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The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Date post: 22-Nov-2014
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The Mesothelioma Center at Asbestos.com offers a monthly online support group for those that have been affected by mesothelioma. In this session, licensed mental health counselor Dana Nolan will give a brief educational presentation on a mesothelioma-specific topic, then open up the discussion to patients. In this month's session, Asbestos.com writer Michelle Whitmer opened up the session with a presentation on Complementary and Alternative Medicine options for mesothelioma patients. For more information about this online support group, please visit: www.asbestos.com/support-group/
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Michelle Whitmer Associate Editor Asbestos.com
Transcript
Page 1: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Michelle WhitmerAssociate Editor Asbestos.com

Page 2: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Welcome

Hello and welcome! My name is Michelle Whitmer, and I’ve been a writer and editor at The Mesothelioma Center for more than five years. I’ve spent the past five and a half years solely researching and writing about mesothelioma and asbestos, so you can imagine that I’ve read a lot about natural therapies for mesothelioma.

In college I studied biology, environmental sciences and English, which prepared me for the world of medical research and writing I was about to enter. I’m a certified yoga instructor and a member of the American Holistic Medical Association, and I pursue ongoing education in natural medicine.

(800) 615-2270

Page 3: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Welcome

I’m fascinated by technology and science just as often as I’m impressed by the power of natural healing, and I want mesothelioma patients to know it isn’t an all-or-nothing thing. Patients can take the best from both worlds!

I am not an expert in complementary and alternative medicine. I’m not able to answer specific questions about CAM, but I can point people in the right direction to find answers. And our Patient Advocates are available to answer many general medical questions about mesothelioma.

Now that you know a little about me, I’ll sum up what I’m about to discuss, then give the short presentation. After that I’ll turn things back over to Dana.

(800) 615-2270

Page 4: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

What is Complementary and Alternative Medicine (CAM)?

The acronym CAM refers to complementary and alternative medicine.

Complementary medicine refers to therapies that are used in conjunction with standard treatment.

Alternative medicine refers to therapies that are used instead of standard treatment.

Another approach, known as Integrative Medicine, strives to integrate the best of complementary and conventional therapies using a multidisciplinary tactic to address the unique needs of each patient.

(800) 615-2270

Page 5: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Examples of CAM Therapies

Some examples of CAM therapies include:

Alternative Medical Systemso Chinese Medicine, Acupuncture, Homeopathy, Naturopathy

Energy Therapieso Therapeutic Touch, Reiki, Qi Gong

Exercise Therapieso Yoga, Tai Chi

(800) 615-2270

Page 6: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Examples of CAM Therapies Manipulative and Body-based Methods

o Chiropractic Care, Therapeutic Massage, Osteopathy, Reflexology

Mind-body Interventionso Meditation, Hypnosis, Art or Music Therapy, Biofeedback, Relaxation

Therapy, Support Groups

Spiritual Therapieso Prayer, Spiritual Healing

Nutritional Therapeuticso Vegetarianism, Vitamins, Macrobiotic Diet,

Gerson Therapy, Budwig Protocol

(800) 615-2270

Page 7: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Why Do People with Cancer Choose CAM?

People with cancer may use CAM to:

Help cope with the side effects of cancer treatments, such as nausea, pain, and fatigue;

Comfort themselves and ease the worries of cancer treatment and related stress;

Feel that they are doing something more to help with their own care;

Try to treat the cancer.

(800) 615-2270

Page 8: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Paul Kraus was diagnosed with peritoneal mesothelioma in 1997 at the age of 52. He opted for an alternative approach and decided against conventional therapies.

Paul switched to an organic vegetarian diet, juiced, took supplements, exercised, practiced mind-body therapies like meditation, and incorporated a spiritual perspective that helped to reduce stress. Paul also used Ukraine, which is a compound made in Austria that is half herb and half chemotherapy, for nearly 18 months.

Paul is alive and well, living in Australia with his family.

(800) 615-2270

CAM Therapies that Mesothelioma Survivors Have Used

The following mesothelioma survivors used CAM therapies in their treatment plans.

Page 9: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

CAM Therapies that Mesothelioma Survivors Have Used

(800) 615-2270

Judy Glezinski was diagnosed in 1990 and underwent surgery and radiation for pleural mesothelioma. She lived with mesothelioma for 18 years and incorporated the following CAM therapies: prayer, aromatherapy, massage (including reflexology), and mangosteen juice (reported to shrink lung tumors in some people).

J.R. O’Connor was diagnosed with pleural mesothelioma in 2001 and didn’t qualify for surgery or radiation, and he refused the chemotherapy the doctors offered. He lived seven years after diagnosis by making changes to his diet (he ate organic, cut out most meat, ate more fresh produce, and eliminated sugar and processed foods), taking supplements, exercising, and practicing mind-body therapies such as hypnotherapy for stress reduction.

Bob Oberstar, 71, refused chemotherapy and radiation following his surgery for pleural mesothelioma. He wanted to avoid the side effects of those treatments and instead decided to boost his immunity and health with a new diet and exercise regimen. His diet focused on eating foods high in antioxidants to strengthen his immune system. Bob likes to remain active outdoors through fishing, hunting and gardening.

Page 10: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

CAM Therapies that Mesothelioma Survivors Have Used

(800) 615-2270

James Broomer, 74, didn’t see much success with chemotherapy for his pleural mesothelioma one year ago. After doctors told him to turn to hospice, his wife decided to try a special diet called the Budwig Protocol. Six months later, James had gained 20 pounds and was no longer in need of an oxygen tank or the pleural catheter that used to drain fluid that no longer collects in his lungs.

In addition to a special flaxseed and cottage cheese recipe taken daily, the Budwig Protocol includes lots of fruits and vegetables, and omits animal fats, dairy, seafood, white bread and sugar, certain oils and trans-fats.

As you can see, there is no one-size-fits-all approach. Each of these survivors did something different that worked for them. It is important to note that all of these survivors worked with licensed medical professionals while undergoing CAM therapies.

You too should work with a licensed professional, and our Patient Advocates can help you if you encounter difficulty locating one.

Page 11: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

The Importance of Involving Your Oncologist

Your oncologist can explain why some alternative therapies might conflict with your traditional treatment.

They can also prevent you from being duped by questionable sources of alternative medicine. Be open and honest with your doctor.

If your doctor isn’t receptive to your interest in CAM therapies, consider finding an oncologist who will work with your interests. Integrative medicine programs staff oncologists who use both traditional and CAM therapies, and these programs are available at certain cancer centers throughout the U.S.

(800) 615-2270

Page 12: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Trustworthy Resources of Information on CAMM

The Mesothelioma Center is growing their online resources on CAM, so keep checking Asbestos.com for new information. And though we are not experts on any form of treatment, you can feel free to contact one of our Patient Advocates if you have any questions. We’ll help you find the answers!

Online Resources

The Office of Cancer Complementary and Alternative Medicine www.Cancer.gov

Complementary and Alternative Medicine for Cancer (non-profit) www.Cam-Cancer.org

National Center for Complementary and Alternative Medicine www.NIH.gov

(800) 615-2270

Page 13: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Trustworthy Resources of Information on CAM

Cancer Centers offering integrative medicine programs in the U.S.

Integrative Medicine Program at MD Anderson Cancer Center www.MDAnderson.org

Bendheim Integrative Medicine Center at Memorial Sloan-Kettering Cancer Center www.MSKCC.org

Simms/Mann UCLA Center for Integrative Oncology www.SimmsMannCenter.ucla.edu

Zakim Center for Integrative Therapies at Dana-Farber Cancer Institute www.Dana-Farber.org

Johns Hopkins Integrative Medicine & Digestive Center www.JohnsHopkins.org

If you have any questions for me, email me at [email protected] or call (800) 615-2270.

(800) 615-2270

Page 14: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Dana Nolan MS LMHCLicensed Mental Health Counselor

Page 15: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Why CAM?

Lack of faith in Western Medicine

Avoid side effects/long term effects of traditional treatment

Mind/body connection

Lack of control

(800) 615-2270

Page 16: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Loved ones want to DO something Offering to help investigate treatment options

Strong opinions Love Concern Fear

This can lead to mesothelioma patients feeling pressured by family/friends to pursue one type of treatment over the other.

(800) 615-2270

Page 17: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

How to help Ask your loved one if they want your assistance in

investigating treatment options/centers

Accept their treatment decision

(800) 615-2270

Page 18: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

When the patient feels overwhelmed It is okay to set limits

Ask for their unconditional support

Understand that loved ones want to do something to help

(800) 615-2270

Page 19: The Mesothelioma Center's August Support Group Session - Complementary & Alternative Medicine

Challenging decisions Don’t underestimate the importance of supporting a

cancer patients treatment decision

Questions?

(800) 615-2270


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