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Suicide Risk in Family Carers of People with Dementia

Date post: 13-May-2015
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This presentation provides an overview of the existing evidence on suicide risk in family carers of people with dementia. This is a modified version of a presentation delivered at the National Dementia Forum in Brisbane, Australia on 21st September 2013. The research described in this presentation was conducted by Dr Siobhan O'Dwyer, Professor Wendy Moyle, Professor Diego De Leo, Professor Melanie Zimmer-Gembeck, and Sierra Van Wyk. For more information, please contact Dr Siobhan O'Dwyer at Griffith University.
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Understanding the evidence on suicide risk in family carers of people with dementia Dr Siobhan O’Dwyer Research Fellow Centre for Health Practice Innovation Griffith University Australia [email protected] @Siobhan_ODwyer
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Page 1: Suicide Risk in Family Carers of People with Dementia

Understanding the evidence on suicide risk in family carers of people with dementia

Dr Siobhan O’Dwyer

Research FellowCentre for Health Practice InnovationGriffith [email protected]

@Siobhan_ODwyer

Page 2: Suicide Risk in Family Carers of People with Dementia

Caring for a person with dementia is more burdensome than caring for a person with a physical disability

Family carers of people with dementia have higher than average rates of depression, anxiety, and poor physical health

Depression, anxiety, and poor physical health are all risk factors for suicide in the general population

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 3: Suicide Risk in Family Carers of People with Dementia

But what about suicide in family carers of people with dementia?

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 4: Suicide Risk in Family Carers of People with Dementia

O’Dwyer, Moyle, Zimmer-Gembeck & De Leo. (2013). Suicidal ideation in family carers of people with dementia: A pilot study. International Journal of

Geriatric Psychiatry (Early View)

The First Study

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 5: Suicide Risk in Family Carers of People with Dementia

1 in 4 family carers had

contemplated suicide more than once in the

previous year

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 6: Suicide Risk in Family Carers of People with Dementia

Only half had ever to

ld

someone they might die

by suicide

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 7: Suicide Risk in Family Carers of People with Dementia

One third said they were likely to attempt suicide in the future

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 8: Suicide Risk in Family Carers of People with Dementia

Higher levels of burden, hopelessness, anxiety & depression

Used more dysfunctional coping strategies

Lower levels of optimism, self-efficacy & social support

Reported more behavioural & psychological symptoms of dementia

Carers who had contemplated suicide…

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 9: Suicide Risk in Family Carers of People with Dementia

O’Dwyer, Moyle, Van Wyk. (2013). Suicidal ideation and resilience in family carers of people with dementia:

A pilot qualitative study. Aging and Mental Health, 17(6), 753-760.

The Second Study

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 10: Suicide Risk in Family Carers of People with Dementia

Department name (edit in View > Header and Footer...)

Half had contemplated suicide while caring for

a person with dementia

One quarter had made preparations

for a suicidal act

None had attempted suicide

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 11: Suicide Risk in Family Carers of People with Dementia

I was just so tired that I just wanted to sleep. I didn’t want to die. I’ve never wanted to die. I just wanted to get off the merry-go-round. I just wanted it all to stop.

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 12: Suicide Risk in Family Carers of People with Dementia

A couple of times there I thought about how I could get away with bumping myself off…because my insurance and all that stuff would’ve set my wife up forever

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 13: Suicide Risk in Family Carers of People with Dementia

I can’t abandon her. Everybody else has. I would never do that to her. That sense of ‘she needs me, so you don’t abandon a baby’ is stronger than the need for me to do anything to myself

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 14: Suicide Risk in Family Carers of People with Dementia

Pre-existing mental health problems

Comorbid physical health problems

Conflict with family or care staff

Risk Factors

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 15: Suicide Risk in Family Carers of People with Dementia

It’s almost like something’s pulling me down and I could do so much more if I didn’t have that (depression)

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 16: Suicide Risk in Family Carers of People with Dementia

I was being pushed into a corner by the care staff and it was even mentioned at one point “we’ll revoke your enduring power of attorney and we will put him under guardianship”

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 17: Suicide Risk in Family Carers of People with Dementia

I just so envy the ones at the nursing home who have three sisters and a whole lot of people sharing it. But then we’ve never had that. I don’t know what it is to have a ‘whole’ family.

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 18: Suicide Risk in Family Carers of People with Dementia

Practical coping strategies

Personal characteristics (e.g. compassion, flexibility, determination)

Social support

Faith

Resilience Factors

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 19: Suicide Risk in Family Carers of People with Dementia

Attempted suicides?

Deaths by suicide?

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 20: Suicide Risk in Family Carers of People with Dementia

Lessons for Clinical & Community Practice

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 21: Suicide Risk in Family Carers of People with Dementia

1. It’s important to ask about suicide*

*but you must be prepared to handle the response

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 22: Suicide Risk in Family Carers of People with Dementia

www.mhfa.com.au

www.livingworks.com.au/Training-Programs.html

2. Improve your skills…

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 23: Suicide Risk in Family Carers of People with Dementia

3. Refer carers in crisis to…

Dr Siobhan O’Dwyer, Griffith University, September 2013

Page 24: Suicide Risk in Family Carers of People with Dementia

For more information

Dr Siobhan O’Dwyer

Email: [email protected]

Twitter: @Siobhan_ODwyer

AcknowledgementsDementia Collaborative Research Centres @DementiaCRC

Carers Queensland @CarersQLD

Wendy Moyle @WendyMoyle2

Diego De Leo

Melanie Zimmer-Gembeck


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