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Taryn Egelanian, Know Your Rights Presentation

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Know Your Rights Fair Treatment for People With Diabetes
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Page 1: Taryn Egelanian, Know Your Rights Presentation

Know Your Rights

Fair Treatment for People With Diabetes

Page 2: Taryn Egelanian, Know Your Rights Presentation

Know Your Rights

Fair Treatment for People Who Have Diabetes

Page 3: Taryn Egelanian, Know Your Rights Presentation

Everyone Who Has Diabetes Deserves Fair Treatment…

At Work

At School

By Police

In Correctional Facilities

In Other parts of Daily Life

Page 4: Taryn Egelanian, Know Your Rights Presentation

But That Does Not Always Happen

Page 5: Taryn Egelanian, Know Your Rights Presentation

In certain cases, they don’t realize what is happening…

They just know that something doesn’t seem right!

Page 6: Taryn Egelanian, Know Your Rights Presentation

What is Unfair Treatment (Discrimination) Due to Diabetes?

It might look like this…

At Work:

A pharmacist is not allowed to take a lunch break to eat and test his blood glucose.

Page 7: Taryn Egelanian, Know Your Rights Presentation

Or like this…

At School:

A child is unwelcome in 98 of a school district’s 103 elementary schools because of strict school district policy about how students with diabetes receive diabetes care at school.

Page 8: Taryn Egelanian, Know Your Rights Presentation

Or like this…

At the Airport:

A traveler is forced to take off her diabetes pump at the airline security checkpoint because of a lack of understanding by security personnel.

Page 9: Taryn Egelanian, Know Your Rights Presentation

Or like this…

In Police Custody:

A man is arrested and denied any medical care.

Page 10: Taryn Egelanian, Know Your Rights Presentation

What is Unfair Treatment Due to Diabetes?

Treatment that prevents a person who has diabetes from a normal experience just because of having diabetes.

This is Called Discrimination And It Might Not be Legal!

Page 11: Taryn Egelanian, Know Your Rights Presentation

Legal Protections for People Who Have Diabetes

Federal Laws

• Prohibit discriminatory treatment of people with diabetes at work, at school and in other parts of daily life.

• Protect “qualified individuals with disabilities.”

Diabetes is considered a Disability under federal law.

Page 12: Taryn Egelanian, Know Your Rights Presentation

The Association’s Legal Advocacy Department provides specialized help for these situations, as needed.

The American Diabetes Association receives an average of 250 calls per month related to diabetes discrimination.

Page 13: Taryn Egelanian, Know Your Rights Presentation

Legal Advocacy has Helped Employees

Stephen Orr

•Pharmacist in the Midwest

•Denied lunch break to eat and test his blood glucose.

•Then, terminated for taking that break.

•Legal Advocacy helped cause a change in federal law that now gives people with diabetes greater protect under the Americans with Disabilities Act at work, school and in other public places.

Page 14: Taryn Egelanian, Know Your Rights Presentation

Legal Advocacy has Helped Students

Jared Milligan

•As a kindergarten student in Florida, he was unable to attend his local school unless a family member came to school every day to administer his insulin.

•His Mom, Tracy, contacted the American Diabetes Association and led the effort to pass Florida state legislation prohibiting so-called “diabetes schools.”

•A new policy now requires (upon parental request) Duval County public schools to provide diabetes care to students, in their current schools.

Page 15: Taryn Egelanian, Know Your Rights Presentation

Legal Advocacy has Worked with Police/Correctional Facilities

Philadelphia

•Steve Rosen was arrested and denied medical care for almost one full day; He had to be transferred to the emergency room.

•The American Diabetes Association participated in the case to prevent similar incidents in the future.

•The police then established procedures to make sure that people with diabetes have access to medication, food and medical personnel, and that police officers receive training about diabetes symptoms and care.

Page 16: Taryn Egelanian, Know Your Rights Presentation

Legal Advocacy has Focused on Air Travel

• Stepping up for the rights of travelers who have diabetes.

• Working with Transportation Security Administration (TSA) so that passengers with diabetes have access to their diabetes supplies and equipment.

• Assisting TSA in development of its training materials.

• Providing regular feedback to TSA about issues involving travelers who have diabetes.

Page 17: Taryn Egelanian, Know Your Rights Presentation

These are not the only examples of diabetes discrimination.

When diabetes discrimination happens,

what should a person do?

Call: 1-800-DIABETES (342-2383)

Page 18: Taryn Egelanian, Know Your Rights Presentation

When Someone Calls 1-800-DIABETES

A trained representative will answer, who will provide information and, sometimes, a form to complete and return by fax, email or postal mail.

When needed, a Legal Advocate (American Diabetes Association lawyer experienced with diabetes discrimination) will contact the caller to offer assistance.

Page 19: Taryn Egelanian, Know Your Rights Presentation

When More Than Just a Phone

Conversation or Information is Needed

Sometimes, the caller will be connected with an attorney or health care professional in that local area for additional help.

Page 20: Taryn Egelanian, Know Your Rights Presentation

..and, in certain cases, when it is necessary, the American Diabetes Association will

take legal action or work on legislation to resolve specific

discrimination problems.

Page 21: Taryn Egelanian, Know Your Rights Presentation

Attorneys Needed: to Join Our Advocacy Attorney Network

• Attorneys around the country who may write letters, make phone calls, represent children/adults, change unfair laws and more.

• May participate pro bono or as part of a practice.

• Are never obligated to participate on any particular case; participation is per the attorney’s interest and availability.

Join at diabetes.org/AttorneysWanted

Page 22: Taryn Egelanian, Know Your Rights Presentation

Needed: More Members of the Health Care Professional Legal Advocacy Network

•Doctors, Nurses, Diabetes Educators, other medical professionals.

•May make phone calls, write letters, educate, provide expert testimony, other.

•Are never obligated to participate on any particular case; participation is per the member’s interest and availability.

•Expertise in diabetes discrimination is appreciated, but not necessary.

Join at diabetes.org/PatientRights

Page 23: Taryn Egelanian, Know Your Rights Presentation

So, if Discrimination Happens...

The American Diabetes Association is Here!

Page 24: Taryn Egelanian, Know Your Rights Presentation

Call 1-800-DIABETES ! “Knowing that there are people willing to help makes a big, fulfilling difference in my life…..It is good to know I am not alone and that I have you in my corner.”

- Employee who has diabetes

Information also available at diabetes.org/gethelp.

Page 25: Taryn Egelanian, Know Your Rights Presentation

The American Diabetes Association’s Legal Advocacy activities are supported by a grant

from Novo Nordisk.

Page 26: Taryn Egelanian, Know Your Rights Presentation

Thank You!


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