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The Use of the Life Story Work for older people with and without cognitive impairment

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The Use of the Life Story Work for older people with and without cognitive impairment. The Use of LSB Work for the Cognitively Intact and the Cognitively Impaired Claudia K Y Lai, RN, PhD Associate Professor, School of Nursing The Hong Kong Polytechnic University President, Pi Iota Chapter - PowerPoint PPT Presentation
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The Use of the Life Story Work for older people with and without cognitive impairment The Use of LSB Work for the Cognitively Intact and the Cognitively Impaired Claudia K Y Lai, RN, PhD Associate Professor, School of Nursing The Hong Kong Polytechnic University President, Pi Iota Chapter Honor Society of Nursing Sigma Theta Tau International
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Page 1: The Use of the Life Story Work for older people with and without cognitive impairment

The Use of the Life Story Work for older people with and

without cognitive impairment

The Use of LSB Work for the Cognitively Intact and the

Cognitively Impaired

Claudia K Y Lai, RN, PhDAssociate Professor, School of NursingThe Hong Kong Polytechnic University

President, Pi Iota ChapterHonor Society of Nursing Sigma Theta Tau International

Page 2: The Use of the Life Story Work for older people with and without cognitive impairment

The Healing Role of Storytelling(Dean, 1998)

Alcoholics Anonymous

Groups focus on other addictions (food, sex, narcotics, etc.)

Page 3: The Use of the Life Story Work for older people with and without cognitive impairment

Potential Benefits of Sharing a LS (Atkinson, 1998)

1. A clearer perspective on personal experiences and feelings, which brings greater meaning to one’s life.

2. Greater self-knowledge and a stronger self-image and self-esteem.

3. Cherished experiences and insights are shared with others; helps creates community and may show that we have more in common with others than we thought.

4. Joy, satisfaction, and inner peace in sharing one’s story with others.

Page 4: The Use of the Life Story Work for older people with and without cognitive impairment

Cont. Potential Benefits (Atkinson, 1998)

5. Purging, or releasing, certain burdens and validating personal experiences that is central to the recovery process.

6. An inspiration to help others change something in their lives.

7. Others will get to know us and understand us better, in a way that they hadn’t before.

8. By understanding our past and present, we also gain a clearer perspective on our goals for the future.

Page 5: The Use of the Life Story Work for older people with and without cognitive impairment

Uses Haight (2001 - of life review and LSB

work): To promote orderly thinking Decrease depression and burden for people

who are stressed Builds self-esteem and independence

Page 6: The Use of the Life Story Work for older people with and without cognitive impairment

Uses of Autobiography (Birren & Birren, 1996)

As a source of psychological and social science research material.

As a source of historical material for family and community.

As a means of promoting personal insight.

As preparation for changes in life.

Page 7: The Use of the Life Story Work for older people with and without cognitive impairment

Using Memory Books in NH Care(Bourgeois et al., 2001) Results: Revealed improvement on a variety of

quantitative conversational measures (e.g., duration of speaking time, frequency of utterances) between treatment and control conditions as a function of memory book use.

The quality of conversations, as measured by the frequency of discourse characteristics (e.g., facilitative behaviors), improved as a function of memory book use for treatment dyads.

Nursing aides’ judgment of residents’ depressive symptoms improved with memory aid use, suggesting changes in resident quality of life as a result of the information that enhanced information sharing and social closeness.

Page 8: The Use of the Life Story Work for older people with and without cognitive impairment

Uses in those afflicted by Alzheimer’s Disease (Cohen, 2002)

Research has found that although biographical videos do not increase the patient’s memory over time, they enhance memories during a given visit and positively alter the experience for the patient and visitor.

Research has shown that viewing the video with the supervision and added interaction of the visitor enhances patient engagement and level of comfort.

Page 9: The Use of the Life Story Work for older people with and without cognitive impairment

Uses in nursing home residents with dementia – a randomized controlled

trial

Lai, C. K. Y., Chi, I., & Kayser-Jones, J. (2004). A randomized controlled trial of a specific

reminiscence approach to promote the well-being of nursing home residents with dementia.

International Psychogeriatrics, 16 (1), 33-49.

Page 10: The Use of the Life Story Work for older people with and without cognitive impairment

Fig 1. Lubinski’s Social breakdown syndrome as applied to communication

Page 11: The Use of the Life Story Work for older people with and without cognitive impairment

Fig 3. Merits of the LSB as an Intervention as suggested by the Literature

Page 12: The Use of the Life Story Work for older people with and without cognitive impairment

Fig 4. Postulations of the Study’s Conceptual Framework

Page 13: The Use of the Life Story Work for older people with and without cognitive impairment

Study Design A randomized controlled trial - single-

blinded, parallel groups (N=101)

One intervention group (n=36) One comparison group (n=35) One control [no-intervention] group (n=30)

Outcome measures: SES & WIB Data collection points: T0, T1, & T2

Interview of staff participated in the study (N=26)

Page 14: The Use of the Life Story Work for older people with and without cognitive impairment

Recruitmentand consent

Random Assignment

Control group

Comparison group

Intervention group

Control group

Comparison group

Facility data

Resident data Demographics SES WIB RAI- ADL

MMSE

Staff data

Resident data Demographics SES WIB RAI-ADL

Resident data Demographics SES WIB MDS

Same asT0 Same as T1Process

Data tocollect

Operational Schedule of the Study

PreparatoryStage

6 weeks 6 weeksT0 T1 T2

Time Period

Continuous cycle until the sample sizerequirement is met

Staff interview Staff interview

MMSE MMSE

Intervention group

Page 15: The Use of the Life Story Work for older people with and without cognitive impairment

Statistical Analysis No significant changes were found in the C-MMSE

& MDS-ADL when compared the time periods T1 & T0, T2 & T1, and T2 & T0 for each group.

Examined whether the intervention could bring about any significant differences in outcome between the groups over time - no significant differences within subject effects (F=.581, p=.794).

Grouping was examined for any between-subject effects – no significant differences were found for both the SES (F=.049, p=.952) and WIB scores (F=.270, p=.764).

Page 16: The Use of the Life Story Work for older people with and without cognitive impairment

Comparing Outcomes of the Three Groups Using p Values: The ITT Sample

Paired Outcomes(Wilcoxon signed rank test)

Control Group

Comparison Group

Intervention Group

T1-T0 SES 0.143 0.057 0.169

T2-T0 SES 0.514 0.005* 0.032*

T2-T1 SES 0.287 0.103 0.657

T1-T0 WIB 0.198 0.063 0.014*

T2-T0 WIB 0.596 0.094 0.075

T2-T1 WIB 0.943 0.835 0.951

* p<.05

Page 17: The Use of the Life Story Work for older people with and without cognitive impairment

A Resident’s Story

Page 18: The Use of the Life Story Work for older people with and without cognitive impairment

Key Findings from the Study Enhanced social QOL is possible through

the LSB intervention Appropriate care is possible only through

knowing the person Caring is relating, which occurred at a

deeper level through the intervention

Page 19: The Use of the Life Story Work for older people with and without cognitive impairment

Outcomes of Using a Life Story Activity Approach for Community-

Dwelling Elderly

Claudia K. Y. Lai,1 Mabel M. H. Wong, 2 & Amanda C. Y. Chow 3

1 School of Nursing, Faculty of Health and Social Sciences, The Hong Kong Polytechnic University; President, Pi Iota Chapter, Honor Society of Nursing, Sigma Theta Tau International2 H.K.S.K.H. Lady MacLehose Centre, Dr Lam Chik Suen District Elderly Community Centre3 Shatin Integrated Elderly Service, Evangelical Lutheran Church Hong Kong

Paper presented at the Annual Congress of Gerontology, Hong Kong, Nov 26, 2005

Page 20: The Use of the Life Story Work for older people with and without cognitive impairment

Objective & Method Aims at examining whether the production of a

life story book (LSB) would lead to a higher level of life satisfaction and an increased sense of self-esteem for older people in the community.

A pre- and post-intervention design comparing outcomes between three different groups

Convenience sampling with participants recruited from 2 NGOs

Recruited participants will be assigned to 3 different groups based on the inclusion and exclusion criteria.

Immediate outcomes (T1) of the intervention will be compared against baseline measurements (T0), and with outcomes three months later (T2).

Page 21: The Use of the Life Story Work for older people with and without cognitive impairment

Inclusion & Exclusion Criteria – General

older adults aged 60 & >; community dwelling; able to communicate most

of the time (as defined according to the criteria of the Resident Assessment Instrument [RAI] communication scale); and

able to understand and speak Cantonese

any active major psychiatric illnesses, including schizophrenia, bipolar disorders, and depression;

any acute or unstable chronic medical conditions including cardiac or lung diseases;

any active psychosocial crises such as bereavement or relationship problems;

blindness (RAI - vision scale); and

inability to hear even with hearing aids (deafness) (RAI – hearing scale).

Page 22: The Use of the Life Story Work for older people with and without cognitive impairment

Inclusion & Exclusion Criteria – Specific

Criteria Group 1By Self

Group 2Volunteer-

facilitated (VF1)

Group 3 Volunteer-

facilitated (VF2)

Inclusion Able to write up one life story book

Unable to write up own life story book because of inadequate literacy level

Unable to write up own life story book because of inadequate literacy level; GDS score 5 –

Exclusion Geriatric Depression Scale (GDS) scoring 5 or above

GDS scoring 5 or above

GDS scoring between 0 – 4 and 8 & >

Page 23: The Use of the Life Story Work for older people with and without cognitive impairment

Measures Outcome Measures

Life Satisfaction Scale Rosenberg’s Self-Esteem

Scale General Health

Questionnaire-30

Control measures

Barthel Index GDS Presence of financial

strain Revised Life Events Scale

Page 24: The Use of the Life Story Work for older people with and without cognitive impairment

Discussion The preliminary results of quantitative data

comparing T0 and T1 did not support the effectiveness of the intervention in promoting life satisfaction or self-esteem, the research team did observe some qualitative differences in various individuals.

It is possible that the instruments are not sensitive enough to capture changes of a finer magnitude.

It is also possible that the dose of the intervention is not enough.

Page 25: The Use of the Life Story Work for older people with and without cognitive impairment

Conclusion about the effect of LSB work for community dwelling elderly Findings inconclusive at the moment Presently still collecting data Need to compare the outcomes over time

(T0-T1, T1-T2, T0-T2) Need to examine the qualitative data

collected

Page 26: The Use of the Life Story Work for older people with and without cognitive impairment

Use of LSB Work as a Stand Alone Therapy(Rybarczyk & Bellg, 1997) By themselves, standard reminiscence or

life review techniques may serve best as an approach to improving the life satisfaction and adjustment of “worried but well” elderly people.

Page 27: The Use of the Life Story Work for older people with and without cognitive impairment

Benefits to Staff Staff gained improved knowledge of

clients’ identity. Development of collaborative approach

between client, relatives and staff. Provision of specific information about

client care that is important for Staff training Care planning

Page 28: The Use of the Life Story Work for older people with and without cognitive impairment

Uses in Clinical Situations(Bender et al., 1999)

Child care Moving of a unit

Page 29: The Use of the Life Story Work for older people with and without cognitive impairment

Uses in Counseling and Therapy Atkinson (1998): when the narrative

approach is used by therapists, counselors, or other professional helpers as a guided means for assisting their clients to get to the details of their lives that may prove insightful for understanding long-term patterns, issues, struggles, or dilemmas they are dealing with.

Page 30: The Use of the Life Story Work for older people with and without cognitive impairment

Uses in Research In education In gerontology In studying culture and gender issues

Page 31: The Use of the Life Story Work for older people with and without cognitive impairment

LSB Work for Seniors

What do you think of LSB work?Is it a worthwhile endeavor to promote the

wellbeing of our seniors?How do you think it should be done?Is there anything that we can apply?

Page 32: The Use of the Life Story Work for older people with and without cognitive impairment

References Atkinson, R. (1998). The life story interview. Thousand Oaks, Ca.: Sage. Bender, M., Bauckham, P., & Norris, A. (1999). The therapeutic purposes of

reminiscence. London, UK: Sage. Birren, J. E., & Birren, B. A. (1996). Autobiography: Exploring the self and

encouraging development. In J. E. Birren & G. M. Kenyon (Eds.), Aging and biography: Explorations in adult development (pp.283-299). New York: Springer.

Bourgeois, M. S., Dijkstra, K., Burgio, L., & Allen-Burge, R. (2001). Memory aids as augmentative and alternative communication strategy for nursing home residents with dementia. AAC Augmentative and Alternative Communication, 17, 196-210.

Cohen, G. D. (2002). Creative interventions for Alzheimer’s disease. Geriatrics, 57 (3), 62, 65-66.

Haight, B. K. (2001) Life reviews: Helping Alzheimer’s patients reclaim a fading past. Reflections on Nursing Leadership, 27 (1), 20-22, 45-46.

Lai, C. K. Y. (2003). Improving the Quality of Life for Nursing Home Residents with Dementia: A Life Story Approach. Unpublished doctoral dissertation. The University of Hong Kong: Hong Kong.

Rybarczyk, B., & Bellg, A. (1997). Listening to life stories: A new approach to stress intervention in health care. New York: Springer.


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