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The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team Seconded from The Hospice of St Francis, Berkhamsted [email protected] 25 th September 2012 1 [email protected] k
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Page 1: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

The East of England ABC End of Life Education Programme in Care Homes

Sarah RussellMount Vernon Cancer Network ABC Project Lead

On behalf of the teamSeconded from The Hospice of St Francis, Berkhamsted

[email protected]

25th September 2012

[email protected]

Page 2: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

The ABC End of Life Education Programme in Care Homes:

• What is the programme?• How does it link into other education out there?

[email protected]

Page 4: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

What is it?1. A 2 year, NHS East of England funded and specifically designed

care home end of life education programme

2. Delivered and evaluated (using the same tools) across the whole of the East of England: 2011 -2012 • Anglia, Essex, Beds, Herts and Luton

3. Uses End of Life Facilitator Educators (EFE’s) providing a blended learning package in the care home setting

4 WTE in Hertfordshire 1 WTE Bedfordshire, 1 WTE Luton They are also simultaneously delivering a community and hospital

end of life education programme

[email protected]

Page 5: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

The process1. 6 core end of life modules plus follow up workshop

Learners and Managers evaluation and action plan Identification of 3 care home champion roles

End of Life,Learning, Quality Care home end of life standards

2. Pre and post Audit of care home resident notes Benchmark of end of life polices and procedures Learners confidence in end of life care

3. Managers and Learners evaluation of the programme4. Analysis of hospital non elective admission data5. Transferable national accreditation and certificates

[email protected]

Page 6: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

The Modules:1. Overarching principles2. Assessment and care planning3. Comfort and well being4. Communication skills5. Advance care planning6. End of life tools7. Follow up workshop

8. Due this year: Caring in the last days....................

[email protected]

Page 7: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Title

Diagnosing dying

(weeks, days, hours)

Patient choices

Signs of dying

Physical care

Physical comfort

Last offices

Emotional care

Involving the family

Communication

[email protected]

Page 8: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Overview of structure

[email protected]

Page 9: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

NHS East of England Care Home Education Programme in Mount Vernon Cancer Network

[email protected]

Page 10: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

In our area also includes:

• Champion follow up workshops• Care Home Standards• Advance Care Plan Check List• Ongoing support• Linking into other education

[email protected]

Page 11: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

NHS East of England Care Home Education Programme in Mount Vernon Cancer Network

‘All care staff need to be equipped to deal

with all of the situations in the

programme.It was more than an

education programme, it results in a change in thinking, attitude and

priorities’

‘Preferred Priorities for Care document has

acted as a catalyst for initiating and

embracing conversations that no-

one wants to start.’Care Home Learner

‘Following the E-learning we now realise how

important care of the residents’ family is. We

have cleared a room which relatives can receive support and

privacy in. Feed back from relatives from this

have been very positive.’Care Home Learner

‘Has completely changed staff attitudes toward death, and

end of life care. The importance of treating our residents as individuals and putting their

needs and wishes in front of all others’

Care Home Manager

‘End of life care has improved dramatically in the home. We now

have more and more ‘good’ deaths’

‘Fabulous initiative and I know the homes have welcomed the

input – Thank you’

‘Valuable course and I want all my staff to complete this

in the future.I would definitely recommend care home staff to attend this

programme’

[email protected]

Page 12: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

End of Life Scrutiny May 2012

Recommendations for Health & Community Services• Health & Community Services accreditation criteria of care

and nursing homes recognises end of life training and provides financial assistance in partnership with health colleagues to enable continuation of the training programme

• The training, whether based in a care home setting or through educators leading sessions for health centre staff, enables staff involved in end of life to develop the confidence to raise sensitive issues and initiate difficult conversations.

[email protected]

Page 13: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

1. The East of England End of Life Education Programme is proving to be effective

2. Member visits to care and residential homes highlighted to members the good practice in the county.

3. It is clear that end of life training increases staff confidence and the ability to support people to die in their preferred setting.

4. The result is fewer transfers (to hospital, hospice etc) and this included a care home for clients with profound dementia.

5. Members heard that not all care home had received end of life training, therefore there was inconsistent practice across the county.

6. The group would like all homes providing care on behalf of Hertfordshire County Council (HCC) to undertake both the end of life training and to adopt the strategy.

7. Accreditation should be a factor in selecting the provider.

[email protected]

Page 14: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

IPU: Keech Hospice DN: HCHS Educ: Hospice of St Francis DN: Bedford

Educ: Peace Hospice CNS/Educ: Isabel Hospice Peace Hospice, Hospice of St Francis, NHS EOE

[email protected]

Page 15: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

How does it link into other education?

End of Life and Cancer Education Steering Group

East and North Herts

The Cancer CentreWest Herts Beds and Luton

Watford General Hospital Macmillan

TeamThe Peace HospiceThe Hospice of St

FrancisIain Rennie Grove

HouseCommunity Macmillan

NursesCommunity Nurses

University

Isabel HospiceGarden House HospiceCommunity Macmillan

NursesHospital Macmillan

NursesCommunity Nurses

University

Keech HospiceCommunity Palliative

Care TeamHospital Palliative Care

TeamCommunity Nurses

University

Oncology TeamPalliative Care Team

University

[email protected]

Page 16: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Introduction, Principles of palliative care, holistic and carers and key worker assessment

Advance care planning and DNACPR ½ day workshop

Communication skills in practice day

Policies, spirituality, sexuality, psychological support, depression and anxiety

Symptom control

Palliative care emergencies

Pain assessment and management

End of Life strategy in practice including LCP, GSF, PPC.

½ day ACP and DNACPR awareness

1 day Intro to Comm and Significant news

LCP sessions

Syringe Driver sessions

MVCN Psychology level 2 programme

2 day MVCN ACST programme

½ day Comm Skills in Practice

MVCN DNACPR Competency rogramme

University programmes

Writing for publication

Teaching and presenting

Local CPD sessions

Own organisation sessions

MVCN CNS Transition programme

Oncology competency programme

1 day Introduction to oncology

Introduction to palliative care for HCA’s

MVCN Palliative Care Competency Programme

1 day Pain and Symptom Control

1 day non malignant end of life care day

1 day Holistic assessment & mgt

ABC e learning programme

Mount Vernon Cancer Network End of Life

Education Overview 2013

End of Life E learning East of England Care Home Programme http://www.endoflifecarelearning.co.uk/login/index.php eLCA http://www.e-lfh.org.uk/projects/e-elca/index.html

[email protected]

Page 17: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Why do the ABC programme?

1. It makes a difference to care and to you

2. It increases individuals dying in their care home

3. It is accessible and flexible4. It comes with a mentor – and they are

stars!5. It comes with an ongoing relationship6. It provides a nationally recognised

course

[email protected]

Page 18: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

After Coffee: Interactive session

1. Look at the programme

2. Look at the resources

3. Discuss and reflect together

[email protected]

Page 19: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Care home champion experiences

1. What is the experience in Hertfordshire

2. Lessons learnt

[email protected]

Page 20: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Mapping the programme to Skills for Care End of Life Qualifications

[email protected]

Page 21: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

End of Life qualifications

Mapping template to units available

List of qualifications Level 2 Award Awareness in End of Life Care Level 3 Award Awareness of End of Life Care Level 3 Certificate in Working in End of Life care

Level 5 Certificate in Leading and Managing Services to Support End of Life and Significant Life Events

List of core units within qualifications

Key = mandatory = optional

SFC Unit ref no

Unit title Knowledge /

competence

Level Credit

size

RITS

reference

number

L2

Aw

ard

L3

Aw

ard

L3

Cert

L5

Cert

EOL 201 Understand how to work in end of life care

knowledge 2 3 A/ 503/ 8085

EOL 301 Understand how to provide support when working in end of life care

knowledge 3 4 Y/ 503/ 8689

EOL 302 Managing symptoms in end of life care competence 3 3 Y/ 503/ 8644

EOL 303 Understand Advance Care Planning knowledge 3 3 A/ 503/ 8135

EOL 304 Support the spiritual well being of individuals

competence 3 3 M/ 503/ 8133

[email protected]

Page 22: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

End of Life qualifications mapping template EOL 201

Learning outcome Assessment criteria Links with programme

Identified Module Links Gaps Comments

1. Know different perspectives on death and dying

1.1 Outline the factors that can affect an individual’s views on death and dying

1.2 Outline the factors that can affect own views on death and dying

1.3 Outline how the factors relating to views on death and dying can impact on practice

1.4 Define how attitudes of others may influence an individual’s choices around death and dying

2. Understand the aims, principles and policies of end of life care

2.1 Explain the aims and principles of end of life care

2.2 Explain why it is important to support an individual in a way that promotes their dignity

2.3 Describe the importance of maintaining comfort and well being in end of life care

2.4 Explain the stages of the local end of life care pathway

[email protected]

Page 23: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Sustaining the programme through the Training the Trainer pilot

[email protected]

Page 24: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

End of Life ChampionPurpose: to maintain the passion and focus on end of life care in your setting through the encouragement and support of your staff as well as working with the manager to ensure relevant policies, documentation and procedures are in place.

Learning ChampionPurpose: To facilitate new and current staff in end of life learning either though participation in the End of Life education programme delivered by yourself or by your educator mentor. Encourage and source opportunities of extra learning available locally.

Quality ChampionPurpose: To enable the accurate measuring and reporting of good end of life care through regular audit , surveys and systematic reporting. This enables you to be able to demonstrate for inspections (e.g. Care Quality Commission, Commissioners), residents and clients about the quality of the care you provide. It also enables you as a care home to be able to share good practice or learn different ways of doing things

[email protected]

Page 25: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Sustaining the programme through the Training the Trainer pilot

18 homes• 6 in Herts• 6 in Essex• 6 in AngliaOct 2012 – March 2013

Aim is to enable thelearning champions todeliver the training in

their own settings

[email protected]

Page 26: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Formal Evaluation:University of Hertfordshire

Independent evaluationfrom a credible academic

and knowledgeable source

1. What evidence is there that TtT increases residents’ (and where appropriate family members) care home and NHS staff, engagement with advance care planning and ongoing conversations about end of life care?

2. What impact does the TtT have on care home staff’s confidence, reported knowledge, symptom assessment and management and involvement with NHS services when providing end of life care?

3. What are the costs?

4. What were the barriers and facilitators to the implementation of the programme?

[email protected]

Page 27: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Mixed Method

• Observation• Questionnaires • Audio Diaries• Interviews plus 3 focus groups• After death analysis and review of care and

resources used

[email protected]

Page 29: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

[email protected] 29

‘The Hert of CareEnd of Life in Care Homes in Hertfordshire’

25th September 2012

0915 Coffee and registration

0930 Welcome, housekeeping, CQ, outline of the day, introductions 0940 Defining End of life care: Who, what, why when?

Sarah Russell (ABC Project lead)0950 Commissioning end of life care: Challenges and Opportunities:

Gordon Pownall (Commissioning Lead for End of Life and Palliative Care: Hertfordshire)1005 Dying in a multimedia world: How does society construct death and dying?

Dr Ros Taylor (Clinical Trustee, Help the Hospices, Hospice Director: Hospice of St Francis, Berkhamsted, DL Hertfordshire)1035 The ABC End of Life Education Programme in Care Homes:

•What is the programme?•How does it link into other education out there? Sarah Russell

1100 Coffee break

1115 Interactive session with education mentors and care home champions EFE’s

1150 Care home champion experiences•What is the experience in Hertfordshire?•Lessons learnt Care home champion and education mentor

1215 Mapping the programme to Skills for Care End of Life Qualifications: Kathryn Chamberlain (Skills for Care Area Officer Eastern) and Sarah Russell

1230 Sustaining the programme through the Training the Trainer pilot Sarah Russell1245 Closing thoughts and evaluation forms

1300 Close

Summary

Page 30: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

Closing Thoughts:

1. What do you know now which you did not know before?

2. What are you going to do next?

• Confidence questionnaire

• Evaluation form

[email protected]

Page 31: The East of England ABC End of Life Education Programme in Care Homes Sarah Russell Mount Vernon Cancer Network ABC Project Lead On behalf of the team.

‘The Hert of CareEnd of Life in Care Homes in Hertfordshire’

25th September 2012

[email protected] 31

The journey to where?

I don't know where life will take me. I don't know how the river bends or where the

rapids may be. Radiotherapy completed my treatment, but my

journey isn't finished. My cancer seems to be gone, but who can be

sure? There are no certainties, and from time to time a

new pain has panicked myself and my loved ones.

My body may be healed now but adjusting to the changes in my life and the recovery of my

emotions, my soul, and my spirit takes longer


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