NOT FOR CIRCULATION FOR INTERNAL CIRCULATION FOR PUBLIC CIRCULATION X In association with Simon Fraser University & the Vancouver Coastal Health Research Institute Theme 1 Presentation January 9, 2006 ACTION for Health Document Status: Published Paper Practitioner’s Pointers Working Paper Briefing Note Report Research Tool Draft Overview Presentation Other Prepared by: Roma Harris Irving Rootman Judith Krajnak PhD PhD Post Doctoral Fellow University of Western Ontario University of Victoria University of British Columbia Document Contact: Ellen Balka School of Communication Simon Fraser University 8888 University Drive Burnaby, BC, Canada V5A 1S6 tel: +1.604.725.2756 email: [email protected]website: www.sfu.ca/act4hlth/ SFU Institutional Repository: http://ir.lib.sfu.ca/handle/1892/3701
Transcript
NOT FOR CIRCULATION
FOR INTERNAL CIRCULATION
FOR PUBLIC CIRCULATION X
In association with Simon Fraser University & the Vancouver Coastal Health Research Institute
Theme 1 Presentation January 9, 2006 ACTION for Health Document Status:
Published Paper Pract i t ioner’s Pointers
Working Paper Brief ing Note
Report Research Tool
Draft Overview
Presentat ion Other Prepared by: Roma Harris Irving Rootman Judith Krajnak PhD PhD Post Doctoral Fellow University of Western Ontario University of Victoria University of British Columbia
Document Contact: Ellen Balka School of Communication Simon Fraser University 8888 University Drive Burnaby, BC, Canada V5A 1S6 tel: +1.604.725.2756 email: [email protected] website: www.sfu.ca/act4hlth/ SFU Institutional Repository: http://ir.lib.sfu.ca/handle/1892/3701
Theme 1 Presentation
January 9, 2006
Roma Harris, The University of Western Ontario
Irv Rootman, University of Victoria
Presentation AgendaPresentation Agenda
Organization of Theme 1 Teams & Individual Projects
Research Focus & Questions
Conceptual Framework
Research Methods
Collaborations with Community Partners
Student Training
Progress to Date
Research Findings
Dissemination Activities to Date & Proposed Dissemination
Organization of Theme 1 TeamsOrganization of Theme 1 Teams
Theme 1 Co-LeadsIrv Rootman & Roma Harris
British ColumbiaE. Balka
I. Rootman
OntarioR. Harris
N. Wathen
NewfoundlandL. Bella
UK/NetherlandsE. Green
F. GriffithsF. Henwood
S. Wyatt
AustraliaL. Simpson
Thematic CoordinatorsJana Fear & Judith Krajnak
Organization Of Individual ProjectsOrganization Of Individual Projects
Vancouver, British ColumbiaVancouver Public Library (E. Balka)
BC Cancer Agency (E. Balka)
Content Analysis of Health Information Web Sites (I. Rootman, J. Krajnak, E. Balka)
BC HealthGuide (I. Rootman, J. Krajnak)
Observations at Mid-Main Community Clinic (E. Balka)Farsi-Speaking Immigrants & Use of Government-Sponsored Health Information Program (I. Rootman, I. Poureslami, E. Balka)
West Kootenay & Boundary Region, British ColumbiaRural HIV/AIDS Information Networks Study (I. Rootman, J. Krajnak)
Organization Of Individual ProjectsOrganization Of Individual Projects (cont(cont’’d)d)
Huron and Perth Counties, OntarioRural Women’s Health Information Seeking (R. Harris, N. Wathen)
Huron County Telephone Survey (R. Harris, N. Wathen, J. Fear)
Rural HIV/AIDS Information Networks Study (R. Harris, T. Veinot)
Collaboration with Huron County Library/Health Unit (R. Harris)
London, OntarioCritical Perspectives on ‘Empowerment’ in Health Care (R. Harris, T. Veinot, N. Wathen)Comparison of Consumer Health Information Web Sites (R. Harris, N. Wathen, J. Fear)
Organization Of Individual ProjectsOrganization Of Individual Projects (cont(cont’’d)d)
NewfoundlandCapacity Development and the Urban CAP Programme at MacmorranCommunity Centre (L. Bella)
Web Based Initiatives of Small Community Based Health Organizations (L. Bella)
Rural HIV/AIDS Information Networks Study (L. Bella)
Northeastern AustraliaPartnering with Natural Helpers to Deliver Health Information in Rural, Regional and Remote Australia (L. Simpson)
Organization Of Individual ProjectsOrganization Of Individual Projects (cont(cont’’d)d)
Brighton, United KingdomHealth Information Seeking in Public Libraries: The Role of Intermediaries(F. Henwood, R. Harris)
Brighton/Warwick/Teesside, United KingdomAttitudes of Health Care Practitioners to the Internet: Own and Patient Use(F. Henwood, S. Wyatt, F. Griffiths, E. Green, R. Harris)*crosses with theme 2
Theme 1 Research FocusTheme 1 Research Focus
Theme 1 research focuses on lay user issues, including:Information literacy
Information intermediaries
Navigation
Information use
Theme 1 Research QuestionsTheme 1 Research Questions
What is the role of information technology in laypersons’ search for and use of health information? How does the information they locate through means such as the Internet affect their lives and their health outcomes or those of their family members?(e.g., Huron County telephone survey; Rural HIV/AIDS; Rural Women;Natural Helpers)
What is the role of intermediaries in the search for and use of health information by laypersons?(BC HealthGuide; Rural HIV/AIDS; Brighton Public Library; Macmorran; Natural Helpers)
How does the use of information technology to locate health information affect thedistribution of responsibilities among end users, information intermediaries and health care providers? How is any potential re-distribution of responsibilities perceived by the various actors (system, provider, layperson)? Do potential re-distributions impact access to, or provision of, care?(Huron County telephone survey; BC HealthGuide; Rural HIV/AIDS;HCPs & Internet; Macmorran)
Theme 1 Research QuestionsTheme 1 Research Questions (cont(cont’’d)d)
What is the link between individuals’ capacity for seeking and using health information, their interactions with health care systems, and their health outcomes? What is the link between a community’s capacity to locate and use health information, community members’ interactions with health care systems, and their health outcomes?(Rural HIV/AIDS; BC HealthGuide; Macmorran)
What are the facilitators and barriers to the retrieval and use of health information at different levels (i.e., individual, community, societal)?(Huron County Library; Brighton Public Library)
How does access to and use of information technology affect an individual’s ability to interpret and make decisions based on complex health information? How does the complexity of health information located through the use of the Internet affect patterns of use and individual health care outcomes?(Rural HIV/AIDS)
Conceptual FrameworkConceptual Framework
Individual projects are constructed within their own individual disciplinary frameworks
These include: Science and Technology Studies, Health Promotion, Health Communication, Library and Information Science, Social Work, and Business
Meetings bring together this multi-disciplinary group and new frameworks/understandings emerge through discussions & review of works-in-progress
The sum is greater than the parts
Research MethodsResearch Methods
Theme 1 projects use a wide variety of methods, including:In-depth, qualitative interviews
Focus groups
Telephone interviews
Self-administered surveys
Web surveys
Observations
Content analysisSocial network analysis
Collaborations with Community PartnersCollaborations with Community Partners
All theme 1 projects involve community partners in some wayThese relationships are managed by the investigators responsible for the individual projects, often through the creation of advisory groupsFor example:
On the HIV/AIDS project, each site has an advisory group comprising various community service providers and PHAs with whom the investigators consult on a regular basisThe Brighton Public Library project is a collaborative effort with the management team of the local public library service
Student TrainingStudent Training
Immersed in work with individual projectsOpportunities to interact with community partners as well as with academic investigators outside their home discipline
Participate in conferences and data-gathering experiences in a variety of sites both in Canada and abroad
Examples: Ottawa, Quebec City, Brazil, and the UK
Some asked to present their research findings at Theme 1 meetings
Invited to attend ACTION for Health full team meetings and participate in exchange of ideas
Progress To DateProgress To Date
Established theme-specific research questions
Have created several research instruments/tools related to navigating health information that are shared among team members
Have begun to write vignettes based on ethical/legal issues emerging from research*crosses over into Theme 3 work
Developed a tool to evaluate health information web sites that is currently being used by community partners in St John’s (and possibly by Canadian Health Network Rural Health Committee)
Successfully obtained CIHR grant to expand the HIV/AIDS project
Held a workshop on Science & Technology Studies
Planning upcoming workshop on Library & Information Science
Research FindingsResearch Findings
Some projects successfully enhanced community capacity building around issues related to knowledge and skills of individuals/groups about health information & health support systems(Rural HIV/AIDS; Macmorran)
Individuals encounter barriers in using IT-based systems to locate, use and interact with health-related information(MidMain; Vancouver Public Library; Huron County telephone survey)
Key informants, such as natural helpers, embedded in various social networks mediate transmission of health information(Rural HIV/AIDS; BC HealthGuide; Macmorran; Natural Helpers)
Low general awareness for government-sponsored health information web sites at both the federal & provincial levels(Huron County telephone survey; BC HealthGuide)
Health information web sites tend to be written at very high levels of readability(Content analysis of HI web sites)
Dissemination Activities To DateDissemination Activities To Date
Academic venues:Call for proposals for “Gender on the Line” bookSpecial edition of “Information, Communication and Society” journalCanadian Public Health Association (May 2006, Vancouver, BC)
Canadian Association for Information Science (June 2006, Toronto, ON)
Information Seeking in Context (July 2006, Sydney, Australia)
AIDS 2006 (August 2006, Toronto, ON)
Society for the Social Studies of Science (November 2006, Vancouver, BC)Chronic Disease Prevention Alliance of Canada (November 2006, Ottawa, ON)
World Conference on Health Promotion and Education (June 2007, Vancouver, BC)
