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  • 8/7/2019 UNC-DM February Newsletter-1

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    Volume 2, Issue 7 February 2011

    The mission of The UNC Dance Marathon is to unite the University, community and state in fostering emoti

    and nancial support that improves the quality of life for the patients, families and staff of N.C. Childrens Hospita

    Upcoming

    EvEnts

    Ashlyn S

    prEsEncE inthE hospita

    Tommy was a previously healthy 16-month

    old who was thought to have a virus, bu

    he in fact had a large brain mass. Tommy

    had surgery and was hospitalized for mor

    than 20 days. Hospitalization was difcul

    both emotionally and nancially for his fam

    ily. Tommys parents have other children a

    home and had to make many trips between

    home and N.C. Childrens Hospital. The Fo

    the Kids Fund provided them with a Walmar

    gift card and gas assistance.

    For thE Kids story

    Whats Up this

    month?Not just for a cure, a kid or a block

    UNC-DM, Relay For Life and Habitat for Human-ity teamed up for a collaborative fundraiser atKildares on Jan. 27.

    See Page 2

    Creaming the Crazies

    UNC and N.C. State fans joined together at theJan. 29 basketball game to try to raise more thanDukes Crazies Who Care.

    See Page 3

    Kid co-captain prolesEighteen current and former patients at N.C.Childrens Hospital will cheer on dancers at themarathon.

    See Page 4-5

    Energizing the event

    Moralers and volunteers signed up to participatein Februarys marathon, taking on the vital task ofkeeping dancers pumped up.

    See Page 6

    Summer fun for campers

    A UNC-DM grant sponsors two pediatric endocrinol-

    ogy patients to attend Camp Carolina Trails duringthe summer.See Page 7

    Just keep breathing

    A grant sponsored by UNC-DM supports the Chil-drens Lung and Asthma Center at N.C. ChildrensHospital.

    See Page 8

    A day for the kids

    The town of Chapel Hill will ofcially recognize

    UNC-DM and its work at N.C. Childrens Hospital onFeb. 11.

    See Page 8

    Mexico is famousfor the MexicanHat Dance. It'susually performedby two peoplewith a sombrero.The dance endswith a clap and ashout of "Ol!"

    I would rather die standingthan live on my knees!

    - Emiliano ZapataFeb. 3: Just Dance!:Join UNC-DM, BSM andCHispA at Players from10 p.m. to midnight.$5 for under 21, $3 forover.

    Feb. 4: Dodgeball Tour-

    nament:Check-in at4:45pm, tournament at5pm in Fetzer Gym A.Register online atuncmarathon.org. $3per person, 6 peopleper team.

    Feb. 10: Date Auction:Bid at Players for achance at a date withcampus celebrities.

    Feb. 11: UNC-DM Day:Support UNC-DM byvisiting stores and res-taurants in Chapel Hill.

    Feb. 18-19: The 2011

    UNC Dance Marathon:Visit dancers, moral-ers, volunteers, kidco-captains, familiesand committee mem-bers in Fetzer Gym andwitness the culmina-tion and impact of the

    2010-11 fundraisingefforts.

    At this months hospital social, patients and

    families got to enjoy playing with UNC cheer-

    leaders, men's soccer players, baseball play-

    ers and Rameses. Christian (above, rightloved being with Rameses so much that he

    asked for Rameses to say Hi to him when-

    ever he left. When Rameses left for good

    Christian followed him out for one last hug

    The athletes also visited all the rooms on the

    5th, 6th and 7th oors because many kids

    can't come to the Play Atrium. The patients

    loved taking pictures with the athletes.

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    February newsletter

    UNC-DM hosts a beNefit Night with RelayfoR life aND habitat foR hUMaNity

    Three of UNC-Chapel Hills big-gest fundraising groups teamed upfor a collaborative benet dinner at

    Kildares Irish Pub on Franklin Streeton Jan. 27.

    The UNC Dance Marathon, RelayFor Life and Habitat for Humanityhosted a benet dinner from 5 p.m.

    to 10 p.m. at Kildares.Ten percent of the proceeds from

    those hours were split between thethree organizations.

    This was the rst time that UNC-

    DM, Relay and Habitat have evercome together for a benet night.

    This time, no one had to choosewhich benet night to support be-cause choosing to eat at Kildaressupported all three organizations.

    I was incredibly excited about ourcollaborative event with UNC RelayFor Life and Habitat for Humanity,and it was obvious at the event that

    many other Carolina students feltthe same! said Sarah Beth Wilkison,overall coordinator for UNC-DM.

    All three groups recognized thateach one of their causes is importantand necessary, and the event wasa tribute to the groups support foreach other.

    This event isnt just for a cure, itsnot just for the kids, and its not justfor a block, said Kristel Harlacher,UNC Relay For Life fundraising chair.We are uniting as one to make a dif-

    ference.Will Thomason, a UNC junior who

    has been involved in all three organi-zations, said he was excited to see allthree groups team up.

    Thomason is a 2011 Relay For Lifeteam captain, 2011 UNC Dance Mara-thon dancer and Build a Block con-tributor.

    Its cool that these three organi-

    zations are working together becauthey all touch a different part campus yet have equally importaservice goals, he said.

    This is a great way to get all sdents involved in service. Essentiathey are serving the community doing something they would hadone anywayseat dinner.

    Students showed overwheling support for the three groups Kildares, waiting an hour in a lout the door to get in.

    Im so glad we pursued this opptunity to collaborate this year, aI hope to see the event continuegrow and become a tradition, Wison said.

    For more information on UNC Hatat for Humanity, visit studentorunc.edu/habitat.

    For more information on UNC ReFor Life, visit www.uncrelay.org.

    Hannah Harr

    Fundraising with FidoA chocolate lab puppy is auctionedoff at the 13th annual Benet

    Reception for UNC-DM, held atthe Franklin Hotel on Jan. 28. Theevent included a live and silent auc-tion, as well as a keynote speechfrom Jessica Hillthe mother ofKid Co-captain Ciana. Also in atten-dance were Kid Co-captain AshetonAyottes parents, who won thepuppy.

    Molly Sutherla

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    February newsletter

    basketball faNs CoMpete with DUketo Raise MoNey foR the kiDs Emily Tracy

    Emily Lu

    Rameses crowd-surfs in the Smith Center student section during the N.C. State mens bask

    ball game, when UNC-DM committee members competed to raise more money than Duke.

    The Third Annual Smith CenterChildrens Challenge on Jan. 29 com-

    bined two favorite pastimes at UNC:raising money for N.C. ChildrensHospital and beating Duke.The goal of the event was to raise

    $1 per person during the UNC mensbasketball game against N.C. Statein the Dean E. Smith Center to raisethousands for the hospital.The event, sponsored by UNC Dance

    Marathon, competes against theCrazies Who Care, who raise money

    for Duke Childrens Hospital and theEmily Krzyzewski Center.The competition is to see which or-

    ganization can raise the most moneyby percentage for their respectivehospitals.It is wonderful to see this com-

    petitive spirit channeled into makinga huge impact on the patients andfamilies of N.C. Childrens Hospi-tal, Overall Coordinator Sarah BethWilkison said.

    Freshman Alyssa Patel said thatraising money at the basketballgame was easier than canning atfootball games in the fall.Everyone wants to beat Duke

    even State fans, Patel said. Its

    different from canning at otherevents, like football games, becausethe chance of beating Duke gives awhole new sense of camaraderie tothe fundraising.Although fans were asked to give

    $1, many were donating more.Terry Smith, mother of a UNC grad-

    uate, donated $2 to UNC-DM.I always donate to a good cause,

    but in this case, it was especially be-cause I hate Duke, Smith said.The Crazies Who Care will be can-

    ning at their home game against N.C.State on Saturday. The winner ofthe competition will be announced

    shortly thereafter on UNC-DMs bloBethany Nelson, Fundraising Pr

    ects committee chair, said twinner will be determined by tamount raised per person becauDuke can only raise funds in thstudent section. UNC-CHs funds wbe calculated as dollars raised pattendee and Dukes will be callated as dollars per student.

    In past years we have not reafollowed up with who has won tcompetition, she said. This yethere has been a huge increase the publicity of the event so we aplanning on announcing the winne

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    February newsletter

    o Cn i DncName:Age:About me:

    6

    Ashlynn3Ashlynns favorite color red and her favorite Disnprincess is Sleeping BeauShes a typical middle chwho goes with the ow.

    iv yu

    brName: Nikaia

    5

    w fnn N ZndName: Betzayda

    hunrhunr h

    Name: Colleen3

    Dr Dr l n purRcName:

    2

    Tifany Gonzales

    b i evr (Ruc ) CName:Age:About me:

    1

    Shayla5Shayla was a bone marrowtransplant patient at N.C.Childrens Hospital. She likiCarly, pink and purple, Jutin Bieber and dancing.

    A laughing child and a crying parent,

    Overwhelmed with joy, gratitudes apparent.

    One night is nothing in the span of our existence,

    But lives are touched from our 24 hour persistence.We rave, and dance and act like were on speed,

    But by 4 a.m. its caffeine that we need.

    Dance Marathon is much more than a night of no

    sleep,

    Its passion, hard work and bonding with friends who

    we keep.

    Carolina is huge, with a ton of organizations to enjoy,

    but joining DMs better than spending a day with Roy.

    It may be stressful or overwhelming throughout the

    year,But the kids put life into perspective theyre just

    happy to be here.

    Whether its stufng my face with mounds of ice

    cream,

    Or line dancing and singing like a crazy person to the

    extreme,

    Dance Marathon has my heart and it always will

    The number one spot on my favorites list it will for-

    ever ll.

    The best part though, is not the golf tournament orpit sitting,

    Nor standing on my feet for hours without quitting,

    Nor mail drop, or canning or tacky holiday sprint,

    Nor painting banners on Sunday in my best print.

    Of course visits to the hospital and DRW are exciting,

    And we are anticipating a potential Ellen sighting,

    But its about the kids, for the kids, and kid inspired.

    DM to me means love, a love thats never tired

    Of course its an unexplainably crazy ride with unex-

    pected twists,This is my Carolina experience its why my love for

    the school exists.

    That last hour of the marathon makes everything

    worth it,

    But so does a year of backstage work, I must admit.

    They say its your best one night stand,

    But the meaning of this phrase I would like to expand.

    Forget about one night stand, DMs about love.

    Its crazy, happy, determination and all of the above.

    Dance Marathon

    4

    UNC Meet yoUR 201kiD Co-CaptaiN

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    i w M Zr bc nfr, w ir CrunName:Age:About me:

    15, 16

    February newsletter

    Czc t snr C ouName:Age:About me:

    Jake2Jake was born eight weeksearly. He spent two weeksin the Newborn Critical CaUnit. Jake loves to play witblocks. Hes a true Tar Hee

    and loves football games!

    Czc t snr C ouName:Age:About me:

    Rachel11When Rachel was born at 2weeks, she weighed only 1

    pound, 15 ounces. She readevery chance she gets. Ractakes jazz, tap and ballet!

    23, 24

    grc lnn, wgrvn pr Uu

    Name:Age:About me:

    Jack7Jack likes drawing and matHis favorite part of last yeamarathon was talking to thdancers while onstage!

    22

    20, 21

    s yur tr inturName:Age:About me:

    Ciana5Ciana likes pink and MickeyMouse. She is dramatic andcreative, and loved gettingletters from dancers last ye19

    tm amrc, h on MhrzName:Age:About me:

    Name: Asheton10Asheton was born prematuweighing 1 pound, 5 ounceShe plays the piano and lovThe Beatles.17, 18

    tundr frm Dn Undr,g CName:Age:About me:

    Emalie4Emalie loves SpongeBobSquarePants! She has CysticFibrosis. She loves to color,draw and ride her bike.13, 14

    sc yu DrName:Age:About me:

    12

    s DjuName:Age:About me:

    11

    Mmm, Dn sbznName:Age:About me:

    9,10

    s M NmName:Age:About me:

    8

    kn D i?Name:Age:About me:

    7

    Abigail11When Abigail was born at26 weeks, she weighed 2

    pounds, ounce. Now sheson a jump rope team and cando all sorts of things!

    William6 monthsWilliam has a rare geneticdisorder and doctors saidhe wouldnt make it to 6months, but he has! He loveshis purple monkey, and heloves to smile and laugh!

    Karolyne10Karolyne is from Clayton,N.C. She has severe asthma.She loves singing, reading,drawing and taking care ofher pet sh.

    Alexia2Alexias mom says that sheis a tomboy who prefers carsover dolls. According to hermom, shes the happiest

    little girl in the world.

    Sage6Sage has Cystic Fibrosis. Heloves boogie boarding, play-ing the Nintendo Wii and do-ing fast 360s on his tricycle.

    Marquese4Marquese has Leukemia anhas had two bone marrowtransplants, and loves to

    play with action gures.

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    February newsletter

    Ashlyn

    Operations committee member Bobby Nieland stands in the Pit to recruit volunteers and moralers to support the 1,600 dancers at the marath

    MoRe thaN 500 stUDeNts pleDge to sUppoRtDaNCeRs at febRUaRys MaRathoN Victoria CookUNC Dance Marathon committee

    members took a stand once again inthe Pit last month to recruit morecrucial participants in the upcomingmarathon.Moraler and Volunteer Recruitment

    Week began Jan. 18 and ended Jan.21.During this time, more than 500

    students signed up to help at themarathon, where 1,600 of their fel-low students have pledged to standfor 24 hours.Moralers signed up to help keep the

    dancers pumped and excited in sev-

    en-hour shifts. Volunteers signed upto help be the backbone of the mar-athon for three-hour shifts, wherethey will make sure that things areorganized and run smoothly.UNC-DM Overall Coordinator Sarah

    Beth Wilkison said that moralers andvolunteers are crucial to the successof the marathon.Moralers help make this 24-hour

    event the true celebration that itis meant to be by bringing excite-

    ment and enthusiasm to every hourof the marathon, even as dancersgrow tired and sore, she said in ane-mail. The appreciation dancersand committee members have forthe energy that moralers bring is im-mense.Volunteers are equally important

    to making sure that the marathonruns smoothly and is enjoyable forthe dancers. Although their role isbehind-the-scenes, volunteers areso important to making this eventhappen year after year.Sophomore Ashton Songer was a

    dancer at the marathon last yearand said she really appreciated hav-ing all of the moralers there.I actually went to the marathon

    sick as a dog but determined that Iwas going to stick it out, she said.I kind of got better, I think with theadrenaline and just everyone comingin all the time to pump you up anddo stuff. It was the best when youhad the (moralers) come and in yourface and getting you excited and

    dancing and going crazy.The efforts and endless support

    last years moralers inspired junBeth Thompson of the FundraisProjects committee to give back signing up to morale for the 20UNC Dance Marathon.They kept coming up to me a

    would help get my energy level baup by reminding me of how great tUNC-DM cause was and how much dancing meant to the kids who beet from the fundraiser, she said

    an e-mail. They really helped remember why I decided to dance

    the rst place.There are still spots available, a

    registration will remain open unFriday, Feb. 5.With the nal recruitment proc

    being completed, Wilkison said sis excited for the Marathon.I cannot wait to celebrate w

    everyone who has contributed to t2011 UNC Dance Marathon all thwe can accomplish together, ssaid.

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    February newsletter

    Cha Cha Slide with SLIMentors and mentees of the Schol-ars Latino Initiative do the ChaCha Slide at the SLI Mini-Marathonin Siler City, N.C. The Outreach

    committee collaborated withprogram participants to create anevent where the students learnedmore about UNC-DM, danced, madecards for kid co-captains and madegoody bags for dancers. The eventwas a great start to a new relation-ship between UNC-DM and a studentgroup.

    Courtesy of Diana Igles

    spotlight gRaNt: peDiatRiC eNDoCRiNologyMargot Pien

    Summer camp makes lasting mem-ories swimming in the lake, play-ing games of Capture the Flag andbonding with other campers. Theseare staples of many childrens sum-mer vacations.

    Unfortunately, for some patientsand families at N.C. Childrens Hos-pital, tight nances make attending

    camp impossible.But thanks to a grant provided by

    the UNC Pediatric Endocrinology Di-vision at the hospital and The UNCDance Marathon, two diabetes pa-tients were sponsored to attendCamp Carolina Trails this year.The week-long overnight camp in

    the Sauratown Mountains in King,N.C., is run by the American Diabe-tes Association and offers its shareof enjoyable sports and activities.About 150 boys and girls betweenages 9 and 17 attend.Camp Carolina Trails offers typi-

    cal camp activities and counselors,along with a complete medical staff,which includes pediatric endocri-nologists, physician assistants, reg-istered nurses and registered dieti-

    tians to meet campers needs.Many studies have shown that

    diabetic children who participate indiabetes camp feel that they havea better support system and in turnimprove upon their own coping skills

    and problem-solving skills in regardsto their chronic disease process,said Dr. Nina Jain, coordinator of thegrant.The UNC-DM Pediatric Endocrinol-

    ogy grant was created one year ago.The camp scholarship is named af-ter Mary Ann Morris, a pediatric en-docrinologist who has treated manychildren in the Chapel Hill area, Jainsaid.

    In past years, Jain said that prac-titioners and a division committeehave helped decide which childrenfrom underprivileged homes shouldreceive the grant.The committee chose children who

    had actively participated in theirdiabetes care and management andwould likely benet from attending

    a camp dedicated to children withdiabetes, Jain said.This year, the hospital staff will ask

    patients and parents to make tnominations.I believe that participation in a

    abetes camp gives children the codence to act like other healt

    children in a setting where th

    are no longer different than thpeers, Jain said.By being around other children s

    fering from diabetes, patients fa better sense of belonging acan even see improvements in thmedical lives, she said.The emotional support and co

    dence that they gain during th

    experience generally translates improved self-management of th

    diabetes, she said.Kayleen Neer, one of the studechosen to receive the grant this yesent a letter to Jain after the camwhere she said she made frienhad fun and ate great food.

    Being with so many kids my athat are going through the sathings as I am gave me a whole noutlook for my life and future, Kleen said. I no longer feel so ilated, alone, and misunderstood.

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    spotlight gRaNt: ChilDReNs lUNgaND asthMa CeNteR Jeffrey Sullivan

    Jeffrey Sulliv

    Dr. Lisa Stoltenberg educates asthma patien

    Breathing is the most basic func-tion of life. Upon our entrance to

    this world, it is the rst thing thedoctors look for, and before we leavethis world, it is the last thing we tryto sustain.

    This is a scary thought to a par-ent who wakes up in the middle ofthe night with a child who cannotbreathe. Fortunately, for these par-ents, N.C. Childrens Hospital has re-sources to help them.

    The Childrens Lung and AsthmaCenter, under the Division of Pediat-

    ric Pulmonology, takes care of chil-dren with lung diseases and disor-ders across North Carolina.

    (The center) is striving to improvethe care for children across the stateby providing excellent clinical carefor children with respiratory diseas-es, as well as family-centered careand cutting-edge research, said Dr.Stephanie Davis, chief of pediatricpulmonology.

    The center admits a lot of cysticbrosis and asthma-related cases.

    They are also experts of bronchosco-

    py, (a method of assessing airways)handling more than 600 cases a year

    the most in the Southeast, Davissaid.One way they are working to meet

    their goal of family-centered care isthrough the help of Lisa Stoltenberg,asthma coordinator of the pediatricpulmonology division.

    A nurse for six years prior to com-ing to N.C. Childrens Hospital, Stol-tenberg spends time with every fam-ily who passes through the centerwith asthma-related issues.

    Her primary mission is to educatethe parents and families of the chil-dren.

    This really gives me an oppor-tunity to explore a different side ofnursing, she said. This side is moreabout education.

    The rst year of Ms. Stoltenbergs

    position was funded by a grant fromUNC-DM.

    Nurses are so busy on the oor,

    she said. This gives me the chanceto give more to parents whove got-ten very little previous education.

    Notable Clinical ProgramsCystic Fibrosis

    Primary Ciliary Dyskinesia

    Pediatric and Infant Lung FunctionLaboratory

    Bronchoscopy

    Lung TransplantationAirway Disorders

    Asthma/Allergy

    Technology Dependent Children

    The Centers current research projects in cystic fibrosis, primary ciliary dyskinesasthma and the effect of air pollutants on tlungs in children.

    Multiple clinical trials are conducted in tcenter. The clinical specialists are the leinvestigators nationally for many of thestudies.

    The largest student-run fundraisingorganization at UNC-Chapel Hill nowhas its own day in Chapel Hill.The town will recognize The UNC

    Dance Marathon and its work at N.C.Childrens Hospital on Friday, Feb.11, 2011, the day Chapel Hill MayorMark Kleinschmidt has proclaimedUNC Dance Marathon Day.The UNC Dance Marathon provides

    a great service locally, said MayoralAide Mark McCurry. Its a greatavenue for service for UNC studentsto get involved to help those who aremost vulnerable in our community,which are our sick children. Thats

    something denitely worthy of

    Chapel hill to ReCogNiZe UNC-DMs effoRtsOlivia Barrow accommodation and recognition.

    As part of the nal push before

    the marathon, UNC-DM is organizingpercentage days events at manyof the towns businesses on itsdesignated day.

    Weve lined up every restaurantin Chapel Hill to contact, and weregoing to see what comes of it,said Bethany Nelson, chair of theFundraising Projects committee.Its going to be a big project, but itcould have a big reward.UNC-DM relies on local businesses

    to join in the year-round fundraisingeffort and to help get the communityinvolved.

    A member of the Outreach

    committee heard about a UNC-week in Chapel Hill several yeago and thought it would be event worth bringing back, but onsmaller scale.One of my committee memb

    took it upon themselves to e-mthe mayor, and they got a responsesaid Outreach Chair Katie Dight.The Outreach committee th

    passed the project on to tFundraising Projects and CommunEvents committees, who will sttalking to businesses this week abothe new opportunity.We do percentage nights on

    a month, but weve never do

    something like this, Nelson said.

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    February newsletter

    Aac

    All That JASBen and Jerry'sBlackhawk Hardware

    Cakes! By Abby PoeskeCarolina Athletic

    AssociationCarolina Dining Services

    Chi OmegaChi Psi

    Chick-l-A of University Mall

    CignaCurves of CarrboroDelta Delta DeltaThe Franklin Hotel

    Golf GalaxyGranville Towers

    Interfraternity CouncilKaplan Test Prep

    The Loop Pizza Grill

    Maitland Law Firm

    McIntee Fusaro &Associates, PLLCPerformance Porche

    The Preserve at Jordan LakeSaffron

    Sherwin WilliamsSigma Sigma Sigma

    Vitamin WaterThe Warehouse Apartments

    Dance MarathonUNC thanks all of our sponsors for their generoussupport in our efforts for N.C. ChildrensHospital.

    Grant Spotlight: Beacon

    Child and FamilyProgram

    Marathon Results

    * If you have any questions, comments or concerns contact 20Publicity Chair Rebecca Brenner at [email protected]

    next issue


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