The Importance of College Students Joining the NMDP

The Importance of College Students Joining the NMDP

Meagan Rudy

Outline of PresentationWhat is the NMDP and Be the Match?

How important are these drives in general?

How important is it for college students to join the NMDP at

these drives?

Examples of drives

Other ways that college students

can help

National Marrow Donor Program◦Founded in 1987◦9 million donors on the registry

Most ethnically and racial diverse registry in the world

◦Have facilitated 43,000+ transplants◦5,200+ transplants per year

What is the NMDP?

Be the Match Registry◦New name for the NMDP Registry◦Created in 2009◦Combined with other registries, more than

16.5 million donors (About Be the Match)

What is the NMDP?

Kids Beating Cancer◦Founded in 1992◦NMDP donor recruiter for

Florida◦Has funded more than

2,000 drives◦Have helped 5,400 children

and their families 31 marrow and blood stem cell

donation requests in 2010◦$8 million raised since its

founding

What is the NMDP?

“Fund the Match”◦Kids Beating Cancer’s source of funds◦Funds all out-of-pocket expenses that

the family of the sick child and Medicaid cannot cover, including: Lab testing on family members Donor search and procurement Patient pre-workup costs Transplant procedure

What is the NMDP?

What is the NMDP? Hats & Heroes Ball

◦ Annual gala held to raise funds for “Fund the Match” program Started in 2004 Seventh year

◦ Silent auction, live auction, and main raffle prize

◦ Expected revenue to be generated = $250,000

◦ 400 guests expected to attend

Very important to get marrow/stem cell donors◦ 70% of patients will not find a match in family (Who We Are)◦ 75% of sick children will not find a match in family (Kids

Beating Cancer – Step by Step Diagnosis to Transplant) Very important to get financial donors

◦ Total cost for one child depends on many factors, including: If he/she needs a bone marrow, a PBSC, or an umbilical cord

blood transplant; If his/her insurance or Medicaid will cover any of the costs; and If the donor is related to him/her

Very important to get the word out (and have the word spread around)


Education◦ Reminding people that they could

save a life◦ Explaining that more minorities

are needed on the registry◦ Enlightening people that more

than one procedure exists PBSC versus Bone Marrow

donation◦ Informing people about our

organization Internship and volunteering

opportunities


PBSC Donation◦ More common than bone marrow

donation◦ Non-surgical◦ Steps:

1. Injected with fligrastim 5 days prior to donation

2. Blood will be removed through one IV on one arm with a machine similar to one used for dialysis

3. Stem cells will be filtered out while blood is given back to donor through the other IV in the other arm

◦ (Possible) side effects: Headache Bone aches Muscle aches


Bone Marrow Donation◦ Less common than

PBSC donation “Last resort” transplant

for recipient

◦ Outpatient surgery◦ Needle will be used to

extract bone marrow from pelvic bone

◦ Side effects: Minor soreness in lower

back


How important is it for college students to join the NMDP at these drives?

Number of Deaths in 2009, both genders and all races (Kochanek, Xu, Murphy, Miniño, & Kung, 2010, p. 33)

21,2874%

42,443 8%

74,548 15%

187,26737%

181,86136%

18-2425-3435-4445-5455-60


Top 3 Causes of Death by Age Group (Kochanek, Xu, Murphy, Miniño, & Kung, 2010, pp. 53-54)

18-24 25-44 45-60

Number 1 cause of death

Death rate per 100,000

Accidents (Motor vehicle + all other)

8,646

Accidents (Motor vehicle + all other)

28,844

Any cancer

126,035



Assault (Homicide)

3,374

Any cancer

16,236

Any heart disease

82,963



Intentional self-harm (Suicide)

3,039

Any heart disease

14,053

All other causes

3,039


Percentage of individuals 18 and older with certain chronic conditions (Pleis, Ward, & Lucas, 2010, p. 157)

Diabetes Ulcers Kidney disease Liver disease Arthritis Chronic joint symptoms0.00%

5.00%

10.00%

15.00%

20.00%

25.00%

30.00%

35.00%

0.78% 1.24%0.26% 0.21%

2.10%

4.36%

2.22%3.56%

0.74% 0.59%

6.00%

12.44%

10.16%

7.76%

1.60% 1.84%

24.16%

29.52%

18-24 25-44 45-60


Percentage of individuals 18 and older who are limited in doing daily activities due to at least one chronic condition (Adams, Martinez, &

Vickerie, 2010, p. 84)

18-24 25-44 45-600.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

24.27%

69.33%65.92%

1.66%4.74%

14.08%

1.58%4.52%

13.68%

Not limited Limited

Limited due to 1+ chronic conditions


Percentage of individuals 18 and older who have difficulty doing certain physical tasks (Pleis, Ward, & Lucas, 2010, p. 172)

Any physicial difficulty

Walk 1/4 of a mile

Climb up 10 steps without

rest

Stand and sit for 2 hours (combined)

Stoop, bend, or kneel & reach

over head (combined)

Grasp or handle small objects

Lift or carry 10 pounds

Push or pull large objects

18-24 0.0156 0.0052 0.00340000000000001

0.0127 0.00980000000000005

0.00160000000000001

0.00340000000000001

0.00570000000000001

25-44 0.0444000000000001

0.0148 0.0096 0.0363 0.0282 0.0024 0.0096 0.0163

45-60 0.150400000000001

0.0624000000000001

0.0456 0.132 0.116 0.0168 0.0392 0.0608

1.00%

3.00%

5.00%

7.00%

9.00%

11.00%

13.00%

15.00%


Percentage of individuals 18 and older with certain heart diseases (Pleis, Ward, & Lucas, 2010, p. 148)

All Types Coronary Disease Hypertension Stroke0.00%

5.00%

10.00%

15.00%

20.00%

25.00%

1.14%0.28%

2.26%

0.16%

3.26%

0.82%

6.44%

0.44%

10.48%

5.76%

26.08%

2.00%

18-24 25-44 45-60


Percentage of individuals 18 and older with certain respiratory diseases (Pleis, Ward, & Lucas, 2010, p. 151)

Emphysema Had asthma Still has asthma Hay fever Chronic bronchitis0.00%

2.00%

4.00%

6.00%

8.00%

10.00%

12.00%

0.08%

3.71%

1.97%1.66%

0.72%0.22%

10.59%

5.63%

4.74%

1.88%2.08%

9.84%

6.24%

8.00%

4.48%

18-24 25-44 45-60


Percentage of individuals 18 and older with cancer (Pleis, Ward, & Lucas, 2010, p. 154)

Any cancer Breast cancer Cervical cancer Prostate cancer0.00%

1.00%

2.00%

3.00%

4.00%

5.00%

6.00%

7.00%

8.00%

0.44%0.05% 0.21%

0.00%

1.26%

0.15%

0.59%

0.00%

7.52%

1.44%1.20% 1.12%

18-24 25-44 45-60

Valencia College◦ Occurred on 7/5 and 7/6◦ Obtained 50 donors (38 at Valencia East & 12 at

Valencia West)

Examples of Drives

Examples of Drives

Examples of Drives

Examples of Drives

Examples of Drives

Donate money

Volunteer

Host a bone marrow/stem cell donor drive

Help spread the word through Facebook and Twitter

Other ways that college students can help

About Be the Match. (n.d.). Retrieved July 8, 2011, from http://www.marrow.org/ABOUT/About_Be_The_Match/index.html

Advances in Transplant. (n.d.). Retrieved July 13, 2011, from http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Undrstnd_Treat_Opt/Lrn_BMT_Cord/Advances_in_Tx/

Adams, P., Martinez, M., & Vickerie, J. (2010). Summary health statistics for the U.S. population: National Health Interview Survey, 2009 [Electronic version]. National Center for Health Statistics: Vital and Health Statistics, 10(248), 84. Retrieved June 27, 2011, from http://www.cdc.gov/nchs/data/series/sr_10/sr10_248.pdf

Grow the Registry. (n.d.). Retrieved June 30, 2011, from http://www.marrow.org/HELP/Recruit_Donors/index.html

Kids Beating Cancer – About Us. (n.d.). Retrieved July 18, 2011, from http://www.kidsbeatingcancer.com/aboutus.html

Kids Beating Cancer – Message from our Founder. (n.d.). Retrieved July 19, 2011, from http://www.kidsbeatingcancer.com/aboutus/foundermessage.html

Kids Beating Cancer – Step by Step Diagnosis to Transplant. (n.d.). Retrieved July 20, 2011, from http://www.kidsbeatingcancer.com/medicalresources/step-by-step-diagnosis-to-transplant.html

Kochanek, K., Xu, J., Murphy, S., Miniño, A., & Kung, H. (2010). Death: Preliminary Data for 2009 [Electronic version]. National Vital Statistic Reports, 59(4), 33, 53-54. Retrieved June 30, 2011, from http://www.cdc.gov/nchs/data/nvsr/nvsr59/nvsr59_04.pdf

Pleis, J., Ward, B., & Lucas, J. (2010). Summary health statistics for U.S. adults: National Health Interview Survey, 2009 [Electronic version]. National Center for Health Statistics: Vital and Health Statistics, 10(249), 148-157, 172. Retrieved June 27, 2011, from http://www.cdc.gov/nchs/data/series/sr_10/sr10_249.pdf

Steps of Bone Marrow & PBSC Donation. (n.d.). Retrieved July 27, 2011, from http://www.marrow.org/DONOR/When_You_re_Asked_to_Donate_fo/Steps_of_Donation/index.html

The Need for Donors. (n.d.). Retrieved July 9, 2011, from http://www.marrow.org/HELP/Recruit_Donors/Need_for_Donors/index.html

Who We Are. (n.d.). Retrieved July 3, 2011, from http://www.marrow.org/ABOUT/Who_We_Are/index.html

Works Cited

Date post:	25-Jan-2015
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