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The East of England ABC End of Life Education Programme in Care Homes
Sarah RussellMount Vernon Cancer Network ABC Project Lead
On behalf of the teamSeconded from The Hospice of St Francis, Berkhamsted
25th September 2012
The ABC End of Life Education Programme in Care Homes:
• What is the programme?• How does it link into other education out there?
What is it?1. A 2 year, NHS East of England funded and specifically designed
care home end of life education programme
2. Delivered and evaluated (using the same tools) across the whole of the East of England: 2011 -2012 • Anglia, Essex, Beds, Herts and Luton
3. Uses End of Life Facilitator Educators (EFE’s) providing a blended learning package in the care home setting
4 WTE in Hertfordshire 1 WTE Bedfordshire, 1 WTE Luton They are also simultaneously delivering a community and hospital
end of life education programme
The process1. 6 core end of life modules plus follow up workshop
Learners and Managers evaluation and action plan Identification of 3 care home champion roles
End of Life,Learning, Quality Care home end of life standards
2. Pre and post Audit of care home resident notes Benchmark of end of life polices and procedures Learners confidence in end of life care
3. Managers and Learners evaluation of the programme4. Analysis of hospital non elective admission data5. Transferable national accreditation and certificates
The Modules:1. Overarching principles2. Assessment and care planning3. Comfort and well being4. Communication skills5. Advance care planning6. End of life tools7. Follow up workshop
8. Due this year: Caring in the last days....................
Title
Diagnosing dying
(weeks, days, hours)
Patient choices
Signs of dying
Physical care
Physical comfort
Last offices
Emotional care
Involving the family
Communication
In our area also includes:
• Champion follow up workshops• Care Home Standards• Advance Care Plan Check List• Ongoing support• Linking into other education
NHS East of England Care Home Education Programme in Mount Vernon Cancer Network
‘All care staff need to be equipped to deal
with all of the situations in the
programme.It was more than an
education programme, it results in a change in thinking, attitude and
priorities’
‘Preferred Priorities for Care document has
acted as a catalyst for initiating and
embracing conversations that no-
one wants to start.’Care Home Learner
‘Following the E-learning we now realise how
important care of the residents’ family is. We
have cleared a room which relatives can receive support and
privacy in. Feed back from relatives from this
have been very positive.’Care Home Learner
‘Has completely changed staff attitudes toward death, and
end of life care. The importance of treating our residents as individuals and putting their
needs and wishes in front of all others’
Care Home Manager
‘End of life care has improved dramatically in the home. We now
have more and more ‘good’ deaths’
‘Fabulous initiative and I know the homes have welcomed the
input – Thank you’
‘Valuable course and I want all my staff to complete this
in the future.I would definitely recommend care home staff to attend this
programme’
End of Life Scrutiny May 2012
Recommendations for Health & Community Services• Health & Community Services accreditation criteria of care
and nursing homes recognises end of life training and provides financial assistance in partnership with health colleagues to enable continuation of the training programme
• The training, whether based in a care home setting or through educators leading sessions for health centre staff, enables staff involved in end of life to develop the confidence to raise sensitive issues and initiate difficult conversations.
1. The East of England End of Life Education Programme is proving to be effective
2. Member visits to care and residential homes highlighted to members the good practice in the county.
3. It is clear that end of life training increases staff confidence and the ability to support people to die in their preferred setting.
4. The result is fewer transfers (to hospital, hospice etc) and this included a care home for clients with profound dementia.
5. Members heard that not all care home had received end of life training, therefore there was inconsistent practice across the county.
6. The group would like all homes providing care on behalf of Hertfordshire County Council (HCC) to undertake both the end of life training and to adopt the strategy.
7. Accreditation should be a factor in selecting the provider.
IPU: Keech Hospice DN: HCHS Educ: Hospice of St Francis DN: Bedford
Educ: Peace Hospice CNS/Educ: Isabel Hospice Peace Hospice, Hospice of St Francis, NHS EOE
How does it link into other education?
End of Life and Cancer Education Steering Group
East and North Herts
The Cancer CentreWest Herts Beds and Luton
Watford General Hospital Macmillan
TeamThe Peace HospiceThe Hospice of St
FrancisIain Rennie Grove
HouseCommunity Macmillan
NursesCommunity Nurses
University
Isabel HospiceGarden House HospiceCommunity Macmillan
NursesHospital Macmillan
NursesCommunity Nurses
University
Keech HospiceCommunity Palliative
Care TeamHospital Palliative Care
TeamCommunity Nurses
University
Oncology TeamPalliative Care Team
University
Introduction, Principles of palliative care, holistic and carers and key worker assessment
Advance care planning and DNACPR ½ day workshop
Communication skills in practice day
Policies, spirituality, sexuality, psychological support, depression and anxiety
Symptom control
Palliative care emergencies
Pain assessment and management
End of Life strategy in practice including LCP, GSF, PPC.
½ day ACP and DNACPR awareness
1 day Intro to Comm and Significant news
LCP sessions
Syringe Driver sessions
MVCN Psychology level 2 programme
2 day MVCN ACST programme
½ day Comm Skills in Practice
MVCN DNACPR Competency rogramme
University programmes
Writing for publication
Teaching and presenting
Local CPD sessions
Own organisation sessions
MVCN CNS Transition programme
Oncology competency programme
1 day Introduction to oncology
Introduction to palliative care for HCA’s
MVCN Palliative Care Competency Programme
1 day Pain and Symptom Control
1 day non malignant end of life care day
1 day Holistic assessment & mgt
ABC e learning programme
Mount Vernon Cancer Network End of Life
Education Overview 2013
End of Life E learning East of England Care Home Programme http://www.endoflifecarelearning.co.uk/login/index.php eLCA http://www.e-lfh.org.uk/projects/e-elca/index.html
Why do the ABC programme?
1. It makes a difference to care and to you
2. It increases individuals dying in their care home
3. It is accessible and flexible4. It comes with a mentor – and they are
stars!5. It comes with an ongoing relationship6. It provides a nationally recognised
course
After Coffee: Interactive session
1. Look at the programme
2. Look at the resources
3. Discuss and reflect together
Care home champion experiences
1. What is the experience in Hertfordshire
2. Lessons learnt
End of Life qualifications
Mapping template to units available
List of qualifications Level 2 Award Awareness in End of Life Care Level 3 Award Awareness of End of Life Care Level 3 Certificate in Working in End of Life care
Level 5 Certificate in Leading and Managing Services to Support End of Life and Significant Life Events
List of core units within qualifications
Key = mandatory = optional
SFC Unit ref no
Unit title Knowledge /
competence
Level Credit
size
RITS
reference
number
L2
Aw
ard
L3
Aw
ard
L3
Cert
L5
Cert
EOL 201 Understand how to work in end of life care
knowledge 2 3 A/ 503/ 8085
EOL 301 Understand how to provide support when working in end of life care
knowledge 3 4 Y/ 503/ 8689
EOL 302 Managing symptoms in end of life care competence 3 3 Y/ 503/ 8644
EOL 303 Understand Advance Care Planning knowledge 3 3 A/ 503/ 8135
EOL 304 Support the spiritual well being of individuals
competence 3 3 M/ 503/ 8133
End of Life qualifications mapping template EOL 201
Learning outcome Assessment criteria Links with programme
Identified Module Links Gaps Comments
1. Know different perspectives on death and dying
1.1 Outline the factors that can affect an individual’s views on death and dying
1.2 Outline the factors that can affect own views on death and dying
1.3 Outline how the factors relating to views on death and dying can impact on practice
1.4 Define how attitudes of others may influence an individual’s choices around death and dying
2. Understand the aims, principles and policies of end of life care
2.1 Explain the aims and principles of end of life care
2.2 Explain why it is important to support an individual in a way that promotes their dignity
2.3 Describe the importance of maintaining comfort and well being in end of life care
2.4 Explain the stages of the local end of life care pathway
End of Life ChampionPurpose: to maintain the passion and focus on end of life care in your setting through the encouragement and support of your staff as well as working with the manager to ensure relevant policies, documentation and procedures are in place.
Learning ChampionPurpose: To facilitate new and current staff in end of life learning either though participation in the End of Life education programme delivered by yourself or by your educator mentor. Encourage and source opportunities of extra learning available locally.
Quality ChampionPurpose: To enable the accurate measuring and reporting of good end of life care through regular audit , surveys and systematic reporting. This enables you to be able to demonstrate for inspections (e.g. Care Quality Commission, Commissioners), residents and clients about the quality of the care you provide. It also enables you as a care home to be able to share good practice or learn different ways of doing things
Sustaining the programme through the Training the Trainer pilot
18 homes• 6 in Herts• 6 in Essex• 6 in AngliaOct 2012 – March 2013
Aim is to enable thelearning champions todeliver the training in
their own settings
Formal Evaluation:University of Hertfordshire
Independent evaluationfrom a credible academic
and knowledgeable source
1. What evidence is there that TtT increases residents’ (and where appropriate family members) care home and NHS staff, engagement with advance care planning and ongoing conversations about end of life care?
2. What impact does the TtT have on care home staff’s confidence, reported knowledge, symptom assessment and management and involvement with NHS services when providing end of life care?
3. What are the costs?
4. What were the barriers and facilitators to the implementation of the programme?
Mixed Method
• Observation• Questionnaires • Audio Diaries• Interviews plus 3 focus groups• After death analysis and review of care and
resources used
‘The Hert of CareEnd of Life in Care Homes in Hertfordshire’
25th September 2012
0915 Coffee and registration
0930 Welcome, housekeeping, CQ, outline of the day, introductions 0940 Defining End of life care: Who, what, why when?
Sarah Russell (ABC Project lead)0950 Commissioning end of life care: Challenges and Opportunities:
Gordon Pownall (Commissioning Lead for End of Life and Palliative Care: Hertfordshire)1005 Dying in a multimedia world: How does society construct death and dying?
Dr Ros Taylor (Clinical Trustee, Help the Hospices, Hospice Director: Hospice of St Francis, Berkhamsted, DL Hertfordshire)1035 The ABC End of Life Education Programme in Care Homes:
•What is the programme?•How does it link into other education out there? Sarah Russell
1100 Coffee break
1115 Interactive session with education mentors and care home champions EFE’s
1150 Care home champion experiences•What is the experience in Hertfordshire?•Lessons learnt Care home champion and education mentor
1215 Mapping the programme to Skills for Care End of Life Qualifications: Kathryn Chamberlain (Skills for Care Area Officer Eastern) and Sarah Russell
1230 Sustaining the programme through the Training the Trainer pilot Sarah Russell1245 Closing thoughts and evaluation forms
1300 Close
Summary
Closing Thoughts:
1. What do you know now which you did not know before?
2. What are you going to do next?
• Confidence questionnaire
• Evaluation form
‘The Hert of CareEnd of Life in Care Homes in Hertfordshire’
25th September 2012
The journey to where?
I don't know where life will take me. I don't know how the river bends or where the
rapids may be. Radiotherapy completed my treatment, but my
journey isn't finished. My cancer seems to be gone, but who can be
sure? There are no certainties, and from time to time a
new pain has panicked myself and my loved ones.
My body may be healed now but adjusting to the changes in my life and the recovery of my
emotions, my soul, and my spirit takes longer