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Update on Health Information Exchange Better Health Conference Allan Hackney June 6, 2019
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Page 1: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Update on Health Information ExchangeBetter Health Conference

Allan Hackney June 6, 2019

Page 2: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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Today’s Topics…

1. HIE entity

2. HIE governance model

3. Trust Framework

4. Use Cases

5. Timeline and next steps

Page 3: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Health Information Exchange (HIE) Entity

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Statewide stakeholder engagement identified the need for trust:

• “Neutral” – no participant in the services is advantaged over any other

• “Trusted” – the services are overseen by representatives reflective of the participants

Incorporating a non-governmental entity to ensure stakeholder buy-in:

• Non-profit, public good entity• Will deliver the core services to manage

identity and facilitate health data exchange• Adapting a trust framework that sets forth

stakeholder engagement

Establishing a Delivery Vehicle

HIEEntity

Page 4: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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HIE Governance and Trust Framework

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Entity Management

Entity Operation Advisory

Committee

Entity Board

BYLAWS

Data Stewardship& Governance

Issue Remediation Privacy

Technical, Operations, Cybersecurity

Use Case

(Role = Fiduciary)

(Role = Self-Regulation)

The HIE Trust Framework establishes the Operations Advisory Committees:

• Created in the spirit of “Neutral and Trusted”

Qualified Trusted Data Sharing Organizations may designate members of the HIE’s Operations Advisory Committees

Entity Management will rely upon the Operations Advisory Committees to guide priorities and address concerns

HIE Board has ultimate fiduciary governance authority

• Control is held by non-state board members

Page 5: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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Trust Framework – Legally Connecting to the HIE

Step Two: Execute Use Case Exhibits (UCEs) to share information

Step One:Execute one of the following agreements to join the network:

(1) Qualified Data Sharing Organization Agreement (QDSOA) or(2) Simple Data Sharing Organization Agreement (SDSOA)

Legally Connecting is a Two-step Process…

Page 6: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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HIE Organization AgreementsHIE Organization Agreements createTrusted Data Sharing Organizations

Both agreements spell out basic business and HIPAA Business Associate terms:

• Note: no data is shared by executing these agreements!

Difference between Simple and Qualified agreements:• SDSOA and QDSOA cover all the same terms, but…• QDSOA can be modified to unique issues, e.g.:

• Cyber liability limits• Statutory constraints

• QDSOA participants may designate individuals to participate in HIE operational governance

Trust Framework creates a highly-modular method toparticipate in the HIE!

Page 7: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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A Use Case in general is the interaction between a system and the users of that system to produce results of value

HIE Will Operate Based on Use Cases

Defines the reason for the Use Case

Diagrams the flow of data

Explicitly defines the data content and transaction rules

Lays out explicit permissible uses of

the data

Defines service level expectations for the

Use Case

Spells out responsibilities for both senders and

receivers

Technical specifications are

referenced

Unique requirements are explicitly defined

Page 8: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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HIE’s can facilitate many types of use cases…

• Public health reporting• Genomics / precision medicine• Research / clinical trials• Quality measurement (clinical and

cost)• Identity and Care Mapping• Disability determination• Life insurance• Lab orders / results• Image exchange• Opioid monitoring

• Encounter Alerts• Immunizations• Referral Management• Transitions of Care• Clinical encounter notifications• Medication Reconciliation• Chronic Care Management• Advance Directives• POLST/MOLST• Consumer-mediated exchange• Emergency super-utilizers

Green = CT high priority

Health Information Exchange (HIE) Entity?

Page 9: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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HIE Timeline

Page 10: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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Key Takeaways…

1. HIE Entity and Trust Framework guiding principle: “Neutral and Trusted”

2. Trust Framework is highly modular…organizations can choose (and change) the extent of their participation according to their needs

3. The HIE will be organized around Use Cases

4. Data is only shared by signing on to one or more Use Cases

5. Qualified Trusted Data Sharing Organizations may participate in the operational governance of the HIE

We are seeking early adopters to participate in the initialOperations Advisory Committees!

Page 11: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

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Health Information Technology Office:Allan Hackney, [email protected]

Health IT Office Website:https://portal.ct.gov/OHS/Services/Health-Information-Technology

Health Information Alliance, Inc. (pending):Sabina Sitaru, [email protected]

Health Information Alliance Website:Coming Soon!

Contacts

Page 12: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Journey on the Path to Building a Medication Reconciliation Use Case

Thomas P. Agresta M.D., MBI

6/6/2019

Page 13: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Objectives• Define Medication Reconciliation

• Describe the Office of Health Strategy (OHS) & UConn Health’s Medication Reconciliation (Med Rec) work

• Describe findings and next steps for CT Med Rec work & HIE Use Case Development

Page 14: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Why Medication Reconciliation?To Avoid MED WRECK

• Medication Errors are Harmful and Expensive– Continuing to take medications discontinued– Taking two similar medications (blood pressure, diabetes)– Not starting or continuing a medication– Using over the counter medications and supplements

• Many are related to incorrect med lists– Multiple Clinical and Pharmacy providers with different HIT systems– Interoperability between systems is problematic– Patients and families with different formats to track current meds

(electronic, handwritten, APPS etc..)

Page 15: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Why HIE for Med Rec?• Getting A Correct Medication List is Complicated

– Technology helps and hurts• > 80% of Providers use an EHR – But they are not fully interoperable• ePrescribing – the norm in CT, including most controlled substances

– No more handwritten prescriptions– Introduces unintended errors, difficulty with de-prescribing

• Health Information Exchange– Tools to consolidate medication lists from several sources– Yet interoperability between systems is limited– Information & Cognitive Overload

• New Interoperability guidance from CMS and Office of National Coordinator– Emerging standards for interoperability– Vendors and Standards agencies working on improving electronic data sharing

• Connecticut has a perfect eco-system to try and introduce innovation– Small state with no legacy HIE infrastructure to deal with

Page 16: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

What is Medication Reconciliation “Med Rec”

Medication reconciliation is the process of comparing a patient's medication orders to all of the medications that the patient has been taking. This reconciliation is done to avoid medication errors such as omissions, duplications, dosing errors, or drug interactions (Joint Commission)

• This process comprises five steps: • (1) develop a list of current medications• (2) develop a list of medications to be prescribed• (3) compare the medications on the two lists• (4) make clinical decisions based on the comparison• (5) communicate the new list to appropriate caregivers and patientBarnsteiner JH. Medication Reconciliation. In: Hughes RG, editor. Patient Safety and Quality: An Evidence-Based Handbook for Nurses. Rockville (MD): Agency for Healthcare Research and Quality (US); 2008 Apr. Chapter 38. Available from: https://www.ncbi.nlm.nih.gov/books/NBK2648/

Page 17: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Background/Timeline

Summer2017

12/2017 –9/2018

OHS MRP

Workgroup

CT HIE: Office of Health Strategy (OHS)

CancelRx Workgroup

2/2019

CancelRx Report

Med Rec Hackathon

5/20186/2019

4/2019

OHS MRP Report

6/2019

Develop HIE Use Case

6/2019-9/2021

Help Us

Page 18: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Engagement• CancelRx Workgroup

– ~ 50 participants– electronic deprescribing

• Medication Reconciliation Hackathon = 84

• OHS MRP Workgroup– 22 Members, many other

participants

Page 19: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Stakeholders & Workgroups

CancelRx Workgroup 15+ Orgs:

Yale, Trinity, UConn, St Joseph, Hartford Health, CVS, Surescripts, NCPCP, CT Pharm Association, CT VNA, State agencies, EHR and Pharmacy Vendors

Diverse group CMIO CIO PharmD MD Students

OHS MRP Workgroup Experts in Polypharmacy Experts in Medication Reconciliation Representative of DCP Pharmacists Prescribing Practitioner Health IT Advisory Council

representative –Consumer Advocate CancelRx expert Legal expert LTPAC representative Payer representative Pharmaceutical representative Hospital representative State Representation- DSS & DHMAS

Page 20: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Preliminary MRP WG Findings• 1. Best Possible Medications History (BPMH)

• Incremental approach, increasing use of technology as able• 2. Patient Engagement

• Patient-centered, evidence-based, usable tools and education• 3. Medication Reconciliation Process Improvements

• Enable best practices from Joint Commission• 4. Team Approach

• Solutions should permit teams to share data / responsibilities• 5. Deprescribing

• Tools, processes and policies should facilitate appropriate deprescribing• 6. Implementation and Adoption of CancelRx

• Facilitate the ability to electronically cancel prescriptions

*Please note these are still under review and require final approval of the group

Page 21: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Preliminary MRP WG Findings• 7. Technology

• Incremental approach, leverage emerging technology appropriately add analytics and decision support

• 8. SUPPORT Act Funding Planning & Design• Leverage opioid reduction funding and planning

• 9. Aligned Policy• Ensure payment reform, medication safety quality measures, privacy

and security policies are aligned• 10. IAPD Funding - Planning/Design Process

• Secure funding for design and implementation of MRP recommendations as part of HIE funding from CMS

• 11. Continuation of the MRP Work Group• Review construction, process of workgroup to align with outcomes

*Please note these are still under review and require final approval of the group

Page 22: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Next Steps• Publish a MRP White Paper and finalize

recommendations to legislature

• Begin Creation of Med Rec Use Case for HIE

• Develop Business, Functional and Policy Requirements for Medication Management Service

• Structure the set of recommendations to facilitate the design of technical infrastructure for HIE

Page 23: Update on Health Information Exchange Better Health Conference · 2019-06-10 · Health Information Exchange (HIE) Entity 3 Statewide stakeholder engagement identified the need for

Contact

UConn Health Center for Quantitative Medicine

Thomas P. Agresta, MD, MBI Clinical and Informatics Advisor to the HITO

[email protected]


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