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SPANISH ARTHRITIS SELF-HELP COURSE
Orange County Branch
Southern California Chapter
Discussion Points OC Spanish Program
Need/ Background Training Program Content Evaluation Funding
Implementing Program Challenges/ Successes Lessons Learned
Future Need
Need in Orange County 31% of Orange County residents are Latino
(930,000)*
25.6% OC Latinos speak Spanish in the home*(25.6% of 930,000 total OC Latinos = 238,080)
1 in 3 people are affected by arthritis(1/3 of 238,080 = 78,566)
78,566 Spanish-speaking OC residents have arthritis
* 2000 Census Bureau
Background
1996 – community needs assessment identified arthritis education as a priority in the Spanish-speaking community
Content used for the course was the Stanford University-developed Spanish Self-Help Course, modeled after the original Arthritis Self-Help Course
Program Goal
GOAL - to improve the functional outcome and quality of life for Spanish speaking arthritis patients in Orange County
Program Objectives Empower
participants Improve function Reduce pain and
depression Reduce number of
unnecessary doctor visits
Program Features Program is based on the Arthritis Foundation’s
Arthritis Self-Help Course
Culturally Relevant Spanish Version developed by Stanford University (Kate Lorig, RN, Dr.P.H. and Virginia Gonzalez, MPH)
Offered FREE to the community at 21 different sites throughout Orange County
OC Program began in 1999
Program taught by “Promotoras”
“Promotoras” Lay health educator Recruited from Spanish-speaking
community Participants feel greater comfort and
ease learning from peers Special training & certification
provided by Stanford University and Arthritis Foundation
Promotora Training Trained by “Master Trainers”
Two day training in Southern CA
Integrate cultural relevance
Lack of Promotoras and Master Trainers in Southern CA
Need funding to offer trainings
Program Content Six week course (two hour weekly classes)
Topics include: exercise, depression, self-talk, nutrition, doctor-patient relationship, pain management, medication, alternative treatments, relaxation techniques
Course Book: “Como Convivir con su Artritis”Bull Publishing 1-800-676-2855
Audiotapes: Relaxation - “Lado dos: Un Jardin de flores” Exercise – “Lado uno: Hagamos ejercicio”Stanford University 1-800-725-9424
Community Partners
Arthritis FoundationOC Branch
CommunityCenters
ClinicsSchools
Hospitals
Senior Centers
Apartments
Churches
Resource Centers
Participant Outreach Health Fairs
Churches
Flyers
Radio PSA’s
Newspapers
Word-of-Mouth
People Served
OC Program 1999 – 2004
Total Classes = 49
Total Participants Attended = 594
Total Participants Graduated = 453(Completed at least 4 out of 6 classes)
Program Evaluation Andrew Wong, MD, Olive View – UCLA Medical
Center conducted evaluation
Participants improved self-management skills, knowledge of arthritis, appropriate seeking of health care for arthritis, and implemented changes in self-care behavior related to arthritis
Found to be evidence-based
Findings were consistent with Kate Lorig’s English-based ASHC model
Wong, A, Harker, J, Lau, V, Shatzel, S, Port, L. Spanish Arthritis Empowerment Program: A Dissemination and Effectiveness Study. Arthritis & Rheumatism (Arthritis Care & Research) 2004; 51(3).
OC Program Funding CA Arthritis Partnership Program (CAPP)
1999 – 2004
Orange County’s United Way 1999 – 2001
City of Anaheim 2003
Pacific Life Foundation 2003 - 2004
Budget to Implement Spanish Program Spanish Coordinator Training
Master Trainer Materials
• Manuals• Books• Audiotapes (exercise and relaxation)
Class Instructors (2 instructors/class, 1 sub) Materials
• Books for participants• Audiotapes
Implementation in Your Community An initial “needs assessment” is crucial Use your local Hispanic network
system to reach this “hard-to-reach” population
Identify “promotora” systems already in place in your community
Create partnerships with local hospitals or health departments
Hire bilingual coordinator Liaison between AF and community
Bilingual Coordinator Key person to community
Able to network
Knows community
Culturally responsive
Knows resources
Answers Spanish phone calls
Sends Spanish literature
Course Challenges
Child care Transportation Educational/ literacy level Bringing the program “to the
community” Weather Geography Time of day/ year
Lessons Learned Partner with community organizations using a lay-
leader model Attendance builds through referrals Certificates of completion and pot-luck dinners
during last class increases retention Inclement weather negatively impacts attendance Participants often bring family members Coordinator is vital for program Continuation of funding will be important for the
maintenance and consistency of these programs
Success Stories
Isela LozaSpanish CoordinatorOrange County Branch
Gabriela NajeraDiversity Program Coordinator Chapter Office
Need for Future Funding is necessary to maintain
this vital program in Orange County 594 people have benefited from the 49
classes offered throughout OC Many more people can benefit from this
program This program can be modeled on a
local, state and national level
For additional information:Jenny Broberg, Program DirectorSouthern California Chapter, Orange County Branch17155 Newhope Street, Suite AFountain Valley, CA 92708(714) [email protected]
Mireya Peña, Vice President of Public Health and ResearchSouthern California Chapter4311 Wilshire Blvd., Suite 530Los Angeles, CA 90010(323) 954-5760 x. [email protected]