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TouchlinesThe Newsletter of Cancer Support France Association N W163000037
Patron: Prof. Alain Daban Consultant, service oncologie Radiothrapique du CHU Poitiers; Prsident du Reseau Onco Poitou Charentes
Volume 7 Issue 4 July 2011
Imprim par nos soins
In this issue
Medical Report P. 2
National Awareness
Week events P. 3
Odds and Ends
In the News
CSF Website News
P. 4
Calendar of Events P. 5
Around the Regions - P. 6-10
The Treasurers Spot
and News Round-up P. 11
Useful Information P. 12
Thank you
Thank you to those of you who congratulated me on my first
month as Editor ofTouchlines; your very kind comments were much
appreciated. It was a pleasure to be able to take on this role and
this month it has felt much easier. Many thanks to Andy for all his
tips on using Microsoft Publisher.
However, I must offer my sincere apologies for my error in
inviting new advertising. As a result of that piece, an advertisement
was submitted for approval but after some consideration, it was
decided that the National Committee should consider the
submission which resulted in a wide discussion about CSF accepting
advertising and the implications which could arise. The process of
accepting adverts originally was to offset costs, before Deus Svres
took over the printing and the only advertising has been the 2
currently displayed in this issue, the Connexions newspaper and our
original printers. The policy has always been to exclude anything
with a medical or paramedical connotation.
In line with the HONcode compliance regulations, we have
chosen to refrain from further advertising once the current
agreements have ended and we thank those advertisers for their
continued support over the years.
Linda Shepherd has suggested that it would be useful to build
up a list of useful contacts, especially when they are known to be
competent, such as the lady who sparked this discussion off.
Perhaps the best location would be in our resources files so that
AL's can refer to them when clients ask for suggestions such as 'do
you have any information about complementary practitioners in
the area' or 'is it possible to get an alarm call service here?'
Whether such a list could appear in the practical Help section of the
web site would depend on the constraints imposed by the HonCode
guidelines. Alex Overton has also suggested that we could perhaps
refer to our sponsors.
No doubt, discussion on our advertising policy will be
concluded at national level and again my apologies to allconcerned.
Margaret York
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Page 2 Touchlines
Medical Report
Just a bit of Back Ache?
During a recent training session someone
remarked that a friend had been lucky to haveher colon cancer diagnosed because she hadnt
got any symptoms but had just gone to the
doctors with a bit of back ache. In fact the friend
did have a symptom - backache - but she didnt
realise the possible cause. Just about every one
of us will have had some back ache at some time
or other and being a symptom that is so common
maybe we come to regard it almost as normal.
The vast majority of back pain will be caused by
benign causes such as muscular strain, discproblems or osteoporosis but about 1% of the
patients seen in a general practitioners surgery
with back pain will have a serious cause.
The pain from cancer in the spine is
different from most other causes it is usually
unremitting, boring in nature and not relieved by
rest, in fact it is often worse at night and causes
loss of sleep. It is often quite localised to a small
area of the spine. Uncommonly the pain is of verysudden onset and is severe because the tumour
had caused the vertebrae to collapse.
But I want to stress the importance of not
ignoring persistent back pain because it might be
the first sign of a cancer or of a secondary from a
known cancer. The vast majority of these cancers
will be metastases from a primary cancer
elsewhere such as breast, lung, prostate, kidney,
ovary or colon. And it is really important toremember that these metastases can happen
many years after the patient (and doctors) think
that the cancer was cured, so everybody who has
ever had a diagnosis of cancer must remain
vigilant. The investigation of choice is an MRI scan
of the spine as x-rays may not detect the lesion.
And apart from treatment of the cancer in general
the good news is that radiotherapy is usually very
effective in reducing the pain even in patients
with advanced cancer.
Targeted Therapy is Best
Clearly it is better for patients if the treatment
for their cancer can be targeted to their specific cancerrather a blunderbuss approach and so it is with breast
cancer. There are already tests that determine
treatment options such as the test to see if a particular
womens tumour is sensitive to oestrogen. If it is, then
they will be given one of a choice of drugs that
suppress oestrogen e.g. Tamoxifen or Arimidex for
5 years, and the converse is that those women
whose tumour is not affected by oestrogen are
relieved from the necessity of taking these drugs.
Now there is a predictive test that allows
women to judge whether they should have
chemotherapy or not. It is only suitable for
women with a slow-growing early-stage cancer,
with no more than 3 lymph nodes affected and
whose cancers are oestrogen-receptor positive.
These women would currently be advised to have
chemotherapy as well as an oestrogen suppres-
sant and radiotherapy.
The test, Oncotype DX, is a genomic assay
which takes a sample of RNA from the cancer cells
and analyses the genes which control the
behaviour of the cancer and gives a score as to
how likely this cancer is to recur within 10 years.
On the basis of a low, medium or high risk of
recurrence the patient can then use this
knowledge with her oncologist to decide whether
or not to have chemotherapy. Although the test
itself costs about 2,500 the gain for the woman is
that she may be spared debilitating treatmentwhich is unlikely to improve her survival. For the
health services the cost of the test will be
recouped by the fact that, according to experience
so far, about 25% of women will not need
chemotherapy. There is a good account in The
Daily Telegraph, 20th
June 2011.
Dr Sue Murphy
(Editors note; On the Telegraph website
search for Oncotype DX to easily find this
article)
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Volume 7 Issue 4 Page 3
LANGUEDOCSAVE THE DAY
Cancer Support France -
Languedoc Walk for Life
As part of Cancer Support France Awareness week on a
national level, CSF-Languedoc are organising a
sponsored walk on Sunday 25 September in Bessilles
Park near Montagnac.
Participants will have the choice of a 6km or a 13.5km
trail to walk or run before a convivial lunch at the parkcaf or in the picnic area.
Do put the date on your diary for a fun day out. Come
and join us for the exercise, to walk for someone close
to you affected by cancer or simply to support our
work.
Details for registration will be available shortly. You will
be able to register through a dedicated email address
and receive your sponsorship form electronically. If
you do not wish to be sponsored, a 5 participation
fee will be payable on the day (children free).
SO SAVE THE DAY!
SUNDAY, 25th SEPTEMBER
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
DORDOGNE EST & LOT
COFFEE MORNING & AFTERNOON TEA
INCORPORATING ANOTHER SALE OF
ENGLISH BOOKS
To make space for better storage for the constant
intake of books, we are holding a grand clearance sale
of books in MARGARETs barn in PRAYSSAC on
SUNDAY, 25TH SEPTEMBER
COMBE BRUNE, 46220 PRAYSSAC
10.0017.00
Contact: Margaret 05 65 22 96 37E
Email: [email protected]
The opening moments of our June 2010 book sale in Prayssac
which raised over 700
CANCER SUPPORT FRANCE
NATIONAL AWARENESS WEEK 24TH30TH SEPTEMBER 2011
(Planned events)
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Page 4 Touchlines
Odds and Ends
Its seems as though its been a quiet month
for many associations but we managed to gather
in just about enough copy; too much for an 8
page issue but not enough for a 12-page one. So,as you can see, there are a couple of new items.
First of all, the previous page is dedicated to
events taking place during our National Awareness
Weekin September. It was probably a bit early to
have more events arranged but there will still be
time for them to appear in the next issue of
Touchlines on September 1st.
The second new feature, the Calendar of
Events is one that Id like to make a regular feature
of. For its first outing, Ive lifted information
gleaned from submitted copy for this month. I
hope you think this has some value.
All copy should continue to be submitted by
10th of the month preceding publication but Im
happy to receive this at any time prior to then.
Please continue to send to:
Thank you.
In the News
Theres a lot being written about the outcome
for Ex-Pats who have been denied access to the French
healthcare system following changes for those under
retirement age . The following piece is quoted on : -
www.thisfrenchlife.com
via
www.french-property.com
France is to relax its rules on the admission of expat earlyretirees into the French health system. The change of policy
has come about after pressure from the European
Commission, who consider France is in breach of EU
regulations by requiring early retirees to have five years
residence before they can obtain health cover. As a result the
French Ministry of Health is to issue new guidance on the
right of access to the health system.
There are many articles being published on this
subject including www.connexionfrance.com and
www.thefrenchpaper.com so it would be wise to keep
pace with them.
CSF Website
Alex Overton, our tireless Webmaster, is working
very hard on upgrading our website and its beginning
to look very different to one weve been used too.
There is a very modern look to it and the new Donate
tab is very prominent. Back issues of Touchlines are
there, right up to date with the May edition and I see
we now have the HONcode logo displayed: -
This site complies with the HONcode
standard for trustworthy health
information
Very soon, we will all have our authorisation
which will enable us to update our Association pages
ourselves. All content will be moderated with
moderation being carried out by a dedicated group
volunteers of whom, Andy Shepherd will be one.
The new web address is: -
www.cancersupportfrance.org
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Volume 7 Issue 4 Page 5
Calendar of Events (Excluding Awareness Week)
Basse Normandie
SaturdayJuly 2nd
Notre Dame du Touchet
Annual garden partyContact: Jenny 02 33 60 27 82
Charente Plus
SundayJuly 10th (09.30-12.30)
La Betoulie, near La Bouchage, 16350
Book Sale
(Emlyn and Rosemarys garden)
Contact: Charente Plus Team
Deux Svres
SaturdayJuly 2nd
L'Eglise de Foussais-Payr
Three Choirs Concert featuring
The River City Chorale from Sacramento,United States
The Choraline from La Chtaigneraie
and
The Musicalement Vtre from
Moncoutant
Tickets available from the
Tourist Bureaux at
Fontenay-le-Compteand
La Chtaigneraie
or
telephone 02 51 51 64 29 (English)
05 49 80 19 72 (French)
Proceeds to go to
Cancer Support Vende,
Cancer Support Deux-Svres and
All Saints Church, Puy de Serre
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~SaturdayJuly 16th
Gourg
CSF Deux Svres will be having a stall
At the local Fte/Vide Grenier
Contact: Thelma Bell
Dordogne Est & Lot
ThursdayOctober 13th (10.00-12.00)
La Salle Basse, Salviac
Who cares for the Carer?
A short seminar by Angela Clohessy
Contact: [email protected]
Dordogne Sud
Saturday19th November
Montedon
Christmas Fayre
Contact: Frances Nunn
Gascony
MondayJuly 18th
At Lynn Kilbeys home
Wellbeing Day
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
Thursday28th JulyNear Eauze, Gers
Musical picnic lunch with a blind auction
(1st formal function of a new satellite group)
All money raised at this event is being donated to CSF
Contact: John Docherty
TO SHOWCASE YOUR EVENT HERE, PLEASE SUBMIT AS PER THE NORMAL COPY DATE TO THE EDITOR
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Page 6 Touchlines
Around the Regions
CSF Basse Normandie
Life in Basse Normandie continues to be as
busy as ever. The Day Centre opens every Monday and
we have had a number of expert speakers giving a
general view on areas such as herbs and sacrocranial
therapy. People continue to just pop in for information
and advice on a regular basis and very often end up
staying the whole day and having lunch.
On Friday, 20th May we had a Sausage and Cider
evening at the Day Centre. Eighty people feasted on
sausages of various flavours including pork and
marmite, pork and peppers and Madras! A local shop
selling English produce called Barentons also donated
250 chipolatas so there were plenty to go around all
washed down by a local artisans cider. We also had a
very challenging quiz put together by one of the
volunteers, Bob Clarke, which I am not sure if it got
easier or harder the more cider that was consumed!
Sausage and Cider evening
One major achievement that I would like tohighlight was done by one of our members; Jennie
Poate completed a long distance cycle ride in her own
words, partly for me and partly to raise money for a
good cause. Having been involved in a peripheral way
with CSF Basse Normandie this was my chosen cause,
along with the memory of my father dying in a horrible
protracted way through lung cancer. She cycled the
Brest to Nantes canal, 370kms in 5 days in prevailing
winds and the opposite way around that the books
recommend it is cycled!! At present she has raised a
whopping 1,400 and it is still going up.
On behalf of everyone at CSF Basse
Normandie, I would like to say a great big thank you
and well done it is a fantastic personal achievement
and obviously the funds will be put to a good cause in
due course.
Jenny PoatNantes to Brest Canal
We have also have completed the updates and
are having a big launch of the new CSF Basse
Normandie website this week, it has taken a while to
ensure that it had the right atmosphere andinformation content and we are really pleased with the
finished results. To have a look at it please go along to
www.csfbassenormandie.com and we would
appreciate any feedback good or bad that anyone has
to offer!
Events coming up are our annual garden Party
on July 02nd
in Notre Dame du Touchet, we provide the
picnic, live music and party atmosphere and you bring
a bottle and chair and soak up that atmosphere
hopefully on a sun drenched afternoon!! Fingerscrossed. Tickets are 10 for adults and 6 for children
and if you would like one or more information then
please contact Jenny on 02 33 60 27 82 or
Of course if anyone would like information
about anything concerning the Basse Normandie group
or if you need support in any way then please contact
us on the above number and e mail and we will be only
too pleased to help in any way.
Jenny Luck
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Volume 7 Issue 4 Page 7
CSF Charente Plus
Our main news is that we are almost ready to go
to press with the first of three booklets that we have
had translated. As soon as it has been finalised it will
be included in the cancer info website and as many
links as we can manage. The file will be sent to Linda
for distribution to all associations. We hope the nexttwo booklets will follow as soon as the updates have
been received from Inca.
The Duck Day Race was held on 15th
May and
raised 1,125 for our funds. Sixty people enjoyed a
BBQ, played a few family type games, contributed to
an auction and watched as 100 yellow plastic ducks
moved less than gracefully down the river Charente on
a windy afternoon in Vouleme. One or two wayward
ducks were forced to swim upstream rather than
downstream as a result of the wind, but they got therein the end. We still have 100 ducks back in the box!
Youll see from the photos the small army of chefs for
the BBQ and some of the visitors we had for the
afternoon. We say a big Thank You to all who helped
in whatever way they did, we certainly could not do it
without you all.
Keith, Judy, Mik, Sue, Paul & Dave
We are having a book sale on Sunday July 10th
,
9.30-12.30 in the garden of Emlyn & Rosemary at La
Betoulie, near La Bouchage, 16350. If you need to
stock up for the winter months we have a lot to choose
from. Tea and coffee will be available. We wish you all
a happy summer.
As this is going to press we have had some much
needed glorious rain!!!
The CSF Charente Plus team
CSF Deux Svres
May and June have been quiet months but we
have several new clients and also two new members of
the team.
On the 1st May we attended a Spring Fair at
St. Germaine de Longue Chaume when we were able to
give out many leaflets and talk to people about the
work we do. At the end of the afternoon we were
surprised and pleased to receive 100 from the
organisers from their tea and cake sales so Thank you
to Margaret and her team of tea ladies. It was a lovely
surprise and very much appreciated.
We are now getting ready for an event at
Gourg on the 16th
July where we hope to have a
strong presence in order to once again raise
awareness.
In the meantime, there is a Concert to be held
at Foussais-Payr on the 2nd
July, when three choirs will
be taking part - The River City Chorale from
Sacramento, United States, the Choraline from La
Chataigneraie and Musicalement Vtre from
Moncoutant. Tickets are available from the Tourist
Offices in Fontenay-le-Comte and La Chataigneraie. It
should be a really good night and will benefit CSF-
Deux-Svres, CSF-Vende and All Saints Church in Puy
de Serre. We will be there helping with refreshments
and once again hoping to raise awareness.
Thelma Bell
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Page 8 Touchlines
CSF Dordogne Est & Lot
Summer Foire, Vide Grenier and Book Sale
What a busy month its been for our Public
Relations and Events Co-ordinator, Julia Hall who
worked extremely hard on organising our summer
foire, vide grenier and book sale held on Sunday, June
19th. Local competition was tough as there wereseveral taking place in the vicinity but we did well.
With lovely weather and a great guitarist, Graham
Bailey, the ambience was very nice. Following on from
the very successful Evening with rugby diner in
February, this event was hosted once again by Brian
and Sandra at Le Chapeau Melon in Souillac. We had
2,500 books on offer which is about half of what we
currently have. Our two new Committee Members,
Tim and Sue Giles ran an excellent tombola. Also
offering a variety of items for sale were a plant stall, a
popular local lavender farm, jewellery, cards and giftssellers, an artist, a reflexologist, as well as clothing rails
and some car booters. All-in-all, a very worthwhile day
for raising awareness in our lower northern area and
funds of just under 700 were raised too.
Some of the stallholders in the (very warm) conservatory
Training
On the 2nd and 3rd of June, four of our Active
Listeners took part in the new Training Programme
together with our newest Active Listener, Felicity
Freeman who, all have agreed, will make an excellent
Listener. My thanks go to our Training and Active
Listener Co-ordinator, Elizabeth Holleis and her
husband Konrad who provided the venue, excellent
food (Konrad is a chef and author our CSF recipe book)
and overnight accommodation for the trainers. Thanks
must also go to Trevor Cartwright who took part in the
training earlier this year. This time, he offered to be
the client and, I understand, played it well.! Other
Active Listeners re-training were Lesley Blackman and
husband and wife team, Susanne and Malcolm Byrne.
We are very lucky to have such a willing and dedicated
team. Finally, a big thank you to our Area Training Co-
ordinator, Sue Murphy and her co-trainer, Tony
Benstead from Dordogne Sud. We are very grateful forthem agreeing to come to us; thank you to both of you.
Then general feedback from all the participants was
the overall professionalism of both Sue and Tony as
well as the well-designed Training Programme. A
follow-up seminar is being held in July for all of our
Active Listeners and Sue Murphy has offered to give a
short talk on a specific cancer.
La Ligue
In May, we had a meeting with our local La Ligue
association in Cahors. Our host, Dr Gluckler, was an
absolutely charming gentleman and, despite some
language difficulty, we understood that he was very
pleased to meet us at last and at a very early stage of
the meeting, he was referring to us as their sister
association. We have agreed to share information
and events from time-to-time and its good to know
that if our clients do encounter difficulties within the
French healthcare system, he will be happy to help.
Im thankful to Trevor Cartwright in bringing this
meeting onto our agenda and to our newly retainedTranslator, Rachel Worsfold for her initial and thank
you letters as well as for making time to attend the
meeting to help with translation.
Future Events
Like most of us, we are actively preparing for
the National Awareness Week and looking forward to
once again promoting the valuable work carried out by
our dedicated volunteers. We are also in the process
of working towards more planned events leading up to
the end of this year and into 2012. We will be hosting
a First Aid Course in November. Julia is in discussions
with a local golf club who have proposed a golf day,
possibly in October. Another book sale is planned in
Cahors nearer to Christmas.
Finally.
Have a great summer from all at Dordogne Est & Lot
Margaret York
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Volume 7 Issue 4 Page 9
CSF Dordogne Sud
The Ribbon Fun Run 2011
The feel good factor, fitness and positivity seem
to be the tone of our news! Recently we have received
generous donations from The Plant Swap at Breuillh
and The Fitness Group in Monflanquin. OurTreasurers hard work at the popular plant event
helped publicise our work at the same time as swelling
our coffers. Our President joined The Fitness Group in
Montflanquin, who again organised a Fun Run to
raise a substantial amount in order to support us, and
in doing so beat their total for last year. This will help
support our work throughout the coming year.
Carol Whiteway warms up some of her Fitness Group participants
Well done to everyone involved and all those
who sponsored you - I must say I thoroughly enjoyed
the morning; so much enthusiasm was infectious! I
look forward to next year with an even stronger CSF
presence participating!
Tony Benstead
Wonderful news and obviously an inspiration -
so the rest of us had better start training now!
Training
We have supported Dordogne East and Lot by
running a training session in their area which was very
well received, both as a refresher course for
established Active Listeners and new practitioners. The
revised materials used by Sue Murphy and Tony
Benstead were once again much appreciated and our
link with the Lot will continue with a further planned
for September. Tony and Sue would like to thank all
involved for their active participation and particularthanks to Elizabeth and Konrad for their outstanding
hospitality.
50 today......and so pleased to be getting older!
so reads the eye-catching advertisement for a recent
Cancer Research UK campaign
www.giveincelebration.org/favours
which looks like a birthday card and is bound to attract
the eye with this surprising message. While many of us
are less than happy with the idea of aging (it doesnt
seem to offer many benefits!) for sufferers, their future
years are a priceless gift. If we accept that cancer
survival rates have doubled in the past 40 years then it
is important to recognise that our role is a major
complement to the research work of other organisa-
tions. We need to remind ourselves that we can, and
do, make a positive difference. In a few minutes, adiagnosis may change a life expectation but our
sensitive, invited interventions can prove invaluable
whatever the final outcome for that person. So it is
the
H word we should hang on to ForHope
not the C word -
Looking forward as far as possible and
as positively as possible to the future!
Only 163 shopping days til Christmas!
Well, thats not true really, but we are beginning
to plan our popular Christmas Fayre in Monteton on
November 19th
and as a final note, please start saving
for those special gifts and mentioning to any suitable
trader that stalls are available. We are preparing an
exciting Raffle and our super Greetings cards will be
there as well as at Angel Trader venues.
Frances Nunn
CSF Gascony
We had an unsteady start to the year with the
committee resigning in March for purely local reasons
that will not be entered into publicly.
An EGM was called for on April 11th
, which took
place in Mont de Marrast, our operational centre, to
elect a new committee, which we did. John Docherty
(me) was elected as President, Jayne Ray as VicePresident and Bobbie Coe (previous secretary) in
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Page 10 Touchlines
Gascony (Cont..)
her continuing role as Secretary. Previously elected
members were appointed by the new President, with
the agreement of the membership, to continue to
serve in various roles: - Jude Newton responsible for
Special Projects, Gill Miles continuing as Active
Listeners and Client co-ordinator and Trainer, CarolHarmer continuing as Resources Officer and Minutes
Secretary.
Having settled all issues the new and re-
organised committee committed themselves to a
positive year of growth in both membership and
awareness of our services across a broader geographi-
cal area. We have succeeded in this aim, not least due
to the previous efforts of the then President, Jude
Newton, and in her new role as Special Projects co-
ordinator.
The Toulouse satellite, as reported previously,
is up and running with all members having taken an AL
course in April and they are keen to provide support as
soon as possible. This satellite group have also been
very active, via Jayne Ray, in fund raising and publicity
via the Toulouse Womens International Group
(TWIG), by arranging for CSF Gascony to be adopted as
one of only three nominated charities. True to TWIGs
commitment, we are being featured at their Summer
Garden Party by way of providing the Raffle, andprizes. The first prize being a 3-5 day break in a log
cabin in the U.K. (transferable) and donated very
generously by our Treasurer and Secretary, Bobbie
Coe, at her holiday park with all proceeds to go to CSF
Gascony along with any donations made on the day.
We are also nominated to receive ALL
sponsorship monies being raised from a 240 mile
sponsored bike ride in Blairgowrie in the U.K. being
ridden by Mike Abbott, the husband of a TWIG
member.
Whilst all this activity was being generated, all
our publicity material was being revamped, also via
Jayne Ray, and is expected to be printed by the end of
June.
This will be in time for the first formal function of
another Satellite Group which has been established in
the north west of the Gers near Eauze. That function is
to be held 28th
July in the form of a musical picnic lunch
being held at the home of a new member andorganised by her with a blind auction of a number of
donated items and all monies raised going to CSF
Gascony.
We have received a number of membership
applications as a result of two introductory meetings
chaired by Jude Newton and we expect to be arrangingan Active Listener course in the autumn. We have high
hopes for the success of this satellite as they are a very
motivated and active group of people, as indeed they
are in the Toulouse satellite. Clearly, we are hoping to
reach a greater number of potential clients.
As you may have gathered, we are fairly
pleased with our success in spreading the word and we
hope to reach out even further with the production of
our new publicity material.
The central group at Mont de Marrast is not
being left behind as they held a coffee morning
Thursday 9th
June and plan to have a Spring Walk on
25th
June for all-comers, both organised by Paula
Whitehouse, which we expect to generate interest
anew, perhaps with some new members resulting.
Another Well Being Day is scheduled to take
place 18th
July, is once again being organised by Lynn
Kilbey at her home. You might remember this is an
event to support and pamper any clients who wish to
attend, at no cost to themselves.
One further item worth reporting is that John
Docherty has been broadcasting, in his capacity as
President of CSF Gascony, as a member of a live
English-speaking local radio programme on Radio
Festival Lannemezan, for the last couple of months and
hopes to continue. Broadcasts take place on the first
Thursday of each month at 14:00.
Active listeners continue to grow in numbers
following a successful course held in April which
created 7 newly qualified ALs with one re-qualifying at
his own request.
As mentioned earlier, another Active Listener
course is expected to be arranged for our new Satellite
Group this coming autumn. Good talking to you.
John Docherty
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Volume 7 Issue 4 Page 11
The Treasurers Spot
Once again I am pleased to report that at CSF
(National) income and expenditure are in line with our
budgeted targets. We can therefore continue to devote
our efforts to raising awareness of CSF and supporting
clients and Affiliated Associations, rather than fund-
raising.
Thanks to our Assistant Treasurer, Gary Healey,
CSF now has a Paypal account operating at National
level. This will enable the Association to receive
donations and payments for promotional items
electronically and will be especially useful where such
transactions are in sterling. The account is operated at
CSF (National); each Affiliated Association will shortly
receive an individual reference code so that items
designated for their eventual receipt can be identified
and forwarded. Further details can be obtained from
me.
Unfortunately, for personal reasons Gary has
had to resign from the National Committee and will,
therefore, not be able to take over the role of
Treasurer next March. Consequently, we are again
looking for a willing volunteer. All offers (and
enquiries) to the current incumbent, please!
Finally, I would like to clarify the position of CSF
regarding the use of the funds which it has raised. As
an association caratatif registered under the loi 1901,
CSF may raise funds for its own use in accordance with
the objectives specified in its Statutes. This precludes
the distribution of such funds to other charities or
organizations, such as to support cancer research or to
purchase medical equipment for a hospital. Some
confusion arose recently because CSF members were
present (to raise awareness of CSF) at an event from
which the organiser sent the proceeds to an animal
welfare charity. Investigation confirms that at no time
was any money from this event given to CSF, nor was
any money transferred from a CSF account to the
animal charity. Perhaps it is time to reiterate that CSF is
not a fund-raising organization per se if an
Association has sufficient funds to continue its prime
task of supporting people affected by cancer, it should
not feel driven to keep asking for money.
Andy ShepherdTreasurer, CSF (National)
News Roundup
The following are digests of recent items from
the BBC News Health Website: -
http://www.bbc.co.uk/news/health
The UKs National Council for Health and Clinical
Excellence (NICE) has ruled that Everolimus (also
known as Afinitor) is too expensive for use in the
treatment of advanced renal cell carcinoma. Two drugs
which have been approved (Sunitinib and Pazopanib)
also increase survival, but are not effective in all cases.
Everolimus costs over 200,000 for a course of
treatment. (19 April 2011).
Cancer Research UK is sponsoring a trial of a
pancreatic cancer vaccine called TeloVac, which is not
a cure but may prolong life. Pancreatic cancer has the
lowest survival rate of all cancers just three in every
hundred patients survive for five years or more. The
trial will involve more than 1,000 patients at 53 UK
hospitals who will receive regular doses of the vaccine
together with chemotherapy. The results will be
compared with treatment by chemotherapy alone. The
vaccine contains small sections of the protein
telomerase. This is over-produced by cancer cells,
residing on the cell surface; it is hoped that the vaccine
will stimulate the bodys immune system to recognize
the protein and target the cells (14 April 2011).
A European study, reported in the British
Medical Journal, has found that drinking alcohol over
the recommended limit substantially increases the risk
of some cancers. The investigation involved eight
countries, including the UK and France, and more than
360,000 people. (8 April 2011).
Andy Shepherd
Situation Vacant
Due to unforeseen circumstances, a vacancy has
occurred for the position of National Treasurer to
take over from Andy Shepherd as planned in 2012.
For further information, please contact Andy direct:
Tel: 05 45 29 08 93
8/4/2019 Touch Lines July 2011 Final Proof
12/12
Page 12 Touchlines
Useful Information
Page 12 Touchlines
Useful InformationUseful Information
Useful Contacts
President: Linda Shepherd 05 45 29 08 93
Treasurer: Andy Shepherd 05 45 29 08 93
Secretary: Jane Thomas 05 49 48 99 48
Regional GroupsBasse-Normandie (14, 50,61):
Jenny Luck 02 33 60 27 82
Bretagne-Ouest (29 w, 22w):
Judith Curl 02 96 45 76 20
Charente-Plus (16, 17, 86,87)
Pat Hyatt 05 45 29 66 24
Cur-de-France (03,18, 58):
Teresa Cox 04 70 67 94 87
Creuse (23):
Mike Walsh 05 55 63 98 76
Deux-Svres (79):
June Searchfield 05 49 64 59 96
Dordogne Est/Lot (24E, 46):Margaret York 05 65 22 96 37
Dordogne-Riberac (16s, 24w):
Valerie Wareham 05 53 90 62 03
Dordogne-Sud (24, 33, 47):
Tony Benstead 05 53 54 46 [email protected]
Gascony (31, 32, 65):
John Docherty 05 67 32 18 56.
Languedoc (12,30,34,48):
Cat Hartley 04 67 96 12 04
Lyons (69)
Paul Keats 04 78 03 71 16
Sud-de-France (09, 11, 66):
Hazel Turner 04 68 69 41 45
Vende(85):
David Martin 02 51 00 92 97
Donations for the national work of CSFshould be sent to the Treasurer, Andy
Shepherd, at
La Roche, le Bourg
16350 BENEST
Touchlines
Published in January, March, May, July,
September and November
Copy Date: 10th of preceding month
Items for inclusion should be sent to the Editor:
Margaret York
Combe Brune, 46220 PRAYSSAC
E-mail: [email protected]
Please send photographs as separate jpg files
Association Office & Sige SocialMairie
Le Bourg
16350 BENEST
Open every Tuesday 10h0012h30
and by appointment
National Help-line
Tl/fax 05 45 89 30 05
An answerphone service operates outside office hours
E-mail: [email protected]
Website: www.cancersupportfrance.info
Internet Forum: http://csf-forum.org
