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Supporting Older Family

Carers Project

Else Wilson and Ambi Wildman

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Shared Lives

In 2009 NAAPS(now Shared LivesPlus) secured 2

year funding fromthe ScottishGovernment for a

project worker tosupport older family

carers

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Supporting Older Family Carers Project

The project aims to support the needs ofolder family carers with sons/daughterswho have a learning disability and/or

autistic spectrum disorder by promotingShared Lives (previously known as AdultPlacement) so that this option can be

considered in future care planning

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Background

As carers get older, what the future holds for their sonsand daughters becomes a real concern

Various reports over recent years clearly indicate the

needs of older family carers such as emergencyplanning and future care needs for their sons anddaughters

Enable: Living from Day to Day

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Scotlands Ageing Population

Demographic study indicates that

The number of people of pensionable age inScotland is projected to rise by around 31 per

cent from 0.98 million in 2006 to 1.29 million in2031.

The number of people aged 75 and over isprojected to increase by around 81% from 0.38million in 2006 to 0.69 million in 2031.

69% of carers aged 50 or more

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Learning disabilities

27,391 adults with learning disabilitieswere known to the 32 local authorities inScotland in 2010.

Nationally there are now 6.4 people per1,000 population with a known learningdisability.

There were over 5,845 adults with learningdisabilities aged 50-64 and 2,597 aged 65or older.

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Carers of adults with a learning disability

9,259 adults with a learning disabilityknown to local authorities in Scotland livedwith a family carer.

1,021 of the adults living with a familycarer were themselves aged 50- 64 and270 are 65 or over.

The same as you? estimated that 25 percent adults in Scotland could be living witha family carer aged 65 or over

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Supporting Older Family Carers Projectthrough Shared Lives

Meets Scottish Government Outcomes:

We live longer, healthier lives

We have tackled significant inequalities in

Scottish society We take pride in a strong, fair and inclusive

national identity

Our public services are high quality, continually

improving, efficient and responsive to localpeoples needs

We have improved the life chances for children,young people and families at risk

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Self-directed Support (Scotland) Bill

Guiding principles

Better outcomes - people are healthier andhappier

Choice - people can choose the support theyneed

Participation - people can make decisions abouttheir life

Mutuality - people and social workers worktogether

Equality - everyone can get good support

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Personalisation

Personalisation enables the individualalone, or in groups, to find the right

solutions for them and to participate in thedelivery of a service. From being therecipient of a service, citizens can becomeactively involved in selecting and shaping

the services they receiveScottish Government 2009

http://www.scotland.gov.uk/Publications/2009/04/07112629/0

http://www.scotland.gov.uk/Publications/2009/04/07112629/0http://www.scotland.gov.uk/Publications/2009/04/07112629/0

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The Same as You Report 2000

Shared Lives was highlightedin the Same as You report

2000 as an example of goodpractice, being a flexible

community based provision

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Beginning of the Project

The project has a steering group

Research to produce guidance for thedevelopment of Shared Lives services

Main focus to establish links with localauthorities, carers groups and otherorganizations, disseminating information andoffering presentations

September 2010 e-mail dissemination / pilotparticipation invited / interest indicated

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What the pilot sites offer

Continuing support from the Shared Livesteam, working alongside LA staff, carers

groups and other interested parties

Information about the processes involvedin setting up schemes

Guidance about good practice

Involvement in focus groups research

Acknowledgement of participation

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Edinburgh Pilot Timeline

January Meeting with older family carers & birth parentsof son with a Shared Lives family

February/March Established a PATH

May Older family carers meet Shared Lives carersfrom different schemes

June 2 local coffee morning events

August Review and planning meeting

September - Review and agreement to work with several olderfamilies to establish initial introductions to SL carers

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What has worked well

Participation of older family carers

Collaboration and consultation

Developing a project DVD

Having a steering group and

researcher

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Challenges

Financial Climate

Organisational and staff changes

Weather

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What has been learned

Working together

Involvement - benefits andchallenges

Time

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Whats happening now?

Completion of the project DVD

Dissemination of DVD throughout

Scotland and elsewhere

Beginning of the Perth Pilot

Possible extension of the projectto March 2012

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Workshops

From the perspective of olderfamily carers

From the perspective of local

authority service providers.

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Shared Lives is a tried and tested model ofcare which can offer support and choicewhen planning for the future

THANK YOU AND ANY QUESTIONS

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References

http://www.scie.org.uk/publications/dementia/index.aspSCLD 2011 Statistics Release: Adults with learning

disabilities -implementation of The same as you?Scotland 2010

Stewart F and Patterson E (2010) Caring in Scotland:Analysis of Existing Data Sources on Unpaid Carers inScotland

www.scotland.gov.uk/socialresearch

Living from Day to Day (2008) A research project on OlderFamily Carers of People with Learning Difficulties

www.enable.org.uk

http://www.scie.org.uk/publications/dementia/index.asphttp://www.scld.org.uk/scld-projects/esay/publications-and-resources/statistics-releaseshttp://www.scotland.gov.uk/socialresearchhttp://www.scotland.gov.uk/socialresearchhttp://www.enable.org.uk/http://www.enable.org.uk/http://www.scotland.gov.uk/socialresearchhttp://www.scotland.gov.uk/socialresearchhttp://www.scld.org.uk/scld-projects/esay/publications-and-resources/statistics-releaseshttp://www.scie.org.uk/publications/dementia/index.asp