TRIP for Salud y Vida Transportation for Rural Integrated health Partnership Participatory Approaches to Address Severe Mental Illness?
Session Objectives LearningObjective1:Increasedunderstandingofseverementalillness(SMI)andparticipatoryapproachestopromotecommunitypartnershipsandengagementforthedesignofappropriatehealthstrategiestopromotehealthoutcomesinSMIconsumers.
LearningObjective2:Listmethodstoenhancecommunityengagementandpromotequalityimprovement(QI)inmulti-levelinterventions.Beabletodescribe,patient,community,clinicandorganizationallevelchangesusedtopromoteSMIconsumeroutcomesandincreasequalityoflife.
Overview
Ruralsettingandreach
TRIPforSaludyVidaProgramModel
SocialDeterminantsofHealthforpopulationswithSevereMentalIllness(SMI)
VoicesLeadershipGroup
MethodsandPreliminaryFindings
Strategiestoengage,recruitandretainparticipantsinhealthoutcomesevaluation
Integrated Behavioral Health Model – TRIP for Salud y Vida
REAL, INC. SERVICE AREA
ConnectingSouthTexasCommunitiesandlocationsinbetween!
TheRural EconomicAssistance League, Inc. (REAL) is anon-
profit organization established in 1972 with the mission to
providesafe,caringandqualitycommunitycenteredservices
for the elderly, persons with disabilities and the general
publicbyassistingthemandtheir families inmaintainingan
independentandfulfillinglife.
MISSION & VISION STATEMENT The Rural Economic Assistance League, Inc. (REAL) and Board of Directors desire
to be “The Provider of Choice” to the constituents that reside within our service area. We assure these communities quality care, prompt response, and cost efficiency in our delivery of services. We do not commit fraud, abuse, neglect, or waste. Furthermore, we will not tolerate anyone who does. We believe in honesty, due diligence in provision of services, avoidance of waste
and the necessity of listening to our patients/clients and staff regarding any concerns that they may have. REAL, Inc. is an Equal Opportunity Employer and Equal Opportunity Housing Provider.
“Wherehelpingpeopleisouronlygoal!”
AdultDayActivityHealthServices
HomeHealthCare
Housing
Transportation
AddressingHealthOutcomesFocusonmorethantheindividual
• Placeeffects–ruralarea
• Transportation–publictransit
• Accesstoqualityhealthcareservices
• HealthLiteracy
• Cultureandlanguage
WhyTRIP?
Engagement Strategies: CBPR Approach
§ Acknowledgementofauniquesetof
stressorsandstrengths
withinacommunity
Rationale for a Community-Based Participatory Research (CBPR) Approach
Stressors
• Lackofaccesstohealthy,
affordablefood
• Lackofaccesstosafeplacesto
bephysicallyactive
• Exposuretoviolence,poorair
quality,illegaldumping
• Poorhousingconditions
• Discrimination
• Lackofaccesstoaffordable
healthcare
Strengths
• Knowledgeableand
committedcommunity
membersandleaders
• Resourcesandservices
providedbycommunityand
faith-basedorganizations
• Supportivesocialnetworks
• Engagedcommunitymembers
andorganizations
Theseconditionscontributetotheincreasinggapsinhealthstatuswithincommunities
Defining Community-Based
Participatory Research (CBPR)
Community-based participatory research is a partnership approach to research that:
§ Equitably involves community members, organizational representatives,
and academic researchers in all aspects of the research process.
§ Enables all partners to contribute expertise with shared responsibility and
ownership.
§ Enhances understanding of a given phenomenon.
§ Integrates knowledge gained with action.Israel, Schulz, Parker, and Becker, 1998
Methods
QuasiExperimentalDesign:3interventionclinics,2comparisonclinics
FocusonEngagementofVoicesLeadershipGroup
PartnerGoalsandFeedbackLoops
QualityImprovement
ConsumerFeedback
Enhanced Integrated Services
MovingbeyondIntegratedCaretofocusonhealthwithinthecommunitysettingtopromoteinclusion
HealthandWellnessClasses–DiabetesSelf-ManagementEducation
PhysicalActivity–WalkinthePark,WaterAerobics,Yoga,TaiChi
CookingClasses–LaCocinadeREAL,localshoppingtrips
Consumerdriventopics–Wills,funeralsandfinancialliteracy
Art&wellness–Paintinganddesign,crochet,artgallerypresentation
Understandingdataandresearch
Who participated over time
StudyArm Baseline
Sample
Target
Actual
at
Baseline
6month
Target
(15%
attrition)
Actual
at6
mos
12
month
Target
(15%
attrition)
Actual
at12
mos
Percentof
Retentionof
theEnrolled
Sample
Percent
of
Retention
Target
Intervention 250 302 213 205 180 211 69.8% 117%
Comparison 125 250 212 160 180 153 61.2% 85%
What did we learn?
Intheirownwords…
TRIPforSaludyVidaconsumers
Preliminary Results
DHP Depression
• Depressionscorestendedto
worsenforparticipantsatthe
controlsites,thescoresimproved
overtimeforparticipantsatthe
interventionsites.
• Theadjustedmeandepression
declined(improved)by-4.56
(95%CI:-8.59to-0.52)at6
monthsandremainedfairly
stableat-4.32(95%CI:-8.30to
-0.34,lowerthanbaselineat12
months.
DHP Anxiety
• DukeADscorestendedtoworsen
forcomparisonconsumers,the
scoresdeclined(improved)over
timeforconsumersatthe
interventionsites.
• TheadjustedmeanDukeADscore
declinedby-5.06(95%CI:-8.80to
-1.32)at6monthsandcontinued
todeclineto-5.83(95%CI:-9.50to
-2.16)lowerthanbaselineat12
months.
DHP Pain
• Painscorestendedtobestablefor
consumersatthecomparison
sites,thescoressignificantly
improvedforconsumersatthe
interventionsites.
• Themeanpainscoresfor
consumersenrolledatthe
interventionsitesat6months
werelowerby-12.38(95%CI:
-23.51to-1.25)and-13.44(95%
CI:-24.41to-2.47)at12months.
DHP Disability
• WhiletherewasnodifferenceinDHP
Disabilityscoresbetweenthe
interventionandcontrolsitesat
baseline(p=0.197),meandisability
scoresweresignificantlylowerfor
participantsenrolledatthe
interventionsitesat6and12months.
• Themeanpainscoresforparticipants
enrolledattheinterventionsitesat6
monthswerelowerby-26.76(95%CI:
-52.51to-1.00)and-15.45(95%CI:
-26.13to-4.76)at12months.
PHQ-9 Depression
• Bonferroniadjustedpairwisecontrasts
showednostatisticallysignificant
differenceindepressionatbaseline
betweentheinterventionandcontrol
sites(p=0.156).
• Consumersattheinterventionsitesalso
hadsignificantlylowerdepressionscores
thanparticipantsatthecontrolsitesat6
and12months.Thedifferenceat6
monthswas-2.67(-4.75to-0.59)points,
andthedifferenceat12monthswas
-2.77(95%CI:-4.83to-0.72)points.
Blood Pressure
Body Mass Index (BMI)
• Changesseeninindividualsmay
havebeenmaxedwiththe
inclusionofallconsumers.
• GiventhehigherBMIinthe
consumerpopulationandthe
riskfactorofoverweightinthe
SMIpopulationwewillcontinue
toexaminechangesinweight
andBMI.
• Thesubgroupanalysisis
planned.
Type 2 Diabetes Intervention Control
Follow-upN Mean
Std
DevN Mean
Std
Dev
Baseline
HbA1c 79 7.50 2.41 34 8.21 2.52
6Months
HbA1c 150 6.74 1.90 104 6.69 1.76
Changein
HbA1c41 0.22 0.78 15 -0.26 1.27
12Months
HbA1c 201 6.62 1.94 158 6.76 2.12
Changein
HbA1c63 -0.05 1.40 22 -0.04 1.33
• Datalimitations.
• DropsinHbA1cwereseen.
• Needtoexplorechangesin
thesubgroups
• Examinationofdifferences
andimpactinchangeover
timebetweenthe
interventiongroupadjusting
forEISparticipationmayyield
significantdifferences
betweenthetwogroups.
• Thesubgroupanalysisis
planned.
BRIEF 4-Item
Participantsattheinterventionsiteshada1.52
(95%CI:0.65to2.38)pointshigheradjustedmeanhealth
literacyscoresattime0thanparticipantsatthe
interventionsites,butthe
differencewasnotsignificant.
Overtimetheintervention
siteshad“lower”healthliteracypertheBRIEF,we
positthattheEISmayhaveimpactedassessments.
BRIEF 4-Item and Transportation Use
Levelof
UtilizationCoefficient StandardError z 95%CI
Low -0.23 0.67 -0.35 -1.54to1.08
Moderate -0.66 0.71 -0.93 -2.04to0.73
High -2.23 0.67 -3.31 -3.55to-0.91
VeryHigh -2.18 0.69 -3.18 -3.52to-0.83
Adjustedmeandifferencesbetweenlevelsofutilizationamongthosewho
usedthetransportationserviceandthosewhodidnotusetheservice
Health Literacy – eHEALS Assessment
Item Baseline(M) 12-months(M) Change
Iknowhowtofindhelpfulhealthresourcesonthe
Internet
2.88 2.62 -0.26
IknowhowtousetheInternettoanswermyhealth
questions
2.90 2.61 -0.29
Iknowwhathealthresourcesareavailableonthe
Internet
2.56 2.48 -0.08
IknowhowtousethehealthinformationIfindonthe
Internettohelpme
2.63 2.49 -0.14
IhavetheskillsIneedtoevaluatethehealthresources
IfindontheInternet
2.62 2.49 -0.13
Icantellhighqualityfromlowqualityhealth
informationontheInternet
2.47 2.41 -0.06
IfeelconfidentinusinginformationfromtheInternet
tomakehealthdecisions
2.50 2.36 -0.14
Strategies for Engagement
Strategies for Engagement Individuallevel–trustbuilding,voiceandrespect.CommunityHealthWorkerswerekeytoongoingengagementandreachofconsumers
VoicesLeadershipGroup–advocatesandchampionsoftheprogramwithinthecommunity.Engagementthroughoutandpointedtoneedsandchangesinprogramdelivery
Communitylevel–workingwithnewpartnersandengagingtheminservingapopulationwithSMI
Cliniclevel–integrationofclinicstaffintrainings,focusedonchangestoprogramsasneeded.Qualitychecksandgoalsetting
Organizationallevel–transportationdelivery,coordinationofEISandhiring,MentalHealthFirstAid
Summary
1. Theuseandintegrationofcommunityhealthworkersinthedeliveryofa
systematicinterventioninruralandclinicalsettingspointstoanopportunity
todesignandeffectivelyreachhighriskpopulations.
2. TheSMIpopulationisoftentimesisolatedwithinbothurbanandrural
settings;abehavioralhealthapproachthatimprovesaccessthroughset
transportationservicesappearstoimprovehealthandoutcomesovertime.
3. TheuseoflocalresourcestodeliverEISwasavaluetoboththecommunity
andtheconsumersenrolledintheTRIPforSaludyVidaprogram.
4. ThesustainabilityofprogramssuchasTRIPbenefitsfromintegrationof
multiplepartners.
Collaborating Partners CoastalPlainsCommunityCenter
CommunityActionCorporationofSouthTexas
KlebergCountyHumanServices–PaisanoTransit
RuralEconomicAssistanceLeague,Inc.
SouthCoastalAreaHealthEducationCenter