SLP UK Personal is at Ion Cardiff Oct 11

8/3/2019 SLP UK Personal is at Ion Cardiff Oct 11

1/17

www.sharedlivesplus.org.ukwww.communitycatalysts.co.uk

Shared Lives and personalisation

Alex Fox, CEOShared Lives Plus

www.SharedLivesPlus.org.uk

http://alexfoxblog.wordpress.com

Karl and Clare with carers Blossom and Mike, at

their wedding, before moving to live independently


2/17


Personalisation

The culture change towards people being in control of their

services and their lives, living in and contributing to their

chosen relationships, families and communities.

Choice of service as part of achieving this.

The mechanism change of personal

budgets and Direct Payments.

Increasing focus on community

participation and contributions.


3/17


Lack of recognition of the family as the main unit of support.

Isolation and individualism: independent living doesnt always

mean living alone. What about inter-dependent living?

You offer a service when I need

a relationship.

Shared Lives introduces a

distinctive choice into the

market place of providers.

Personalisation - challenges


4/17


No clocking on and off: Shared Lives support is flexible

and not paid by the hour.

Mixing paid and unpaid care and support contributions.

Not a professional/client transaction: a real relationship,formed after an extensive matching process.

Moving away from the gift model: everyone contributes.

Shared Lives:

personalised features

Unpaidfamily

care

Professionalpaid hourly

care

Shared

Lives

Fostering Peer

support

BefriendingHomeshare


5/17


Personal budgets (England)


6/17


Shared Lives is compatible with personal budgets.

If the Shared Lives scheme is delivered by an independent

organisation, Shared Lives can be purchased using a Direct

Payment.If Shared Lives is delivered by the council (in-house), in

England, it is not lawful to pay for it using a Direct Payment.

Solution: simply take a mix and match approach. The

individual can opt to have some or all of their personal budgetallocated to their Shared Lives service. Any allocation left over

could be taken as a Direct Payment.

Using Direct Payments


7/17


SharedLivescarer

SharedLives

worker

theirfamily

the

person

their

advocate

Caremanager

What are the roles of:the individual (with their

advocate(s)?

The Shared Lives carer?Shared Lives workers?

The care manager?

Choice and decision making in

Shared Lives


8/17


Direct Payments and the

suitable person

Someone using Shared Lives may have a Direct

Payment, a personal budget or some money of their

own with which to purchase additional support.

Often they will need support to manage their moneyand any contracts they enter into.

They might get this support from a broker or someone

who is named as a Suitable Person, who assumes

legal responsibility for managing money, contracts andemployment arrangements.


9/17



Could a Shared Lives carer be named as the individualsSuitable Person?

A Suitable Person may need to be the employer of an

individuals personal assistant, but a Shared Lives carer

cannot employ somebody to deliver support.Personal budgets are not always used to employ a personal

assistant. But any Shared Lives carer acting as Suitable

Person would need to think through any conflicts of interest

and the risks to both parties.The Shared Lives carer could find themselves in control of a

large part of the service users life and legally responsible for

care packages.


10/17



Its important to focus on the end goal of personalisation:

offering choice and control, not using Direct Payments.

There are alternatives to the Shared Lives carer managing

the money of someone who lives with them:

The individual could receive support from a specialist

broker.The individual may have a family member or someone else

to they wished to name as a Suitable Person.The individual could ask the council or another organisation

to manage their budget.


11/17


Shared Lives services are at different stages in ensuring that

Shared Lives is delivered in a way that promotes independence,

choice, meaningful activities and opportunities to progress to

other settings, as well as the opportunity to establish a long term

home and community.

We recommend that Shared Lives providers and commissioners

review the outcomes being achieved by Shared Lives and

develop an action plan.

What would a highly personalised Shared Lives experience

look like?And one which wasnt personalised?

Shared Lives: how

personalised is your scheme?


12/17


Highly personalised Shared Lives Shared Lives in need of development

People are regularly enabled to set and

revise personal goals and have clear

action plans for achieving them.

People access independent advocacy and

peer support and have a clear voice in the

development of the Shared Lives service.

People who use Shared Lives have little

access to independent advocacy, peer

support or ongoing care management.

Shared Lives carers feel they are left to

advocate on behalf the person they

support.

People have many opportunities to take

part in meaningful activities, including

volunteering, membership of clubs or

activities which are not specifically for

disabled people and paid employment.

People spend much of their day within the

Shared Lives household with few

opportunities for outside activities.

Shared Lives: how



13/17


Highly personalised Shared Lives Shared Lives in need of developmentIndividuals can progress to different

settings, or stay put, as the person prefers,

with choices regularly reviewed.

There is an assumption that people using

Shared Lives for support and

accommodation will stay there forever.

People who use Shared Lives have astrong sense of belonging within their

family and community and have a number

of unpaid relationships. They are able to

pursue friendships and sexual

relationships as they wish.

People feel like tenants or service userswithin their homes.

People are not visible or active within their

community and have few unpaid

relationships.

Shared Lives carers are supported to take

a structured approach to helping people to

learn independent living skills.

Shared Lives carers access little or no

training on delivering personalised support

and have a poor understanding of

personal budget approaches.

Shared Lives: how



14/17


1. The Shared Lives scheme has been cut out of the arrangement.

If either the commissioner or the service user contracts directly with the carer, that

carer is no longer providing regulated Shared Lives care. They may be an

employee, or running a small residential care home.

2. There is no intention to share family life or use the Shared Lives carershome as a resource.

Shared Lives is always about sharing home and family life. The carers house feels

like a family home. In Shared Lives day support, the person using the service

may not wish to go to the Shared Lives carers home all the time, but the

Shared Lives carer should make their home available as a resource. The

Shared Lives tax break depends upon actual use of the home, not intentions.

3. There is no matching process.

The matching process can take time. Rushing the matching process increases the

risks of the match breaking down.

Its not Shared Lives if.


15/17


Comparing Shared Lives with

directly employing a care worker

Paying the provider directly is a valid alternative to Shared Lives, but there are risks:

1.There may be no Plan B and no safeguarding procedures.

2.The care provider may be a residential care home or domiciliary care provider.

3.A person paid by another individual to provide regular support is very likely to be

that individuals employee (not self-employed, as is the case with Shared Lives

carers) regardless of any verbal or written agreement to the contrary. Consider the

insurance, minimum wage National Insurance/ PAYE.

4.You cannot lawfully claim the Shared Lives tax break for work which is not carried

out as part of regulated Shared Lives activity. To do so could lead to prosecution.

5.The Shared Lives exemptions to landlords regulations would not apply e.g. HMO

6.An arrangement in which a persons landlord is also their employee could easily

become unhealthy for either party.

7.Shared Lives public liability insurance would be invalid.


16/17


Our recommendations for those providing and commissioning Shared Lives are:

1.Raise awareness of Shared Lives as an option.

2.Consider the possibility of developing Shared Lives for a wider range of

service user groups.

3.With people using the service, review the extent to which Shared Lives is

delivering choice, control, independence, meaningful activities, opportunities for

employment, and a sense of belonging.

4.Educate professionals about Shared Lives processes.

5.Examine the business case for developing Shared Lives locally to decrease

reliance on residential care.

6.Ensure that your Resource Allocation Systems (RAS) works for Shared Lives.

7.Sound out potential partners in the NHS, older peoples services, mental

health services



17/17


Alex Fox

[email protected]

www.SharedLivesPlus.org.uk;

07738641897http://alexfoxblog.wordpress.com

Twitter: @AlexatNAAPS

Sian Lockwood, CEO, Community Catalysts

[email protected]

www.communitycatalysts.co.uk

Contact details
mailto:[email protected]:[email protected]

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SLP UK Personal is at Ion Cardiff Oct 11

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