THE STORY SO FAR2012 Impact Report
C o n t e n t s
President’s Letter 1
Research 3
Advocacy 7
Patients 9
Community 11
Donors 13
Board 22
Financials 23
Pancreatic Cancer Action Network 2012 Impact Report | 1
President’sLetter
Forces sufficient to turn the tide in our battle against pancreatic cancer are, at last, growing.
A robust community of researchers is forming – coordinating their efforts to speed advancements in treatment and early detection. Families that have suffered at the hands of the disease are demanding national action. The public – shocked and saddened that so many lives are lost so quickly to pancreatic cancer and alarmed by the projected 55 percent increase in its incidence by 2030 – is rallying to our cause.
Lawmakers, galvanized by the appalling losses our nation suffers from pancreatic cancer, are speaking up. In September 2012, the U.S. House of Representatives unanimously passed the Recalcitrant Cancer Research Act, formerly known as
the Pancreatic Cancer Research & Education Act. The same day, the Senate Health, Education, Labor and Pensions Committee marked up similar legislation. In short, we have, for the first time, the intellectual and material resources and the national will to go on the offensive against pancreatic cancer.
Many brave pioneers have helped bring us to this day. The donors, advocates, leaders of public policy, healthcare professionals and scientists, volunteers and, most of all, the patients and their families who took up the cause when there was little to hope for except hope itself, now know that their vision and optimism were not misplaced.
For the first time, we have the intellectual and material resources and the national will to go on the offensive against pancreatic cancer.
Scientists who applied their gifts to pancreatic cancer research with faith that, in time, others would join them – they, too, no longer represent a small and scattered force, but the vanguard of an increasingly powerful scientific movement.
To these heroes of the Pancreatic Cancer Action Network, we say thank you. Thank you for having the courage to invest yourselves in a daunting fight many would shrink from. Thank you for bringing us to the threshold of change.
To those new to our movement, thank you for joining this effort. Thank you for your willingness to help create the first slow momentum, the early and sometimes seemingly meager gains upon which all future, more rapid progress depends. The road ahead will not be easy, but advances will come if we remain spirited and strategic in our fight.
The battle against cancer advances on many fronts. The front at which we have chosen to fight is one of the darkest and most intractable.
But the light is beginning to rise.
Pancreatic Cancer Action Network 2012 Impact Report | 2
We have a plan. We will build a sufficient and sustained research community and increase clinical trial participation. We will grow federal support. We will mobilize supporters, families, donors and influencers.
We will, with your help, double the pancreatic cancer survival rate by 2020.
Yes, our goal is ambitious. Some say it is impossible. But the same was once said of breast cancer, leukemia and HIV/AIDS. It is now time for pancreatic cancer to lose its place as one of the most stubborn cancers and to become known as one of the most survivable. It is time to conquer that which, for far too long, has conquered us.
It is time for action. We are ready. Come join us.
Julie Fleshman, JD, MBAPresident and CEO
Watch a video featuring Pancreatic Cancer Action Network President and CEO Julie Fleshman
Pancreatic Cancer Action Network 2012 Impact Report | 3
Research &Scientific Affairs
This year marks an exciting milestone for the Pancreatic Cancer Action Network’s research grants program: a decade since its establishment in 2003. Since then, 80 grants, totaling an impressive $12.7 million, have been awarded.
Scientific understanding of pancreatic cancer has historically been hindered by limited private and federal funding and a sparse and fragmented research community. We solve this problem by advancing the development of a robust pancreatic cancer research community. Due to our efforts, the momentum in the pancreatic cancer research community is growing.
More scientists are studying the disease than ever before, leading to an increase in basic understanding of the biology of pancreatic cancer development and progression. We work with the scientific community to ensure that progress continues by directly funding research, advocating for more resources for investigations
into the disease from the federal government, and facilitating interactions and collaborations within the research community.
To foster the development of a robust research community, our grants program attracts investigators with innovative ideas and brilliant early-career scientists.
Due to our efforts, the momentum in the pancreatic cancer research community is growing.
When the program was launched a decade ago, the two research grant mechanisms awarded were Career
Scientific Advisory Board Chair Anirban Maitra, MBBS
Watch a video from Diane Simeone, MD
Pancreatic Cancer Action Network 2012 Impact Report | 4
Development Awards (given to bright early-career scientists embarking on their studies of the disease) and Young Investigator Awards, now referred to as Fellowships (distributed to postdoctoral and clinical fellows still training in the laboratories of more senior scientists).
The Pilot Grant, now called the Innovative Grant, was introduced in 2007 and provides funding to independent investigators at any stage of their career who have novel ideas and/or approaches to tackle pancreatic cancer. Finally, in 2010, our newest and largest grant mechanism was added, Pathway to Leadership. This grant spans five years and provides $600,000 in funding to postdoctoral and clinical fellows, supporting their research and career development as they transition from mentored positions to running their own independent laboratories.
During the past 10 years, the Pancreatic Cancer Action Network has partnered with the American Association for Cancer Research (AACR) to administer the research grants program, ensuring a rigorous, peer-review assessment of applications.
A careful evaluation of our research grants program in 2011 highlighted very encouraging results.
Investigators who received grants between 2003 and 2009 were analyzed, and we found that our strategy to grow the pancreatic cancer field is working: Grant recipients are staying in the field of pancreatic cancer and successfully leveraging our investment to receive subsequent research support.
From 2003 to 2009, the organization invested $4.8 million in research funding, made possible by private donations and volunteer fundraising. Grant recipients leveraged this investment into $41.7 million in additional pancreatic cancer research funding. In other words, every dollar we invest in research funding was leveraged into $8.61 in additional support for pancreatic cancer research. Additionally, grantees successfully published their findings in reputable biomedical journals. This analysis will be repeated in 2013, and continue on a biennial basis moving forward.
As evidenced by these evaluation results and the highlights below from the 2011-12 fiscal year, now is a very exciting time in the pancreatic cancer research community. A testament to the growth and momentum in the field was the first AACR Pancreatic Cancer Special Conference held in June 2012, for which the Pancreatic Cancer Action Network was the lead supporter.
Grant recipients leveraged this investment into $41.7 million in additional pancreatic cancer research funding.
Impressively, more than 450 scientists registered for the event, and the quantity and quality of research presented were remarkable. The expansion of knowledge about the basic scientific features of pancreatic tumors leaves us poised to translate these findings into clinical benefit. The Pancreatic Cancer Action Network is working tirelessly with the scientific community to achieve our organization’s goal to double the pancreatic cancer survival rate by 2020.
Research Highlights in 2011-12:• AACR hosted its first Special
Conference on pancreatic cancer research, with 450 registrants and robust scientific discussion. The Pancreatic Cancer Action Network proudly served as the lead supporter of this meeting, and we were delighted to observe that many current and former research grant recipients and Scientific and Medical Advisory Board members were well represented among the leaders, speakers and poster presenters.
• Fourteen research grants, for a record total of more than $3.4 million, were distributed this year. This sum marks a 30 percent increase over last year’s research investment.
• In addition to the distribution of research funds, grant recipients become part of our Community for Progress, and are paired with mentors, participate in high-level scientific meetings and join professional committees, develop research collaborations, and are connected with survivors and their family members to help inspire research progress.
• The American Association for Cancer Research (AACR) Annual Meeting featured its first poster and discussion session on pancreatic cancer, which spotlighted a group of our grant recipients and was a great success.
• At the October 2011 scientific session with the organization’s Scientific and Medical Advisory Boards, grant recipients presented their research progress and engaged in discussions with leading scientists.
Pancreatic Cancer Action Network 2012 Impact Report | 5
2012 GrantsOur research grants program is designed to attract brilliant early-career scientists and investigators with innovative ideas regarding the study of pancreatic cancer. By recruiting the brightest scientists with the most novel ideas, we continue to build a comprehensive research community poised to make significant scientific discoveries.
2011-12 Quotes“I was the inaugural recipient of a prestigious Pathway to Leadership Award in 2010. It came at a critical juncture of my career when I was finishing up my clinical and postdoctoral training in the Medical Oncology Fellowship at Johns Hopkins University. As someone committed to academic research, I was looking to continue research in the field of pancreatic cancer, and without this grant, I may not have been able to do so…”
Zeshaan Rasheed, MD, PhD 2010 Tempur-Pedic® Retailers – Pancreatic Cancer Action Network – AACR Pathway to Leadership Grant, Johns Hopkins University, Baltimore, MD
“As a grant recipient of the Pancreatic Cancer Action Network, I have received far more than the simple value of the funding provided to my group. I have been introduced to a community of pancreatic cancer researchers, patients, family members and advocates that is rich with hope and bursting with energy. Through meetings and other events organized by the Pancreatic Cancer Action Network, I have come to know dozens of scientists in the field. These introductions have led both to specific collaborations as well as to a general sense of connection with the field as a whole. In my experience, the personal mentoring program established by the Pancreatic Cancer Action Network is unique among granting organizations, providing a rare opportunity to receive personal feedback and support from a senior scientist in the field.”
Kenneth Olive, PhD 2011 Tempur-Pedic® Retailers – Pancreatic Cancer Action Network – Career Development Award, Columbia University, New York, NY
“The Career Development Award from the Pancreatic Cancer Action Network has tremendous benefit, not only for its funding, but through access to established relationships and a personal incorporation into the pancreatic collaborative community. This Career Development Award has allowed me to transition into the pancreatic cancer field and to generate a strong foundation of data to fully pursue my own line of research. Equally important, integration of my research into the scientific community was achieved through personal interactions and collaborations established with leading senior pancreatic cancer scientists that were facilitated through this comprehensive award.”
Michael VanSaun, PhD 2010 Pancreatic Cancer Action Network – AACR Career Development Award, Vanderbilt University, Nashville, TN
Pathway To Leadership Grants
Celgene CorporationStephanie Dougan, PhDWhitehead Institute of Biomedical Research, Cambridge, MATransnuclear Mice: Understanding the T Cell Response to Pancreatic Cancer
The Daniel and Janet Mordecai FoundationOliver McDonald, MD, PhDJohns Hopkins University, Baltimore, MDGenome-wide Epigenetic Reprogramming During Evolution of Pancreatic Cancer
Fellowship Award
Samuel StroumFlorencia McAllister, MDJohns Hopkins University, Baltimore, MDRole of inflammatory cells in early pancreatic tumorigenesis
Pancreatic Cancer Action Network 2012 Impact Report | 6
Career Development Awards
The Daniel and Janet Mordecai Foundation Jiyoung Ahn, PhDNew York University, New York, NYOral Microbiome and Pancreatic Cancer: a Prospective Case-Control Study
The Daniel and Janet Mordecai FoundationDarren Carpizo, MD, PhDUniversity of Medicine & Dentistry of New Jersey – Robert Wood Johnson Medical School, New Brunswick, NJPre-clinical Studies of a p53 Mutant Synthetic Lethal Compound in Pancreatic Cancer
Skip ViraghEric Collisson, MDUniversity of California, San Francisco, CAOptimizing MEK Inhibition in Pancreatic Cancer; from Cytostatic to Cidal
The Daniel and Janet Mordecai Foundation Mikala Egeblad, PhDCold Spring Harbor Laboratory, Cold Spring Harbor, NYDynamics of Tumor-Stroma Interactions in Pancreatic Cancer
The Daniel and Janet Mordecai FoundationKazuki Sugahara, MD, PhDSanford-Burnham Medical Research Institute, La Jolla, CATissue-Penetrating Drug Delivery to Desmoplastic Pancreatic Tumors
Pancreatic Cancer Action Network David Sung-wen Yu, MD, PhDEmory University, Atlanta, GAExploiting the Replication Stress Response in Pancreatic Cancer
Innovative Grants
George & June Block Family FoundationDavid Boothman, PhDUT Southwestern Medical Center, Dallas, TXNQO1-mediated ‘Kiss of death’ Targeted Therapy for Pancreatic Cancer
AACR Innovative Grant (Grant funded in part by the Lefkofsky Family Foundation)Paul Chiao, PhDMD Anderson Cancer Center, Houston, TXTAK1 is a Novel Therapeutic Target in Pancreatic Cancer
Tempur-Pedic® RetailersChanning Der, PhDUniversity of North Carolina, Chapel Hill, NCMechanism of ERK Inhibition Resistance and ERK-dependent Pancreatic Cancer
Bonnie L. TobinPeter Espenshade, PhDJohns Hopkins University, Baltimore, MDSREBP Pathway as a Target for Pancreatic Cancer Therapy
Blum-KovlerTyler Jacks, PhDMassachusetts Institute of Technology, Cambridge, MAMechanisms of K-RAS Independent Growth in Pancreatic Cancer
Pancreatic Cancer Action Network 2012 Impact Report | 7
Government Affairs& Advocacy
157 Signatures in Two WeeksIn June 2012, the bill authors – Senator Sheldon Whitehouse (D-RI) and Representatives Anna Eshoo (D-CA) and Leonard Lance (R-NJ) – circulated letters to their congressional colleagues urging the leaders of the Senate Health, Education, Labor & Pensions (HELP) and House Energy & Commerce committees to move the bill out of committee so that the full Senate and House could vote on them. Again, our grassroots volunteers sprang into action and helped secure 43 signatories on the Senate letter and 114 on the House letter – in just two weeks’ time.
Increased NCI FundingSince the Pancreatic Cancer Action Network’s advocacy program was founded in 1999, increasing federal funding for pancreatic cancer research has remained a top priority.
In 2011, these efforts resulted in a 2.3 percent increase in National Cancer Institute (NCI) funding for pancreatic cancer research. This achievement is particularly noteworthy given that the NCI’s overall budget did not increase during this time.
678 Congressional ProclamationsSupporters from across the country raised awareness about pancreatic cancer in their states and hometowns by securing 678 proclamations from their state and local elected officials, representing a 15 percent increase compared with 2011.
Congressional BriefingIn March 2012, the Pancreatic Cancer Action Network sponsored a congressional briefing on pancreatic cancer in the U.S. House of Representatives that was very well attended by congressional staff. George Fisher, MD, PhD,
Our Government Affairs & Advocacy program, based in Washington, DC, focuses on educating elected officials about pancreatic cancer and the need to increase federal research funding dedicated to studying the disease.
Thanks to the efforts of the Pancreatic Cancer Action Network and its tireless volunteers, the Recalcitrant Cancer Research Act (formerly known as the Pancreatic Cancer Research & Education Act) was passed by the U.S. House of Representatives and at the writing of this report is awaiting a vote by the Senate. With 59 Senate co-sponsors and 293 House co-sponsors, the bill has more support than the majority of bills introduced in the 112th Congress.
Pancreatic Cancer Action Network 2012 Impact Report | 8
Associate Professor of Medicine at Stanford University, discussed the ongoing challenges he encounters in treating patients with the disease and the struggles the scientific community continues to face in the field of pancreatic cancer research. Representatives Eshoo and Lance also spoke, as well as Eva Noesen, widow of Tyler Noesen, who died in January 2012 of pancreatic cancer at age 30.
Pancreatic Cancer Advocacy DayIn June 2012, the Pancreatic Cancer Action Network hosted the sixth annual Pancreatic Cancer Advocacy
Day in Washington, DC. Nearly 650 supporters from 49 states attended the event, a 19 percent increase compared with 2011. In addition, almost 2,500 supporters participated from home, making more than 5,600 phone calls to Congress during the National Call-In, a 105 percent increase in calls over the year before.
This year, approximately 9,400 advocates sent over 25,000 email messages, reaching 533 of 535 congressional offices.
2011-12 Quotes
“Attending Advocacy Day on Capitol Hill was powerful. Our personal stories made a real difference in the U.S. House in passing our bill. We will make a difference.”
Judy Lloyd Advocacy Coordinator San Francisco Bay Area Affiliate
“Attending Advocacy Day was a very empowering experience for both my sister and me. It gave us an opportunity to advocate on behalf of my mother, who passed away three years ago from this devastating disease. It’s an amazing feeling to advocate for something that desperately needs a voice and to meet other people around the country that have gone through a similar experience and have the same passion to take down pancreatic cancer.”
Katie Boucher Advocacy Coordinator Rhode Island Affiliate
“Attending Advocacy Day in Washington, DC, and sharing my father’s story with my members of Congress gives me a reassuring hope that changes can be made in fighting pancreatic cancer and that I get to honor my father’s memory by being a part of it.”
Allison Whisman Advocacy Coordinator Indianapolis Affiliate
Pancreatic Cancer Action Network 2012 Impact Report | 9
Patient & LiaisonServices (PALS)
The PALS program is the only one of its kind providing quality, detailed information on topics including pancreatic cancer, diagnosis, treatment options, clinical trials, diet and nutrition, specialists and support resources. The goal of the program is to help patients and their families learn about and understand their options so that they may make informed choices together with their medical care teams.
The Pancreatic Cancer Action Network recommends that all pancreatic cancer patients consider clinical trials when exploring treatment options. The PALS program maintains a database of all active pancreatic cancer clinical trials in the U.S. PALS Associates are able
to search this database to provide personalized clinical trial information for interested patients and family members.
More patients and family members contacted the PALS program than ever before.
In addition, the PALS program offers a library of educational materials and hosts the Pancreatic Cancer Educational Event Series held around the country for patients and their families.
The Pancreatic Cancer Action Network’s Patient and Liaison Services (PALS) program is a comprehensive, free information and education service for pancreatic cancer patients, their family members and caregivers, and healthcare professionals. Individuals who contact the PALS program are matched with highly trained, dedicated staff members called PALS Associates, who are available to answer questions and provide information and support.
Watch a video featuring Medical Advisory Board Chair Jordan Berlin, MD
Pancreatic Cancer Action Network 2012 Impact Report | 10
PALS by the Numbers
6,500+More than 6,500 individuals and families called or emailed the PALS program for pancreatic cancer education, resources, information and hope.
18%The number of PALS contacts increased by 18 percent over the previous year.
50,000Nearly 50,000 pieces of PALS educational literature were distributed free of charge to health professionals in hospitals and clinics across the nation.
3,000Additionally, approximately 3,000 educational packets were ordered online by individuals seeking information about the disease.
65,000Since 2002, nearly 65,000 patients and their families have utilized services and resources offered through PALS.
2,500PALS provided nearly 2,500 peer-to-peer matches through the Survivor and Caregiver Network. This program connects people facing pancreatic cancer with volunteers who share their personal experiences and offer support, encouragement and hope.
1,700 Clinical Trials SearchesOutreach designed to increase the number of pancreatic cancer patients who consider participating in clinical trials resulted in nearly 1,700 personalized clinical trials searches, a 161 percent increase over the previous year.
500% Increase in Clinical TrailsJanuary was declared “National Pancreatic Cancer Clinical Trials Awareness Month.” During this time, PALS Associates conducted 439 personalized clinical trials searches, nearly 500 percent more than the average number of monthly searches conducted during January 2011.
1,000 EducatedThe Pancreatic Cancer Educational Event Series offered four Symposia in cities across the United States and, in conjunction with local volunteers, also provided Educational Lectures in 11 additional cities.
97% SatisfactionPALS Associates maintained impressive quality assurance ratings regarding the services they delivered, the helpfulness of materials provided, and the timeliness of the receipt of materials, with an average quality assurance score of 97 percent satisfaction.
Pancreatic Cancer Action Network 2012 Impact Report | 11
CommunityOutreach
We support an army of volunteers across the country that hosts local events, attends health fairs, distributes patient information to hospitals and doctors’ offices, contacts the media, and alerts elected officials about the urgent need for scientific progress in pancreatic cancer research.
In communities around the country, the passion and commitment of our volunteers have created a growing movement that propels our mission forward in each program area. Within each of the organization’s 61 affiliates, an official volunteer structure is set up that includes volunteer Affiliate Coordinators, Event Coordinators, Media Representatives, Education & Outreach Coordinators, and Advocacy Coordinators. Supporters sign agreements to officially participate in these leadership roles. Each official volunteer role has a committee made up of passionate volunteers that help fulfill the organization’s mission in their community.
In more than 30 additional communities, Community Representatives focus their efforts on outreach to local healthcare professionals as well as advocacy. The results are amazing!
TEAMHOPE®
In 2011-12, 220 runners and walkers participated in 93 races around the country as part of our National and Individual TEAMHOPE marathon programs. Through their efforts, TEAMHOPE participants raised gross revenue of nearly $600,000.
AdvocacyAdvocates sent more than 25,000 messages to members of Congress and arranged 56 visits to 51 local congressional offices, in addition to the visits that were made in Washington, DC.
Nearly 650 supporters (a record number) representing 49 states joined us in June 2012 on Capitol Hill, to participate in the sixth annual Pancreatic Cancer Advocacy Day to advocate for increased federal
The Pancreatic Cancer Action Network started as a small volunteer effort to increase awareness and move people to take action against pancreatic cancer. In fact, it remains our driving force today.
“Receiving the Media Representative Award at the annual volunteer leadership training was the highlight of my volunteer experience as well as one of the highlights of my life. To see my peers recognize me for not only doing the right thing, but helping others possibly beat this insidious disease, was such an amazing experience.”
Todd Cohen Media Representative Northern New Jersey
“While my father was ill, I got the benefit of feeling like I was able to do something during a time of otherwise helplessness (by volunteering). Now, I do it in his memory so that his death may serve as … a legacy of hope.”
Kimberly Dowling Community Representative Anchorage, AK
“Our affiliate is full of volunteers who sincerely care about this cause and are motivated to do anything they can to support families who are affected by this disease.”
Kathryn Brekle Event Coordinator Birmingham, AL
Pancreatic Cancer Action Network 2012 Impact Report | 12
research funding and support for the Recalcitrant Cancer Research Act (formerly known as the Pancreatic Cancer Research & Education Act).
Outreach and AwarenessVolunteers hosted information tables at health fairs, gave presentations at hospitals, rotary clubs and schools, and raised awareness in their local healthcare communities at nearly 300 events, an increase of almost 50 percent over the previous year. Also in 2011-12, volunteers delivered more than 300 informational packets to
healthcare professionals around the country, informing them of our Patient and Liaison Services (PALS) program.
EventsIn 2011-12, volunteers held 195 affiliate and signature events, such as PurpleStride, PurpleRide, PurpleSwim, and the PurpleLight Vigil for Hope. We also benefited from more than 270 third-party events. In total, all of these events grossed more than $9.8 million, a 26 percent increase compared with the previous fiscal year.
Media AwarenessMedia volunteers across the country shared their stories, secured local media time for our public service announcements, and garnered coverage for local events. In 2011-12, thanks to volunteer support, the organization registered more than 2,500 media hits, with a reach in excess of 1.3 billion impressions.
PurpleStride® is the signature awareness event of the Pancreatic Cancer Action Network.PurpleStride is the signature awareness event of the Pancreatic Cancer Action Network. Volunteers around the country hold local PurpleStrides, generating critical media and public attention for the disease, drawing tens of thousands of participants and raising millions of dollars in support of the fight against pancreatic cancer.
National Impact
48PurpleStride events
$6.74million raised
57,125participants
811survivor participants
Team
3,994Company andCommunity teams
$4.97million raised
Top Fundraisers
$83,000Wendy Keil(individual fundraiser)
$154,000Walking for WendyCommunity Team(16 events)
$80,000Union Pacific Company Team(597 participants)
National Impact
206sponsors
$405,000value of sponsorship support
$28,000Genentech Top Sponsor(13 events)
Data reflects revenue and registrant totals for the period from July 1, 2011, through June 30, 2012. FY 2011-12 events may have brought additional revenue and registrants prior to or after the fiscal year. Dollar amounts rounded.
Pancreatic Cancer Action Network 2012 Impact Report | 13
Donor & CorporateRelations
The George & June Block Family Foundation, at the direction of Barbara and Mat Vanderkloot, gave
$200,000 to fund a Pancreatic Cancer Action Network – AACR Innovative Grant in 2012. The family’s company, Carstens®, which provides patient charting solutions, also contributed sponsorship funding for PurpleStride Chicago in 2012.
Going a step further, the Vanderkloot family, together with many Carstens employees and their family members, teamed up to walk at the PurpleStride event to honor the memory of their mother, June Block, and company
employee Kelly Haas, both of whom lost their fights against the disease.
“Because of our mother’s courageous battle against pancreatic cancer, and her desire to help others facing it, one of the aims of our family foundation includes a serious commitment to researching the disease that claimed her life in 2010,” said Barbara and Mat Vanderkloot. “Our hope is that much more effective treatments for pancreatic cancer will soon be found.”
A record $1.4 million gift from The Daniel and Janet Mordecai Foundation, given in memory of Daniel Mordecai, enabled the
Pancreatic Cancer Action Network’s 2012 Research Grants Program to support the investigations of a new class of early-career scientists, providing much-needed resources to help uncover the mysteries surrounding the disease.
“I am proud to honor Daniel’s memory by partnering with the Pancreatic Cancer Action Network to advance research into this devastating disease,” said Janet Mordecai, President of The Daniel and Janet Mordecai Foundation, in reference
to her husband’s passing from pancreatic cancer in 2002.
“The organization’s proven track record of building leaders in the research community who leverage their funding for larger federal grants ensures that our investment will make a difference in years to come,” she added. “We must better understand this disease, including its genetic components, to ensure that future generations have a fighting chance against it.”
Since the inception of the Pancreatic Cancer Action Network, generous donors have been, and continue to be, the engine that helps drive our progress. With their continued support, we will create a brighter future for everyone affected by this devastating disease and achieve the goal of doubling the pancreatic cancer survival rate by 2020.
Mordecai FamilyHighlight
Vanderkloot FamilyResearch Funder
Pancreatic Cancer Action Network 2012 Impact Report | 14
Nick Friedmann’s fundraising efforts in memory of his father – Roberto
“Bobby” Friedmann, PhD, who worked as an Associate Professor in the Terry
College of Business at the University of Georgia – have been extraordinary. A Keep the Memory Alive page (www.fight4bobby.org) Nick created to support a Named Legacy Fund in honor of his dad, who passed from pancreatic cancer in September 2011 at age 58, has raised more than $55,000 to date, placing it among the Pancreatic Cancer Action Network’s most successful pages of this type.
In addition to this support, members of the Friedmann family made their own generous personal donations, provided
major sponsorship for PurpleStride DC in 2012, and attended Pancreatic Cancer Advocacy Day 2012.
“Our family took this on to deal with our emotions about Dad’s death and to make a real impact in fighting the disease that took his life,” Nick said.
“We are proud to have helped fulfill one of his last wishes – supporting the mission of the Pancreatic Cancer Action Network.”
After Thomas G. Patterson, a longtime executive with Hallmark Cards in Kansas City, MO, was diagnosed with pancreatic cancer in 2011, his wife, Wynne Begun, found a place to turn for the help she needed.
“We called PALS after our doctor suggested it at the time of Tom’s diagnosis, and I feel fortunate that we did,” Wynne said. “The Pancreatic Cancer Action Network wrapped around us during his illness, so we felt supported every step of the way.”
After Tom’s passing later that year, Wynne called to obtain a memorial kit for his service, then soon after created a Keep the Memory Alive page in his honor. Her support of the organization continued to deepen even more after she became the Education & Outreach
Coordinator for the Kansas City affiliate and then hosted a third-party event in tribute to Tom that raised more than $25,000.
“Ultimately, our family established a Named Legacy Fund to honor Tom’s memory and to show our appreciation for the information, support and solace the Pancreatic Cancer Action Network provided for us,” Wynne said.
Nick FriedmannKeep the Memory Alive
Wynne BegunNamed Legacy Fund
Pancreatic Cancer Action Network 2012 Impact Report | 15
The Pancreatic Cancer Action Network thrives on the power of business alliances and collaborative efforts. Our Corporate Champions produce tremendous impact, leveraging their brand strengths and customer loyalty on behalf of the pancreatic cancer community and accelerating our progress toward the 2020 goal.
Z Gallerie® has generously supported the Pancreatic Cancer Action Network for more than a decade through numerous cause-related marketing promotions, individual giving opportunities and in-kind donations. The Zeiden family became involved with the Pancreatic Cancer Action Network as a tribute to their mother, Shirley Zeiden, who passed from the disease. Z Gallerie regularly contributes a percentage of sales from shopping events and opening
weekends, donating more than $450,000 cumulatively to the cause.
“In June of 2002, our mom, Shirley Zeiden, died from pancreatic cancer. From the moment she was diagnosed, we did everything we could to not only support her and help her fight this horrific disease, but also learn about it. However, in a period of six short months, she died, leaving us heartbroken and asking what more could have been done. Today, there
are still too many families who, like ours 10 years ago, are left questioning why there are still no early-detection tools or effective treatments for pancreatic cancer. That’s why Z Gallerie and my family support the work of the Pancreatic Cancer Action Network. As the rate of incidence only continues to rise, we need more action, more support and definitely more awareness.”
–Mike Zeiden, Co-Founder, Z Gallerie
Tempur-Pedic® has raised more than $1 million to date since the inception of the Tempur-Pedic Hugs Back program in 2009. As part of the 2011 program, Tempur-Pedic hosted its second annual November Rest Test campaign, which generated a $10 donation for the organization for
every consumer who “tried” a Tempur-Pedic mattress at a participating authorized retailer. The number of Rest Tests taken by consumers this year grew by more than 50 percent.
“Our company is committed to continuous research and innovation
and moving courageously ahead when faced with challenging odds. I see these same qualities in the Pancreatic Cancer Action Network.”
–Rick Anderson, President Tempur-Pedic North America, LLC
Z GallerieCorporate Champion
Tempur-PedicCorporate Champion
Pancreatic Cancer Action Network 2012 Impact Report | 16
This year, Celgene Corporation generously established the Celgene Corporation Pancreatic Cancer Action Network – AACR Pathway to Leadership Grant 2012. The five-
year grant, totaling $600,000, was awarded to Stephanie Dougan, PhD, Whitehead Institute for Biomedical Research through the Pancreatic Cancer Action Network’s peer review
process. Celgene is committed to improving the lives of patients worldwide.
For the second year in a row, Lockton® Companies, an independent insurance brokerage firm, was the presenting sponsor of PurpleStride Kansas City. The firm has additionally championed the cause through its ongoing efforts as the Top Team Fundraiser.
More than 60 Lockton team participants came together and raised more than $22,000 in addition
to the $5,000 corporate sponsorship for PurpleStride Kansas City 2012. Lockton’s cumulative efforts in support of Pancreatic Cancer Action Network have totaled $54,000 to date.
“We embraced this organization, and regardless of the amount of time we had to plan and fundraise for the event, it was going to be a success.
But the true heroes of the event were the pancreatic cancer survivors who bravely stood on stage that day with tears in their eyes and said thank you to all the supporters. It was an amazing day for all!”
–Sara Harper, Community Relations Specialist, Lockton Companies
PurpleStride DFW (Dallas-Fort Worth) 2011 was the first event to launch the new Honorary Chair program, which is geared toward corporate engagement for signature events. President and CEO of Briggs Freeman Sotheby’s International Realty, Robbie Briggs, stepped up to fill the role of Honorary Chair. He coordinated the creation of their team, “Briggs Freeman Sotheby’s Charlie’s Angels,” and hosted their “Spirit in the Sky” Leadership Breakfast, both in memory of Charles
Freeman, former president and co-founder of the company.
At the “Spirit in the Sky” breakfast, colleagues and peers gathered to lend their support via team participation, donations and fundraising. Through these efforts, Briggs Freeman Sotheby’s International Realty recruited more than 150 participants and raised more than $60,000 for PurpleStride DFW 2011.
“Charles Freeman was a treasured friend and colleague to many in the Dallas real estate community. It is our privilege to participate in an event that honors his memory.”
–PurpleStride DFW participant
Celgene CorporationIndustry Champion
Lockton CompaniesCorporate Sponsorship
Briggs Freeman Sotheby’sCorporate Sponsorship
Pancreatic Cancer Action Network 2012 Impact Report | 17
Cumulative Lifetime Giving:
$1,000,000+Continental Development Corporation
Daniel and Janet Mordecai Foundation
Genentech, A Member of the Roche Group
Tempur-Pedic North America, LLC
$500,000 – $999,999+Blum-Kovler Foundation
Celgene Corporation
Eli Lilly and Company
The Palette Fund, Inc.
Viragh Family Foundation
$250,000 – $499,999Bristol-Myers Squibb Company
The Friends and Family of Randy Pausch
Estate of Bonnie Tobin
Fredman Family Foundation
Jones Day
Michael Sweig Foundation
The Carole & Robert Daly Charitable Foundation
The Seena Magowitz Foundation, Inc.
Ambassador Cynthia Stroum
SuperGen, Inc.
Z Gallerie
$100,000 – $249,999Angus Mitchell Foundation
Bank of America
Braman Family Foundation
Constance Ann Williams
Daniel Kleiman Fund
Estate of Sharon Schwartz
The George and June Block Family Foundation
Zorina R. Kroop
Jason Kuhn
Lefkofsky Family Foundation
Leibowitz Family Foundation
Laurie and Paul L. MacCaskill
Michael & Cindy Landon Foundation
Michael C. Sandler and Brenda R. Potter 1998 Trust
OSI Pharmaceuticals
Patty Boshell Pancreatic Cancer Foundation
Pfizer Inc.
The Riordan Foundation
Roche Laboratories
Sanofi
John M. Sobrato and Family
Star Magazine
Terry & Jane Semel Charitable Foundation
The Jeanenne Thompson Foundation
Theodore W. Batterman Family Foundation
$50,000 – $99,999Abraxis Bioscience, LLC
Amgen
Anita and Chris Anderson
Tammy L. and Brandon Andries
The Bernard Lee Schwartz Foundation, Inc.
Nanci Caldwell
Cancer Treatment Centers of America
Cantor Fitzgerald
Clare Rose Foundation, Inc.
Dr. Laurence A. Mack Memorial Fund
Estate of John Meyer
Frank H. Olson FBO
Graphic Solutions Group
Heather and Paul G. Haaga
Hackers for Hope
Jill Hammerstone
Infinity Pharmaceuticals, Inc.
John & Mary Pfouts (CRUT) Trust
The Kenan Family Foundation
Mr. and Mrs. David H. Koch
Millennium Pharmaceuticals
Morgan Family Foundation
Peter J. Morgan
National Philanthropic Trust
Ocean State Job Lot Charitable Foundation
Ellen Pansky
Polo/Ralph Lauren Corporation
Rensselaer Honda
Resnick Family Foundation
Nancy and Stuart E. Rickerson
The Sharon Roberts Pancreatic Cancer Foundation
The Shirley Hobbs Martin Memorial Fund
Mr. and Mrs. Marc I. Stern
Bradley Tabach-Bank
The Elsie & Marvin Dekelboum Foundation, Inc.
Virginia Mason Medical Center
Gordon W. Williams
Anonymous Donor
$25,000 – $49,999Sheila Allen
The Andrew Gomez Dream Foundation
Anne and Mead Montgomery Family Foundation
Cheri Boublis
Brannin Charitable Foundation Trust
The Broad Foundation
Matt Brown
Ed Cantwell
Caplan Family Fund
Circle of Hope Bracelets
Clovis Oncology Inc.
CWS Dynamic Marketing Digital Core
CyberKnife Society
Toni and Bruce Dachis
Nancy M. Daly
Candy and Eddie J. DeBartolo, Jr. and Family
Richard DePosit
Derrick Ward Memorial Car Show
Detroit Lions Charities
Dick & Sally Brickman Fund
Disney Worldwide Services, Inc.
John Dunbabin Family Trust
Edelman Public Relations
Edward J. Friedman Foundation, Inc.
Maija B. and Al L. Eerkes
Encana Oil & Gas (USA)
Sally and Tim Ennis
Enterasys Secure Networks
Estate Of Cynda Overton Mast
Estate of Margaret G. Potts
Thomas E. Ferguson
James H. Gallant
Marsha S. Garil
Genoveva Morales Uchalik Pancreatic Cancer Foundation
The George L. Shields Foundation, Inc.
Roni and Alan Gingold
The Goldsmith Family Foundation
Guess?, Inc.
Mariellen Gunn
Have A Skate With Bob Foundation
Ruth Herman
HM Insurance Group
Harry Howle
The Hoyt & Viorica Pardee Foundation
ImClone Systems
William H. Isacoff
Laura and Mark J. Jennings
JP Morgan Chase
Thomas Kaplan
Natalie Katz
Julie Fleshman and Randy Kennison
The Kotick Family Foundation
Nanci Caldwell & Adriana Kwicinski
The Lillian Rogatz Memorial Foundation
Linda J. Verville Cancer Research Foundation
Linda Tallen & David Paul Kane Education Research Foundation
Michael Link
Maggies Enterprises, Inc.
Magnate Management Corp.
Pancreatic Cancer Action Network 2012 Impact Report | 18
Mr. and Mrs. Douglas R. McKinney
Richard N. Merkin
MGI Pharma
Miami Office Systems
Captain Richard J. Miller
Hockey Fights Cancer
Novartis
Nowell Family Foundation
The Oberheide Family Foundation
Pan-Cure Fund
Pharmacia
Thomas J. Pyden
Walle Ralkowski
The Reichert Foundation
The Reif Family Fund
Reyes Family Foundation
Dr. Jeffrey A. Ross, PhD
Ross Products Division Abbott Labs
Rudi Schulte Family Foundation
Jeanne Weaver Ruesch
The Saban Charitable Support Fund
Sanford C. Berstein & Co., LLC
Mr. and Mrs. Rock Schnabel
Carl Schuster
Sealy
Amanda Seyfried
The Sheldon Lischin Foundation
Shirley French Lilac
Signal Hill CW Television (KTTC, Fox 47 and Cumulus)
Simmons
Sprint Foundation
Judith Stein, Esq.
Steven and Julie Brickman Fund
Strike For The Cure
The Susanne and Gary Tobey Family Foundation
USC Norris Cancer Center
Verde Taqueria
Warner Bros. Entertainment
Wasserman Foundation
Cheryl L. Williams
Jeffrey Wilson
Wolfgang Puck Fine Dining Group
Wyner/Stokes Foundation
Donations received from July 1, 2011 to June 30, 2012:
$1,000,000+Daniel and Janet Mordecai Foundation
$500,000 – $999,999Celgene Corporation
$100,000 – $499,999Blum-Kovler Foundation
Genentech, A Member of the Roche Group
The George and June Block Family Foundation
Lefkofsky Family Foundation
Tempur-Pedic North America, LLC
Theodore W. Batterman Family Foundation, Inc.
Viragh Family Foundation
$50,000 – $99,999Clare Rose Foundation, Inc.
Ocean State Job Lot Charitable Foundation
The Friends and Family of Randy Pausch
Pfizer, Inc.
Schwab Charitable Fund
Ambassador Cynthia Stroum
Z Gallerie
$25,000 – $49,999Ed Cantwell
CWS Dynamic Marketing Digital Core
Guess?, Inc.
Heather and Paul G. Haaga, Jr.
Hackers for Hope
Infinity Pharmaceuticals, Inc.
The Jeanenne Thompson Foundation, Inc.
Jill Hammerstone
Thomas Kaplan
Morgan Family Foundation
Mr. and Mrs. Peter J. Morgan
Pan-Cure Fund
Nancy & Stuart E. Rickerson
Jeanne Weaver Ruesch
Carl Schuster
Verde Taqueria
Wolfgang Puck Fine Dining Group
Anonymous Donor
$10,000 – $24,999Abbott Laboratories
Agensys, Inc.
American Association for Cancer Research
Andrew Sabin Family Foundation
Tammy L. and Brandon Andries
Bell Nunnally & Martin, LLP
Joseph Bencivenga
Sarah and Matt Bencivenga
Lee Berg
Bloomingdales, Inc.
Bonnie Rouse Revocable Trust, Sandra V.
Ogburn Trustee
Brannin Charitable Foundation Trust
Dianne S. Buffington
Camoplast Solideal, Inc.
Cancer Treatment Centers of America
Chase Centers Management, Inc.
Clovis Oncology, Inc.
Corridor Media, Inc.
Daniel Kleiman Fund
Derrick Ward Memorial Car Show
Disbrow Developments, Inc.
Dr. John K. McCormick Foundation
Alfred Duncan, III
Douglas M. Easton
Education Network to Advance Cancer Clinical Trials
Edward J. Friedman Foundation, Inc.
The Elsie & Marvin Dekelboum Foundation, Inc.
Epic Systems Coporation
Joe Essa
Fandango
Fineberg Foundation
Frances Brody Foundation
James H. Gallant
Gamma Sigma Sigma
Goleman Family Trust
Have A Skate With Bob Foundation
HH MedStar Health, Inc.
Highmark, Inc.
Hockey Fights Cancer
Joachim Splichal Family Fund
Bob Jones
Judith McBean Foundation
Knockout Music, Inc.
KPLC TV
LF USA
Lynda del Rossi Trust
MacDonald Family Charitable Trust
Mr. & Mrs. Dee McGonigle III
Microsoft Matching Gifts and Giving Campaign
Tom & Kathleen Morris
NBCUniversal Media, LLC
Northwest Leadership Foundation
Ellen Pansky
Michael Pearson
Gary Poland
Thomas J. Pyden
Raye M. Lee Living Trust
Davelle S. Reinke
Resnick Family Foundation, Inc.
Dr. Jeffrey A. Ross, PhD
Mr. and Mrs. Michael Schwartz
Amanda Seyfried
Strike For The Cure
Pancreatic Cancer Action Network 2012 Impact Report | 19
The Robert and Marion Schamann Brozowski Foundation
The Robert R. Baumann, Jr. Foundation
Thomas & Stacey Siebel Foundation
Estate of Bonnie Tobin
Vartabedian Family Foundation
Virginia Mason Medical Center
Weil, Gotshal & Manges Foundation, Inc.
$5,000 – $9,999102.9 Lite FM
Frederick Albright
Alpha Industries, Inc.
Amgen
Kathleen Andersen
Mr. and Mrs. Chris Anderson
Aquila Productions
Arrow Electronics, Inc.
Asuragen
Douglas Auerbach
Baker Tilly Virchow Krause, LLP
Bank of America, N.A.
Barbara Baumann
Bethlehem High School
Boeing Employees Credit Union - BECU
Mr. and Mrs. Matt Brown
Carstens, Inc.
Shari Carter
Cassandra’s Cure for Cancer Foundation, Inc.
Gerald Ciecior
Clear Channel Radio - Madison
Comcast
Brian P. Cover
Covex, LLC
Victoria Croll
Admiral and Mrs. Dennis Cronin
CSE Federal Credit Union
Cudahy High School Activity Fund
Cydney Daly
Mr. and Mrs. Edward J. DeBartolo, Jr.
Dublin City Schools
Ed Haggar Family Foundation
Edwards Wildman Palmer, LLP
Mr. and Ms. Al L. Eerkes
Joan Egrie
Alissa Eig
Eig Family Foundation
EisnerAmper Cares Fund
Ronen Elad and Family
Emerging Solutions, LLC
Encana Oil & Gas (USA)
Mr. and Mrs. Timothy M. Ennis
Epstein Family Foundation
Lynn Fastuca
Jason E. Fierko
Daniel E. Fogelman
Framingham Police Association Inc.
Fresenius Medical Care North America
Liliana Jaso-Friedmann, PhD
General Manufacturing Co.
Amanda Glass
GM Nameplate, Inc.
Cynthia Gordon and M. John Bunnell
Michael Green and Family
Mr. and Mrs. Bradley L. Gunn
Kelly Hall
Dorothy L. Hayes
Scott Helton, MD
Henry Warthen Memorial
Herman Family Joint Venture
David Herro
Clifford Hersman
Hospital of the University of Pennsylvania / Radiation Oncology
Mr. and Mrs. John Hotchkis
Harry Howle
Jack FM
Jamaica Bearings Co.
James C. Holleran Memorial Fund
James M. Williams, Jr. Family Foundation, Inc.
JBA Consulting Engineers
JCM Trust
Jefferson University Hospitals
Adam J. Kasower
Kaufman Family Foundation
KDKA - TV
Kent State University-Ashtabula
Margaret Keyes
King’s Hawaiian
Kingstowne Striders
Knapp Productions
Mr. and Mrs. Charles G. Koch
Koret Foundation
Cristina LaGrasta
Lane Construction Corporation
Barbara Lazaroff
Brian Lenzie
Liberty Mutual Group Inc.
Linda J. Verville Cancer Research Foundation
Liz Whitney Tippett Foundation, Inc.
Lockton Companies
Jennifer J. LoConte
Jane Marienau
Marvin P. Verhulst Foundation
Mary Diaz Pancreatic Cancer Fund
Mayo Foundation for Medical Education and Research
McDaniel College Athletic Department
McGonigle Witter Fund
Allan McMorris
Terrence Meck
Medscape, LLC
Michael & Cindy Landon Foundation
Lawrence B. Midtbo
Minnesota Medical Foundation
Moneytree, Inc.
Alfred Moses
Yakov Moskovith
Benjamin Novak
Brittany Parsons
Plotkin Family Foundation
Reed Smith, LLP
Richard R. Rettig
Richland Engine Parts
Mr. and Mrs. Nelson C. Rising
Rockwell and Marna Schnabel Foundation
Joshua Rogers
Rosenfeld, Wolff & Klein
Round House Theatre, Inc.
Rudi Schulte Family Foundation
Cathy H. Ryan
Kenneth J. Rybicki
Aileen Sheehan
Scott Simmons
Sold Enterprises, Inc.
St. Pete Road Runners Board of Directors
Stupski Family Fund
Sumner M. Redstone Charitable Foundation
Susan L. Klimaitis Foundation
The Susanne and Gary Tobey Family Foundation
The Funger Foundation, Inc.
The Oberheide Family Foundation
The Reichert Foundation
The Thornton Foundation
Barbera Thornhill
Township of Upper Chichester
Twin Cities Business Magazine
UAB Health System
Union Pacific Railroad
United Way of Greater Kansas City
University of Minnesota
University of Minnesota Medical Center, Fairview
University of Minnesota Physicians
Vanderbilt-Ingram Cancer Center
Vanguard Charitable Endowment Program
WCCO Radio
WCCO TV
Mr. and Mrs. Robert G. Weber
Western Reserve Life Assurance Company of Ohio
Mr. and Mrs. James C. Whitelaw
William and Lisa Ford Foundation
Mr. and Mrs. Ray Wirta
WSB-TV 2 Atlanta
Pancreatic Cancer Action Network 2012 Impact Report | 20
$2,500 – $4,99984 Lumber Company
Accuray, Inc.
Albert Whitted Airport Preservation Society
Alliant Energy Foundation
Allina Health System
American Campus Foundation
American Family Insurance
American Family Mutual Insurance Company
Mr. and Mrs. Brent E. Anderson
Judy Andrews
Anne and Mead Montgomery Family Foundation
Anschutz Entertainment Group, Inc.
Anthony & Jeanne Pritzker Family Foundation
Jane Madelon Anthony
Arc Thrift Stores
Marco D. Arment
Antonella P. Arnone
David T. Austern
Roger Bachman
Bank of America
Osamah Barakat
Tom and Lana Barnett
Mr. and Mrs. Richard J. Barrett
Julie Benham
Susan R. Bennett
Barbara Bereny
Bershtel Family Foundation
Bert Smith Oldsmobile, Inc.
Bertha Johnson Memorial For PanCAN
Blackthorne Capital Management, LLC
Bloomberg, LP
Bob Whitman Research Foundation
Richard M. Boccabella
Susan E. Boyd
Bernadette Brace
Sandy Brado
Branch Banking and Trust Company
Brevard Schools Foundation
James E. Breyfogle
Robbie Briggs
Pamela S. Brunson
Bullard Abrasives
Keith Bulluck
Eric Butler
Capital Group Companies
Capital One Bank
Cardinal Health Foundation
Susan Carpenter
Mike Cassar
Cheap O Air
Maureen Chelius
Susan Cirker
City National Bank
Clarion Hotel
Clark Construction Group, LLC
Clear Channel Radio
Cody’s Original Roadhouse
Kathy and William Colby
Mr. and Mrs. Alfred Contarino
Rod Crawford
Crossroads Hospice Charitable Foundation
Mr. and Mrs. Steve Crown
Cuna Mutual Group
Dr. and Mrs. Bret A. Cuthbertson
Frances Czarnecki
Dave Morrell Memorial Fund
Stephanie R. Davis, JD
Candy and Eddie J. DeBartolo, Jr. and Family
Debbie Delisle
Richard DePosit
Mr. and Mrs. Andy Detherage
Detroit Tigers Foundation
Differ Rentals, LLC
Jennifer and Steve J. Donahue
Karen Dow
Wayne Ebel
Edwards Foundation
Karl Egbert
Eisele Family Foundation
Enterprise Holdings Foundation
Joan Enticknap
Epromos Promotional Products, Inc.
Ruth L. Evans
Ken W. Falhaber, Sr.
Farient Advisors
First Watch German Village
Fleet Feet Sports Madison
Julie Fleshman and Randy Kennison
Flour Community Involvement Team
Flowers by John Mackey
Barbara Force
Franklin Moves
Dwight Freeney
Froedtert Health
Taylor Gallegos
Mary and Joe Gardill
Carole F. Gigliotti
The Glenmede Trust Company, NA
Mark and Beth Goldstein
Greater Broward Fire Fighter Charities
Mr. and Mrs. Brian L. Greenspun
Stephen J. Guariglia
Margaret Hagen
The Hangar Restaurant and Flight Lounge
Jane Hanna
Sandra Hardesty
Havard and Associates, Inc.
Hecla Charitable Foundation
Mr. and Mrs. Scott Helton
Hempfield Area Senior High School Activity Fund
Ruth Herman
Dave P. Hetzel
Neil Heuer
Pearl Hogan
Shelby Hopkins
Illinois Center for Pancreatic and Hepatobiliary Diseases
Infinity Discovery, Inc.
Insight
William H. Isacoff, MD
Rany Janover
Jockey International, Inc.
Gail and Frederick Jubitz
K&N Golf For A Cure
Hayley Kanner
Karlin-Greene Philanthropic Fund
Larry Katz
Natalie Katz
KC Running Company
Keefer Family Charitable Trust
Elias Kehdi
Jeffrey Keil
Tulay Kent
Daniel Khabie
Ronda Khamsourivong
Knights of Columbus
Stefanie Koch
LA & SF Speciality
LA, Inc.
Ladies of the Alpine Country Club
L’auberge du Lac
LAZ Parking
Erin K. and Seth Leary
Kathryn O. and Gregory M. Lewis
Lincoln Financial Media (WLYF)
Mr. and Mrs. Michael Link
Lokey Charities, Inc.
Long Island Precast, Inc.
Lucky Dog Partners, LLC
Tina Lundstedt
Macquarie Group Foundation
Madison Family Dental Associates, SC
Yoshiyuki Majima
Master Tubulars, Inc.
Laura M. Matthews
Philip Mazzola
MD Anderson Cancer Center
Merrill Lynch, Pierce, Fenner & Smith Incorporated
Metz Culinary Management
Estate of John Meyer
Pancreatic Cancer Action Network 2012 Impact Report | 21
Midwest Cancer Care, MCA Midwest Health System
Jennifer Miller
Melissa Miller
Mr. and Mrs. Joseph M. Miresse
Modus Consulting Engineers
Monumental Sports and Entertainment
Kathleen Moore
Carol Morgan
The Honorable Mica Mosbacher
MurMaid Mattress Factory and Showroom
Richard Myers
Laura Neidel
Mary G. Nevinger
Nitel
Elizabeth Nurkin
Occidental Petroleum Corporation
Thomas O’Donnell
Ohio State University
OHSU Knight Cancer Institute
Sandra Okinow
Irina Ostrowski, RN
Marianne and Patrick O’Sullivan and Family
Pacific Medical
Mr. and Mrs. Ted Packard
Carl Parmer
Peregrine Pharmaceuticals, Inc.
Perlmutter Investment Company
Pershing, LLC
Petrohawk
Hunt Pettit
Pharmaceutical Research and Manufacturers of America
Pizza By Pappas, Inc.
Mr. and Mrs. Elton Potts
Princeton Publishing, Inc.
Pro Sports Club
PTO Treas Center School
Ellen S. and William E. Rabb
Walle Ralkowski
Random House, Inc.
Patricia Rathbone
RCS Underground, Inc.
Santo P. Realmuto
Leland Reicher
Republic Title of Texas, Inc.
Revolution Graphics
Mary A. Ross
Rudolph and Sletten
William R. Sadler
Salesforce.com Foundation
San Diego Padres
Judy Sarvas
Mr. and Mrs. Terry Sarvas
Tammy Schwartzberg
Bridget Scolio
Scripps Health - Scripps Cancer Center
ScriptPro, LLC
Seafood Center
Seattle Cancer Care Alliance
Mr. and Mrs. Fred Segel
Adam Seibel
Julie Seibel
Seifert Family Foundation
Kendra Sessoms
Shearman & Sterling, LLP
Sh-K-Boom Records, Inc.
Shuffle Interactive, LLC
Sierra Micorwave Technology, LLC
Sandra Lipp Smith
Nancy Soukup
Southern Wine & Spirits
Gary St. George
St. Louis Cardinals, LLC
Stark Company Realtors
Stein/Gelberg Foundation
Mr. and Mrs. Gary A. Strand
Joyce Suchsland
Mr. and Mrs. Jordan Tabach-Bank
Alison M. Takacs and Family
Gayla Thal
The Carrell Clinic
The Crystal Family Foundation
The David Geffen Foundation
The Kern Organization
The Lamar Companies
The Lannum Family Fund
The Michael C. Sandler and Peter Kenner Cancer Foundation
The Wyler Family Foundation
Andrew Tomaras, PhD
Travis Martin Financial Services, LLC
Mr. and Mrs. Merlyn W. Tripp
Mr. Douglas L. Trippel and Mrs. Nancy Wilder-Trippel
Denise Underwood
United World of the Universe Foundation
UW Medicine Advancement
Virginia Piper Cancer Institute
William Wayco
Wells Fargo Foundation
White and Williams, LLP
Kristina Wilcox
Matthew D. Williams
Willis
Winship Cancer Institute of Emory University
Wisconsin State Journal
Wolfgang Puck Worldwide, Inc.
XS Lighting, LLC
Sandra S. Yoshioka
Thank youThrough the steadfast generosity of our donors and supporters, we are able to expand the essential services we provide to patients and caregivers, fund innovative research, build a comprehensive, robust pancreatic cancer research community, fight for a greater share of federal research dollars, and raise national awareness on an ongoing basis. On behalf of the tens of thousands of lives who benefit from your inspiring philanthropy, we thank you.
Pancreatic Cancer Action Network 2012 Impact Report | 22
2011-2012Board Membership
Board of Directors Peter Kovler Chair Washington, DC
Laurie MacCaskill Vice Chair Los Angeles, CA
Stephanie R. Davis, JD, MA Secretary Sherman Oaks, CA
Tim Ennis North Port, FL
Julie Fleshman, JD, MBA President and CEO Los Angeles, CA
Stevan Holmberg, MBA, DBA Potomac, MD
Jason Kuhn Tampa, FL
Terrence Meck New York, NY
Jai Pausch Chesapeake, VA
Stuart Rickerson Treasurer Rancho Santa Fe, CA
Jeanne Ruesch Chevy Chase, MD
Cynthia Stroum Founding Chair Emeritus Seattle, WA
Medical Advisory Dafna Bar-Sagi, PhD Interim Chair New York University
Michael Hollingsworth, PhD University of Nebraska Medical Center
Christine Iacobuzio-Donahue, MD, PhD Johns Hopkins University
Craig Logsdon, PhD MD Anderson Cancer Center
Anirban Maitra, MBBS Johns Hopkins University
Frank McCormick, PhD, FRS University of California, San Francisco
Gloria Petersen, PhD Mayo Clinic
Anil Rustgi, MD University of Pennsylvania
Diane Simeone, MD University of Michigan
Margaret Tempero, MD University of California, San Francisco
Craig Thompson, MD Memorial Sloan-Kettering
Bob Vonderheide, MD, DPhil University of Pennsylvania
Geoffrey Wahl, PhD Salk Institute
Scientific Advisory Jordan Berlin, MD Chair Vanderbilt-Ingram Cancer Center
Marcia Canto, MD Johns Hopkins University
Christopher Crane, MD MD Anderson Cancer Center
Jason Fleming, MD MD Anderson Cancer Center
Jane Hanna, RN, OCN Georgetown University Hospital
Mokenge Malafa, MD Moffitt Cancer Center
Mary Mulcahy, MD Northwestern University
Eileen O’Reilly, MD Memorial Sloan-Kettering Cancer Center
Maria Petzel, RD, CSO, LD, CNSC MD Anderson Cancer Center
Vincent Picozzi, MD Virginia Mason Medical Center
Mark Pochapin, MD Jay Monahan Center for Gastrointestinal Health
Mark Talamonti, MD NorthShore University HealthSystem
The extraordinary growth and impact of the Pancreatic Cancer Action Network is spearheaded by the guidance and expertise of the members of our National Board of Directors, our Scientific Advisory Board and our Medical Advisory Board. We remain extremely grateful for their dedication, support and leadership.
Pancreatic Cancer Action Network 2012 Impact Report | 23
2011-2012Financial Results
The Pancreatic Cancer Action Network embraces our obligation to provide financial and operational transparency that allows you to make informed decisions regarding the best use of your financial resources and time.
We are aware that our prominent role as a leader in the pancreatic cancer community brings with it additional scrutiny, over and above that already directed to the nonprofit industry by regulators and the public. We can proudly point to the timely preparation and presentation of annual audited financial statements and Form 990 tax returns and our top ratings by charitable information and watchdog organizations as evidence of our transparency and indicators that contributions are used for the purpose intended.
We pledge to maintain the highest standards of financial accountability to earn your continued trust. To that end, the Pancreatic Cancer Action Network’s financial statements are annually audited by independent certified public accountants. Please review our financials below for a closer look at how our income and expenses are used to provide hope to the pancreatic cancer community.
• The $3.4 million awarded in research grants in 2012 represents a 30 percent increase over the prior year’s research investment.
• Community Outreach special event receipts were more than 26 percent greater than the prior year, and participation grew by 32 percent.
• Patient and Liaison Services provided over 9,500 patients and families with information and resources to make informed decisions.
• Every dollar we invest in research funding is leveraged into $8.61 in additional support for pancreatic cancer research.
• Our movement is growing, as evidenced by a 20 percent increase in giving volume over the prior year.
• We earned a four-star ranking from Charity Navigator – its highest ranking – for the eighth consecutive year.
Financial Highlights in 2011-2012
Pancreatic Cancer Action Network 2012 Impact Report | 24
Statement of Activities Year ended June 30, 2012
Revenue 2012 2011Contributions $ 7,120,973 $ 5,079,721
Special events, net* 8,771,804 7,316,650
Store sales, net 183,660 234,447
Net Investment return and other 387,727 372,162
Total Revenue 16,464,164 13,002,980
Expenses
Program Services
Research 5,032,781 3,916,466
Advocacy 1,912,723 1,582,822
Patient Services 2,418,367 2,274,340
Community Outreach 3,749,048 3,050,217
Total Program Services 13,112,919 10,823,845
Supporting Services
General and administrative 500,645 406,765
Fundraising 1,454,887 1, 157,565
Total Supporting Services 1,955,532 1,564,330
Total Expenses 15,068,451 12,388,175
Increase in Net Assets $ 1,395,713 $ 614,805
*Special events are presented net of direct costs of $2,152,701and $1,287,601 in 2012 and 2011, respectively.
Pancreatic Cancer Action Network 2012 Impact Report | 25
Statement of Financial Position June 30, 2012
Assets 2012 2011Cash and cash equivalents $ 1,450,462 $ 2,476,755
Investments 8,514,725 4,075,760
Pledges and sundry receivables, net 1,456,975 1,579,951
Prepaid expenses and inventory 596,790 577,968
Property and equipment, net 694,539 848,984
Other assets 77,305 77,305
Total Assets $ 12,790,796 $ 9,636,723
Liabilities and Net Assets
Liabilities
Accounts payable, accrued and other liabilities $ 1,165,631 $ 714,446
Grant obligations 3,271,280 2,167,535
Deferred lease liability 617,158 413,728
Total Liabilities 5,054,069 3,295,709
Net Assets
Unrestricted 6,984,947 5,331,835
Temporarily restricted 751,780 1,009,179
Total Net Assets 7,736,727 6,341,014
Total Liabilities and Net Assets $ 12,790,796 $ 9,636,723
Pancreatic Cancer Action Network 2012 Impact Report | 26
These financial statements were abstracted from Pancreatic Cancer Action Network’s June 30, 2012 and June 30, 2011 financial statements, which were audited by Windes & McClaughry Accountancy Corporation. Because the information does not include all the disclosures required by U.S. generally accepted accounting principles, it does not purport to present Pancreatic Cancer Action Network’s financial condition or results of activities. A copy of the audited financial statements is available and can be provided upon request from our national office.
Total Revenue 2000-2012
Revenue Contribution by Source 2000-2012
Cost Distribution 2003-2012
Investments and other (3%)
An Evening With the Stars (4%)
Volunteer-driven events (49%)
Contributions (44%)
Fundraising (10%)
Advocacy (13%)
General & Administrative (3%)
Research & Scientific Affairs (8%)
Community Outreach (25%)
Research Grant Costs (25%)
Patient Services (16%)
1500 Rosecrans Avenue
Suite 200
Manhattan Beach, CA 90266
Toll Free 877-272-6226
www.pancan.org
© 2012 Pancreatic Cancer Action NetworkPANCAN®, PURPLESTRIDE®, PURPLERIDE® PURPLEBOWL®, TEAMHOPE® and PANCREATIC CANCER ACTION NETWORK® are registered trademarks.