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Socioeconomic Outcomes Following Spinal Cord
Injury and the Role of No-fault Compensation:Longitudinal Study
Sarah Derrett
School of Health and Social Services, College of Health
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Longitudinal Study of Spinal Cord Injury
• Funded by the Health Research Council
• Supported by the Burwood Academy of Independent
Living (BAIL)
• Auckland & Burwood Spinal Units mgt/clinical teams
• Nurses – Karla and Karen
• Research team: Martin Sullivan, Charlotte Paul, SarahDerrett, Peter Herbison & Carolyn Beaver
• With: Sue McAllister, project manager & interviewers
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The SCI Study
Aims:1) To explore relationships between body, self and society for
people with SCI
2) Investigate how entitlement to rehabilitationand compensation affects socioeconomic
and health outcomes
Sullivan, Paul, Herbison, Tamou, Derrett, Crawford (2010) A longitudinal study of the
life histories of people with spinal cord injury. Injury Prevention; 16:e3
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Those covered by ACC and those not
• New Zealand’s compensation insurer (ACC)funds those whose SCI results from:
• Injury
• Compensation: 80% of pre-injury income, lump sum payments,
support services, home and vehicle modifications
• Non-injury SCI (e.g. tumours; infections)
• Receive in-unit rehabilitation & health services; may
have access to means-tested benefits
• Other non-ACC-covered (e.g. living outside
New Zealand)
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Previously in New Zealand
• Compared those with an injury (n=429;covered by ACC) from the Prospective
Outcomes of Injury Study (POIS) compared to
those with a stroke (n=109; not covered byACC)
• Median income declined by 13% & 60%
• Return to work higher among injury group
McAllister S, Derrett S, Audas R, Herbison P, Paul C. (2013) Do different types of
financial support after illness or injury affect socio-economic outcomes? A natural
experiment in New Zealand. Social Science and Medicine; 85: 93-102
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Sullivan, Paul, Herbison, Tamou, Derrett, Crawford (2010) A longitudinal study of the
life histories of people with spinal cord injury. Injury Prevention; 16:e3
Burwood Spinal Unit
Auckland Spinal Rehabilitation Unit
New Zealand’s Two Spinal Units
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Recruitment
• People admitted to spinal units over a two-year period (2007-2009)
• First SCI
• Neurological damage
• Aged 16-64 years
• Exclusions: Could not participate in an
interview, prognosis of death ≤6 months,
non-New Zealand resident
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Process
• Nurses:
• Identified eligible participants for interviews
• Provided study information to potential
participants• Collected demographic and clinical information
from clinical records for all people admitted
• Interviewers:• Met potential participants
• Scheduled 1st interview
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Incidence – all ages (n=230)
Estimated annual incidence (all ages): 30/M
Age-adjusted rates:
• New Zealand European=29/M
• Māori=46/M
• Pacific=70/M
• Other ethnicities=16/M
Derrett, Beaver, Sullivan, Herbison, Acland, Paul. (2012) Traumatic and non-
traumatic spinal cord impairment in New Zealand: incidence and characteristics of
people admitted to spinal units. Injury Prevention; 18:343-346
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Today
• N=186 aged 16-64 years
• N= 162 were eligible for participation in
longitudinal study
• 15 declined
• 29 were non-contactable
• 118 (73%) participated in first interview
103 (87%) followed
to 18-months91 (77%) to 30-
months
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ACC and non-ACC
• Of n=118 participants:
• n=93 covered by ACC
• n=25 not covered by ACC
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• Pre-SCI characteristics:
• Sociodemographic (age, sex, ethnicity, relationship
status, education)• Personal income, Material standard of living,
Household income adequacy
• Employment status
• Post-SCI characteristics:• ASIA Impairment Scale (A, B, C & D)
• General health status (EQ-5D + cognitive)
• Outcomes• Return to work
• Personal income, Material standard of living,
Household income adequacy
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• Pre-SCI characteristics:• Sociodemographic (age p=0.006, sex p=0.08, ethnicity,
relationship status, education)
• Personal income, Material standard of living,
Household income adequacy
• Employment status
• Post-SCI characteristics:
• ASIA Impairment Scale (A-D)• General health status (EQ-5D)
Comparing ACC & non-ACC groups
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General health status compared
Paul, Derrett, McAllister, Herbison,
Beaver, Sullivan. (2013) Socioeconomic
outcomes following spinal cord injury and
the role of no-fault compensation:
longitudinal study. Spinal Cord ; Advance
on-line; doi:10.1038/sc.2013.110
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General health status compared
Paul, Derrett, McAllister, Herbison,
Beaver, Sullivan. (2013) Socioeconomic
outcomes following spinal cord injury and
the role of no-fault compensation:
longitudinal study. Spinal Cord ; Advance
on-line; doi:10.1038/sc.2013.110
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Return to work by 18 months?
• Those in paid employment pre-SCI (n=84/118)
• By 18 months 42% ACC group had returned towork & 39% non-ACC group
• aRR* of RTW for the non-ACC group=0.88 (0.45-1.70)
• By 30 months 49% ACC groups and 29% non-ACCgroup had returned to work
• aRR* non-ACC group=0.57 (0.27-1.19)
• aRR** non-ACC group=0.58 (0.27-1.24)
*= adjusted for age, sex and AIS
**= adjusted for age, sex, AIS and cognitive status
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Return to Work & Ethnicity
• Pre-injury proportions in paid employment;
Māori/Pacific compared to other: 82% & 84%
• 18 months post-SCI: 32% & 45%
• 30 months post-SCI: 44% & 53%
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Standard of living
Paul, Derrett, McAllister, Herbison,
Beaver, Sullivan. (2013) Socioeconomic
outcomes following spinal cord injury and
the role of no-fault compensation:
longitudinal study. Spinal Cord ; Advance
on-line; doi:10.1038/sc.2013.110
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Household income
Paul, Derrett, McAllister, Herbison,
Beaver, Sullivan. (2013) Socioeconomic
outcomes following spinal cord injury and
the role of no-fault compensation:
longitudinal study. Spinal Cord ; Advance
on-line; doi:10.1038/sc.2013.110
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Median personal income
Paul, Derrett, McAllister, Herbison,
Beaver, Sullivan. (2013) Socioeconomic
outcomes following spinal cord injury and
the role of no-fault compensation:
longitudinal study. Spinal Cord ; Advance
on-line; doi:10.1038/sc.2013.110
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Summary
• Overall, personal income, standard of livingand adequacy of household income
decreased slightly to 18 months and then
stabilised by 30 months• Increase in return to work for those who
were in paid employment pre-SCI: 42% by 18
months & 49% by 30 months• Return to work lower among Māori & Pacific
participants
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And…
• Return to work rates higher among ACC group
• Median income for ACC group remained similar
to pre-SCI through to 30 months
• Among non-ACC group median income fell toless than half that of ACC group
• aRR of reporting “not enough/just enough”
income was ~20% lower among non-ACC group
• Difference was less for material standard of
living
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Conclusion
• Most people retain their pre-injury SCI andreturn to work rates are high (overall 49%)
• Reason for both findings appears to be the
provision of no-fault compensation to thosecovered by ACC
• Helps prevent a downward spiral into poverty
• Such no-fault compensation schemes shouldbe seen as a model for rehabilitation after SCI
for all – traumatic and non-traumatic SCI