Date post: | 13-Apr-2017 |
Category: |
Healthcare |
Upload: | board-resource-center-brc |
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about usabout us
We assist underserved communities
• Increase access in policy making
• Facilitate community advocacy
• Create accessible training and tools• Create accessible training and tools
nonprofit governance
informed decision-making
self-determination
BRC i ila p j tBRC similar projectsFacilitated focus groups
2007
training, book, video, website
Coalition for Compassionate Care of CA End of life planning
2010 FEMAFEMACA Dept. of Developmental ServicesEmergency planning
2012 Boards For AllCA Regional Center, CA State Council on DisabilityNonprofit governance training
Pew Research Center surveyPew Research Center surveyThought given to end-of-life wishes
34.
TER
1‐Ap
ril 8, 201
3. Q3
W RESEA
RCH CE
NT
r survey March 21
re not sh
own. PEW
w Research Ce
nter
g “don
’t know
” ar
Source: Pew
Those saying
great deal of thought some thought not very much/no thought
backgroundbackgroundconversations across California
Effective health literacy Accessible, functional information is needed.1Accessible, functional information is needed.
Limited LiteracyL h l h k l d
K K EE
Less health knowledge. Seniors: poorer health status and quality of life.2
Y Y
PPMost Californians would choose natural death at home. Few discuss or document preferences.
OOII
Current planning materials may not address the needs of those with health literacy limitations
NNTTSS needs of those with health literacy limitations.
1) “Health Literacy Implications of the Affordable Care Act.” Center for Health Care Strategies.2) “Health Literacy Interventions and Outcomes: An Updated Systematic Review.”
SS
purposepurposeconversations across California
Explore targeted audiences regarding experiences with endExplore targeted audiences regarding experiences with end-of-life planning, decision-making and informational media.
Obtain suggestions about how tools and communication can be improved to assist engagement in planningbe improved to assist engagement in planning.
d iadvisers
TEAMTEAMTEAMTEAM
Coalition of Compassionate Care, CA
Hospice Foundation of America
G t l tGerontology expert
Disability Rights Consultant
Sutter Health
f a afocus areasConversations across California
end-of-life planning focus/learning groups
What worries people?What worries people?
Understand basic treatment and care options? (CPR H i P lli ti C )(CPR, Hospice, Palliative Care)
Understand purpose of documents? (Advance Directive, POLST, DNR)
Best way to communicate information?Best way to communicate information?
Recommendations about user-friendly media?
th dmethod
Facilitated learning/focus groupsListen, discuss, record suggestions.
Convenience samplesV l lf l d li i d b h Volunteers self-selected, solicited by host.
Descriptive inquiryDescriptive inquiryPromotes understanding of the needs of the targeted audience. targeted audience.
Not generalized to population.
l i plearning groups
CityCity LocationLocation agesages #’s#’sCityCity LocationLocation agesages # s# s
Sacramento Senior center 40-92 12
Chico/Paradise Senior center 40-85 16
Santa Barbara Community center 30-93 13
/ 6Fresno/Clovis Senior center 60-87 12
San Francisco Assisted living 65-85 29
fi di ifindings: worrieswhat we learned -what we learned
Participants concerned or confused about:
N t h i h iNot having choicesPreferences misunderstood or ignored Starting family conversationsStarting family conversationsFamily disagreeing with end-of-life choicesAuthority of their healthcare agentAuthority of their healthcare agent
E d f lif t t t h t th h th d End-of-life treatments - what they are, when they are used Impact of completed documents (POLST, DNR, Advance Directive)
recommendationsrecommendations
“Be included in development of materials”p
• everyday languageeveryday language• short booklets/single topic• short videos, personal storiesshort videos, personal stories• easy to use websites• large type
Planning materials large typematerials
sample material reviewsample material review
Participant Participant thoughtsthoughts
S lS lSingle TopicSingle Topic•• Key points onlyKey points only•• Shorter Shorter bookletbookletShorter Shorter bookletbooklet•• LifeLife--like photoslike photos•• Larger Larger fontfont
M “ hit ”M “ hit ”•• More “white space”More “white space”
sample online reviewsample online reviewMedical decision makinggwww.prepareforyourcare.org
Participant Participant thoughtsthoughts
Great videosGreat videosGreat videosGreat videos
FF li k t it li k t it•• FFewer clicks to use siteewer clicks to use site•• Fewer steps to reach Fewer steps to reach
action planaction plan
discoveriesdiscoveriesAll participants want:All participants want:
• Community conversation groups.• More accessible resources.• Centers to host more groups.
Help with:p• How to choose a healthcare agent.• Understanding treatment choices. • What specific documents provide.