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Statement on the quality of spinal cord injury rehabilitation and management Frans Penninx London, 3 September 2012 www.escif.org
Statement on the quality of spinal cord injury
rehabilitation and management
Frans Penninx London, 3 September 2012
www.escif.org
www.escif.org
Introduction and background
• Topic of the ESCIF congress 2011
• Logical continuation of the ‘Centralisation’ report
• Working group: Gunilla Åhrén, Jane Horsewell
and Frans Penninx
• Endorsed by Assembly of Delegates, May 2012
• ‘Quality’ is defined from the perspective of people living with spinal cord injury (SCI)
www.escif.org
Monitoring quality • Organisational perspective Spinal Cord Injury Centre
cornerstone: patient-centred and goal-oriented
rehabilitation outcomes measured and evaluated
• Chronological perspective
various “care events” from injury / diagnosis of SCI “all the way” to life-long follow-up and (self) management
benchmarking procedure to define and describe standards
www.escif.org
Accreditation and evaluation • Accreditation of SCI units
SCI specific
focus on person served
• Accreditation of SCI professionals when are SCI professional qualified?
(inter)national standards, audit system / visitation
ISCoS approved / endorsed training centres
• Patient evaluation hospitals, wards and members of staff
www.escif.org
Measuring outcomes
• Individual level: SCIM, BobScore, life-long effort
• Organisational level: keep it simple
• Investment / costs: value based
• Registries, but don’t ‘standardise rehabilitation’
to fit the registries!
www.escif.org
Statement / conclusions
• Statement consists of 12 points
• People with SCI must have a voice, also in this
• Statement largely grounded in earlier work
• Not all can be implemented immediately
• There are differences between countries
• Contribution to (inter)national discussions
www.escif.org
This ESCIF statement can be downloaded:
www.escif.org
For reactions / questions contact:
Gunilla Åhrén [email protected] Jane Horsewell [email protected] Frans Penninx [email protected]
ESCIF would like to thank Coloplast for financial support in the preparation of this report.
