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The Diabetes Health Profile - Development and applications

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The Diabetes Health Profile presented at the London Health 2012
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London Health 2012 Dr Keith Meadows DHP Research & Consultancy Ltd The Diabetes Health Profile – Developments and Practical Applications
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Page 1: The Diabetes Health Profile - Development and applications

London Health 2012

Dr Keith MeadowsDHP Research & Consultancy Ltd

The Diabetes Health Profile – Developments and

Practical Applications

Page 2: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Diabetes in the U.K.

UK Diagnosed

2.9 million diagnosed with diabetes by 2011

Diabetes type

10% of people with

diabetes have Type 1

90% of people with

diabetes have Type 2

Financial costs

£192 million a week spent by the NHS

The impact

Deaths due cardiovascular disease

Type 1 Deaths due to kidney disease

Of people die within 5 years of an amputation

52%

21%

70%

Page 3: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Diabetes in the U.K.

Page 4: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

The psychological impact of living with diabetes

The facts

“Yet there is little routine

psychological support for people

with diabetes.”Diabetes UK

of the population in Britain have

depression at any one time

10%However

,

…and the risk is higher for women than for man

according to Diabetes UK, people

with diabetes are twice as likely to experience depression…

ANXIETY

aggressionDenial

Eating problems

disruption to social lifePOOR QUALITY OF LIFE

Page 5: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

The Diabetes Health profile (DHP-18)

The conceptual model

Page 6: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

The Diabetes Health profile

25 In-depth patient interviews

Literature review/Interviews with clinicians/HCP

Patient /HCP review

Psychometric testing and validation

DHP-1

DHP-18

Insulin dependent (TYPE 1)

32-items

Insulin dependent

Insulin requiringOralDiet

18-items

Page 7: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Ways of administering the DHP-18

The Diabetes Health Profile (DHP-18)

Page 8: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Stable factor structure across samples and

language groups

High levels of internal reliability

α = 0.70-0.88

Good construct validity

Ability to discriminate between treatment

groups

For the psychometrician

Page 9: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Over

8,000Type 1 and Type 2

patients have completed the

DHP-18

Using the DHP

An international perspective

Page 10: The Diabetes Health Profile - Development and applications
Page 11: The Diabetes Health Profile - Development and applications

Living with diabetes - Interpreting the DIABETES HEALTH PROFILE (DHP)

91% Type 2 and 9% Type 1 patients completed the

questionnaire.

55% 45%

77%Of patients experiencing three severe hypoglycaemic episodes reported their days are tied to meal times.

59%Of patients experiencing one severe hypoglycaemic episode reported their days are tied to meal times.

Oral

Insulin

44 46 48 50 52 54 56

Disinhibeted eat-ingPsycholigical dis-tressBarriers to activity

Score 0=No dysfunctioning p<0.05

DHP domain scores by treatment modality

63.9 years

Mean age

Patients (mean) scores on the Disinhibited eating domain

by BMI

BMI<25

BMI25-34

BMI>35

47.849.2

52.435-44 45-54 55-64 65-74 >75

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Patients reporting severe hy-

poglycaemic epis-odes

Barriers to activity domain scores

3173

Copyright DHP Research & Consultancy Ltd

Score 0=No dysfunctioning p<0.05 Score 0=No dysfunctioning

Page 12: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Getting an in-depth look at diabetes with the DHP-18

Psychological distress

Barriers to activity

Disinhibited eating

MOST AT RISK MOST AT RISK MOST AT RISK

• Comorbidity

• Severe hypoglycaemia

• Female

• > Age

• Visit to the pyschiatrist

• Younger women

• Forgetting to take insulin

• Unaware of HbA1 level

• Visit to the psychiartrist

• Severe hypoglycaemia

• Other health issues

• Visit to the psychiatrist

Frequent and or substantial emotional stress including: dysphoric mood, irritability and externally directed hostility.

Very significant levels of anxiety restricting behaviour and perceived limitations in social/role activities

Substantial and or frequent levels of eating in response to food cues and emotional arousal.

Hard saying no to food you like

Eat to cheer self up

Depressed due to

diabetes

Food controls life

Represents high scores

Yes53%

Yes50%

Yes 69%

Yes69%

PD BA DE

Page 13: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Interpreting the Diabetes Health Profile

What does a DHP-18 score mean?

the minimally important difference (MID) is the smallest score difference on the Diabetes Health Profile that represents the minimal clinically significant difference.

The required MID change in score for the DHP-18 domains

Psychological distress

7 - 11

Barriers to activity

Disinhibited eating

6.5 - 9.9

7.5 - 11.4

M

I

D

Minimally

Difference

Important

Page 14: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Interpreting the Diabetes Health Profile

Page 15: The Diabetes Health Profile - Development and applications

Copyright DHP Research & Consultancy Ltd

Thank you

For more [email protected]


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