Social Media & Health

Anatoliy Gruzd

Philip Mai Sarah Visintini

Associate Professor, Director of Social Media Lab

Dalhousie University

Research & Communications Manager,

Social Media LabDalhousie University

System Administrator,Social Media Lab

Dalhousie University

Panel Presentation for the Integrated Health Research Training Partnership (IHRTP)

Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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Dalhousie UniversityFaculty of Management

School of Information Management

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Social Media Lab

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Growth of Social Media and Social Networks Data

Facebook

1B users

Twitter

500M users

Social Media have become an integral part of our daily lives!

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How to Make Sense of Social Media Data?

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How to Make Sense of Social Media Data? Social Network Analysis (SNA)

Nodes = Group Members/People

Edges /Ties (lines) = relations / Connections

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• Reduce the large quantity of data into a more concise representation

• Makes it much easier to understand what is going on in a group

Advantages of Social Network

Analysis

Once the network is discovered, we can find out:• How do people interact with each

other, • Who are the most/least active

members of a group, • Who is influential in a group,• Who is susceptible to being

influenced, etc…9

Social Media Use during the 2011 Canadian Federal Election

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Political Polarization on Social Media

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#1b1t Twitter Book Club

#tarsand Twitter Community

• Communication of specialized health-related information in blogs

• Health-related online communities

Social Media for Health

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Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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(Photo credit: “The dangers of social media” Pamela S.)

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(Photo Credit: “Boston Memorial” Eva Wood; #BCSM; Your Sexual Health)

Boston Marathon Bombing 2013

Hospitals can use social media to monitor emergencies and provide real time announcements and information during crisis situations.

#BCSM: The Intersection of Breast Cancer and Social Media

Patients with various conditions can share information and experiences, compare treatments, and provide support to one another.

#omgsti: Gonorrhea Awareness Social Media Campagin

Health institutions and organizations can increase the timely dissemination of high-quality health information and health education campaigns.

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http://youtu.be/TGddyTW5eMc

Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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Gruzd, A., Black, F.A., Le, Y., Amos, K. (2012). Investigating Biomedical Research Literature in the Blogosphere: A Case Study of Diabetes and HbA1c. Journal of the Medical Library Association 100(1): 34-42. DOI: 10.3163/1536-5050.100.1.007

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Gruzd, A., Black, F.A., Le, Y., Amos, K. (2012). Investigating Biomedical Research Literature in the Blogosphere: A Case Study of Diabetes and HbA1c. Journal of the Medical Library Association 100(1): 34-42. DOI: 10.3163/1536-5050.100.1.007

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Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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Health Care Social Media Canada (#hcsmca)Twitter Community

Haythornthwaite,C. and Gruzd, A. (2013). Enabling Community through Social Media. Journal of Medical Internet Research 15(10):e248. doi: 10.2196/jmir.2796. PubMed PMID: 24176835.

Background

• #hcsmca is a vibrant community of people interested in exploring social innovation in health care. We share and learn, and together we are making health care more open and connected

• #hcsmca hosts a tweet chat every Wednesday at 1 pm ET. The last Wednesday of the month is our monthly evening chat at 9 pm ET.

Source: http://cyhealthcommunications.wordpress.com/hcsmca-2/ 30

Research questions

1. What accounts for the relative longevity of this particular online community?

– Is it because of the founder’s leadership and her continuing involvement in this community?

– Or is there a core group of members who are also actively and persistently involved in this community?

2. What is the composition of this community? Does one’s professional role/title determine a person’s centrality within this community.

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Step 1: Data CollectionData: Public Twitter messages that mentioned the #hcsmca hashtag/keywordCollection Period: November 12 – December 13, 2012Software: Netlytic http://netlytic.org

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Topics Covered (1)Nov 14, 2012 T1: Challenge of engaging SM to inform a research agenda  T2: Use of innovation, SM, and gamification to encourage

uptake of self-care

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Topics Covered (2)Nov 21, 2012 T1 Healthcare blogs should we or shouldn’t we, what have

we learned, what are the benefits?  T2 Are healthcare blogs a useful tool for education and

knowledge transfer?

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Topics Covered (3)Nov 28, 2012 T1: How has social media made you healthier? Unhealthier?

Has social media made our health choices more numerous and this overwhelming?

  T2: What messaging would motivate you to make a positive health change? Who would you listen to?

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Automated Discovery of Online Social Networks Example: Tweets

@John

@Peter@Paul

Nodes = People

Ties = “Who retweeted/ replied/mentioned whom”

Tie strength = The number of retweets, replies or mentions

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#hcsmca Communication Network on Twitter (Nov 12 - Dec 13)

Net viz in Netlytic: http://netlytic.org/gephi/sigma.php?c=0ZnbSm6D23u07bT0&viz=2 37

#hcsmca Communication Network on Twitter (Nov 12 - Dec 13)

*Roles are assigned manually

Roles CountSM health content providers 110Unaffiliated individual users 89Communicators - not specifically health related 74Communicators - Health related 59

Healthcare professionals 50

Health institutions 31

Advocacy 30

Students 16

Educators, professors 13

Researchers 10Government and health policy makers 4

Node size = In-Degree Centrality

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#hcsmca Communication Network on Twitter

Nodes are automatically grouped based on their rolesNo apparent clustering among people in the same role (notice cross-group ties)

Procedure: Analysis of Variance Density Test using UCINET

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Panel Outline• About the Social Media Lab

• How social media can help you better connect to your patients and to your community

• The role of weblogs in the communication of specialized health-related information, to both lay and expert communities

• Enabling communities of healthcare professionals through social media

• Practical Considerations

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Twitter AccountsWebsites & Articles

Blogs

• HLWIKI: Health Care Managers & Social Media

• Centers for Disease Control and Prevention: Social Media Tools, Guidelines & Best Practices

• SMiCH: Sharing Info on Social Media in Canadian Healthcare

• #hcsmca• Symplur’s The Scoop in Healthcare Social

Media• 20 Hospitals with Inspiring Social Media

Strategies (PR Daily)• Social Media: its Antics, its Power and its Exp

anding Necessity in Health Care (Medcrunch)

• Found in Cache: Social Media Resources for Health Care Professionals from Ed Bennett

• KevinMD

@hcsmca@colleen_young@HealthSocMed

@PatientsCanada@Emily_Nicholas8@TheRounds

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SocialMediaLab.ca

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SocialMediaAndSociety.comToronto, Sep 27-28, 2014 48

This presentation is available on Slideshare at http

://www.slideshare.net/primath/presentations

Sarah VisintiniSarah.Visintini@dal.

ca@SVisin

Philip MaiPhilip.Mai@dal.ca

@PhMai

Anatoliy GruzdGruzd@dal.ca

@Gruzd

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#BCSM. (2014) Home. Retrieved from http://www.bcsmcommunity.org/

Bennett, E. (2011). Social media and hospitals: from trendy to essential. From Futurescan: Healthcare trends and implications 2011-2016. Chicago: Health Administration Press.

Bennett, E. (2009). Social media in crisis – Scott & White and the Fort Hood shootings. Found in Cache [weblog]. Retrieved from http://ebennett.org/scott-white-fort-hood/#ixzz2rbqzX4Sb

Britt, D. (2011). Healthcare professionals and social networking. The Social Media Issue 2. Retrieved from http://source.southuniversity.edu/healthcare-professionals-and-social-networking-33211.aspx

Cassa CA, Chunara R, Mandl K, Brownstein JS. (2013). Twitter as a sentinel in emergency situations: lessons from the Boston Marathon explosions. PLOS Currents Disasters. 1. doi: 10.1371/currents.dis.ad70cd1c8bc585e9470046cde334ee4b. Retrieved from http://currents.plos.org/disasters/article/twitter-as-a-sentinel-in-emergency-situations-lessons-from-the-boston-marathon-explosions/

Centers for Disease Control and Prevention. (2011). The Health communicator’s social media toolkit. Retrieved from http://www.cdc.gov/socialmedia/tools/guidelines/pdf/socialmediatoolkit_bm.pdf

Centers for Disease Control and Prevention. (2012). CDC Social media tools, guidelines & best practices. Retrieved from http://www.cdc.gov/socialmedia/Tools/guidelines/

Change Foundation. (2011). Using social media to improve healthcare quality: A guide to current practice and future promise: part 1: introduction and key issues in the current landscape. Toronto, Ont: Change Foundation.

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CNN. (2009). Officials: Fort Hood shooting suspect alive; 12 dead. CNN. Retrieved from http://www.cnn.com/2009/US/11/05/texas.fort.hood.shootings/index.html

Deloitte Center for Health Solutions. (2010). Social networks in health care: communication, collaboration and insights. Retrieved from http://www.deloitte.com/assets/Dcom-UnitedStates/Local%20Assets/Documents/US_CHS_2010SocialNetworks_070710.pdf

Fox, Susannah. (2013). Pew Internet: Health. Retrieved from http://www.pewinternet.org/Commentary/2011/November/Pew-Internet-Health.aspx

Hernandez, D. (2013, February 5). How Facebook is transforming science and public health. Wired. Retrieved from http://www.wired.com/business/2013/02/how-facebook-is-changing-science-and-health-care/

HLWIKI International. (2013). Evidence-based web 2.0. Retrieved from http://hlwiki.slais.ubc.ca/index.php/Evidence-based_web_2.0

Kinsey, M.J. (2014) What happens in the hospital doesn’t stay in the hospital. Slate. Retrieved from http://www.slate.com/articles/technology/future_tense/2014/01/doctors_on_social_media_share_embarrassing_photos_details_of_patients.2.html

Kowalczyk, L. (2013) Hospitals size up the lessons of Marathon attacks. Boston Globe. Retrieved from http://www.bostonglobe.com/lifestyle/health-wellness/2013/07/27/boston-hospitals-confronted-challenges-identifying-patients-after-marathon-bombing/7fFWuivM3tTKbIFAyn1BIJ/story.html

Larson, Eric. (2013). Should this doctor have slammed her patient on Facebook? Mashable. Retrieved from http://mashable.com/2013/02/11/doctor-patient-facebook/

Mayo Clinic. (2010). Legal issues (Part 4): specific suggestions when drafting your policies. Retrieved from http://socialmedia.mayoclinic.org/2010/08/09/legal-issues-part-4-specific-suggestions-when-drafting-your-policies/

Mayo Clinic. (n.d.). Mayo Clinic Center for Social Media. Retrieved from http://socialmedia.mayoclinic.org/

Murray, N. (2013). Social media used to fight ‘trending’ gonorrhoea. Irish Examiner. Retrieved from http://www.irishexaminer.com/archives/2013/1210/ireland/social-media-used-to-fight-apostrendingapos-gonorrhoea-252171.html

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SMiCH. (2013). Hospital Social Network List. Retrieved from http://www.smich.ca/

Smith, T. (2013) Boston hospitals share lessons from marathon bombing. NPR. Retrieved from http://www.npr.org/blogs/health/2013/09/19/224049730/boston-hospitals-share-lessons-from-marathon-bombing

Statistics Canada. (2013) Table358-0153 - Canadian Internet use survey, Internet use, by age group, Internet activity, sex, level of education and household income, occasional (percent), CANSIM (database). Retrieved from http://www5.statcan.gc.ca/cansim/pick-choisir?lang=eng&p2=33&id=3580153

Timimi, F.K. (2012). Medicine, morality and health care social media. BMC Medicine 10, 83. doi:10.1186/1741-7015-10-83

Vanderbilt University Medical Center. (2012). Social media toolkit. Retrieved from http://www.mc.vanderbilt.edu/root/vumc.php?site=socialmediatoolkitz

Your Sexual Health. (2014). OMG: Gonorrhoea…it’s trending. Retrieved from http://www.yoursexualhealth.ie/

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