Date post: | 21-Nov-2014 |
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Joyce Lee, MD, MPH
http://joycelee.me/
Twitter: @joyclee
Social Media & Academic Medicine:
Dangerous Liaisons?
Ok, that was a
provocative title to
get your attention
The real title of
the talk is:
“10 Reasons why
you should
consider using
social media”
My Disclosure:
I am currently Social Media Editor
for JAMA Pediatrics
But first, what is
social media?
Social Media
Web-based and mobile technologies used to turn communication into
interactive dialogue between organizations, communities, and
individuals
Social Media
What is Twitter?
It’s a microblogging platform,
a place to have a conversation
How do you use Twitter?
First, set up your profile:
Who are you?
What do you care about?
An Unengaging Profile
“Who is this egghead?”
An Engaging Profile (s/p a social media intervention)
Show people what you care about and how to learn more about you
To tweet, hit this button
Tweet
You only have 140 characters to say something
Tweet
Share something that you think is interesting
Tweet
Include a link to provide more comprehensive information
Use a link shortener to save space
Use #hashtags
#Hashtags are used by the community to label groups and topics
#mhealth = mobile health
Follow individuals on Twitter; and they can also follow you.
Use mentions to reach out to specific individuals
Retweet someone else’s tweet
Retweets are like citations
“RT”- A reposting of someone else’s tweet “MT” – A reposting and modification of
someone else’s tweet “H/T” – “Hat tip” to recognize the source of
information you found
So now you know how to use
Social Media, but why would a doctor use it?
You don’t feel like tweeting your morning breakfast
You’re not Miley Cyrus
You have better things to do than put your math skills on display
Neither are you mother monster (Lady Gaga)
You don’t make cakes to resemble the papers that you
publish
You are not a celebrity doctor
Plus, haven’t you heard that “social media and medicine
is a dangerous mix”?
60% of US medical schools reported incidents of students posting unprofessional online content 13% reported violations of patient confidentiality 52% reported student use of profanity 48% reported frankly discriminatory language 39% reported depiction of intoxication 28% reported sexually suggestive material
JAMA, 2012
“Professionalism and social media can be an uneasy mix...”
BMJ, 2012
but there are a few principles to follow as a physician
on social media
If you have a personal account, separate it from your professional one
Dr. Joyce Lee Associate Professor
by day
Lady Gaga by night
“Don’t Lie, Don’t Pry Don’t Cheat, Can’t Delete Don’t Steal, Don’t Reveal”"
Follow the 12-word Social Media Policy from the Mayo
Clinic
Remember HIPAA!
-Dave Ekrem http://bit.ly/1349R9M
Don’t talk about patients, even in general terms
If you wouldn’t say it in an elevator, don’t say it online
Why should you consider taking the plunge?
First: To follow movements and
people that can help inform your work/research
I follow the Quantified Self Movement since I am interested in Mobile Technology
Mood Tracker
Heart Rate Recorder
GPS Logger
Sleep Monitor
Calorie Counter
Pedometer
I follow the hashtag: #quantifiedself
I followed the Quantified Self Conference hashtag to learn the highlights: #qs2012
I engage in real-time conversations through a Tweetchat: #qschat
Wow, quantified self already has a curated guide of 500+ tracking tools!
Super useful for my research
And I discovered Eli from Notch.me,
who is teaching me a ton about user
research, motivational
visualizations and email campaigns
Because I follow #dataviz people, I found this meetup
and stumbled upon d3, a powerful visualization tool
d3 is what we will be using to create web-based visual dashboards for our
mobile technology work
Check out this first prototype There are many more to come!
http://goo.gl/NWjwdw
Google “Healthcare Hashtag Project” to find hashtags, conferences, tweetchats
of interest to you
Also, consider following some of the great curators, like Patricia Anderson
who tweets and blogs
Because of her, I found this great article about #mhealth uses of urine
Which led to my discovery of “extreme” uses of #mhealth, which I
may not want to replicate
http://goo.gl/glTqJ1
Second: To crowdsource solutions to your research problems
and find collaborators
I asked @pfanderson this question on Twitter
She asked the question on the #hcsm tweetchat and used Storify to curate the content so that I could have real-
world examples for my talk
Here is an example of the traditional way to seek help: Go Local
They kindly responded….
But when I downloaded the app I wasn’t sure what this meant
So I tried colleagues on Twitter instead
And they responded in less than 45 minutes
Because of Twitter, I was able to connect with Deb Estrin
Which lead to grant submissions, &…
Where I met Margie Morris, PhD, Clinical Psychologist and Senior Researcher at
Intel, who visited me while in the Bay Area
And then introduced me to Wendy Ju, PhD Director of the Stanford Design Research Lab,
with whom I am collaborating on design research and designing innovative mobile interfaces
Attending the invite-only Computing Community Consortium Meeting (NIH/NSF)
Third: To provide you with
information to help with your traditional research endeavors
We could not have written this paper with Pubmed alone
the cycle of publishing is too slow to have relevant real-time information
compared with
With
I follow @MobiHealthNews on Twitter, whose site gave us the relevant
information we needed
Fourth: To provide you with tools to
help with your traditional research endeavors
11:23 AM
11:41 AM
11:49 AM
12:07 PM
With social media, the task took less than 1 hour! (It would have been
30 hours to do by hand)
Is an amazing and generous community of individuals
always willing to help
As you can see,
Fifth: To translate your research
Check out this blog post: http://goo.gl/STmMDQ
“Research (by two blogging economists at the World Bank) suggests that academic papers cited by bloggers are far more likely to be
downloaded. Blogging economists are regarded more highly than non-bloggers with
the same publishing record.”
An increasing number of scholars are on Twitter, leading to…
Guidance on
And guidance on how to cite a Tweet
Sixth: Unexpected Networking
I met @DCDelMonte virtually through @DoctorNatasha,
who I know virtually
And you can even meet people in your own institution!
Shortly after following our Chief
Information Officer @sgschade on Twitter
She followed me
I was invited to speak at a
Design Conference (an MD at a
design conference?)
• Media Interviews
• Workshop Presentations
• Lecture Invitations
• Committee Invitations
• Grant Opportunities
• Dissemination
Vineet Arora talks about “Twitter to Tenure: 7 ways social media
advances my career”
@FutureDocs
@aaronecarroll is often cited by Paul Krugman
Seventh: To create new
opportunities for education and engagement
The editor in chief is now tweeting
The monthly clinical case challenge
Is now on Twitter
And creates a conversation
There are Journal Clubs happening exclusively on Twitter, like @iurojc who call themselves
the Uro-Twitterati
Eighth: To be part of a larger dynamic and real-time conversation that
can lead to new ways of approaching clinical care and
research
I witnessed the most amazing example of use of mobile
technology and social media by following @HugoOC,
a heroic patient advocate
http://goo.gl/PPNpYq
Ninth: Your Patients
To share insights with your patients before they arrive to
clinic, so that you can start the conversation in a different place…
Check out @SeattleMamaDoc and @DoctorNatasha
To learn from your patients
I learn so much about diabetes from the Diabetes Online Community (DOC)
myglu.org
Glucose Sensor + Flovent = Rash-free?
iSeismometer iPhone app + CGM on nightstand = effective alarm
To understand the needs of the patient community & connect patients with
online peer support
“The diabetes online community may serve many communication purposes, but at the core, it’s built for connecting
people to people…Social media has saved lives in the diabetes community. It has helped people who are struggling with their diabetes to take control and
improve their health” -Kerri Sparling
We will fail in our mission to perform important and relevant research and to
improve clinical care, if we do not:
Tenth, finally,
a personal story
My kids have multiple severe food allergies, with reactions
leading to anaphylaxis and trips to the ER
See the allergy action plan that we were given, in serious need of
a design makeover
How was I going to communicate this to the teacher in a face to face
encounter lasting <30 sec?
Riskbites.org @science2020
Inspired by other social media teaching tools, my son B and I put together allergy videos to teach
his caregivers
The first week of school his teacher broadcast it during
announcements to the entire school of 700+
students & 40 teachers
Design Workshop
Then @dennisjboyle of IDEO showed it to 60+ Health Tech
Entreprenuers/Clinicians/Researchers at the
Then @SeattleMamaDoc posted a blog about it and tweeted it to her 10,000+
Twitter Followers
And then @SusannahFox wrote a blog post about it
and tweeted it to her 10,000+ Twitter
Followers
Now that’s the power of social media:
The lessons of a 6 year old boy propagating through the
twitterverse
I now write the URL for B’s blog on
all the school forms http://ihavefoodallergies.tumblr.com
Social Media is not going away
Questions? @joyclee
joycelee.me joycelee.tumblr.com
Thanks to: Hyoung O. Lee, MD, Heeja Lee, E, B, & S,
Valerie Castle, MD, Sarah Clark, MPH, Matthew Davis, MD, MAPP, Gary Freed, MD, MPH, James Gurney, PhD, William Herman, MD, MPH, Ram Menon, MD, Paul Wise, MD, MPH,
Patricia Anderson & the DOC
NIDDK K08DK082386