interview questions
Why do you think you would like this job?
Tell me about where you have worked in the past and how long you
were there. What was your reason for leaving?Describe a typical day in your most recent job working with people
with disabilities. What was your favorite thing to do? What was your
least favorite?
What goals do you have for your future career?
Describe a disagreement or conflict you had at your most recentjob. What happened? What did you do to resolve it?
Tell me about the most difficult situation you have ever
encountered and how you dealt with it.
Describe a time when you helped someone you supported
advocate for something they really wanted. What was the situation?
What did you do and say? What happened? What did you learn?
My friend wants to learn how to cook but her mother is afraid she
wont be safe in the kitchen. If you worked with my friend, how
would you help her learn to cook? What would you say to her
mother about her safety concerns?
Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionalshttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 18
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Max Barrows Interviews Katie Griffith From Arizona
1. We have been talking about different ways
people manage their services. Do you manageyour services or do you have an agency do it?
2. What led you to that decision?
3. Do you have support staff?
4. Do you hire your own staff or does thecooperative give you a list to choose from?
5. How do you supervise your support staff?
6. If your support staff is late all the time, how
would you handle it?7. What advice do you have to communicate
with their support staff effectively?
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In Most States
You Have A Choice
Services managed by an Agency
Shared Management of Services
Self/Family managed services
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Realities And Responsibilities Of
Self/Family Managing Your Services
You are not alone! Each state has organizations
who can help. For example:
Supportive Intermediary
Service Organization (SISO)
Fiscal (Money) Intermediary
Service Organization
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Paperwork you need to do: Emergency facts sheet
Guardianship documentation Initial Assessments/evaluations supporting eligibility
Annual needs assessments/periodic review
Individual Support Agreement (ISA).
Responsibilities
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Budgets:
ISO will help you create abudget every year
Keeping track of how muchyou have and how muchyouve spent
If your budget faces a cut, youhave to prioritize yourspending.
Responsibilities
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Why Choose To Self-manage Your Services?
To take charge of their life. You have knowledge and
control of your budget.
You have control of who isinvolved in your life.
You have control overmeetings.
Less system paperwork
Pay your staff a livable wage
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Welcome Your New Support Person And Begin Training
What skills and values does a support person need to help you reach your dreams?
What do you need and want the support person to do?
Ask the support person to show you or tell you how they would support you.
For example, you could ask the support person the following
How would you assist me to save up for a trip?
How would you help me get a tattoo?
What would you do if I wanted your support to go on a date?
Build on the knowledge, skills and attitudes that your support person already has
KnowledgeA support person may know what a catheter is, but maybe needs
to learn more about what community inclusion means.
SkillsA support person may be able to make meals and follow directions, but
may need to learn how to clean your room the way you want it done.
AttitudesA support person respects your beliefs and choices and supports youto do things that are important to you, even if he or she does not agree with the
importance of an activity.
How can you best teach the support person to support you the way you want?
Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionals
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 25
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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More Suggestions For Giving Staff Feedback
Giving feedback is a positive way to support the staff person
Review how the support person's is doing often, like every
month or two.
Tell the support person what he or she is doing well.
Explain what the support person could do better.
Listen to the support person's concerns about the work
situation.
Ask questions about how the support person can support you
better. Be clear about what you expect on the job and how to do it.
Provide the right tools so the support person can do the job
better.
Celebrate the support person's good work.
If you need to tell support persons how to do something better, askyourself the following questions
How would you like to hear the feedback you are giving?
How will you tell your support person about the things they
could do better?
Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionals
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 26
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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EVALUATION: Work Review And Improvement Plan
List the top three things you want your support person to do:
How well is the support person supporting your needs and wants?
List the tasks or duties that the support person knows and can do best:
List the tasks or duties that the support person might be able to improve on:
List some ways that the support person has continued to grow
List some duties or responsibilities the support person would like to or needs to
know more about:
Work and professional growth plan. Do this plan together with your support person.Use the information you and your support person have talked about in the support
persons performance review to help guide you in creating this plan.
Describe 2 or 3 goals to help the support person improve their work and continue to
grow professionally.
State specific action steps the support person will take to meet their goals:Describe the resources and supports the support person will need to meet their
goals. How will you help the support person achieve these goals?
How will you and the support person celebrate when the goals are achieved?
Adapted from: A toolkit for people with disabilities looking for quality, caring and committed direct support professionals
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf 27
http://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdfhttp://ildspinitiative.com/docs/ToolkitforPeoplewithDisabilites.pdf8/13/2019 Self Advocates Becoming Empowered Webinar with Autism NOW September 10 2013
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Website:
www.autismnow.org
Information & Referral Call Center:
1-855-828-8476
PowerPoint/Recording:
Email Phuong ([email protected]) to requestmaterials!
http://www.autismnow.org/http://www.autismnow.org/mailto:[email protected]:[email protected]://www.autismnow.org/http://www.autismnow.org/