+ All Categories
Home > Documents > TriLine Newsletter - Spring 2008 - English

TriLine Newsletter - Spring 2008 - English

Date post: 07-Apr-2016
Category:
Upload: tri-counties-regional-center
View: 218 times
Download: 3 times
Share this document with a friend
Description:
A Tri-Counties Regional Center publication.
Popular Tags:
12
SPRING 2008 TRI-LINE | 1 Cover Story 01 The Challengers Hit off a New Season Featured Articles 02 TCRC Rolls Out Housing Plan 03 Voting Made Simpler 03 On the Horizon: Self-Directed Services 04 Unheralded Benefit of Modafinil 04 Teen makes Strides with Provigil 04 About CHANCE 08 A Life Well Lived 09 Clinical Director Speaks on Autism 10 An Idea Becomes a Law: The Warren Mattingly Signature Stamp Bill Recurring Topics 02 Message From the Executive Director 03 Safety Stu’s Corner 05 Clients’ Rights Advocacy Update 06 Calendar of Events 08 Announcements 11 TCRC Staff News 12 Greetings From the TCADD Board President Santa Barbara • Ventura • San Luis Obispo www.Tri-Counties.org A PUBLICATION OF TRI-COUNTIES REGIONAL CENTER SPRING 2008 Mission TCRC provides person and family centered planning, services and supports for indi- viduals with developmental disabilities to maximize opportunities and choices for living, working, learning and recreating in the community. Vision Persons with developmental disabilities live fully and safely as active and indepen- dent members of their community. J ohn hits the sidelines to check in with his coach. John goes through warm ups, skill drills, and gets tips from a big buddy. He enjoys a good game with his teammates, all of whom have physical or developmental disabilities. He plays for the Challenger Division of Dos Pueblos Little League (DPLL). This little league came into being when a 9 year old boy with Down Syndrome begged his mother to join a baseball team. Her endless phone calls up and down the coast found no team for kids with disabilities. Then she called “Doc” Read, acting President of Dos Pueblos Little League. He took up the challenge and in 2004, opened a league for those with physical and developmental disabilities. This league has grown to include both girls and boys between the ages of 5 and 18. Many Challenger players get guidance from their volunteer big buddies in other divisions. During practice, John gets a guaranteed home run, like some of his teammates. Games conclude with a team huddle, cheer and “high fives”. John loves to run through the human tunnel formed by parents and fans during the players “Victory Run”. This little league is help- ing John build skill, character and form lasting connections with teammates. DPLL season begins in March and ends in June. The Challenger Division meets for an hour on Saturday mornings. Division rules allow for modification of play at all levels. This lets the kids enjoy competitive games, as their skill level allows. Coaching staff are parents, friends and others com- mitted to working with kids with disabilities - - fun is had by all! DPLL Challenger Division 805.681.9165 [email protected] www.dpll.net The Challengers Hit Off a New Season Dos Pueblos Little League Baseball Offers the Challengers Division by Heather Wennergren, Media Coordinator Helping out a teammate photography: Melissa Fitch John checks in with his coach
Transcript
Page 1: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 1

Cover Story01 the Challengers Hit off a New Season

Featured Articles02 tCRC Rolls Out Housing Plan03 Voting Made Simpler03 On the Horizon: Self-Directed Services04 Unheralded Benefit of Modafinil04 teen makes Strides with Provigil04 About CHANCe08 A life Well lived09 Clinical Director Speaks on Autism10 An Idea Becomes a law: the Warren Mattingly Signature Stamp Bill

Recurring topics 02 Message From the executive Director03 Safety Stu’s Corner05 Clients’ Rights Advocacy Update06 Calendar of events08 Announcements11 tCRC Staff News12 Greetings From the tCADD Board President

Santa Barbara • Ventura • San Luis Obispo www.Tri-Counties.orgA P U B L I C A T I O N O F TRI-COUNTIES R E G I O N A L C E N T E R

SPRING 2008

MissionTCRC provides person and family centered planning, services and supports for indi-viduals with developmental disabilities to maximize opportunities and choices for living, working, learning and recreating in the community.

VisionPersons with developmental disabilities live fully and safely as active and indepen-dent members of their community.

John hits the sidelines to check in with his coach. John goes through warm ups, skill

drills, and gets tips from a big buddy. He enjoys a good game with his teammates, all of whom have physical or developmental disabilities. He plays for the Challenger Division of Dos Pueblos little league (DPll).

this little league came into being when a 9 year old boy with Down Syndrome begged his mother to join a baseball team. Her endless phone calls up and down the coast found no team for kids with disabilities. then she called “Doc” Read, acting President of Dos Pueblos little league. He took up the challenge and in 2004, opened a league for those with physical and developmental disabilities. this league has grown to include both girls and boys between the ages of 5 and 18. Many Challenger players get guidance from their volunteer big buddies in other divisions.

During practice, John gets a guaranteed home run, like some of his teammates. Games conclude with a team huddle, cheer and “high fives”. John loves to run through the human tunnel formed by parents and fans during the

players “Victory Run”. this little league is help-ing John build skill, character and form lasting connections with teammates.

DPll season begins in March and ends in June. the Challenger Division meets for an hour on

Saturday mornings. Division rules allow for modification of play at all levels. this lets the kids enjoy competitive games, as their skill level allows. Coaching staff are parents, friends and others com-mitted to working with kids with disabilities - - fun is had by all!

DPLL Challenger [email protected]

The Challengers Hit Off a New SeasonDos Pueblos little league Baseball Offers the Challengers Divisionby Heather Wennergren, Media Coordinator

Helping out a teammate

phot

ogra

phy:

Mel

issa

Fitc

h

John checks in with his coach

Page 2: TriLine Newsletter - Spring 2008 - English

2 | tRI-lINe SPRING 2008

tri-Counties Regional Center greeted 2008 with

enthusiasm towards our commitment to enhance the quality of life for persons with developmental disabilities on the central coast. Along with our determination to excel in all aspects of performance in our

contract with the California Department of Developmental Services (DDS), we will continue to engage in activities that further progress in the seven Focus Areas of the tCRC Strategic and Performance Plan for 2007 – 2009. those Focus Areas are Family Services, Healthcare, training, Housing, employment, life Activities, Autism and Advocacy.

In this tri-line issue, I am pleased to announce that tCRC completed the development of a Five Year Housing Plan per the Housing Focus Area in our Strategic and Performance Plan. this ambitious plan will support the development of 500 affordable and accessible housing units by 2013 benefiting approximately 1000 persons with developmental disabilities in San luis Obispo, Santa Barbara and Ventura Counties. this effort includes the formation of a Non-Profit Housing Organization that will purchase properties and hold them in perpetuity. this will ensure a permanent stock of affordable housing for the sole use of persons with developmental disabilities in the tri-Counties area. You can learn more about the tCRC housing initiative by reading the article in this issue written by Kristine McCann, Housing Consultant, who along with the tCRC Housing Committee and the tCADD Housing task Force was instrumental in developing this important and exciting initiative.

I am also pleased to announce that Dr. Steven Graff was selected to fill the newly created Director of Clinical Services position at tCRC. tCRC is also recruiting for an Autism Services Coordinator position. Both of these new positions are funded

through resources made available by the State in order to support and strengthen the regional center’s responsiveness in meeting the needs of the growing population of individuals with autism. You can find more information about autism and tCRC related activities in Dr. Graff’s article in this issue.

In this edition of the tri-line, and of which I am particularly proud, you will see an article about an award made to Assemblymember Sam Blakeslee, thirty-third Assembly District, for his support of the Warren Mattingly Signature Stamp Act that permits persons with disabilities who sign with personal signature stamps to officially use them on ballots. People First of San luis Obispo and tCADD honored Assemblymember Blakeslee on January 18, 2008 for his support of this bill. And, on that day, the registrar of San luis Obispo County attended the event and registered over fifteen persons to vote. this initiative is an excellent example of persons with developmental disabilities in the tri-Counties area voicing their opinion, advocating for their rights and making a difference.

lastly, you no doubt have been hearing plenty about the current budget challenges facing the State of California that may impact funding to the regional centers and related services. learn more by visiting the DDS website at www.dds.ca.gov and the Association of Regional Center Agencies (ARCA) website at www.arcanet.org. While ARCA, tCRC and tCADD will continue to advocate on behalf of persons with developmental disabilities, I encourage you to get involved by joining one of the many advocacy groups available in the tri-Counties area.

enjoy reading about Housing, Autism and Advocacy – and please know that your input as a stakeholder for the services provided to persons with developmental disabilities has never been more important. I hope to see you at one of the community meetings I hold throughout the tri-Counties area or at a future tCADD Board meeting. the times and dates are listed on the back cover page of this newsletter and on the tri-Counties Regional Center website at www.tri-Counties.org.

From the Executive Directorby Omar Noorzad, Ph.D.

People with developmental disabilities, like everyone else, need to have stable, affordable and permanent housing.

they may need additional help to make this happen. there are approximately 10,000 people with developmental disabilities who live in the three counties served by tri-Counties Regional Center (tCRC). It is estimated that at least 1,000 of these folks are interested in new housing options but are having difficulty locat-

ing homes that meet their requirements. Most of these individu-als are living at home with families, some with aging parents, or in group-home residences. Many long for additional options for permanent, affordable housing.

the biggest obstacle to living independently in the community is a lack of financial resources. Income is often limited to Social

TCRC Rolls Out Five Year Housing Plan Kristine McCann, Housing Consultant

“Do not wait for leaders; do it alone, person to person.” Mother Theresa

continued on pg 5

Page 3: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 3

Voting Made Simpler by the Warren Mattingly Signature Stamp Act by Richard threlkeld, Care Provider & Phil Dauterman, Services & Supports Manager, San luis Obispo

liz has been visually impaired since birth and uses a wheelchair; however, she

is involved in the community, shops and enjoys being with friends. She loves spend-ing time with her pet cat, Buddy. liz has resided in the same residential care facility for the past twenty five years. A People First of San luis Obispo member, liz enjoys the meetings and socializing with other members. She recently attend-

ed an event at the Work training Program, Inc. leAP program for acknowledging the work of Assemblymember Sam Blakeslee towards the Warren Mattingly Signature Stamp Act. this law allows those who use signature stamps to vote with privacy and independence. the photo shows liz registering to vote with stamp in hand! She has used her new voting power, listening to an audio tape

summary of the various propositions on the ballot for February 5, 2008, making her decision as a member of the community.

liz loves this level of community involve-ment and her many friends in People First.

On the Horizon: Self-Directed Servicesby Sha Azedi, Assistant Director of Services & Supports, Ventura County

t he Department of Developmental Services (DDS) is establishing a Self-Directed Services program. Designed to assist participants to achieve personally defined outcomes in inclusive

community settings, Self-Directed Services is a whole new way to deliver services. Participants will have greater control of their own lives through managing their budget, selecting their own services and supports, and selecting, hiring and training their support staff.

the availability of this initiative is dependent upon the approval of a federal home and com-munity-based services waiver, Federal waiver 1915(c). If the Federal waiver is approved by the Center for Medicare and Medicaid (CMS), Self-Directed Services will be available to all eligible individuals. enrollment criteria include that the participant be at least three years of age, agree to live within the budgeted amount, not reside in a licensed residential services facility, and not receive services in a licensed group day program.

More details regarding this exciting new program will be made available by DDS soon. Please visit the DDS web site at http://www.dds.ca.gov/SDPP/Overview.cfm for updated information.

tCRC was one of five Regional Centers to pilot the Self-Deter-mination program. Pilot partici-pants reported:

› Improved relationships with family members. › More positive interactions with other people. › Increased involvement and interaction in the community.

› Improved qualities in work or day activities.

Safety Stu’s Cornercontent provided by Get SAFe, www.GetSafeUSA.com

SPeND tIMe WItH YOUR FRIeNDS! this summer, take a friend, family member, or other trusted person with you wherever you’re going – if you’re off to the park, the mall, or the movies. It’ll be more fun than going it alone and your buddy can help you get out of a scary situation AND help pick out that cool new Hawaiian t-shirt you’ve been wanting.

CHeCK OUt tHe SIGHtS! You may have already picked the ride to go to first at the amusement park, but have you checked out your surroundings? Being aware of what’s around you is one of the best ways to stay safe: look for the exits, the first aid tent, the lifeguard stand, and guest services locations. Choose asafe place to meet if anyone gets lost.

lOOK COOl! Got your sunglasses? You might have your swimsuit ready, but have you thought of everything to keep you protected from the rays and the waves? Make sure to wear sunglasses, sunscreen, flotation devices for swimming, and other protective gear (helmet & pads if your skating or riding). then… don’t forget to reapply.

SUMMERTIME SAFETYStuart “Safety Stu” Haskin, is the author of Safety First: A Stronger,

Safer You and the founder of GET SAFE. The mission of GET SAFE is to educate people on personal security, self-defense and crime preven-tion. GET SAFE has conducted safety outreach seminars and presen-

tations to people of all ages and “walks of life” across the country.

Liz uses stamp to register to vote

phot

ogra

phy:

Rob

Rob

erts

on

Page 4: TriLine Newsletter - Spring 2008 - English

4 | tRI-lINe SPRING 2008

Unheralded Benefit of Modafinil (Provigil®) in Cerebral Palsyby Dr. James O’Hanlon, Psychopharmacologist

Neurologists at texas tech in lubbock, tX recently described

the beneficial effects of a drug in pediatric patients with cerebral palsy (CP) that almost no one would have predicted. the title of their article, “Walking with Modafinil” says it all. Over a period of four years, they had

added modafinil to conventional treatment for 59 children whose spastic diplegia hindered or prevented walking. Another 57 were simply treated by conventional means. Overall, gait improved in 49% of the modafinil-treated children but only 5% of the others. Among the most severely afflicted, 10% began unassisted walking on modafinil, whereas none did with conventional treatment. Neurologists in practice are astonished by these results and ea-gerly await confirmation in a controlled clinical trial. their surprise is easily understood: modafinil is a wakefulness-promoting drug, approved by FDA for the treatment of pathological sleepiness but not any type of motor disorder.

Modafinil was developed as a replacement for psychostimulants (e.g. Ritalin and Adderall). It is as effective as psychostimulants for sustaining wakefulness and superior to them in other respects. Unlike psychostimulants, modafinil does not cause euphoria that encourages abuse or dependency followed by withdrawal symp-toms after prolonged use. If taken as directed, it neither suppress-es appetite nor disturbs nocturnal sleep. these differences can be partially explained by the drugs’ disparate mechanisms of action. All psychostimulants (and most drugs of abuse) enhance activity within the brain’s dopamine arousal system. Yet modafinil has no direct effect upon this system. efforts to discover modafinil’s mechanism of action were at first fruitless. However, ignorance

of the mechanism did nothing to inhibit clinical research to find new medical applications or prescription by some physicians for practically every disorder involving deficient attention, fatigue or lethargy. As always happens with a drug esteemed by researchers, private practitioners and patients, increasing use led to the dis-covery of relatively rare but serious side effects; and, knowledge that modafinil is not entirely free of abuse potential. In response, FDA issued a number of cautions and warnings. Despite these, modafinil remains a very popular drug.

the texas investigators could not explain how modafinil outper-formed conventional antispasticity drugs. It was not by decreas-ing fatigue since psychostimulants do that without affecting spasticity. Perhaps the drug’s beneficial effect stemmed from its just discovered ability to open “gap junctions.” Gap junctions are passageways that allow the direct flow of electrical current between adjacent neurons. they are mainly found in a few areas of the brain where electronically coupled neurons generate regular barrages of impulses for synchronizing activity in another structure. One place where modafinil opens gap junctions is in the inferior olivary nucleus of the brain stem, which generates synchronized activity in the cerebellum. the cerebellum is a major motor control center. Without olivary input, the cerebel-lum can not coordinate complex serial movements. Brain stem or cerebellar injury is seldom the cause of CP. However, modafinil’s activity in this region may partially compensate for brain damage at higher levels to facilitate walking.

1 Hurst DL, Lajara-Nanson WA, Lance-Fish ME. Walking with modafinil and its use in diplegic cerebral palsy: retrospective review. Journal of Child Neurology 2006; 21: 294-297.

2 Urbano FJ, Leznik E, Llinas RR. Modafinil enhances thalamocortical activity by increasing neuronal electrotonic coupling. PNAS 2007; 104: 12554-12559.

Teen Makes Strides with Provigilby Carol Munoz, Service Coordinator, Simi Valley

Nineteen year old luan Ngo lives at home with his mother, Mary, and family. In treating both cerebral palsy and epilep-

sy, luan’s neurologist has tried a few different drug therapies. Suggested by Dr. James O’Hanlon, Provigil was recently added, and seems to be enhancing luan’s mobility.

Mary reports that luan not only walks for longer periods, but his balance and stamina is improved. She spends much less time “hovering” near him, in the event of a fall. luan now makes the effort to slide out of bed. Before taking Provigil, he rarely tried. Mary spends a bit more time keeping her lovely home tidy, but she is thrilled by her son’s great strides.

Provigil® has been used for several years. It’s affect on mobility for those with cerebral palsy is currently being tested in clinical trials. As with many drugs, there are side effects to be consid-ered, but this Simi Valley mom enjoys seeing her son “up” more often.

CHANCe, Inc., (the Coalition for Housing Accessibility, Needs, Choices, and equality) is a local nonprofit that provides a variety of housing-related services to people and families served by tri-Counties Regional Cen-ter who live in Santa Barbara County.

CHANCe can help you search for an affordable and accessible rental. CHANCe also offers fund-ing to low-income renters to pay for a portion of their move-in costs. For people served by tCRC who have mobility impairments, CHANCe offers grants and loans for low-income renters or hom-eowners who need accessibility work or barrier removal.

transition age (between 16 and 22 years) is the time when families need to begin planning for their child’s future housing needs. the IPP process is the mechanism that families and their circle of support should use to plan for adulthood and docu-ment housing needs.

there is a critical shortage of af-fordable and accessible housing units in Santa Barbara County. Planning is key! everyone deserves a stable and safe home, and CHANCe is here to help.

Contact your service coordina-tor for a referral or call CHANCe directly at (805) 966-0020.

About CHANCE by Debbie Hosseini

Page 5: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 5

Security benefits with respect to housing costs. With the high cost of housing in San luis Obispo, Santa Barbara, and Ventura counties, it has become difficult to impossible to find safe, quality, affordable housing. In most cases, the average rent for a one-bedroom apartment requires all of the person’s monthly income.

What does this mean for people with developmental disabilities? Without help, they will never be able to have their own homes or participate fully in community life. Home ownership is certainly a possibility for some, but increasing the stock of afford-able housing where people can rent homes, apartments, or duplexes, is crucial to the long-term stability of both the individual and the system. long-term, affordable rental options can approximate the home ownership experience.

Housing is one of the seven focus areas of tCRC’s 2007 - 2009 Strategic and Performance Plan. the tCADD Board of Directors, staff, and leader-ship of tri-Counties Regional Center have initially addressed the issue by developing a Five Year Housing Plan. Members of the tCRC Housing Committee, along with the direction of the tCADD Housing task Force, developed priorities for the housing plan document. Stakeholder contri-butions and information gathered from interviews with Housing Author-ity leadership from all three counties were also considered in development of the housing plan.

the formation of a non-profit or-ganization (NPO) responsible for implementing housing objectives is expected in fall 2008. Guided by the key elements of the plan, the NPO and tCRC will expand housing options for individuals with developmental disabilities.

continued from pg 2 TCRC Rolls Out Five Year Housing Plan Kristine McCann, Housing Consultant

Whatever the cause Kris McCann decides to embrace, her high energy, national network, and personal commitment to assure a successful outcome prevails. She has worked the past eleven years as an Executive Director of three non-profit organizations building quality affordable housing for people with develop-mental disabilities. Kris is recognized throughout the State as a leader in the housing field and has a background in organizational development, non-profit management, and real estate. She has a daughter with a developmental disability, is sensitive to the needs of this population, and strives to make a difference.

The County of Santa Barbara Housing Authority is accepting applications for the Section 8 program and public housing program for low income Santa Barbara County

residents. Visit www.hasbarco.org for more information or contact CHANCE.Reasonable Accommodations in the Section 8 Housing Programby Kathy Mottarella, Clients’ Rights Advocate, Protection and Advocacy, Inc., 805.884.7218 or 800.322.6994 ext.7218

Sometimes it is necessary

to ask that the rules or program requirements in the Section 8 Housing program be modified to ensure that people with developmental

disabilities can benefit from the program. Federal fair housing laws allow people with disabilities to ask for such changes. Federal law requires that public housing authorities make modifications in program rules as long as the changes are reasonable.

there are many complicated rules and requirements of the Section 8 program. Sometimes these rules are difficult for people with disabilities to follow. For instance, there are many forms and

paperwork that must be completed for the program. there are also letters sent to the applicant with instructions that must be followed. If a person served by the regional center doesn’t understand the information being sent to them they are at risk of losing their opportunity to participate in the Section 8 program.

One such example occurred recently with a person served by tri-Counties Regional Center. Mary applied to the Section 8 program so that she could move out of a group home some day and live in her own apartment. Several letters were sent to Mary’s home from the Housing Authority. Mary did not understand the letters and did not ask for assistance in reading them. Because Mary did not respond to the letters she was terminated from the program and removed from the Section 8 waiting list even though she had moved to the top of the list. When

the regional center Service Coordinator discovered the problem he contacted the Housing Authority to request that Mary be placed back on this list. When the Housing Authority said no, the regional center Service Coordinator asked for help from the Office of Clients’ Rights Advocacy (OCRA). With Mary’s permission, OCRA sent a letter to the Housing Authority asking them for a reasonable accommodation in their program. OCRA requested that copies of all correspondence to Mary also be sent to her regional center Service Coordinator. this would help Mary to follow all of the Section 8 rules. OCRA also informed the Housing Authority that by federal law Mary had a right to be reinstated to the waiting list for the Section 8 program since her disability was the cause for her removal from the waiting list. the Housing Authority agreed to reinstate Mary to her position on the waiting list and provide her with the accommodation requested.

KeY eleMeNtS OF tHe PlAN› Formation of Housing Non-Profit Organization› Partnerships with Housing Authorities & other Community Housing Organizations› Housing Development and Acquisition› technical Assistance and Communications› training and education› Research and Resource Development› Advocacy› Funding

Page 6: TriLine Newsletter - Spring 2008 - English

6 | tRI-lINe SPRING 2008

PARENTS HElPINg PARENTS - FAMIlY ReSOURCe CeNteRemail: [email protected]

San luis Obispo Office Atascadero Office800.456.4153 x3277 805.461.7415805.543.3277

SPeCIAl OlYMPICS AReA MeetMay 2, 2008, FridayCuesta College, San luis ObispoContact: 544-6444

UCP’S 8tH ANNUAl ABIlItIeS FAIRMay 15, 2008, thursday, 10:00 a.m. – 3:00 p.m.Veteran’s Hall, 801 Grand Avenue, San luis Obispo Featuring vendors for services and equipment for people with disabilities and seniors. Free.Contact: Josh at 805.54.8751

“WORKING tOWARD A GOAl OF MICRO-eNteRPRISe FOR PeOPle WItH DeVelOP-MeNtAl DISABIlItIeS” a Special Presentation by Area Board 9 at the Abilities FairMay 15, 2008, thursday, 12 p.m. – 2:00 p.m.Micro enterprise is an avenue for people to explore self employment and indepen-dence. Free.Veteran’s Hall, 801 Grand Avenue, San luis Obispo.Contact: Parents Helping Parents: 805.543.3277 to RSVP

ONgOINg:

NORtH COUNtY AUtISM SPeCtRUM SUPPORt GROUP7:00-9:00 pm 3rd Friday of every other month; Hampton Inn Conference Room, Paso Robles.Contact: [email protected] or Becky: 805.471.1354 or Rebecca: 805.712.7044

SOUtH COUNtY AUtISM SUPPORt GROUP7:00 - 8:30 pm 3rd Wednesday of every month, 150 So. 6th St. Suite D, Grover BeachContacts: leslie 805.904.9212 or [email protected]

COMMUNItY COUNSelING CeNteR SUPPORt GROUPS: ANGeR MANAGeMeNt GROUP, DePReSSION SUPPORt GROUP1129 Marsh St., San luis Obispo Contact: 805.543.7969

FAMIlY SUPPORt GROUPMondays, 9:30 a.m. For parents, caregivers and families of children with special mental health and behavioral needs.transitions Mental Health, 277-Y South St, San luis ObispoContact: 458-2596 or [email protected] for SlO and North Co. 458-6388 for or [email protected] Coastal and So. Co.

GRANDPAReNtS AS PAReNtS SUPPORt GROUP 9:00 a.m. thursdays, 1086 Grand Ave., S.A.F.e. Center, Room 107, Arroyo Grande Contact: 805.481.5722

KINSHIP CeNteR RelAtIVe ReSOURCeS ADUltS CARING FOR RelAtIVe’S CHIlDReN 10 a.m. – 12 p.m. on the second and fourth Monday; 6 – 8 p.m. on the first and third tuesday of the month Kinship Center 75-B Main St., templeton Contact: 805.434.2126 or 805.434.2449

PeeR SUPPORt MeetING FOR INDIVIDUAlS WItH DISABIlItIeS1:30-2:30 p.m. First Monday of every month, Independent living Resource Center 1150 laurel lane, San luis Obispo Contact: Denise Martinez, Peer Support Advocate, 805.593.0667

POStPARtUM DePReSSION SUPPORt GROUP 9:00 – 10:30 a.m. 2nd Saturday of the month. Cost: $20. Contact: Joan Fusco, lCSW 805.801.3127

SlO COUNtY MOMMIeS Free local group welcoming all moms in SlO County for online support and local events: outings, play dates, message boards, community groups and services. Contact: SlOCountyMommies.com

AlPHA RESOURCE CENTER - FAMIlY ReSOURCe CeNteRemail: [email protected] / www.alphasb.org

Santa Maria Office Santa Barbara Office805.347.2775 877.414.6227 805.683.2145

lUAU IN MAY (NO COSt tO AtteND)Saturday May 31,2008, 12 pm-4 pm luau in May (Coordinated by New Directions) enjoy gourmet catered hawaiian BBQ, exotic drinks, live music and dancing, hula lessons and contest and door prizes. transportation may be provided.Held at the Chase Palm Park Pavilion, 323 e. Cabrillo Boulevard, Santa BarbaraGRAND DOOR PRIZe: FRee trip to Hawaii with New Directions travel!Contact Dee at [email protected]

PAReNt-tO-PAReNt SUPPORt Sponsored by Special Needs Network. Meets third thursday of every month, 9:00 am at Coffee Diem, 505 S. McClell and Street in Santa Maria. Contact: Diana 805.937.8756 or JoAnne 805.937.2465.

CItY OF SANtA BARBARA PARKS & ReCReAtION DePARtMeNtCheck out what they have to offer. Contact: Adapted Programs 805.564.5421.

FAMIlY FIRStA family resource center and parent network. Provides parent-to-parent and family support, parent-professional collaboration, parent and family workshops, and information and referral. Contact: North County 805.347.2775 / South County 805.683.2145.

SOMetHING FOR tHe SIBlINGSthe Special Needs Network is a new club for the siblings of individuals with disabilities. the club will consist of several fun activities and will be a chance to get away and relax with others who also have siblings with disabilities. Contact: laura King, 805.344.1403.

SANtA MARIA SPeCIAl eDUCAtION & SUPPORt INFORMAtIONKathy Rowley has started a Yahoo Group for parents of children with special needs who live in Santa Maria. to join go to http://groups.yahoo.com/group/santamariasupport.

AUtISM SOCIetY OF AMeRICA - SANtA BARBARA CHAPteRContact: Patti 805.569.1091

SANtA MARIA AUtISM SUPPORt GROUP Has an online support group for parents of children diagnosed with autism. there is also a weekly playgroup that meets at a local park. Contact: 805.714.1187 or email [email protected].

lOMPOC AUtISM SUPPORt GROUP A support group for parents and other caregivers of children diagnosed with autism. Contact: Polly Bleavins 805.347.2775 or email [email protected]

P.O.S.e. PAReNtS OF SPeCIAl eDUCAtION this parent support group meets the third Wednesday of every month at 9:30 a.m. the group also fundraises to provide additional educational materials for special education programs in Santa Barbara. For meeting locations and fundraising events, contact Jennifer Griffin, 805.967.0371 ([email protected]) or Cathy Abarca, 805.448.6431 ([email protected]).

KAtIe’S FUNDSocial and recreational activities for teens and young adults (under 22) with de-velopmental disabilities through Alpha Resource Center. Contact: Amy Buesker at 683-2145 x127 or email [email protected].

tAlK ABOUt CURING AUtISM (tACA)Meets 3rd Saturday of the Month, 11:00 a.m. - 12:30 p.m. “the loft” Above Sur la table in Paseo Nuevo. this is a support group meeting for caretakers for those with special needs. Contact [email protected], www.tacanow.org [email protected] group for parents of special needs children, email [email protected]

Calendar of eventsSANTA BARBARA CouNTySAN LuIS oBISPo CouNTy

Page 7: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 7

RAINBOW CONNECTION - FAMIlY ReSOURCe CeNteRemail: [email protected]

Oxnard Office Simi Valley Office800.332.3679 800.517.2524 x2325805.485.9643 805.823.2325

Rainbow Connection provides many activities for children and families. Here is a list of on-going support groups:

SPeCIAl FAMIlIeS SUPPORt GROUP (SPANISH) First Friday of the month, 6:30 - 8:00 pm, Oxnard families share their experi-ences parenting a child with special needs.

SIBClUBFirst Friday of the month, 6:30 - 8:00 pmGames, Fun, Activities, for 5 – 14 years old siblings of children with develop-mental disabilities in Oxnard.

CeReBRAl PAlSY SUPPORt GROUP (BIlINGUAl: eNGlISH & SPANISH) third Monday of the the month, 9:30 – 11:00 amGroups meet separately in english and SpanishJoin other parents to talk about issues related to raising children with cerebral palsy and share resources and information.

SPeCIAl PAReNtS NetWORK (eNGlISH)Second thursday of the month, Oxnard 10 – 11:30 amthird thursday of the month , Simi 9:30 – 11 am Come and join us for a cup of coffee, learn about our resources and talk about issues related to raising children with special needs.

DOWN SYNDROMe SUPPORt GROUP (eNGlISH)Second thursday of the month, 6:30 – 8:30 pm, Oxnard Families have open discussions on issues related to raising children with Down syndrome.

DOWN SYNDROMe SUPPORt GROUP (SPANISH)Second thursday of the month, 6:30 – 8:30 pm, Oxnard Families have open discussions on issues related to raising children with Down syndrome.

AUtISMO SUPPORt GROUP (SPANISH) third Wednesday of the month, 10- 11:30 am, Oxnard Families have discussions on issues related to raising children with autism.

RAINBOW MOMS CONNeCtING - OXNARD (SPANISH)third thursday of the monthCome and enjoy time with other mothers of children with special needs and have a relaxing time. For more information or to RSVP please call Rainbow.

CONNeCtING WItH RAINBOW - FIllMORe (SPANISH)third Friday of the month, 5 - 7:00 pm, Dr. Neil Schmidt Family Resource CenterFamilies of children and adults who receive services from tCRC are assisted in navigating the healthcare system as well a variety of other issues. they can also make an appointment in advance to make a Health Care Notebook.

teDDY BeAR BRIGADethird Saturday of the month (except for summer) 1-3:00 pm, thousand OaksFor children 3 -13 years old with special needs and their siblings. It includes stories, sensory themes, crafts and music planned each month. Visit www.bearsandcompany.com to register. Parents meet separately for social and networking time.

SANtA ClARA SUPPORt GROUP (SPANISH)third Monday of the month. Families meet to share the experiences they’ve had with their children with special needs and learn about resources. RAINBOW MOMS CONNeCtING - FIllMORe (eNGlISH)third Monday of the month. Moms of children with special needs meet to share and learn new information.

VeNTuRA CouNTy

RAINBOW MOMS CONNeCtING – VeNtURA COUNtY (eNGlISH)Meeting dates and times vary. Come and enjoy a night out with other mothers of children with special needs.

NICU SUPPORt GROUP (eNGlISH & SPANISH)third Wednesday of the month, 6:30 - 8:00pm, Oxnard Groups meet separately in english & Spanish. Meet other families and share ideas of coping, photos, info, joy and triumphs. Pizza will be served! Families with babies in the NICU and NICU grads welcome.

G-tUBe/J-tUBe/NG-tUBe NetWORKING (eNGlISH & SPANISH)third thursday of the month, 6:30 – 8:00 OxnardDoes your child have a G-tube, J-tube, or NG-tube? Has it been suggested that your child get a tube? We look forward to sharing our stories of frustrations, fears, and successes (large and small).

SOCIAl tIMe FOR ADUltS SeRVeD BY tCRClast Saturday of the month (RSVP a must), 12:30-2:30 pm, OxnardCome and join other adults for refreshments, conversation, browsing in the library, and enjoy a movie and popcorn at Rainbow Connection in Oxnard. Direct care or supervision is not provided.

OTHER COMMUNITY SUPPORT gROUPS:

MeetUP GROUP FOR FAMIlIeS WItH KIDS WItH ASPeRGeR’SNeW GROUP, ages 5 – 12 yrs. RSVP at the link to the MeetUp site: http://par-ents.meetup.com/636/

BRANDON’S BUDDIeS (eNGlISH)First Saturday of the month, Calabasas. A free play date for children of all abili-ties.to RSVP call Dina Kaplan 818 222-8118 or [email protected]

AUtISM SPeCtRUM DISORDeR (ASD) PAReNt SUPPORt GROUP (eNGlISH) Second Wednesday of the month at Rainbow Connection, Oxnard For more information contact tera Marquez [email protected] or Karen Bobo [email protected].

SUPPORt GROUP FOR PAReNtS OF KIDS WItH AUtISMthird Wednesday of the month, 6:30 pm. We provide child care. the address is 2697 lavery Ct., Suite 17 Newbury Park. Contact leila Silva at (805) 480-9039 or (805) 341-3089.

SPeCIAl PAReNtS CAFethird Saturday of each month. Call Silvia at (805) 530-0315.

let’S GO HIKING First Saturday of the month, Bob Charney and his son Michael, who has Autism, invite other dads and their sons with developmental challenges to go hiking. If you’re interested in participating, call Bob Charney at 818 735-7331 or 818 789-1586 x223.

MOM’S NIGHt OUt tHOUSAND OAKS (eNGlISH)third tuesday of the monthFor contact information call Rainbow.

DAD’S NIGHt OUt tHOUSAND OAKS (eNGlISH)Fourth tuesday of the month. For contact information call Rainbow.

PAReNtS OF CHIlDReN WItH AUtISM, ASPeRGeRS & SeNSORY PROCeSSING DIFFICUltIeS SUPPORt Group (english)Meets monthly in Newbury ParkFor more information call Gina Peters at (805) 376-2255 or (805) 338-1378.

VeNtURA COUNtY AUtISM SOCIetY (eNGlISH)For more information call Ventura County Autism Society at 805-496-1632.

With each issue of the Tri-Line, we provide information on some of the resources available to families within the Tri-Counties area. Please call to confirm dates and times of events. Check with your service coordinator for information on other resources available to you in your area.

Page 8: TriLine Newsletter - Spring 2008 - English

8 | tRI-lINe SPRING 2008

› Monthly support and educational meetings

› expertise on biomedical and other interventions

› An Autism Resource Directory and traveling library

› Marriage and family counseling

› Funds for families in crisis who need medical care

› Website: www.tacanow.org

› A 300 page “Families with Autism Journey Guide”

› Parent to Parent Mentor Program

tACA is families with autism helping families with autism-Please join us: Jen DuBois - [email protected] Debbie Hosseini - [email protected] Kathleen Reish - [email protected] Maria Sherlock - [email protected] Nancy Speer - [email protected]

in bringing tACA to Santa Barbara County. email Jen DuBois to be added to the email list.

tACA Santa Barbara will provide:

Keri Bowers will be showing a film clip and speaking at tACA’s May 17, 2008 meeting from 11:00 a.m. - 1:00 p.m. at Ocean Hills Ministry “the loft”, located at 821 State Street, in Santa Barbara.

Find out more about tACA spokesperson Jenny McCarthy at www.tacanow.org

A life Well livedby Andrea Fishback, larry Parsons and Ross Godlis, Residential ProgramManager at Work training Programs, Inc.

Diane Parsons led a life well lived despite physical and developmental challenges.

Her mother got her off to a good start, insisting that she attend regular education classes before “mainstreaming” was even a concept. It was not until Diane started receiving services from tCRC that she was able to realize her full potential and dream to live and work independently.

Dr. Robert Carroll, tCRC’s first executive director advised genetic testing for Diane and her family. A diagnosis of turner’s syndrome provided an explanation and insight into the cluster of physical and developmental disabilities that Diane experienced. these disabilities did not limit her vision to choose her own friends, live in her own apartment and have a real job…a big leap in 1984 for someone who had only lived and worked in sheltered settings. But she had a pioneer spirit

and strong personality. Diane was fortunate that community programs and services were being developed at that time to provide options to support her dreams.

In 1984 Diane began a 23 year association with Work training Programs Inc. From the start she was an enthusiastic and quick learner who mastered the structured skills training

and used supports to become employed and live as independently as possible. By 1987 Diane had her own job and was living in a nice mid-town Santa Barbara apartment. Diane had a strong circle of support form her coworkers and supported employment job coach at the job site: her in home support staff in managing her day-to day matters. She worked toward self-reliance to meet her medical needs, and she became socially and recreationally active in the community with her friends and family.

When asked to speak at a regional center retreat, it became evident just how much Diane valued her independence. She referred to her old life, without choice in contrast with her new life. She picked special things to purchase, did her own shopping (at Gelson’s) and enjoyed spending time with the people she loved, a life well lived, indeed.

Andrea, Larry and Ross collaborated to write about the fulfilling life of

Diane Parsons, who passed away in December, 2007

Join the ensemble of Sun Dogs and Cosmic Cats to walk, ride or roll in the Solstice parade. to participate, contact Geoffrey at 805.403.2284 or [email protected].

Sponsor a tri-Counties Regional Center Artist / Participant in the Solstice parade, $40, contact tracy Jackson at [email protected].

gearing Up for the Solstice Celebration

Diane Parsons

TCRC’s Tracy Jackson and artist Pali-X-Mano model Soltice headdresses

Nicole Turosfsky and Tracy search for the perfect fabric

TACA (TAlK ABOUT CURINg AUTISM)

Page 9: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 9

Autism. A small word for a condition with such a

large impact. Autism affects individuals, families, schools, agencies and govern-ments in ways no one could have predicted back in 1944 when Dr. leo Kanner first described the “rare” condition. It is the last of the disabilities added to the lanterman Developmental Disabilities Act, yet it is the syndrome which is having the largest im-pact on the Regional Center system. When the movie Rain Man came out 20 years ago the incidence of autism was considered 1 in 5000 live births. the incidence is now so much higher and changes so frequently that it is almost impossible to know how many children (and their families) are affected these days, but the incidence of having some form of an Autism Spectrum Disorder (ASD) such as Autism, Asperger syndrome, or Pervasive developmental disorder is estimated to possibly be as high as 1 in 150 live births. It affects boys much more frequently than girls. Persons with autism often have a co-morbid seizure disorder or are mentally retarded. While the incidence of autism itself is not as high as for ASD (numbers range from 1 in 360 to 1 in 800, depending on the research) one thing is clear: the numbers are rising, the impact on the systems serving the persons with autism and their families is stagger-ing, and the future is uncertain.

No one knows why the worldwide incidence of ASD is increasing, but there are many theories, and in my opinion there is probably an interaction between them. Most research looks at how both the expansion in the definition of autism and the increased ability to recognize the more subtle forms of it are part of the rise. When more symptoms are classi-fied as “autistic” and more persons are sensitive to those symptoms, numbers

will rise. We’ve seen that occur countless times in the fields of psychiatry, psychol-ogy, and neurology. But along with those changes is the understanding that the prenatal experiences of the developing fetus and postnatal infant (exposure to environmental threats such as polychlorinated biphenyls (PCBs), flame retardants, pesticides, heavy metals, and viral infections) coupled with predisposing genetic factors are the most significant fac-tors. I am fortunate to be on the M.I.N.D. Institute’s Community Advisory Council for one of the largest studies on the causation of autism. the researchers are focusing on epigenetics, which combines both the influences of environment on both DNA and the immediate protein sup-port structures for chromosomes, and the results are both terrifying and exhilarat-ing. they are closing in on both the un-derstanding of what is probably causing the epidemic (the increase in worldwide chemical and heavy metal pollution) and how to correct our environment to stem the wave. this research will lead to better biobehavioral and medical treatments to treat those who have autism along with ways to decrease the incidence.

this is an exciting time to be working with persons with autism and there are reasons to hope for a much better tomor-row. the stakeholders for autism include the National Standards Committee of the National Research Council and the California legislative “Blue Ribbon” Committee on Autism. locally, the Autism task Force (a partnership of tCRC, the SlO, SB and Ven-tura county SelPAs, the various tri-Coun-ties autism societies and Family Resource Centers, Area Board 9, and families with autistic children) are working together

TCRC’S New Clinical Director Speaks on Autism Steven Graff, Ph.D. was ap-pointed Director of Clinical Services for Tri-Counties Regional Center (TCRC) in Nov, 2007. He earned his Ph.D. from the University of Southern California, and completed an APA-approved Postdoctoral Fellowship in Professional Psychology at the Devereux Foundation in Santa Barbara. For 20 years he has

been working in the field of developmental disabilities. He has presented a variety of papers on the diagnosis, treatment and effi-cacy of treatments for various developmental disabilities. He is currently the Chief Psycholo-gist for the ARCA Psychologists Group and is a faculty member of the Ventura County Crisis Intervention Team.

Dr. Graff’s Membership Includes:Ventura County office of Education (VCOE) SELPA Autism Steering Committee Advisory Board for the VCOE Triton Academy for children with autismTCRC Autism Task ForceCalifornia Department of Developmental Disabilities Health and Wellness Committee Association of Regional Centers (ARCA) Eligibility CommitteeCommunity Advisory Council for the UC Davis M.I.N.D. Institute’s CHARGE study

to review how persons with autism and their families can be served most effec-tively and efficiently. tCRC is continuing to increase its presence in the medical and education community through partnerships with Ventura County Medical Center on an early Screening conference and the Autism Steering Committees. Autism is a Focus Area of the 2007 - 2009 tCRC Strategic Plan and Performance Plan. It is tCRC’s intent that with teamwork and collaboration we will continue to develop our capacity of services according to best practice.

Honored with the Awesome in Autism award in 2000

Spotlight on the Web

Check out the enhanced News section on the tCRC web site at www.tri-counties.org/news-events/. there is a link under each category in the left margin. email comments or suggestions to [email protected].

EventsHot TopicsCalendarPress ReleasesHealth NewsLegislationTri-Line Newsletter

News

Page 10: TriLine Newsletter - Spring 2008 - English

10 | tRI-lINe SPRING 2008

An Idea Becomes a law: The Warren Mattingly Signature Stamp Bill

In the last several years, People First of San luis

Obispo has been focusing on making sure all our members are registered, well-informed, and actively voting in every election. When we polled our group about voting, we found that even though some were registered to vote, very few of us actually cast our votes on election day. We discovered two problems: first, we needed education about the candidates and issues, and second, we needed support to mark our absentee ballots, sign them, and return them in time to meet election deadlines. We also needed support to vote at the polls on election day.

As a result, we started the People First of SlO Voter’s Project, which has three parts:

Registration•education•Casting Our Votes•

At a CDCAN Advocacy Without Borders townhall telemeeting in October, 2006, we brought up the problem of signing ballots to the guest panel of County Clerk-Recorders, and to listeners all over California. At first the panel tried to brush off our complaint, but we kept at it, explaining patiently how we felt that signing with an “X” in the presence of a witness instead of signing our own signatures with our stamps was demeaning and made us feel devalued as voters. the panel suggested we write to Bruce McPherson, who was Secretary of State at that time, explaining our view and asking that he declare that Californians voting with signature stamps were legitimate signers of absentee ballots us-ing their stamps. We did this; McPherson’s office responded that current California law forbid signature stamps on voting materi-als, and that ballots signed with signature stamps were invalid.

locally, our issue gained public attention on October 17th, 2006, when the San luis Obispo tribune, after interviewing PFSlO members, published a front page article about it. they even created an on-line poll so that people in the community could have their say about whether they thought signature stamps should be valid on ballots and voter’s registrations. Fortunately, Assemblymember Sam Blakeslee noticed this article and contacted PFSlO about it. He wanted to write a bill to change the law so that Californians who signed with stamps could use them officially on their ballots. Blakeslee’s staff attended several of our People First meetings and talked with us about the idea. then, on December 4, 2006, he introduced Assembly Bill 18, the Warren Mattingly Signature Stamp Bill. He named the bill after Warren Mattingly, a PFSlO member and former tCADD board member, who had passed away the previous spring. Assem-blymember Blakeslee felt that Warren, himself a signature stamp user, was a wonderful representative of advocacy for people with developmental disabilities.

Assembly Bill 18 began its journey through the legislative process. When it was met with some opposition in July, 2006, tCRC generously funded PFSlO members Jody Barker, Ray Castro, Peter Stoner, and Robert Butler, along with their sup-port people, to testify in Sacramento in favor of the bill before the Senate Appropriations Committee. It was all downhill from there, as AB 18 moved quickly through the Senate, thanks to the powerful testimonies of Assemblymember Blakeslee and our self-advocates. In September, 2006, Assembly Bill 18 was signed by Governor Schwarzenegger as the Warren Mattingly Signature Stamp law.

On Friday, January 18, 2008, we celebrated the signing of the new law with Assemblymember Blakeslee, his staff, People First of SlO members, and many of the individuals, agencies and organizations who supported us as we made our way through the process of turning our idea into a law. Assemblymember Blakeslee presented People First with a beautiful collage including photos taken in Sacramento during our testimonial trip, some of the language of the new law and Governor Schwarzennegar’s signature, and a personal note of thanks from Blakeslee himself. the tCADD board then presented Blakeslee with a framed state-ment of thanks, signed with the signature stamps of

many people who will now use those same stamps to vote in the General election in November, 2008. PFSlO’s gift to Assem-blymember Blakeslee was an original painting by one of our group members, inscribed “Imagine a World Where everyone is Part of the Community…”

People First of SlO is proud to have joined with Assemblymember Sam Blakeslee, tCADD, and everyone who supported us, to make the Warren Mattingly signature Stamp law a reality. It was a true group effort that will not only benefit voters in California who use signature stamps, but help create a more inclusive state of California for us all.

by Mary Peacock, Steven Sherman, Joe Madero, lisa Krueger, Greg elmore, all of People First, SlO (PFSlO)

Assemblymember Blakeslee greets PFSLO members

“Imagine a World Where everyone is Part of the Community”

phot

ogra

phy:

Rob

Rob

erts

on

Page 11: TriLine Newsletter - Spring 2008 - English

SPRING 2008 tRI-lINe | 11

tri-Counties Regional Center awards employees nominated by their colleagues with the Spirit of excellence Award. the award acknowledges employees who demonstrate teamwork, service to people we serve, morale building, good citizenship, the quest for quality and above and beyond dedication to the vision and mission of tCRC. DeNISe ReNNA

Service Coordinator II, AtascaderoSUMMeR BeASleY-HOFFMANService Coordinator II, San luis ObispoCYNtHIA CAMACHOService Coordinator II, Santa MariaROSeMARY RICeService Coordinator I, Santa Barbara

PHIl StUCKYController, Santa BarbaraANABelle CORDeROService Coordinator II, OxnardDANIelle GONZAleZSecrectary III, Simi ValleylARS eACOttService Coordinator II, Simi Valley

SAN lUIS OBISPO COUNTYAtascaderoHotel Park Business Center6005 Capistrano, Suite eAtascadero, CA 93422-7219805.461.7402 FAX 805.461.9479

San luis Obispo3450 Broad Street, Suite 111San luis Obispo, CA 93401-7102805.543.2833 800.456.4153 FAX 805.543.8725

SANTA BARBARA COUNTYSanta Barbara520 east Montecito StreetSanta Barbara, CA 93103-3278805.962.7881 800.322.6994 FAX 805.884.7229

Santa Maria1234 Fairway Dr.Santa Maria, CA 93455805.922.4640800.266.9071FAX 805.922.4350

VENTURA COUNTYOxnard2220 east Gonzales Road Suite 210Oxnard, CA 93030-2119805.485.3177 800.664.3177 FAX 805.988.9521

Simi Valley1900 e. los Angeles Ave.Simi Valley, CA 93065805.522.8030 800.517.2524 FAX 805.522.8142

Wel

com

e N

ew e

mpl

oyee

s

ANNe BAltZeRfrom SC II to early Start Branch Manager, Oxnard DeeNA BeRNABe from SC II to early Start Branch Manager,Simi ValleyJeAN HOlMQUISt from Secretary III to Manager of Support Services, NorthtINA CAlDeRARO-MeNDOZAfrom SC II to PCt Coordinator, Simi Valley

3rd Quarter 2007

Awar

ds

Person Centered thinking (PCt) is a set of ideas, skills and actions that assist individuals who use services to achieve greater control over their

lives. PCt trainings are held regularly. Please contact Vi Nguyen at [email protected] for details on upcoming training events.

Christina egan, Account AssociateRoxanne Alcalde, Service Coordinator IIMildred Figueroa, Service Coordinator II

Paolina Aligero, Service Coordinator IICarlos Rodriguez, Service Coordinator IIMabel Jaramillo, Service Coordinator IIJon Fraser, Cost Assessment Specialistlouis Cassano, RN, Nurse SpecialistHeather Wennergren, Media Coordinator

Diane Arevalo, Service Coordinator IICharles Pap, PhD., PsychologistJennifer Guzman, Service Coordinator II

Yolanda Collins, Service Coordinator IIPatricia Richmond, Service Coordinatorluzmaria espinosa, Service Coordinator IIAzita Aslemand-Huebner, ManagerPhyrum Bodle, Service Coordinator IIRuth lima, Service Coordinator IIPedro Moreida, Service Coordinator IICandace Curran, Service Coordinator IIDarris lange, IS Analyst

NO

t PI

CtU

ReD

tCRC Staff News

Prom

otio

ns

Person Centered thinking training

PCt

John Ryan, Service Coordinator IIDalia Ruiz, Service Coordinator IBartt Bramwell, Service Coordinator II

SPIRIt OF eXCelleNCe AWARDS

Page 12: TriLine Newsletter - Spring 2008 - English

12 | tRI-lINe SPRING 2008

tri-Counties Associationfor the Developmentally Disabled520 e. Montecito StreetSanta Barbara, CA 93103

NONPROFIt ORG.U.S. Postage

PAIDSanta Barbara

CA 93101

Permit No. 359

For more information please contact our executive office at: 805.844.7215

Tri-CountiesRegional CenterHeadquarters520 e. Montecito St.Santa Barbara, CA 93103telephone 805.962.7881toll Free 1.800.322.6994www.tri-Counties.org

As President of tCADD during the current fiscal year, I

have worked with colleagues to achieve Board committee goals and oversee expected outcomes for both our government Performance Contract and tCRC’s 2007 - 2009 Strategic and Performance Plan. Our Board and Regional Center management team have worked diligently to achieve desired results for persons with developmental disabilities on the central coast.

Our Plan has seven Focus Areas. I will comment on topics in a few Areas, including steps tCRC has taken in response to the rise in Autism and the launch of Self-Directed Services. As our executive Director Dr. Omar Noorzad discusses on page 2 of tri-line, the stakes have never been higher for ensuring that resources remain constant for the services and supports mandated through entitlement by the lanterman Act. this situation calls for ongoing Advocacy, one of the Focus Areas of tCRC’s Strategic and Performance Plan. Our Vice President, Richard Ring, has taken an active role locally and in Sacramento to educate and inform around the needs for housing, support for tCRC’s Operations budget and Plan goals for employment of persons served. He is joined by Board

members, tCRC staff and other stakeholders who are resolved to present a strong message about the needs of persons with developmental disabilities. Another Focus Area of the Plan is housing. Although living in a high-cost area makes this a difficult undertaking, we have shown our resolve to address housing needs of persons served. Under the leadership of Dr. Noorzad in collaboration with the Board, tCRC developed a Five -Year Housing Plan approved by the Board in March, 2008. Shelter, a safe and comfortable place to rest and call home, is a basic entitlement we seek to realize for all people served. We have seen an increasing number of persons with autism entering our system. Steps are being taken by the Department of Developmental Services (DDS) and tCRC to accommodate this growing population. DDS funded regional centers to hire Autism Coordinators and Clinical Directors. tCRC administered an Autism Survey in Fall 2007 to get feedback on services deemed most beneficial for children with autism and to determine the need for new services. tCRC is working with the schools, parents of children with autism, and Area Board 9 on Developmental Disabilities to improve services and supports through an Autism

task Force. We also continue to increase our presence in the medical and educational communities. Additional challenges also require attention. tCRC was one of the first regional centers to pilot the Self-Determination program and is now charged with implementation of Self-Directed Services by summer 2008. For more information on this important use of resources, search on the title “Self-Directed Services” at the DDS web site, www.dds.ca.gov. My thanks go out to every stakeholder in tCRC for your advocacy for services and supports for persons with developmental disabilities. Whether you work to provide these supports, receive supports, are a tireless family member or a concerned community member, I appreciate your involvement. We are all committed to achieving desired results that enable a quality life for the persons served.

All the best,

EDITOR & DESIgNHeather Wennergren

PRINTINgBoone GraphicsTRANSlATIONCarlos Cerecedo

PHOTOgRAPHYRob Robertson

Melissa Fitch

Potential members have business management, public relations, education or other business or non-profit experience. Family members of persons served by tCRC are encouraged to apply. Make a rewarding contribution to tCADD and help improve the quality of life for persons with developmental disabilities. Please contact Nancy Kavin [email protected] for more information, or visit our web site: http://www.tri-Counties.org/tcrc4/about-tcrc/tcadd/membership/

TOWN HAll MEETINgSCHEDUlE FOR 2008

May 21, 2008 ....... Simi ValleyJuly 16, 2008 .......Santa MariaSept 17, 2008 ..............OxnardOct 15, 2008 .........Atascadero

greetings from the Presidentby Stan Deakin, tCADD Board President

tCADD BOARD OF DIReCtORS

Stan Deakin, PresidentRichard Ring, Vice

President & treasurerNancy Kavin, Secretary

Sandra AldanaJustine Blevins

Sam CastilloBob Costello

Charles DevlinCathy FarrarJulie Kahn

Harriet levineDonna Moore

Kathleen RedmondKathy Reed

Call for Volunteers for the TCADD Board

BOARD MEETINgSJune 7 ................... 9:00 amJuly 11 ..................6:00 pmSeptember 6 ..... 9:00 am

in Santa Barbara


Recommended