TheParkinson’s Update...Spring, 2016 was filled with opportunities to learn more about living...

A Magazine for the Parkinson’s Community of Southwestern Ontario

SUMMER/FALL2016

Issue 64 3 1216ParkinsonEducationProgram

Dental Care WALK-IT forParkinson’s

TheParkinson’sUpdate

2 The Parkinson’s Update

From TheCEO’s Desk

MISSION STATEMENT

BOARD

STAFF

Parkinson Society Southwestern Ontario is the voice of people living with Parkinson’s in SouthwesternOntario. Our purpose is to ease the burden and find a cure through support services, education, advocacy and research.

Brad Richards (President)Joseph Salamon (Treasurer and Secretary)Alysia ChristiaenChris CurryAnne KinzieJoanna KurowskiCarol KraftDr. Michael RavenekBill ReaBev ZaifmanDr. Mandar Jog (Honorary)

Shelley Rivard CEO

Joanne BernardManager of Administration

Steve HicksonCoordinator of Special Events

Rose JohnstonCoordinator, Programs and Services

Vickie ThomasCoordinator of Volunteer Development &Administration

A special thanks tofor their significant contribution to this newsletter.

Spring, 2016 was filled with opportunities to learn more about living better with Parkinson’s. Thanks to our Coordinator of Programs and Services, Rose Johnston, our outreach increased, extending our services to more people in Southwestern Ontario than ever before. Educational seminars were held in Chatham, Kitchener, London, Orangeville, Port Elgin, Sarnia, Simcoe and Windsor throughout the month of April, followed by a very successful regional conference in Walkerton in May.

Many volunteers helped deliver important programs and services in communities across Southwestern Ontario, while other volunteers were raising awareness and funds in support of Parkinson’s programs. Although we have a base of great volunteers, we need more as preparations are currently underway for WALK-IT for Parkinson’s, the Regional Parkinson’s Conference and a caregiver day taking place this fall. To volunteer for PSSO, please contact Vickie Thomas at 1-888-851-7376.

Thankfully we were able to obtain funding through Canada Summer Jobs. As a result, we welcome Megan Reddick and Tara Chen to our PSSO team. Megan, a recent graduate of Kinesiology from Wilfrid Laurier University is assisting with Special Events. Tara, who will be pursuing a Masters in Public Health this fall, is helping to update our Parkinson Education Program (PEP).

It is no secret that it is becoming tougher every year for non-profit organizations to raise funds for important programs. Our situation is no exception. We rely on corporate and individual donations. When you support Parkinson’s programs, we ask that you GIVE LOCAL and support Parkinson Society Southwestern Ontario.

WALK-IT for Parkinson’s, our largest fundraiser, is just around the corner and we cannot express enough its importance to our Parkinson’s Community. It not only allows us to continue to fund ongoing support services for those living with Parkinson’s, but it also allows us to make a generous contribution to support research in our community.

With this in mind, we hope you, your family and your friends will Join the Movement – Take the 1,000,000 Step Challenge by participating in WALK-IT for Parkinson’s this September. Register online at www.walk-it.or call our office at 1-888-851-7376 to see how you can get involved.

Have a great summer and we hope to see you at WALK-IT for Parkinson’s!

Sincerely,

Shelley RivardCEO

PSSO Team (from left to right): Rose Johnston, Coordinator, Programs and Services; Shelley Rivard, CEO; Vickie Thoms, Coordinator of Volunteer

Development & Administration; Steve Hickson, Coordinator of Special Events; Tara Chen, student placement; Joanne Bernard, Manager of Administration;

Adriana Medina, Communications Assistant (contract).

ca

3The Parkinson’s Update

Regular physical activity can help slow the progression of Parkinson’s symptoms, so let’s help the Parkinson’s community in Southwestern Ontario keep active. Join the movement and take the 1,000,000 Step Challenge by participating in WALK-IT for Parkinson’s this September.

WALK-IT for Parkinson’s provides the much needed funds for support services, education, advocacy and research. Walk and show your support for those affected by Parkinson’s. Help us reach our goal of 1,000,000 steps.

Participate:Participants can register as an individual or form a team. If you are unable to attend, please consider fundraising as a virtual walker and do your part in support of those living with Parkinson’s.

Form a Team:A team of family, friends and co-workers is a fun way to build camaraderie. Challenge each other in a healthy, competitive way – it makes a difference in the enjoyment of the event. Walk for a loved one and invite others to join you to help fight Parkinson’s.

Collect Pledges:Set a goal of raising $1,000. Parkinson Society Southwestern Ontario does not receive any government funding and relies on the support of our communities to be able to provide our programs and services to those in need. Online fundraising also available at www.walk-it.ca.

Volunteer:WALK-IT for Parkinson’s is a community based event. We are looking for volunteers to share their talents and help us run a great event. Call 1-888-851-7376 or email [email protected] to volunteer today!

The Walk:Participants can walk, run or roll their way through some of the region’s most beautiful parks and recreational areas along a 1km - 5km route. All routes are wheelchair accessible. Distance varies by WALK-IT for Parkinson’s location.

After the walk, join us for some entertainment and refreshments. T-shirts at WALK-IT for Parkinson’s locations are available on a first come, first serve basis.

Join the Movement - Take the

1,000,000 Step Challenge!

Get started and accept the challenge!

WALK-IT, Run-IT, RoLL-IT, However You Do-IT …Every Step Counts!

How?Register1

StepRaise Funds2

Step

Wear a Free Pedometer3Step

WALK-IT for Parkinson’sLocations and Times

SATuRDAY, SEPTEMbER 10, 2016

Brant-Norfolk - Mohawk ParkRegistration 1:00 p.m., Walk 2:00 p.m.

London and District - Springbank GardensRegistration 10:00 a.m., Walk 11:30 a.m.

Orangeville and Area - Alder Street Recreation CentreRegistration 10:00 a.m., Walk 11:00 a.m.

South Grey Bruce and Hanover - Hanover Town Park Registration 8:00 a.m., Walk 10:00 a.m.

Stratford and Area - Upper Queen’s ParkRegistration 9:00 a.m., Walk 10:30 a.m.

Waterloo Region - Resurrection CatholicSecondary SchoolRegistration 9:00 a.m., Walk 10:00 a.m.

SunDAY, SEPTEMbER 11, 2016

Chatham-Kent - Kingston ParkRegistration 12:00 p.m., Walk 1:30 p.m.

Owen Sound - Grey Sauble ConservationRegistration 1:00 p.m., Walk 2:00 p.m.

Oxford County - South Gate CentreRegistration 1:00 p.m., Walk 2:00 p.m.

Port Elgin, Kincardine and Area - North Shore Park, Saugeen Shores Registration 1:00 p.m., Walk 2:00 p.m.

Windsor-Essex - Malden ParkRegistration 12:00 p.m., Walk 1:00 p.m.


Sarnia-Lambton - Stoke’s Bay Grill & BarRegistration 1:00 p.m., Walk 2:00 p.m.

Strathroy and Area - Strathroy Seniors CentreRegistration 12:00 p.m., Walk 1:00 p.m.

REGISTER ToDAY:www.walk-it.ca | 1-888-851-7376

September 2016www.walk-it.ca

When you have finished reading this newsletter, please pass it on by leaving it in a library, a waiting room of a doctor’s office or give it to a friend.

117- 4500 Blakie Road, London, ON N6L 1G5Phone.................................................Toll Free.............................................Fax......................................................

e: [email protected]: www.parkinsonsociety.ca

www.facebook.com/ParkinsonSociety

www.twitter.com/ParkinsonSWO

Although we make every effort to ensure that the information in The Parkinson’s Update is accurate, we cannot take responsibility for any errors or omissions. Information is sometimes taken from letters to the editor, submissions from the Internet, or other print material. We make an effort to acknowledge all of our sources.

The information is not intended to take the place of professional medical advice. If you are a patient currently being treated and have questions, or if you think you have Parkinson’s but have not been diagnosed, please seek the advice of a medical professional. This information does not replace consultation with your physician.

Recycle andCreate Awareness

(519) 652-9437

(519) 652-92671-888-851-7376

Parkinson Education Program (PEP) for Community Caregivers

Manual Revision

The Parkinson Education Program (PEP) for Community Caregivers manual was originally created to meet the education needs identified by healthcare professionals and families in providing care for people with Parkinson’s. The goals of PEP for Community Caregivers:

• Assist individuals with all stages of Parkinson’s to maintain their independence longer• Reduce the number and duration of hospital stays by people with Parkinson’s• Provide education on how to improve dignity and quality of life for those living with Parkinson’s in all care settings• Equip community caregivers with the right tools to provide individualized care

As care standards and knowledge around Parkinson’s continuously evolve, we have recognized the need to update our content and make it more accessible to family and professional caregivers, to students and to those living with Parkinson’s.

In addition to content review by various healthcare professionals, PEP will be offered as online self-learning training modules. Board Member Dr. Michael Ravenek (Occupational Therapy Professor) has connected us with an amazing partnership with the Information Technology (IT) Services at Western University in London, Ontario that will enable online accessibility. Our regionally recognized PEP certification will be obtained with an evaluation component offered with our modules. We look forward to raising the knowledge base and standards of care provided regionally while encouraging professional and personal development.

We are thankful for the amazing community support already provided for this project, with special thanks to:

Dr. Angela Roberts, Dr. Mary Jenkins, Dr. Michael Ravenek, Dr. Chris Hyson, Dr. Quincy Almeida, Dr. Kersty Franklin, Janette Byrne (RN), Kate Mason (OT), Susan Ward (RD) and Emily Barrett (SLP)

September 10, 11, 18, 2016

See pages 16 - 17 for more details

Dr. Michael Ravenek, Rose Johnston (PSSO, Coordinator, Programs and Services)

We are currently looking for healthcare professionals interested in being trained to give effective Parkinson’s In-Service Presentations in their own communities.

For more information, contact Rose Johnston at 1-888-851-7376 or at [email protected].

Wanted: Volunteer Trainers for PEP for Community Caregivers


Joe Renaud

The Parkinson’s diagnosis nine years ago at the age of 44 knocked the wind out of Joe Renaud and his wife Sarah. What began as a twitch in his thumb turned into a world of questions, concerns and fear as they wondered what a diagnosis of Parkinson’s meant – and what it would bring.

As they started their journey of education and discovery, Joe began to realize that perhaps the Parkinson’s diagnosis was not as bad as other news he could have received. Having recently lost four friends to cancer, there was some relief to Joe knowing that he did have some control over the hand he had been dealt. And deal with it he did.

Memory loss and difficulty focusing quickly became the main symptoms that Joe experienced, and as a result he had to leave his job as restaurant manager. He is grateful for the role he had at the restaurant because it was where he met Sarah (now married almost 30 years!), a woman Joe proudly states is the one person that, “he couldn’t have gone through all this without.” He also gives thanks to his other top supporter, 26-year-old son, Adam.

Joe tires easily. He cannot do as much as he used to, and has to take his time with many simple tasks. Setting priorities on what does and doesn’t get done on any given day, Joe knows that in time it will get done. He plans his days differently than he did prior to starting his Parkinson’s journey. Some days it takes longer to get going, and with others, the depression sets in. He accepts and understands those changes and challenges and he remains positive and active. Joe continues to enjoy his two passions of fishing and cycling, but at a somewhat slower pace.

Learning about the Parkinson’s walk in 2009, Sarah suggested family involvement and from there the team of ‘Renaud’s Raiders’ was born. On average, six to ten friends and family members walk together at each annual event. In the eight years that Renaud’s Raiders have been in action, they’ve raised over $40,000 for Parkinson’s programs.

Joe and Sarah also began an annual springtime pasta dinner event to raise awareness and support for Parkinson Society Southwestern Ontario. Now in its sixth year, a dedicated group of almost 200 friends and family gather every May at the Royal Canadian Legion in Windsor for a night of good food, games and camaraderie to show their support of Joe and all he has accomplished. The latest event was just a few weeks ago and raised over $4,000 for the organization.

At this recent event, Joe decided to give his annual speech a personal twist and talked about ‘a day-in-the-life’ of living with Parkinson’s. He shared many of his experiences with tremors, how people perceive and look at the shaking hands and stumbling legs, the helplessness he felt when he was diagnosed, the stares, and on occasion, the unnecessary unfriendly comment.

He shared a story about an evening out with Sarah and friends where he was walking through the lobby alone and stumbled. Security, quite loudly, questioned how much Joe had been drinking. Joe calmly explained he hadn’t been drinking at all, and told his story. Disappointed with the way he was treated, Joe called the facility the next morning to discuss the situation with the manager and stress the need for employees to be sensitive to the needs and restrictions of others, and not to just assume that alcohol, or something worse, is the cause. Joe received a written apology for the incident and a complementary dinner-for-two gift card. Joe then received a far greater gift later that month when he learned that all employees of that facility were going to be participating in sensitivity training, which would teach everyone to be more aware and supportive of all individuals.

Joe considers himself an ambassador for Parkinson’s. His personal mandate is education. “If I can educate someone every day, then my job is done. There is nothing wrong with a trembling hand. There is nothing wrong with how we walk.” He also attributes much of his success to the incredible support system he has with his family, friends and the medical team.

In closing, Joe wanted to share a quote by Michael J. Fox. “One’s dignity may be assaulted, vandalized and cruelly mocked, but cannot be taken away unless it is surrendered.” We all have a choice.

I Have Parkinson’,s

But It Doesn’,t Have Me


Gary Welch

Gary’s first inkling that something wasn’t right occurred in 1992 while travelling through the British Isles. A developing weakness in his right arm, according to his doctor, was likely tennis elbow. The weakness never completely disappeared.

Six years later while visiting Disney World and taking a dip in the pool, he found himself swimming in circles, his right arm almost void of strength. After multiple doctor visits the situation was written off to the effects of personal stress. Gary had recently been diagnosed with prostate cancer and went through extensive surgery. He was off work for a year because of complications. During that time he lost both of his parents. Depression was the diagnosis. But Gary knew something else was going on.

A month later while talking on the phone, he collapsed. Rushed to the hospital with a suspected heart attack. Thankfully, that wasn’t the case, but the doctors were puzzled and brought in a neurologist.

Prior to this Gary had been experiencing problems at work – forgetting meetings, leaving his car running, forgetting passwords. He hadn’t even realized that his right leg was starting to drag when walking. After a lengthy consultation, the diagnosis was early onset Parkinson’s. He was 55. Gary had no idea what would continue to happen, how fast or how often symptoms would occur. He was told to travel while he could, stop driving and reduce working. Being an active ‘Type-A’ personality, this was devastating news for Gary.

Three months and several tests later, Gary was advised to remain home on long-term disability. With all he was going through, Gary began to think, “Why me?” A voice replied, “Why not me?” And he forged ahead.

He enrolled in a six-week education course at Parkwood Hospital for people dealing with Parkinson’s. Then Gary and his wife Elizabeth contacted Parkinson Society Southwestern Ontario and joined the London Parkinson’s support group to learn as much as possible about Parkinson’s. Elizabeth jumped right in as well, taking on the role of facilitator for the London Parkinson’s support group for seven years. They are both still part of support group.

Gary’s rock is Elizabeth. “My luck has been having the most loving caregiver a person could have, my wife Elizabeth. She is a retired registered nurse and we are in our 48th year of marriage. We have a wonderful and supportive son and daughter along with six special grandchildren. What more could we ask for? Life has been good to us.” This positive nature which they share has helped them through this often-tough road.

Gary kept busy by volunteering for 11 years at a local public school helping out a grade-one teacher. He enjoyed every minute of it. He regularly attends the Parkinson’s biweekly exercise program at Parkwood Hospital. Upon returning home he counts his blessings after seeing individuals in worse shape than him. Everyone is so different with this disease.

Gary’s health has definitely deteriorated over the last two years. He is experiencing more activity tremors and falls, often resulting in major medication changes, as well as having to use his walker much of the time. But he remains as active as he can, working in the garden and playing cards with friends. He always believes a positive attitude prevails.

According to Gary, “The most positive thing that we have experienced over the past years is the wonderful friends we have met during this difficult journey. We all share some of the same symptoms, but also have to chuckle and try to keep moving forward.”

I Have Parkinson’,s

But It Doesn’,t Have Me

We are always interested in short stories involving our Parkinson’s community. If you have Parkinson’s, are caring for someone with Parkinson’s or if you are a Parkinson’s volunteer, we invite you to submit a story, no more than 500 words. Also, if you have tips for living better with Parkinson’s, please give us a call at 1-888-851-7376.

Although all submissions will be considered, we cannot guarantee that your submission will be published.

Do You Have a Story to Share for The Parkinson’’,s Update?


Dr. Mandar Jog trained in Neurology and Movement Disorders at the University of Toronto and completed a post-doctoral fellowship

in Computational Neuroscience at the Massachusetts Institute of Technology in Boston. Currently, Dr. Jog is a Professor of Clinical

Neurological Sciences at Western University. He is the Director of the Movement Disorders Program at London Health Sciences

Centre. The Clinic has received the prestigious designation of ‘Centre of Excellence’ awarded by the National Parkinson

Foundation, Inc.

How do you know when your medications need to be changed or adjusted?

QA

This is a difficult question to answer because medication management in patients with Parkinson’s disease is individualized. What this means is that your particular condition, its symptoms and signs have to be discussed individually and in detail with your physician. Sometimes medications can be changed for decreased control/effectiveness and sometimes for side effects resulting from the medications. Also, factors, including interaction with other drugs or surgical interventions may also require medication adjustments. Generally, however, the most common reason why patients require medication adjustments is related to reduced efficacy of the medications, presumably related to progression of Parkinson’s disease symptoms.

The adjustments are complicated and may require the addition of another medication, increase or decrease of a medication, or adjustment of the timing of delivery of medication. Also, there are many interactions that occur with medications. Hence, even though the actual medication dosage might remain the same and the timing might be the same, the relationship to consumption of food as well as other accompanying medications may also occur. Therefore, this adjustment of medications has to be done in conjunction with your primary care physician and especially your specialist who is dealing with the management of all your symptoms. In one special situation, medications that need to be adjusted or changed are with relationship to deep brain stimulation (DBS). Patients who undergo DBS require a special type of management change that is only done by the specialist. In this scenario, adjustment of brain stimulation parameters requires that a reduction in medication specifically occur. Again, this has to be done in conjunction with your specialist.

What are the current research findings on fatigue and how does it relate to Parkinson’s disease? Is fatigue different than feeling tired?

Ask TheExpert

QA

Fatigue is a very complicated condition and is certainly different than simply feeling tired. Fatigue can be a primary symptom of Parkinson’s disease in numerous stages. First of all, the presence of fatigue occurs in 50% of patients or even more at the time of presentation. Fatigue is a general reduction in the ability to have enough stamina to conclude the desired task. This is different than feeling tired where most of the time we are actually able to complete what we are doing. As Parkinson’s disease advances, fatigue can become very common, and in fact some people quote that by the time patients have had 7-10 years of disease, 100% of patients will experience fatigue. In all these scenarios, fatigue is actually a clinical syndrome and not a social concept of being overworked. Indeed, fatigue can independently occur despite sleeping well which is often what people feel is an independent contributor to the feeling of tiredness. Finally, despite not doing much exertion and having a good night’s sleep, patients with Parkinson’s disease can experience fatigue.

Fatigue can also be responsive to Levodopa and it is quite possible that as a primary symptom of Parkinson’s disease, patients may feel that when their medications are working, the fatigue is relieved. This indicates that fatigue in Parkinson’s disease may also be related to the dopamine system and other such neuro-chemicals, other than just a general feeling of tiredness. Most people believe that fatigue therefore, is a central problem in patients with Parkinson’s disease as opposed to tiredness that might be experienced at the muscle level. In addition, fatigue can occur as a non-motor ‘wearing off’ phenomenon. This implies that you still might be able to do the tasks that we ask patients to do (such as finger tapping, hand opening and closing or walking up and down) but fatigue itself, may in fact be the symptom of the wearing off of the drug. Therefore, in the wearing off scenario, patients that experience fatigue may find that this particular symptom is responsive to Levodopa.


QA

Sun-downing is common in patients who have experienced a neurodegenerative disease including specifically cognitive decline. This can occur in patients with Parkinson’s disease, dementia, as well as patients with Parkinson’s disease along with some degree of Alzheimer’s. The term sun-downing refers to cognitive decline.

The management of sun-downing is difficult. Sometimes the oral medications used to treat overall cognition may help with Parkinson’s disease sun-downing as well. In addition, it is probably best to keep the person in a familiar environment and do familiar things during that time so that there are no surprises. For example, surprises like unexpected visitors or a change in rooms where the patient spends may enhance this decline.

Therefore, keeping familiarity as much as possible is probably the best way of managing sun-downing.

Sometimes sun-downing can occur also as part of the ‘wearing-off’ phenomena. As mentioned in the previous question, fatigue can occur as a non-motor wearing off. So can cognition. Therefore, it is sometimes possible to increase dosages of Parkinson’s medications to help with cognition during that period.

Other secondary factors, such as low glucose or poor blood pressure should be looked at as secondary factors that can produce mild cognitive dysfunction. These factors should be treated aggressively if one is dealing with sun-downing.

Other than that, support systems can also be made available. It has been found that it can sometimes be better to take a patient to a particular facility before the sun-downing starts so they can be kept engaged (such as in support groups, or with help-specific arrangements made during that time).

Unfortunately, other than this, there are no specific strategies targeted to sun-downing in Parkinson’s patients.

Do you have any recommendations or tips for individuals who experience sun-downing?

If you have a question for ‘Ask the Expert’, please write to: The Editor, Parkinson Society Southwestern Ontario, or email:[email protected]. Although all questions will be considered, we cannot guarantee that your question will be published.

The information and opinions presented in the articles are those of the professionals who submitted the articles for publication and do not necessarily reflect the opinion or viewpoint of Parkinson Society Southwestern Ontario. Parkinson Society Southwestern Ontario will not be held liable for the information presented.

Ask TheExpert

There are specific treatments that have been tested for fatigue. In our own work, which was published over a decade ago, the drug methylphenidate commonly known as Ritalin, which is used for treatment of ADHD in children, has shown definite benefit in many patients. The drug might be acting on the dopaminergic system itself by increasing the release of the neurochemical along with other such neurotransmitters. Therefore, I quite commonly prescribe methylphenidate in low doses in treatment of primary fatigue in patients with Parkinson’s disease with reasonable efficacy. If there are no contraindications, you can ask your primary physician to consider this in the treatment of your fatigue.

Please consider joining our monthly giving club. Monthly gifts provide a secure funding base for Parkinson Society Southwestern Ontario and lower administrative costs. This allows us to direct more money to our vital services throughout the region.

For more information about monthly giving, please call 1-888-851-7376 or email [email protected].

Join Our Monthly Giving Club


From TheResource Centre Updates from Penny MacDonald’

,s Lab

Andrew Vo is a graduate student in the Psychology (Behavioural and Cognitive Neuroscience) program at Western University. He is completing his research at the Brain and Mind Institute under the supervision of Dr. Penny MacDonald. Andrew’s research interests centre around the study of cognitive dysfunction in different neurological diseases, such as Parkinson’s disease, with the goal of increasing our understanding of cognition and evolving the clinical applications of this research.

Effects of Parkinson’’’s Disease Progression and Dopamine Medications on Different Aspects of Thinking

Parkinson’s disease is typically characterized by motor symptoms of tremor, rigidity and slowing of movements. Changes in cognition (i.e., our ability to think, learn, remember, make decisions, etc.) can also occur. These symptoms seem to worsen and become more complex as the disease advances. Some of these cognitive symptoms are caused by the disease process itself. Others seem to be related to prescribed dopamine medications, such as levodopa (or Sinemet) and dopamine agonists (e.g., Mirapex). My research is looking at the effects of disease progression and dopamine medications on thinking ability in Parkinson’s disease.

To do this, we use neuropsychological testing and functional magnetic resonance imaging, or fMRI. Neuropsychological tests can be considered brain games, designed to assess the function of specific brain regions that we know are affected by Parkinson’s disease. FMRI is a safe and non-invasive brain scanning technique that allows us to see and measure brain activity while volunteers play these brain games.

A typical experiment involves testing late-stage compared to early-stage Parkinson’s patients, once while on their normal dopamine medications and once while off their dopamine medications. What this research will reveal is exactly how disease progression (late- vs. early-stage) and dopamine medications (on vs. off medication) affect the brain activity that underlies different aspects of thinking. Our hope is that by improving our understanding of these complex thinking challenges in Parkinson’s disease, clinicians will be better able to treat or manage these symptoms. The ultimate goal is to improve quality of care and life for all persons living with Parkinson’s disease.

For more information regarding this research or for opportunities to participate in research experiments, please contact Andrew Vo at 519-661-2111 ext. 80271 or email [email protected].

Dr. Penny MacDonald, MD, PhD, is the Canada Research Chair Tier 2 in Cognitive Neuroscience and Neuroimaging, assistant professor, and movement disorders neurologist at Western University and London Health Sciences Centre. The MacDonald Lab conducts its research at the Brain and Mind Institute and Robarts Research Institute at Western University. For more information, please visit Dr. MacDonald’s website at www.pennymacdonald.net.


From TheResource Centre Updates from Penny MacDona’ld’’’’’”

,s Lab

Determining the effect of Parkinson’’s medication on learning and decision-making in Parkinson’,’s disease using functional magnetic resonance imaging

My research investigates cognitive functions in patients with Parkinson’s disease (PD). PD is caused by degeneration of dopamine-producing neurons in the Substantia Nigra, which provide dopamine to the dorsal striatum (DS). The loss of dopamine to DS results in motor symptoms such as tremor, slowness of movement and rigidity. Thinking or cognitive problems also occur and are currently poorly managed in PD. Dopamine replacement therapy improves motor symptoms and cognitive functions that depend on DS, such as decision-making.

Dopamine treatment worsens functions performed by other brain regions, such as the ventral part of the striatum (VS). This is because the VS has a normal dopamine supply in early PD, and dopamine therapy overdoses VS. Functions performed by VS, such as certain forms of learning, are impaired. To examine the effect of dopamine medication on learning and decision-making, patients with PD are tested both on and off their regular dopamine replacement medication while they perform different tasks that depend on DS and VS.

These tasks will be completed while their brain activity is measured using functional magnetic resonance imaging (FMRI). FMRI is a non-invasive technique that allows for the visualization of brain activity by mapping changes in blood flow. FMRI uses an electromagnet to visualize differences in oxygenated and deoxygenated blood, referred to as blood oxygenation-level dependent responses (BOLD) in the brain. This BOLD response in different brain regions can be correlated with various functions relative to rest or other control functions. The theory behind fMRI is that areas of the brain that recruit more oxygenated blood are more active than areas that do not. We expect that decision-making will be worse and the BOLD response dampened in DS when patients tested off their dopamine medication, compared to on it. Conversely, learning is expected to be superior, coupled with higher activity in VS, when patients are tested off their medication, compared to on it.

The results from these studies will guide clinicians in considering both motor and cognitive symptoms when they prescribe dopamine replacement therapy to patients with PD.

Nole Hiebert has been working with Dr. Penny MacDonald for four years, completing his master's degree. He is currently working towards his PhD. Nole’s research is centred on unraveling the cognitive profile of Parkinson’s by understanding functions performed by the ventral and dorsal striatum using behavioural and neuroimaging techniques.

www.swselfmanagement.ca 10 The Parkinson’s Update

From TheResource Centre

Become an Active Member of Your Healthcare Team

In Ontario, 80% of people over the age of 45 have a chronic condition. And 70% of these people have two or more chronic conditions. Examples of chronic conditions can

include Parkinson’s, heart disease, diabetes and mental health challenges. We see the toll of chronic disease in our lives and the lives of our loved ones. For instance, stiff aching muscles, physical limitations and dealing with difficult emotions can contribute to the overall quality of daily life for someone living with Parkinson’s.

How can we help manage the negative effects of our chronic conditions? Becoming a good ‘self-manager’ is a start. ‘Self-management’ refers to one’s ability to become

an active member of one’s own healthcare team and participating in managing one’s conditions. Informed and empowered patients who have the confidence to take what

they have learned and implement these learnings into their everyday lives achieve the highest degree of health benefits from their medical appointments.

Communicating well with healthcare providers is one of the most important parts of getting good care. However, it takes time and effort by both parties. Healthcare appointments can be stressful for any patient. Research shows that patients forget 50% of the information shared during an appointment. Contributing factors to forgetting information include becoming stressed about their condition, too much information provided too quickly and unfamiliar medical jargon used by healthcare professionals.

A few great tips for getting the most from your healthcare appointments are:

1. Make a list of items you wish to discuss and share the entire list with your provider. Multiple items on the list may point to a single cause. You and your provider can also decide what the most pressing issues are that require immediate attention.

2. Keep a medication list and bring it to all of your appointments. This should include all of your non-prescription vitamins, supplements and topical ointments.

3. Create a ‘health diary’ with dates, times and symptom changes.

4. Make sure you understand everything before you leave your appointment. Ask questions and repeat the information back to the provider to ensure accuracy.

5. Ask how you can get more information. Engage in events and activities about managing your condition. Knowledge is power!

Remember, HEALTH happens between medical visits. Make sure you have all the tools you need to manage your health as effectively as possible. Ultimately, you and your caregivers are the most important members of your healthcare team.

Jackie DoummarProgram Outreach and Promotion, South West Self-Management ProgramPatient Experience and IntegrationSouth West Community Care Access CentreToll free: 1-855-463-5692Jacqueline.Doummar@sw.ccac-ont.cawww.swselfmanagement.ca



Dysphagia: When Eating Becomes a Challenge

Half of the people living with Parkinson’s suffer from dysphagia (swallowing difficulty). This problem is more frequent in the later stages of the disease, but may also occur in the earlier stages. If you suffer from dysphagia, eating and drinking will become less pleasant, which can affect your quality of life. Moreover, there is a risk of food or saliva entering the lungs, called foreign body aspiration. Repeated foreign body aspiration can lead to aspiration pneumonia, one of the leading causes of death for people suffering from Parkinson’s.

Causes and Symptoms of DysphagiaParkinson’s can affect the muscles involved in the various steps of swallowing and thus cause dysphagia. There are different types of dysphagia.

Amongst the symptoms of dysphagia, we can find:

• Choking• Coughing or throat clearing during meals• Difficulty moving food or liquid from the front to the

back of the mouth• Loss of liquid or food from the mouth• Excessive drooling

• Slowed chewing• Increased time required to eat a meal• Feeling food or liquid sticking in the throat• Increased difficulty swallowing pills• Weakened cough or changes in voice

RemediesTreating a swallowing disorder requires a multidisciplinary approach. A variety of professionals such as the doctor, nutritionist, speech therapist and occupational therapist may help. Depending on the specificity of the problem, various intervenors may formulate the following recommendations:

• Facial exercises, prescribed by the speech therapist, in order to adequately prepare the food in the mouth and to masticate (chew)

• Take several smaller meals throughout the day

• Change eating habits: take small bites and sips, eat slowly, refrain from talking while eating and favour a calm eating environment

• Improve the posture and head position when eating

It is also important to eat food with the correct modified consistency, following recommendations by the nutritionist: soft-consistency solids, ground or with sauce or mashed; thickened liquid if needed; refrain from eating foods with certain consistencies or viscosity, etc. Sometimes transformed foods from certain industrial companies may be perceived as bland or unappetizing. However in certain cases, the taste and nutritional intakes are similar to the original.

Finally, adapted dishware may help persons living with Parkinson’s during meals. For instance, ergonomic utensils (with a larger handle), sippy cups, straws, plates with a large edge are recommended to make mealtimes more pleasant.

It is important to consult a healthcare professional as soon as you notice the symptoms described above because swallowing disorders may not only affect eating, it can also cause serious health problems.

Parkinson Society Southwestern Ontario gratefully acknowledges Parkinson Quebec for sharing resources and information.

Sources: Guide Info Parkinson 2016, Parkinson Québec Le Soleil. “Du manger mou plus appétissant” http://www.lapresse.ca/le-soleil/affaires/agro-alimentaire/200912/20/01-932802-du-manger-mou-plus-appetissant.php. 2009.Radio-Canada. “Des aliments en purée et remodelés pour personnes âgées” http://ici.radio-canada.ca/emissions/bien_dans_son_assiette/2015-2016/chronique.asp?idChronique=364629. 2015.Vigi-santé. “La dysphagie : Lorsque manger devient tout un défi” http://www.vigisante.com/parutions/bulletins/PDF/EVM/Entrevousetmoi_Num23_fr.pdf. 2006.



Dental Care

Often, dental care is last on the mind for the care plan for those living with Parkinson’s. That said, it is still important to maintain a good routine.

Why is good dental care important? Dental care is an important part of the care plan to maintain good health for those living with Parkinson’s. Regular dental care can minimize the risk of experiencing pain and discomfort, specifically the reduction of risk for infection. It can also provide additional benefits like improved chewing, swallowing, speaking and capacity for taste. If you are living with Parkinson’s and you have untreated dental cavities, it is important to see a dental professional for treatment in order to prevent infection and unnecessary stress to the body.

What causes dental issues in Parkinson’s?

1. Visit your Dentist: Scheduling semi-annual appointments with your dentist allows dental health assessments and recommendations specific to your needs.

2. Improve your Dental Routine: Brushing your teeth for two minutes after every meal and flossing once a day is important to remove food and bacteria between your teeth. Tip: Try using a floss pick instead of string.

3. Improve Motor Control: Working with an occupational/physical therapist to strengthen muscles and improve fine motor control used in tooth brushing can allow better brush habits. Tip: Work on hand dexterity exercises such as squeezing stress balls/dynamometer.

4. Drink water: Staying properly hydrated can alleviate symptoms of dry mouth.

It’s important to realize that many dental professionals do not have specialized training in Parkinson’s disease. There are symptoms unique to Parkinson’s that may require the dentist to alter their techniques. For your next dentist appointment, bring a printed copy of the excerpt from the book, Every Victory Counts Manual: Essential Information and Inspiration for a Lifetime of Wellness by Monique Giroux and Sierra Farris. Review the worksheet with your dentist to provide important information about providing care for people with Parkinson’s. Here are examples of modifications that your dentist can make to improve your dental experience:

• Communication: Collaborating with the patient to determine a signal for discomfort. Parkinson’s may cause a decreased facial expression which can make it difficult the patient to express discomfort.

• Treatments: Intraoral rubber bit blocks, keeping the chair at an incline of 45°or higher, etc. can assist with Parkinson’s patients who have difficulties in keeping their mouth open and enable comfortable swallowing.

• Deep Brain Stimulation Therapy: Ask your patient to contact their DBS device manufacturer in advance to provide any recommendations or contraindications specific to their device to prevent any disturbances that may occur with their treatment.

Parkinson Society Southwestern Ontario gratefully acknowledges Davis Phinney Foundation for Parkinson’s for sharing resource information.

• Medications: Dry mouth is a common side effect in Parkinson’s medications and secondary medications prescribed for depression, urinary issue, anxiety and orthostatic hypotension.

• Treatments: Botulinum toxin injections to control drooling may sometimes reduce too much excess

saliva production causing dry mouth symptoms.

• Motor Control: Decreased fine motor control, reduced hand strength, slow movements, stiffness and involuntary twisting lead to difficulty in regularly performing proper oral care.

When should I consult a professional?If unordinary symptoms arise such as mouth pain, difficulty chewing, recurring dry mouth, it is best to schedule a dental appointment to address the root cause. For some individuals, the physical movement of brushing is rather difficult. It would be best to schedule a consultation with an occupational therapist to develop a treatment plan to improve hand strength.

Four ways to improve your dental routine:



Highlights of the Spring 2016 Parkinson’’s Regional ConferenceKnights of Columbus Hall, Mildmay

Thank you to all of our speakers and sponsors for making the conference a success!

Fall 2016 Regional Parkinson’,s Conference

Saturday, November 5, 2016

The semi-annual Parkinson’s Conference provides information, education and support to people living and working with Parkinson’s in the Southwestern Ontario Region. Highly regarded by both those within the Parkinson’s

community and the healthcare profession, the conference is always one of the year’s highlights. Come individually, with your spouse or partner, or make it a road trip with your local Support Group!

St. George Banquet Hall665 King Street North, Waterloo

We have a fascinating lineup of speakers:

Registration: $50

If you are travelling and want to stay the night, remember to book your hotel room early as space is limited. We have a block of rooms reserved at the Courtyard by Marriott Waterloo St. Jacobs location, 50 Benjamin Rd., Waterloo. It is just around the corner from

St. George Banquet Hall.

Call toll-free at 1-800-972-5371 by October 5th to book room accommodations. Mention Parkinson Society Southwestern Ontario Conference to receive the $134 rate. Please mention any accessibility requirements at time of booking. A hot breakfast is included.

Dr. Quincy J. Almeida New Approaches to the Identification and Treatment of Mechanisms Underlying the Symptoms of Parkinson’s

Dr. Barbara Connolly MD, FRCP(C)What are Non-Motor Symptoms of Parkinson’s? Information & Strategies to Help you Manage These Symptoms

Special Guest: Tim Hague, Season 1 Winner of The Amazing Race Canada Live Your Best

BREAKOUT SESSIONS:Young Onset Parkinson’s – Dr. Michael RavenekSexuality and Parkinson’s – Dr. Kersty Franklin

Advanced Care Planning – Anne Reinhart, Partner, Lerners

To register, go to www.parkinsonsociety.ca or call 1-888-851-7376.

AbbvieYurek Home Healthcare

Brown’s Guardian PharmacyPhysiotherapy 111, Ltd.

Note: Recordings from past conferences can be found by going to http://www.parkinsonsociety.ca/videos-and-audios.html.

Dr. Bryan YoungDr. Mary JenkinsJackie DoummarUte Poechman

Premier Sponsors

Principal Sponsors

Conference Speakers

HollisWealth Charity Golf Classic (Waterloo Region)

Participants enjoyed 18 holes of golf, a barbecue lunch, buffet dinner and a

silent auction. The event raised just over $41,000 to support Parkinson Society

Southwestern Ontario and MS Society Grand River Chapter. (from left to right):

Nelson Grigg, Ralph Robinson, Monique Heaney and Al Heaney.Fourth Annual Signatures – A Taste Test of London’s Best

in Partnership with Finch Auto Group

Restaurants and food vendors showcased their signature dishes at

Budweiser Gardens on June 13, 2016 to 1,000 guests. Signatures

raised $32,500. (from left to right): Dan Dale (Finch Chrysler Dodge

Jeep Ram), Jordin Finch (Finch Chevrolet Cadillac Buick GMC), Shelley

Rivard (Parkinson Society Southwestern Ontario CEO), Ryan Finch

(President Finch Auto Group) and Rob Stockie (Mercedes-Benz London).

Seventh Annual Parkinson Golf Classic Presented by Rembrandt Homes (London)

Walter Gretzky (famous hockey dad and person living with Parkinson’s)

and Frank Callipari (Parkinson Golf Classic Volunteer Committee member) enjoyed a wonderful day of golf.

Seventh Annual Parkinson Golf Classic Presented by Rembrandt Homes (London)Participants enjoyed 18 holes of golf, a barbecue lunch, buffet dinner and a silent auction. The event raised $74,000. (from

left to right): Team Rembrandt - Abbe Marsman, Buffy Ellis, Patti Laurrensen and Lou Anderson.

Celebrating Success!

Thank you to all our sponsors, participants, donorsand volunteers!

Cut-A-thon for Parkinson’s (Waterloo Region)

Waterloo region participating Cut-A-Thon for Parkinson’s salons included

FAD Hair Studio, Oiseau Salon, OZ Hair and Skin, Studio 777 Hair &

Make-Up Artistry, Voila - Sportsworld Location and Xcentric Salon.

Cut-A-Thon for Parkinson’s (London)

Participating salons at the Cut-A-Thon for Parkinson’s in London were

Chez Cheveux, Elle Reve Salon, Maria Bikas Salon, Melo Hair & Beauty

Bar, N U Hair & Make Up Studio, Nova Vita Hair Studio & Esthetics,

Shampoo Planet, Side Street Salon Inc., Studio H Artist Group,

Wabi Sabi Hair Artistry and Wright Hair.

Cut-A-Thon for Parkinson’s (Windsor)Windsor participating Cut-A-Thon for Parkinson’s salons included Antoine Greige Salon & Spa, Cabello Hair and Roots Hair Lounge.

To find out about upcoming events or to get involved, go to www.parkinsonsociety.ca.

Salons and volunteers made the Cut-A-Thon for Parkinson’s special for participants and raised $25,000!

WALK-IT Walker: Leah Coulthart-Howe

Leah Coulthart-Howe’s mother, Patricia Coulthart, was diagnosed

with Parkinson’s in 2010. After the diagnosis, Patricia became motivated to take an active stand against Parkinson’s. Leah, Patricia and their family formed Team Patricia in the summer of 2011. “Fundraising for Parkinson Society Southwestern Ontario (PSSO) was one way we decided to get involved. The walk is a great opportunity to support my mother and others living with Parkinson’s. It’s an opportunity to come together with friends, family and as a community,” Leah said.

Leah and her team have made significant contributions to PSSO and the Parkinson’s walk. When asked for fundraising tips, Leah suggested getting the family involved. She believes a team effort has contributed to their successful fundraising and has kept their motivation strong. “Providing information to neighbours and friends about why the cause is important to you makes a difference. Using the online donation tools has also helped us to raise funds from friends and family who are far away,” said Leah.

Leah emphasizes the importance of fundraising, but also encourages attending WALK-IT for Parkinson’s. The event itself is one of her favourite experiences and makes the hard work worthwhile. “You have a sense of community that you feel while you are there. The environment is so positive – people helping people and supporting one another, all for a common goal.” Leah also emphasizes the importance of getting children involved. She believes it offers valuable lessons about helping one another and volunteering.

Last year, Leah joined the walk committee and remains the Volunteer Chair of the Port Elgin, Kincardine and Area WALK-IT for Parkinson’s Committee. She encourages everyone to get involved as a participant, team, volunteer or committee member. “The more people who help, the more we can do to make the event a better experience for everyone, and make a difference in the Parkinson’s community.”














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To find a walk location near you and to register visit www.walk-it.ca.

Register Raise Funds Wear a Free Pedometer1 2 3Step Step Step

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How?Register1

StepRaise Funds2

Step























To find a walk location near you and to register visit www.walk-it.ca.

Register Raise Funds Wear a Free Pedometer1 2 3Step Step Step

How?


Liz Owen, Leah Coulthart-Howe, Sid Gordon, Pat Coulthart and Bonnie Armstrong are all looking forward to the walk in Port Elgin this year!


WALK-IT Walkers: Scott,’s Movers and Shakers

After Scott Dunbar’s Parkinson’s diagnosis in January 2012, it was not long before his family started brainstorming ways to show support for Scott through that difficult time. Specifically, his daughter Christine encouraged Scott and his family to get involved with the walk. “It was Christine’s idea. She wanted to show me support, but she also emphasized the importance of getting involved with an amazing event that raises funds for Parkinson’s research and services for those living with the disease,” said Scott.

Scott’s Movers and Shakers began in the summer of 2012 and they have participated each year since. “We had an amazing turnout the first walk. We are proud to have raised over 10% of Stratford’s local walk donations.” Last year, Scott’s Movers and Shakers raised $4,346.

The walk has become an important tradition for many teams, including Scott’s Movers and Shakers. “The first year we had an age range from 2 to 90 years old on our team,” said Scott. “We love to get the entire family out. It is a special day we look forward to each year. It is simply a great event, and a great day for a walk.”

Scott encourages everyone to get involved with this year’s WALK-IT for Parkinson’s. “It is rewarding to participate in an event where funds are kept local. You get to see where your efforts go,” said Scott. He feels that it’s easier than people might think to raise money. “Just ask. People are always willing to provide donations and to support you when you are raising money for a cause important to you personally.”

Starting a team of family and friends is a way to bond, while contributing efforts in the fight against Parkinson’s. Visit www.walk-it.ca to register and to find more information about WALK-IT for Parkinson’s.

Satuday, September 10:Brant-Norfolk – Mohawk ParkLondon and District – Springbank GardensOrangeville and Area – Alder Street Recreation CentreSouth Grey Bruce and Hanover – Hanover Town Park Stratford and Area – Upper Queen’s ParkWaterloo Region – Resurrection Catholic Secondary School

Sunday, September 11:Chatham-Kent – Kingston ParkOwen Sound – Grey Sauble ConservationOxford County – South Gate CentrePort Elgin, Kincardine and Area – North Shore Park, Saugeen ShoresWindsor-Essex – Malden Park

Sunday, September 18:Sarnia-Lambton – Stoke’s Bay Grill & BarStrathroy – Strathroy Seniors Centre

WALK-IT for Parkinson’s

Team Scott’s Movers and Shakers

Find Out if Your Employer Offers a Matching Gift or Volunteer Program:

Many companies have matching gift programs in which they will match a donation given by an employee, retired employee or even volunteers. Check with your company’s human resources department and ask your parents/friends/relatives if their employer has a matching gift program as well. Then, work with employers to check the eligibility and application requirements. It’s an easy way to double your impact.


VolunteerismStudents Fight Parkinson

,’s

Cricia Rinchon and Kevin Fan

Students Fight Parkinson’s (SFP) is a student-run organization at Western University located in London, Ontario. Our diverse team consists of undergraduates in various fields, ranging from neuroscience to accounting. Regardless of our different backgrounds and academic interests, we are united by a common passion: to improve the lives of those affected by Parkinson’s disease (PD). Our main goals as a student club are to raise awareness for PD among the Western student body and to raise funds to support community PD research and programs in Southwestern Ontario.

To raise awareness, many of our members write about current PD research being conducted at Western University. We organize writing sessions for students who are interested in composing an article, aid in editing their work, and submit the final result to a local neurologist for approval. This past March, we hosted Western’s first student-run Brain and Mind Health Research Summit. This summit brought together the most recent perspectives on three central pillars of neurological healthcare in Canada: (1) basic and clinical research directions, through prominent keynote speakers invited from various research institutes in London; (2) healthcare professional-patient relationships, through intensive patient-profile case studies; and (3) the funding and policy aspects of neurological health for PD and other neurological conditions, through student presentations. It was a great success, with 100 total participants.

SFP has also vowed to hold at least two fundraisers each year. In November, we hold our annual Poinsettias for Parkinson’s fundraiser. It involves the sale of decorated pots of poinsettias that make great gifts for friends, family, residence advisors and colleagues during the holiday season. It has been received well by the Western community and has raised hundreds of dollars each year. In March, we held a Krispy Kreme Doughnuts Fundraiser, and raised $850 over three days! We attribute this success to the dedication of our incredible student-led team.

The latest addition to our mission statement is to create solidarity between students and those affected by PD in the greater London community. To achieve this, we launched a volunteer program, which facilitates student volunteer positions for the PD SMART Exercise Program (a weekly exercise program for people living with PD), as well as other Parkinson Society Southwestern Ontario programs, such as the Parkinson Education Program (PEP).

For more information on writing articles about PD, our Brain and Mind Health Research Summit, volunteering for the PD SMART Exercise Program, or if you have inquiries about our team, feel free to email us at [email protected], and we will happily address your inquiry.

Students Fight Parkinson’s is a student-run organization at Western University. Annual Poinsettias for Parkison’s fundraiser


Volunteerism Volunteer Profile Gary Dallner, Neil Tenney and Wayne McManus

Gary Dallner:

Gary began his volunteer career with Parkinson Society Southwestern Ontario (PSSO) in 1996 when a friend and fellow volunteer from a local Optimist Club encouraged him to get involved in the London Parkinson’s walk. Gary became the corporate sponsorship coordinator and was very successful at securing sponsors over the eight years in the coordinator role. Although Gary’s roles and responsibilities have changed over the years, he is grateful for the friendships he has made and for having the opportunity to give back to the community.

Neil Tenney:

Neil has been volunteering with PSSO since the late 90’s. Like Wayne, he has a variety of volunteer duties and is a Signatures’ committee member, while making himself available upon the needs of PSSO. Neil, a retired language teacher, puts his professional skills to good use by proofing The Parkinson’s Update as well as other written materials. Neil likes to volunteer for PSSO because he feels appreciated, has made many new friends and admires the people he has met living with Parkinson’s who have maintained positive attitudes.

Wayne McManus:

Wayne has a friend and former co-worker who has lived with Parkinson’s for many years. Wayne visits his friend regularly to talk and offer his support. His friendship led to becoming involved as a regular office volunteer over the past six years. Wayne is our resident ‘Jack of all trades’ because his volunteer duties vary significantly. Wayne has been involved in everything from a Signatures’ committee member to office maintenance and everything in between. Wayne feels that volunteering is a two-way street – he gets satisfaction out of helping others. It is very rewarding!

Supporting our Supporters!

What do these three men have in common?• They are involved in volunteering for Parkinson’s events.• They enjoy the friendships they have made through volunteering at PSSO.• They support our supporters – they get together for lunch on a regular basis so that they can support the restaurants participating in Signatures. They encourage others to frequent these restaurants as well. For a complete list of participating restaurants and caterers, go to parkinsonsociety.ca.

Gary, Wayne and Neil encourage others to support the Parkinson’s community by volunteering. To find out how you can become a volunteer, contact Vickie Thomas at 1-888-851-7376 or [email protected].

Gary Dallner, Neil Tenney, Wayne McManus

Gift Planning is the act of planning a gift to Parkinson Society Southwestern Ontario. Here are ways to make a difference through a bequest:

· Invest in PSSO’s greatest needs · Contribute to a specific program · Donate to research and help find a cure · Commemorate a life

Making your gift of hope for today and tomorrow is easy. Call 1-888-851-7376 or email [email protected].

The Parkinson Legacy

• Parkinson Society Southwestern Ontario and our services

• Parkinson’s and Parkinson’s programs• Upcoming events, conferences and workshops• How you can help• Corporate/Employee involvement• Signing up on our mailing list• And more …

Go to www.parkinsonsociety.caand find out about:

Joe Renaud, Janet Girard David Gilbert, Daiene Vernile, Shari Weaver

Frank Callipari, Lon Sinclair, Wendy Nicholson, Elsie Farnham

Mike Knott, Carol Stemmler


VolunteerismOntario Volunteer Service Award Recipients

At Parkinson Society Southwestern Ontario, we appreciate our hard-working and dedicated volunteers. The Ontario Volunteer Service Awards recognize volunteers for their undeniable contributions and continuous years of service in each support group area.

Congratulations to the following 2016 award recipients:

Laura BeharrellFrank CallipariClaudia DayDavid GilbertJanet GirardJeff Hemming

Cindy HillKenneth JonesSheila Jones

Adele KaminskiMike Knott

Sheri Lawrence

Wendy NicholsonJoe Renaud

Nancy RobinsonLinda RoozenLon Sinclair

Carol Stemmler

Ken StemmlerDonna VessieKeith Vessie

Shari Weaver

CAREGIVERS OF PERSONS WITH DEMENTIA NEEDED FOR TECHNOLOGY RESEARCH STUDY

The School of Occupational Therapy is looking for volunteers to take part in a research project that has the goal to create an online tool that connects family caregivers to resources they need to support themselves and an older person with dementia. The participants have to meet the following criteria:

• Be 18 years and older• Be able to speak English fluently• Have at least one-year experience of caring for a family

member (or a friend) with dementia who lives at home.

If you are interested and agree to participate you will be asked to answer a short questionnaire and attend one focus group discussion to understand what you need in a technology that would support your caregiving. Your participation would involve one session, which will be about 1-2 hours long. In appreciation for your time, you will receive a monetary compensation and reimbursement for parking.

For more information or to volunteer for this study, please contact:

Dr. Jan PolgarThe School of Occupational Therapy,Western University, LondonT: 519-661-2111ext. 88966 or Email: [email protected]


Tillsonburg Multi-Service Centre Trail Walk & Run

The Multi-Service Centre (MSC) is a non-profit, charitable organization which provides a wide array of Adult Literacy & Essential Skills, Employment & Home Support Services in Tillsonburg and the surrounding communities.

In 2012, the inaugural MSC Trail Walk & Run took place along the scenic Carroll Trail (Coronation Park) in Tillsonburg, with a portion of the proceeds being donated to Parkinson Society Southwestern Ontario (PSSO).

Angela Newson, the Trail Walk & Run Coordinator, said that PSSO was chosen to receive part of the funds after a similar community event ceased operation. “There was a large community run for Parkinson’s in the area and when it stopped happening, I thought it would be a great idea to do a similar event for the MSC, but also keep Parkinson Society Southwestern Ontario involved by donating a portion of what was raised.”

“People love the MSC Trail Walk & Run because it’s local and it’s a great family event where they can walk or run together and enjoy the amazing scenery of the Carroll Trail,” said Angela.

Thank you MSC for your support and we wish you continued success with this wonderful event!

Community Partnerships

Bell Lane Retirement Community (Brantford)Izzy & Evelyn Bennett (Dundas) Proceeds from School Bake SaleLadies Auxiliary RCAFA Wing 404 (Kitchener)Long Point Lioness Nevada (Port Rowan)Tri-County Mennonite Homes (New Hamburg)Vittoria Women’s Institute (Vittoria)

Community Partnerships

Honouring Loved Ones Through DonationsAdam Marut (Sarnia)Albert Simon (Waterloo)Christine Scheer (London)Dianne Melick (Goderich)Phil Mullin (Markdale) RetirementWilf Sparling (Owen Sound)

Pledge Matching Program Ketchum Canada Inc (Toronto)Labatt Matching Gift Program (London)

The Nominating Committee invites residents of Southwestern Ontario to apply to the Board of Parkinson Society Southwestern Ontario.

Please include the following information with your submission:

• Experience with governance of not-for-profit organizations

• Personal experience with Parkinson’s• Familiarity with healthcare issues• Special skills that you can contribute

For further information, please contact Shelley Rivard at 1-888-851-7376 or [email protected].

Call for Applications

Fund Development

Monthly Donor Profile: John ScottMy wife Bea lived with Parkinson’s for 25 years. As facilitators for the Sarnia-Lambton Parkinson’s support group for those 25 years, we took part in many fundraisers in support of Parkinson Society Southwestern Ontario (PSSO). We sold tulip bulbs, cards, trinkets, buttons, jewelry and many other items. Although these fundraisers helped raise awareness of Parkinson’s at the time, it was a lot of work.

When I heard of monthly giving a few years ago, after Bea’s passing, I was convinced that this was truly the way to go. I began my own personal support donation and began to challenge others in our support group to consider doing the same. A few followed and then a few more, and yet more. As new folks join our group, they too are challenged to give monthly. It doesn’t matter the size of the monthly donation because combined, they all add up to a significant and regular total.

A few conferences ago, on behalf of our local support group, I challenged other support groups to match or beat the Sarnia-Lambton support group’s total. To date, no other group has matched us.Now I challenge you to give serious consideration to making your own monthly donation. The benefits of this kind of funding are obvious:

• This funding is dependent only on generosity (no work to sell things!).• This funding provides a predictable monthly income to PSSO for vital programs and services.• This funding comes primarily from people like us who are living with Parkinson’s. We are the

ones to benefit.• This funding takes the focus off our hired staff from fundraising to serving our needs.• In short, this is good, stable funding which should be supported.

Just think, if 100 people gave $20 monthly, PSSO would have $24,000! If 500 people …


John ScottBea Scott

Young Onset Parkinson’s BookletsAlthough the average age to develop Parkinson’s is around 60, young-onset Parkinson’s (before age 40) occurs in five to ten per cent of people diagnosed. Twenty per cent of those newly diagnosed are under the age of 50. Some challenges in living with Parkinson’s disease are universal, regardless of age, and there are a number of additional issues specific to younger people.

The first is often the shock of a diagnosis of young-onset Parkinson’s disease (YOPD). “I think when you get the diagnosis, your life sort of stops,” recalls one of the contributors to the booklet on advice for other patients. “You have to deal with your kids, you have to deal with your job, you have to deal with getting up every day and all the things you’re supposed to do and then deal with this at the same time. And there’s no instruction book on how to do that.”

These latest resources help to fill that gap. Written by Dr. Michael Ravenek, PhD and associate professor at Western University, the two booklets, Young-onset Parkinson’s disease: Advice for those newly diagnosed from individuals currently living with YOPD (2nd ed.) and Young-onset Parkinson’s disease: Advice for physicians from individuals living with YOPD (2nd ed.) provide advice on personal topics, such as when to reveal your condition to your employer, planning finances for possible disability or early retirement, and sharing your diagnosis with young children, teenagers and parents, among several other issues.

To get a copy of either publication, go to www.parkinsonsociety.ca or call 1-888-851-7376.

Individuals are encouraged to contact the Regional Office at (519) 652-9437 (London) or 1-888-851-7376 before attending their first meeting.

Brantford

Cambridge

Chatham-Kent

Hanover

Dunnville

Goderich-Huron

Kincardine

Grand Bend

Brantford Parkinson’s Support GroupFacilitator: Bill Flintoff

Cambridge Parkinson’s Support GroupFacilitator: Susan Bridges

Cambridge YMCA Neurological WellnessExercise Programs

Chatham-Kent Parkinson’s Support GroupFacilitator: Lisa Clarke - Volunteer Co-Facilitator Required!

Dunnville Parkinson’s Support GroupFacilitator: Kathryn Yager

Goderich-Huron Parkinson’s Support GroupFacilitator: Carol McDonnell

Grand Bend Parkinson’s Support GroupFacilitator: Kate Mason - Volunteer Co-Facilitator Required!

Chatham-Kent Parkinson’s SMART Exercise Program

Young-Onset Parkinson’s Coffee ClubFacilitators: Carol Kraft & Michelle Napper

Chatham-Kent Parkinson’s Sharing and CaringFacilitator: Jane Haskell

Hanover Parkinson’s Caregiver Support GroupFacilitator: Jane Radke

Hanover Lunch GroupFacilitator: Linda Byers

2nd Wednesday of each month (excluding July & Aug.) 2:00 p.m. to 4:00 p.m.John Noble Home, 97 Mount Pleasant Rd., Brantford

2nd Thursday of each month (excluding July & Aug.) 1:00 p.m. to 2:30 p.m.Maranatha Christian Reformed Church, 94 Elgin St. S., Cambridge

3X/wk., free for YMCA members, $30 + HST/month for non-membersChaplin Family YMCA, 250 Hespeler Rd., CambridgeCall Kyla Robson, (519) 623-9622 ext. 242.

2nd Monday of every other month (from Jan. to Nov.) 6:30 p.m. to 8:30 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

3rd Friday of each month 1:30 p.m. to 3:00 p.m. Haldimand War Memorial Hospital (Mailloux Room), 206 John St., DunnvilleCall: (905) 929-2210

1st Tuesday of each month (excluding Jan. to March) 1:30 p.m. to 3:00 p.m.MacKay Senior Centre, 10 Nelson St. E., Goderich

Last Tuesday of each month 1:30 p.m. to 3:00 p.m.Grand Bend Area Community Health Centre (Community Room),69 Main St. E., Grand Bend

Every Tuesday & Thursday 10:00 a.m. to 11:00 a.m.Grace Christian Reformed Church, 255 Tweedsmuir Ave. W., ChathamCall Steven Bottrill or Bria Atkin (519) 352-4462 ext. 5222/5225.Note: a referral from your doctor is required.

Monthly evening meetings. Location changes with each meeting.For details contact Carol Kraft at (519) 799-5204 or Michelle Napper at (519) 366-2306.Caregivers/carepartners are welcome to attend.

2nd Tuesday of every other month (from Feb. to Dec.) 11:30 a.m. to 1:00 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

4th Wednesday of each month 1:00 p.m. to 3:00 p.m.Tommy D’s Restaurant, 294 10th St., Hanover

1st Tuesday of the month for lunch. 12:00 noon - 1:00 p.m. Coach House restaurant at Hanover Raceway, 265 5th St., Hanover

Kincardine Parkinson’s Support GroupFacilitator: Norma Kempers

2nd Tuesday of each month (excluding Jan. and Feb.) 12:00 noon to 2:00 p.m.Malcolm Place Retirement Residence, 255 Durham St., KincardineNote: Coffee and tea are provided. Members are responsible for their own lunch.

Regional Support Groups

KitchenerKitchener Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

4th Tuesday of each month (excluding July and Aug.) 11:00 a.m. to 1:00 p.m.Forest Heights Long-Term Care Centre, 60 Westheights Dr., KitchenerNote: Although lunch is provided, donations are welcome to offset the cost.


Leamington

Meaford

Orangeville

Owen Sound

Sarnia-Lambton

Listowel

London

Leamington Parkinson’s Support GroupFacilitators: Laurie Stone & Bob Prince

Meaford and Area Parkinson’s Support GroupFacilitator: Cathy McDowell

Orangeville Parkinson’s Support GroupFacilitator: Kersty Franklin

Owen Sound Parkinson’s Support GroupFacilitators: Kylie Pike & Bevan Lougheed

Owen Sound Parkinson’s SMART Exercise Program

Listowel Parkinson’s SMART Exercise Program

London Parkinson Connection Support GroupFacilitators: Tracey Jones & Amanda Stark

London Parkinson’s Exercise GroupsPhysiotherapist: Katharine Wanger

London Parkinson’s SMART Exercise Program

London Parkinson’s SMART Exercise Program

Every Tuesday 10:30 a.m. to 12:00 noonLeamington and District Half Century Club, 160 Talbot St. E., Leamington

3rd Tuesday of each month 2:00 p.m. to 4:00 p.m.Meaford United Church, 7 Boucher St. E., Meaford

2nd Wednesday of each month 7:00 p.m. to 8:30 p.m.Alzheimer Society, 25 Centennial Rd., Orangeville

2nd Tuesday of each month 2:15 p.m. to 3:30 p.m.Community of Christ Church, 2555 8th Ave. W., Owen Sound

Sarnia-Lambton Parkinson’s Support GroupFacilitator: John Scott

4th Wednesday of each month (excluding June, July and Aug.) 2:00 p.m. to 4:00 p.m.Strangway Centre, 260 East St. N., Sarnia

Every Tuesday and Thursday 1:00 p.m. to 2:00 p.m.First United Church, 435 21st St. W., Call Jill Thurston at (519) 371-5331 ext. 227.

Every Tuesday and Friday 2:00 p.m. to 3:00 p.m. VON Office, 975 Wallace Ave. N., Listowel Call Lindsay Wagg (519) 291-5898.

3rd Saturday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Trinity Lutheran Church, 746 Colborne St. (Oxford and Colborne), London

Several classes offered in alternate weeks (Wed. and Thurs.) 12:00 noon to 1:00 p.m. Parkwood Day Hospital, 550 Wellington Rd., LondonNote: Exercise classes are $5 per class. Call Katharine Wanger at (519) 685-4292 ext. 42451.

Every Monday and Thursday 2:00 p.m. to 3:00 p.m.Carling Heights Optimist Community Centre, 656 Elizabeth St., LondonCall Kalina Adams (519) 659-2273 ext. 3289.

Every Tuesday and Friday 1:00 p.m. to 2:00 p.m.Cherryhill Village Mall, 301 Oxford St. W., Unit 40, LondonCall Kalina Adams (519) 659-2273 ext. 3289.

Kitchener Parkinson’s SMART Exercise Program

Kitchener YMCA Neurological Wellness Exercise Programs

Every Tuesday and Thursday 1:30 p.m. to 2:30 p.m. A.R. Kaufman YMCA, 333 Carwood Ave., Kitchener. Call Community Support Connections at (519) 772-8787.

3X/wk., free for YMCA members, $30 +HST/month for non-membersA.R. Kaufman YMCA, 333 Carwood Ave., KitchenerCall Shriya Maharaj (519) 743-5201 ext. 255.

Kitchener Young-Onset Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

Location Change: 3rd or 4th Thursday of every month (excluding July and Aug.). Locations alternate with each meeting. For details contact the Regional Office at 1-888-851-7376.

Sarnia-Lambton Parkinson’s Carepartner Support GroupFacilitator: Christie Smith

2nd Monday of each month 10:00 a.m.Grace United Church, 990 Cathcart Blvd., Sarnia

Evening Kitchener Parkinson Connection Support GroupFacilitators: Deb Stanson & Pamela Helmes-Hayes

3rd Thursday of each month (excluding June, July, Aug. and Dec.) 6:30 p.m. to 8:00 p.m.Reformation Lutheran Church, 456 Krug St., Kitchener

Trillium Villa Long-Term Care Parkinson’s Support GroupFacilitator: Cindy Slegers

Monthly on Residence ScheduleTrillium Villa Activity Room, 1221 Michigan Ave., Sarnia


Woodstock

Windsor

West Lorne

Tillsonburg

Woodstock Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

Windsor Parkinson’s Support GroupFacilitator: Patricia St. Pierre

West Lorne Parkinson’s Support GroupFacilitator: Betty Jo Drent

Tillsonburg Parkinson’s Support GroupFacilitator: Nancy Clark

St. Thomas Parkinson’s SMART Exercise Program

4th Monday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.UNIFOR, 126 Beale St., Woodstock

4th Tuesday of each month (excluding Dec.) 7:00 p.m. to 8:30 p.m.Windsor Community Living Support Services, 7025 Enterprise Way, Windsor

4th Thursday of each month 10:30 a.m. to 12:00 noonThe Hub, 146 Munroe St., West Lorne

3rd Thursday of each month (excluding July and Aug.) 1:00 p.m. to 2:30 p.m.Tillsonburg Retirement Residence, 183 Rolph St., Tillsonburg

Every Monday and Thursday 10:00 a.m. to 11:00 a.m. VON Office, 175 Edgeware Rd., St. Thomas - Call Pam Buys at (519) 637-6408.

St. ThomasSt. Thomas Parkinson’s Support GroupFacilitator: Sheri Lawrence

2nd Tuesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Knights of Columbus Hall, 265 Wellingon St., St. Thomas

StrathroyStrathroy Parkinson’s Support GroupFacilitator: Jim Heene

Parkinson’s SMART Exercise Group

Windsor Parkinson’s SMART Exercise Group

3rd Tuesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Westmount Christian Reformed Church, 405 Drury Lane, Strathroy

Every Monday and Wednesday 1:00 p.m to 2:00 p.m. VON Middlesex-Elgin Office, 274 Head St. N., Strathroy Call Kalina Adams (519) 659-2273 ext. 3289.

Every Wednesday 2:00 p.m. - 3:00 p.m. Starts Wednesday July 6, 2016.Windsor VON Office, 4520 Rhodes Drive, Suite 400Call Steven Bottrill or Bria Atkin (519) 352-4462 ext. 5222/5225.

Stratford

Simcoe

Stratford Parkinson’s Support GroupFacilitator: Alan and Marg Scott

Simcoe Parkinson’s Support GroupFacilitator: Marie Claire Astles - Volunteer Co-Facilitator Required!

Stratford Gentle Yoga for Parkinson’s GroupCertified Yoga Instructor: David Querin

2nd Tuesday of each month (excluding July and Aug.) 1:30 p.m. to 3:30 p.m.Army, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

4th Thursday of each month (excluding July and Aug.) 1:00 p.m. to 3:00 p.m.Alzheimer Society of Haldimand Norfolk, 645 Norfolk St. N., Simcoe

Every Monday 10:00 a.m. to 11:00 a.m.Army, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

Vision 74 Nursing Home Parkinson’s Support GroupFacilitator: Amy Chamney

Sarnia-Lambton Parkinson’s Exercise GroupInstructors: Becky Wellington-Horner & John Scott

Monthly on Residence ScheduleVision 74 Chapel, 229 Wellington St., Sarnia

Every Thursday 11:15 a.m. to 12:15 p.m.Strangway Centre, 260 East St. N., Sarnia


Parkinson’,s Support Groups

Do you or someone you know have Parkinson’s?Parkinson Society Southwestern Ontario has a large network of support groups for people living with Parkinson’s, their carepartners and loved ones. New members are always welcome.

A support group can be a very effective tool for enhancing your ability to cope with the challenges of Parkinson’s. Parkinson’s support groups can help provide knowledge, understanding, hope and a sense of community.

Contact Rose Johnston at 1.888.851.7376 or [email protected] to find outabout your local support group or how you can become a facilitator.


September

October

November

December

2 Parkwood Institute Parkinson’s Education Program (London) Specialized Geriatric Services For further information, please call Terri Lebate at (519) 685-4292 ext. 42202 2016 Dates: September 2 – October 7; November 28 – December 9

10 WALK-IT for Parkinson’s (visit www.walk-it.ca for more details) Brant-Norfolk – Mohawk Park London and District – Springbank Gardens Orangeville and Area – Alder Street Recreation Centre South Grey Bruce and Hanover – Hanover Town Park Stratford and Area – Upper Queen’s Park Waterloo Region – Resurrection Catholic Secondary School

11 WALK-IT for Parkinson’s (visit www.walk-it.ca for more details) Chatham-Kent – Kingston Park Owen Sound – Grey Sauble Conservation Oxford County – South Gate Centre Port Elgin, Kincardine and Area – North Shore Park, Saugeen Shores Windsor-Essex – Malden Park

18 WALK-IT for Parkinson’s (visit www.walk-it.ca for more details) Sarnia-Lambton – Stoke’s Bay Grill & Bar Strathroy – Strathroy Seniors Centre

8 Softball Tournament for Parkinson’s Time: 9:00 a.m. Slow Pitch City, 2156 Slo Pitch Rd., Dorchester Proceeds to Parkinson Society Southwestern Ontario

14 Carepartner/Caregiver Workshop Time: 10:00 a.m. – 4:00 p.m. Hessenland Country Inn, Zurich 72981 Bluewater Highway, RR 2

15 Support Group Facilitator Workshop, Zurich Time: 10:00 a.m. – 4:00 p.m. Hessenland Country Inn, Zurich 72981 Bluewater Highway, RR 2

5 Fall 2016 Regional Parkinson’s Conference St. George Banquet Hall, Waterloo 665 King St. N., (see page 13 for details) 12 Annual Hessenland Country Inn Novemberfest Time: 6:00 p.m. 72981 Bluewater Highway, RR 2, Zurich Cost: $50 per person Proceeds from the silent auction go to Parkinson Society Southwestern Ontario For more information, call 1-866-543-7736

7 Holiday Open House 2:00 p.m. – 4:00 p.m. Parkinson Society Southwestern Ontario Regional Office 117-4500 Blakie Rd., London RSVP by calling (519) 652-9437 or 1-888-851-7376

2016 RegionalParkinson’’,s Event Calendar

When you make a gift of securities, you not only benefit from the tax credit, but you also avoid paying tax on capital gains accumulated on the securities. In order to take advantage of the capital gains tax reduction, you need to donate the securities directly to the charitable organization rather than selling the securities and donating the proceeds of the sale.

If you own publicly traded securities or mutual funds, you may want to consider donating the securities or mutual funds directly to Parkinson Society Southwestern Ontario. For more information, please contact Shelley Rivard at 1-888-851-7376 or [email protected].

Why Give Securities or Mutual Funds?

In MemoriamWe offer our sympathy to the families whose loved ones have passed away between the months of January and May 2016

We make every effort to include all members who have passed away. We sincerely apologize if any individual was inadvertently omitted from the above list. Please call and let us know if we have missed anyone and we will include their name in our next issue.

John AmlinJohn AndersonLloyd AucklandRogerio BarreirasErna BarkovskyMuriel BlackJohn BlazeikoReta BollBrenda BouckJoseph BoudreauBill BowesAntonio BrancoElizabeth BrandonBruce BurrowsGilbert CampbellJoan ClarkPatrick ClarkeJack CoatesJoanne CormanKenneth Cornfield

Zella CrawfordWilliam CunninghamThomas CussonsFrederick DallyDennis de FreitasAntonio DeVincenzoConstantino DiMennaEleanor DrummondGary DupuisHugette DwightAlbert DyerJohn DyerOrville EinwechterJohn ElliottClaude EnmanMaria ErdeszLillias FerriesHoward FordRobert FurneauxRobert Geddes

Ronald GilchristBill GillespieYolanda GoethalsJames GubinczkiTeruye HayashidaAshton HerbertAlice HexterRonald HillRalph HoeftRoss HonsbergerDouglas HutchisonJohn HydeCatherine IzzardJune JacksonBrian JenkinsSterling JohansenBarry JordanAngeliki KaleasRobert KlaverAstrid Klein

Charles LacinaFabian LaPierreCarol LewisDon LloydAda LockyerElio LoriDonald LuckhamMurray MacFarlaneMargaret MacKenzieRobert MacNayAdam MarutHorst MaversAnthony MaziBill MerkelAlice MetzgerEduina MonizMildred OliverJoy PearsonMary PearsonLillian Pillon

Joan RankClifton ReaLloyd RicheCharles RourkeClifford RymellDonald SchwassIvan ShackeltonDonald SheelerJean SimmsRonald SkinnerJohn SlaghtAlan SlaterCecil SmithRobert SnellFroukje TammingJohn ThompsonRobert TicknorEvelyn TraskAline UdvariAdrian Verburg

Jan VinkHenry WarkentinBernice WebbCharles WellingtonAnne WhiteRuth WilbeeAnnabelle WilhelmAlan WoodCharles WorsfordEdwin ZettlerMervyn Zinkie-Hale

Leamington Parkinson,’s Support Group

Welcome Bob Prince as Co-Facilitator of the Leamington Parkinson’s support group. Bob is a longstanding advocate for people living with Parkinson’s. Bob lives with Parkinson’s and understands first-hand the support and connection required. We are so grateful to have such a passionate and professional individual to motivate and advocate for this group. Thank you Bob. We appreciate all that you do.

Woodstock Parkinson,’’s Support Group

Thank you and fondest farewell to Facilitator Alan Van Sickle, who has graciously led the Woodstock Parkinson’s Support Group since 2013. Alan has been such an incredible asset to this group with his extensive professional experience from his Home Instead business in Woodstock. Thank you Alan. Your dedication will be missed. Best of luck with your future endeavours.

NEW Windsor Parkinson,’’s SMART Exercise Program

Thank you to Steve Bottril, SMART Team Lead and Specialty Fitness Instructor, who will be leading the Windsor Parkinson’s SMART Exercise group. We appreciate your tenacity in the expansion of this program.

Regional Support Group News

SUMMER 2014 | Issue 60

Recycle and Create AwarenessWhen you have finished reading this newsletter, please pass it on by leaving it in libraries, waiting rooms in doctors’ offices or pass it along to a friend.

Volunteer Today!

Help Us Reach New Heights ... Volunteer Today!

Call 1-888-851-7376 or email [email protected] find out about volunteer opportunities in your community.

Volunteers and Students from Marvel Beauty School and The Beauty Academy helped make this year’s Cut-A-Thon for Parkinson’s an amazing event!

Thank you to the organizing committee of the HollisWealth Charity Golf Classic and congrats on raising over $40,000!(from left to right): Stephen Marles, Joanne Capling, Anne

Kinzie, Gwen Watson Abbott, Candace Loughran, Kim Cooper and Rob Quarry.

The Signatures – A Taste Test of London’s Best Volunteer Committee did it again with another sold out event at Budweiser

Gardens raising $32,500! (from left to right): Neil Tenney, Danna Dejong, Andrea Baird, Pat Troop, Sarah Hawcutt,

Wayne McManus and Mike Hughes(not pictured: Adam Miller and Curtis Bray).

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