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8/14/2019 Usability Guidance for Improving the User Interface and Adoption of Online Personal Health Records
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UsabilityGuidanceforImprovingtheUserInterfaceandAdoptionof
OnlinePersonalHealthRecordsKirstenPeters,M.S.MichaelNiebling,M.S.CassandraSlimmer,B.S.ThomasGreen,M.S.
JaysonM.Webb,Ph.D.RobertSchumacher,Ph.D.
UserCentric,Inc.
February2009
UserCentric,Inc.
2TransAmPlazaDr.-Suite100
OakbrookTerrace,IL60181
+1.630.320.3900
www.UserCentric.com
Copyright2009UserCentric,Inc.
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Version 1.1 Copyright 2009 User Centric, Inc. 2
RevisionHistory:
Version1.0: Initialrelease
Feb2,2009
Version1.1: Section4.4:AddedFactorAnalysistoUSEsurveydata.Feb24,2009
Sections4.3-4.5:Correctedstatisticalreportingandclarifiedsomeofthe
languagetoreduceconfusionsomereadershavereported.Therewereno
resultingmaterialchangestofindingsorconclusions.
Note: InconversationswiththeteamfromMicrosoftatthe2009TEPR
ConferenceinPalmSprings,UserCentricbecameawarethatMicrosoftdoesnot
claimorpromotethatHealthVaultisaPHRperse.Microsoftconsiders
HealthVaultarobustdataplatformwithwhichthird-partyPHRsandothermedical
informationsourcesinteract.Nevertheless,manyintheindustryandmedia
considerHealthVaultsuserinterfacetobeaPHRandoneworthyofevaluationandcomparison.
TechnicalContact:
RobertSchumacher,Ph.D.2TransAmPlazaDr.-Suite100
OakbrookTerrace,IL60181
+1.630.320.3900
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Version 1.1 Copyright 2009 User Centric, Inc. 3
UsabilityGuidanceforImprovingtheUserInterfaceandAdoptionofOnline
PersonalHealthRecords
1.Abstract
DuringDecember2008andJanuary2009,theuserexperienceresearchfirmUserCentricconductedan
independentcomparativeusabilitystudyoftwoexistingonlinepersonalhealthrecordapplications,
GoogleHealthandMicrosoftHealthVault.(NeitherGooglenorMicrosoftcommissionedorparticipatedin
thisstudyinanymanner.)Duringthisstudy,30participantscompletedkeytasksusingeachPHR
applicationandprovidedqualitativefeedback,ratingsandpreferencedataonfivespecificdimensions:
Overallusability,utility(usefulnessoffeatures),security,privacyandtrust.Participantsperformedupto
seventasksonbothGoogleHealthandMicrosoftHealthVault,whichincludedthreetasksthatexplored
eachapplicationsuniquefeatures.Midwaythroughthestudy,athirdPHRapplication,
MyMedicalRecords.com,wasaddedtogatheradditionalqualitativedata.
ThemajorityofstudyparticipantsfoundPHRstobeusefulandstatedthattheyhadaninterestinbuilding
theirownPHRsafterthestudy.Overall,participantsindicatedthattheyfoundGoogleHealthmoreusable
becausenavigationanddataentryofhealthinformationwaseasierthanontheotherapplications.
ParticipantssaidthattheGoogleHealthapplicationutilizedmorefamiliarmedicalterminologyand
providedapersistenthealthinformationprofilesummary.
Basedonananalysisofthestudydata,UserCentrichasidentifiedthefollowingtrends:
Usability
Overall,participantslikedhowtheGoogleHealthinterfaceallowedthemtoquicklyentermedical
information.Thelefthandnavigation,tabs,andprofilesummaryallcontributedtoafairlysmoothuser
experiencefordataentry,whichisacriticalPHRtask.However,therewasstillroomforimprovement.
Participantshadtroubleattachingdatestohealthinformation,figuringoutwheretostart,andfinding
wheretheycouldaddanotherfamilymember.
Ingeneral,participantshadmoretroublewiththeMicrosoftHealthVaultinterface.Themosttroublesome
elementsweretheconfusingnavigation,thepresentationofalltermsinmedicaljargon,andthe
inconsistencybetweendifferentdataentryelements.However,reactiontoMicrosoftHealthVaultwasnot
completelynegativeeventhoughtheystruggledtoentertheirhealthinformation,severalparticipants
stillreactedfavorablytotheveryhighlevelofdetailthesystemallowedthemtoenter.Inaddition,
participantslikedtheabilitytoadddetailstoanitemimmediatelyafteraddingtheitemitself.This
representedanefficientflowthatGoogleHealthdidnotprovide.
Utility
ParticipantsfoundPHRstobefairlydesirablebytheendofthestudy.ThePHRsbaselinefunctionality
wasappealing,andbothGoogleHealthandMicrosoftHealthVaulteachhadafewwell-received
exclusivefeatures.
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GoogleHealthspreferenceonthisdimensionislikelyduetotwofactors.First,participantssometimes
seemedtoconfuseutilitywithusability,eventhoughresearchersspecificallyaskedaboutusefulnessof
features.This,alongwithGoogleHealthsbettereaseofuse,wouldexplainashiftinparticipantsutility
preference.Second,GoogleHealthincludedthehighlydesirabledruginteractionfeature,whichwas
rankedmostappealingoutofallthefeaturesinthepost-testquestionnaire.Thiswastheonlyoutstanding
featureamongthesixPHR-exclusivefeatures,soitmayalsohaveboostedtheperceptionofGoogle
Healthsutility.
Security,PrivacyandTrust
ThekeycontributorstoMicrosoftHealthVaultsmorefrequentpreferenceonsecurity,privacyandtrust
wereastrongbrandimage,professional-lookingvisualdesignandahigherperceivedinformation
content.
However,eventhoughparticipantsmorecommonlypreferredMicrosoftHealthVaultforthesedimensions,
whenratingthetwoPHRstheyscoredGoogleHealthalmostequallyashighly.GoogleHealthshigh
ratingislikelyduetoitsbrandreputationanditsup-frontpresentationofthetermsofuseandlegal
agreements.Oneimportantnegative,though,wasGooglesstrongpositioninginthesearchande-mail
domains;itislikelythatthiscontributedtoMicrosoftHealthVaultsoverallpreferencehere.
Overall
UserCentricscomparativestudyfoundthatneitherGoogleHealthnorMicrosoftHealthVaultwereperfect
applications;eachhadflawsintheuserexperiencewhichwereseentoreduceparticipantswillingnessto
adoptPHRtechnology.However,participantspreferredGoogleHealthoverMicrosoftHealthVaultonthe
whole,mainlyduetoGoogleHealthsgreatereaseofuse.Althoughfeatures,security,privacyandtrust
certainlydidinfluenceparticipantsoverallevaluations,itiscriticaltonotethattheirmajordifficultieswith
bothapplications-andtheirstrongestcriticisms-wererelatedtotheuserexperience.Improvementsto
theuserexperiencethereforerepresentthelargestopportunityforimprovingthepatientsexperiencewith
aPHR.
Basedonthisusabilitystudy,UserCentrichasidentifiedseveralbestpracticestobeincludedina
workingmodelforPHRinterfacesthatfacilitatesuseradoption.
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2.Background
InJanuary2009,PresidentObamaannouncedaninitiativetoconvertallmedicalrecordsusedby
hospitalsandphysicianstoelectronichealthrecords(orEHRs)bytheyear2014.Asthisinitiativetakes
shapeandmedicalrecordsbecomemoredigitized,PersonalHealthRecords(orPHRs)willbecomeanimportantintermediarybetweendoctorsdigitalversionofmedicalrecordsandanindividualsknowledge
oftheirownhealthhistory.
EHRsarebecominganincreasinglycommontoolforphysiciansandhospitals,whereEHRsarethought
toimprovemostphysiciansefficiencyinpracticingmedicineandhelpprovidemorestandardizedcareto
allpatients(Arnst,2006).ThesebenefitshavegenerallyacceleratedtherateofEHRadoption,and
companiessuchasGoogleandMicrosoftarealreadystartingtocapitalizeonthistrendbycreatingfree
orsubscription-basedPHRs.AsPHRsbecomemoreprevalent,itwillbeimportanttogainaclearer
understandingofwhichfunctionsandfeaturesarelikelytobeadoptedbythepopulationatlarge.
Inarecentreport,keyindustryanalystspredictedthatprovidingpatientswithaccesstotheirelectronichealthrecordswouldenhancethedoctor-patientrelationshipandreduceoverallhealthcarecosts
(KaloramaInformation,2008).Oneapproachforprovidingaccesstopatientrecordsisthrougha
PersonalHealthRecord(orPHR),whichisasoftwareapplicationortoolthatismaintainedbyindividuals
basedontheirpersonalknowledgeabouttheirhealthand/orthehealthoftheirdependents.PHRscanbe
usedtocollectandtrackpastandcurrenthealthinformationincludingconditions,symptoms,
medications,allergies,immunizations,andemergencycontactinformation(AHIMA,2009a;AAFP,2006).
HealthcareprofessionalsandmarketersarestartingtorealizethebenefitsofPHRsandareincreasingly
focusedonhowtoincreasePHRacceptancebyimprovingtheirfunctionality.Forexample,ina
presentationgiveninAprilof2008attheCenterforDiseaseControlsNationalCenterforHealth
Marketing,thefirstrecommendationforachievingthesegoalswastoconductformalusertestingandmarketresearchonexistingPHRsystemstodetermineuserneeds,preferences,behaviorsandconcerns
(Nall,2008).
Currently,morethan60onlinePHRapplicationsareavailableforconsumerstochoosefrom(AHIMA,
2009b).MajorsoftwareorganizationssuchasGoogleandMicrosoftarestartingtocapitalizeonthe
increasingpopularityofPHRsbycreatingtheirownfreeorsubscription-basedonlinehealthrecord
applications.Unfortunately,onlinePHRsvarywidelyintheircapabilitiesandinterfaces,whichmaymake
itdifficultforindividualstochoosethebesttoolfortheirneeds.
InordertogainabetterunderstandingofwhichfeaturesarenecessaryforaPHRapplicationtobe
accessibleandacceptedbythepopulationatlarge,UserCentricchosetoexaminetwoprominentPHRsthroughausabilitytest.GoogleHealthandMicrosoftHealthVaultwereselectedforusabilitytestingdueto
thewidespreadattentiongiventoeachtool.
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3.Methodology
DuringDecember2008andJanuary2009,UserCentricconductedacomparativeusabilitystudyoftwo
existingonlinePersonalHealthRecords(PHRs):GoogleHealthandMicrosoftHealthVault.(Neither
GooglenorMicrosoftcommissionedorparticipatedinthisstudyinanymanner.)ThehomepagesforbothapplicationsareshownbelowinFigure1.
Figure1:HomepagesofGoogleHealth(left)andMicrosoftHealthVault(right)astheyinitiallyappeartousers.
Thegoaloftheusabilitystudywastounderstandwhichfunctionsandfeaturesweremostpreferredby
participantsandtoobservewhichareaswereassociatedwiththemosterrorsormisstepsonthepartof
participants.DatacollectedfrombothPHRsincludedbothquantitativeandqualitativemeasuresonfive
specificdimensions:overallusability,utility(usefulnessoffeatures),security,privacyandtrust.
Overthecourseof4days,UserCentrictested30participantsduring75to90minutesessionsatitsuser
researchfacilityinOakbrookTerrace,Illinois.ParticipantswererecruitedfromtheChicagometroarea
usinganonlinerecruitmentscreenerdevelopedbyUserCentric.Participantsqualifiedforthestudy
basedontheircurrentuseofonlinetoolstomanagesomeaspectsoftheirpersonallife(e.g.,bank
accounts,onlinebillpayment,onlinecalendarsforpersonalschedules).Participantsincluded13menand
17womenwithavariedagedistribution.2oftheparticipantswereaged18-21,10wereaged22-30,7
wereaged31-40,3wereaged41-50,4wereaged51-60and4wereaged61to65.
Uponarrival,participantswererequiredtosignaconsentformandanon-disclosureagreementwithUser
Centric.Participantswerebriefedonthestudygoalsandproceduresandwereencouragedtotryto
completespecifictasksinthewaytheynormallywould.Theywerealsoencouragedtothinkaloud
duringthetasksandtoexpresstheiropinionsbothpositiveandnegativeabouttheirexperience
duringthesession.Participantswerethenaskedaseriesofwarm-upquestionstounderstandtheir
currenthabitsandinterestsinstoringandmanagingpersonalinformationonline.Next,astandardized
descriptionofaPHRwasreadtoparticipantsinordertoassesseachparticipantsinitialinterestin
creatingaPHRprofile.
Beforethetasksbegan,eachparticipantwasprovideduniquetestaccountstousewhencreatingnew
PHRprofilesoneachapplication.Allparticipantswerealsoprovidedafictionalhealthprofile,developed
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byUserCentric,thatincludedbothchronicandacutemedicalconditionsaswellascommon
immunizations,testresults,medications,andgeneraldemographicinformation.
ParticipantswereaskedtocompleteseventasksoneachoftheGoogleHealthandMicrosoftHealthVault
PHRapplications.ThefirstfourtaskswerecommontobothPHRs:CreateanewPHRprofileandenter
healthinformation,addachildshealthprofiletothePHR,linkfromthePHRtoaphysiciansonlinehealth
record,andupdatethePHRprofilewithanewcondition.Theremainingthreetasksforeachapplication
addresseduniquefeaturesofthePHR.ThetasksspecifictoGoogleHealthwere:Locateadoctor,find
outaboutpotentialdruginteractions,andlearnmoreinformationaboutaspecificmedicalcondition.The
tasksspecifictoMicrosoftHealthVaultwere:Downloadinformationfromamedicaldevice,uploada
medicaldocumenttothePHR,andsharethePHRprofilewithfamilyandfriends.
Duringthetasks,researchersobservedparticipantsinteractionwiththePHRapplications,notedany
participanterrorsormissteps,andrecordedparticipantscommentsandfeedback.Followingeachtask,
participantswereaskedforadditionalfeedbackabouttheirexperience.Afterthelastfivetasks,
researchersalsoaskedparticipantswhethertheyfoundthefeaturehighlightedinthattasktobevaluable
oruseful.
TheorderthatparticipantsusedtheGoogleandMicrosoftPHRapplicationswascounterbalancedacross
participantstoreducepreferencebiasrelatedtopresentationorder.Duetotimeconstraints,notall
participantscompletedalltasks,althoughaconcertedeffortwasmadetocollectdatafromanequal
numberofparticipantsduringthePHR-specifictasks.
AftercompletingalltasksforeachPHR,participantsprovidedfeedbackabouttheiroverallexperience
andusinga7-pointLikertscaletoprovideratingsforthePHRapplicationsusability,utility,security,
privacyandtrust.TheUSEquestionnaire,astandardizedusabilitysurvey,wasalsoadministeredafter
usingeachPHRtogatherquantitativefeedbackaboutthatPHRsusefulness,satisfaction,andeaseof
use.
AftercompletingtasksonboththeGoogleHealthandMicrosoftHealthVaultapplications,participants
wereaskedtodiscusstheiroverallexperienceandgeneralinterestinPHRs.Participantsalsoprovided
forced-choicepreferencesbetweenthetwoPHRsonthefivedimensions(usability,utility,security,
privacyandtrust),andwereaskedwhichPHRtheypreferredoverallandwhatspecificallymotivatedtheir
choice.
AthirdPHR,MyMedicalRecords.com(MMR),wasaddedmidwaythroughthestudyinordertoassessthe
sitesclaimsthatitisthemostuser-friendlypersonalhealthrecordonthemarket
(MyMedicalRecords.com,2007a).UserCentricwasalsointerestedindeterminingifparticipants
commentsregardingtheGoogleandMicrosoftPHRapplicationsappliedtootherPHRs.Thelast12study
participants(outof30)wereabletointeractbrieflywithanexistingPHRprofileonMMRoncetheyhad
completedtheirexplorationofthefirsttwoPHRs.Afteraninitialfreeformexploration,participantswere
askedtocompletetwotasks:AddinganallergytotheirprofileandlinkinginformationfromtheirGoogle
HealthprofiletotheirMMRprofile.AfterinteractingwiththeMMRapplicationforseveralminutes,
participantswereaskedtoindicatewhichPHRtheypreferredoverall:MMRortheirearlierPHR
preference(eitherGoogleHealthorMicrosoftHealthVault).
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Finally,allparticipantscompletedasurveyontheusefulnessofpotentialPHRfeatures(e.g.,sharing
informationwithaphysician,learningaboutsideeffectstomedications),awardingratingsforeachof
theseitemsona7-pointLikertscale.Attheendoftheirsessions,participantswerecompensatedfortheir
time.
4.FindingsfromUsabilityTestingwithGoogleHealthandMicrosoft
HealthVault
UserCentricsusabilitytestinggeneratedanumberofpreliminaryfindingsaboutparticipantsreactionsto
twoPHRs:GoogleHealthandMicrosoftHealthVault.Thissectionwilldetailtheinteractionissuesand
trendsthatwereobservedduringindividualsessions.
Thissectionwillcover:Initialreactions,usabilitytestfindings,PHR-specificfeedback,theUSEand
featuresquestionnaires,andadiscussionofMyMedicalRecords.com.Thetestfindingswillbeaddressed
astheyrelatetoUserCentricsfivedimensionsofinterest:usability,utility,security,privacy,andtrust.
4.1InitialReactiontoPHRs
Basedonparticipantsresponsestothewarm-upquestionsatthebeginningoftheirsessions,only23%
oftheparticipantswerefamiliarwiththeconceptofaPHR.However,afterlisteningtoastandardized
descriptionofaPHR,76%oftheparticipantsindicatedtheywereinterestedinbuildingaPHRor
managingtheirfamilymemberspersonalhealthinformationbyusingonlinetools.Participantslisteda
numberofreasonsforthisinterest,includingtheabilitytomanagealloftheirfamilysrecordsinone
locationandthetime-savingbenefitsofsharingofmedicalinformationwiththeirphysicianorhealth
insuranceprovider.
12outof30participantsindicatedthattheyfeltsecureaboutstoringtheirownorfamilymembers
personalinformationonlinebasedontheirpositiveexperienceswithonlinebankingsites.Theyextended
thisleveloftrusttohealthinformationaswell.28outof30participantsalsoindicatedtheywouldtrust
onlinesourcesforhealth-relatedguidanceandsuggestions.(16participantsmentionedtheycurrentlyuse
WebsitessuchasWebMDtochecksymptomsorresearchhealthtopics.)However,10participantssaid
theywouldnotrelyonaWebsitetobetheirprimarysourceofinformation.
4.2UsabilityTestFindings
ParticipantscompletedthesamesetoftasksforboththeGoogleHealthandMicrosoftHealthVaultPHRapplications.Thesetwoapplicationswerechosenasrepresentativestimulitoexploreparticipants
attitudesaboutPHRsonfivespecificdimensions(usability,utility,security,privacy,andtrust),soUser
Centricsanalysisanddiscussionoftask-specificfindingswillfocusonthesecoredimensionsand
integrateinformationfrombothPHRapplications.
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4.2.1Usability
ParticipantspreferredGoogleHealthssimplehomepage.
Overall,participantsimpressionsofGoogleHealthshomepageweremorefavorablethanthoseof
MicrosoftHealthVaults.Althoughparticipantswerenotdirectlyaskedtocomparethetwo,15participants
volunteeredthattheyfavoredGoogleHealthshomepage,citingreasonssuchasitwaseasiertoaccess,itwaslessclutteredoritwaseasytonavigate.
Incomparison,while5participantslikedthewaythatMicrosoftHealthVaultcontainedmoreinformation
thanGoogleHealth,mostparticipantsdidnotperceivetheextrainformationasabenefit.Instead,they
viewedthisadditionalinformationmorenegativelybecauseitmadeMicrosoftHealthVaultshomepage
verybusy.
Participantsstruggledtoidentifywheretheycouldstartenteringhealthinformation.
ParticipantshadexpecteddirectionfrombothPHRsonwherehowtogetstartedenteringtheirpersonal
information.However,theirfeedbacksuggestedthatneitherGoogleHealthnorMicrosoftHealthVaultclearlyindicatedthisstartingpoint.Thestartscreensforbothapplicationsareshownbelow(seeFigure
2).Atleast7participantscommentedthatthelabelforGoogleHealthsAddtothisProfilelinkdidnot
clearlyindicatethatthisservedasthestartpoint.Asoneparticipantstated,IfIwasstartingout,Iwould
belookingforaninitialCreate[linkorbutton].ParticipantsalsocommentedthatMicrosoftHealthVault
hadtoomanyoptionsortoomuchinformationtoread,whichmadethemuncertainwheretofocus.
Figure2:HomepagesofGoogleHealth(left)andMicrosoftHealthVault(right)withthecurrentstartinglocationshighlighted.
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Enteringmedicalinformationwasaclick-intensiveprocessonbothGoogleHealthandMicrosoft
HealthVault.
Onceparticipantsenteredahealthhistoryitem(e.g.,condition,medication,procedure),mostsaidthey
expectedtoenteradditionalrelateddetailslikedates,dosage,causes,andstatus.InGoogleHealth,
however,participantsalmostalwayshadtoclicktoadditionalscreenstoenteranydetailsbeyondthe
itemsname.Whileenteringdetailsaboutaconditionlikeasthma,forexample,participantsexpressed
frustrationthattheycouldnoteditinformationonasthmafromthehomepage.Theyinsteadneededto
clickonalinkintheleftnavigationmenuorintheProfileSummarytoaccessaseparateConditionspage
andthenselecttheEditlinkontheirAsthmaconditiontoadddetailsforit.
TheonlyexceptiontothisissuewithinGoogleHealthwastheabilitytoaddatestresult(e.g.,atotal
cholesterolresult)viaapopupwindow.Afterenteringthenameofthetestresult,participantscould
immediatelyenterthetestdetailsviathepopup.Participantsreactedpositivelytothismodeofdataentry
andsaidtheywouldhavepreferredtoentertherestoftheirhealthinformationonGoogleHealthinthe
sameway(seeFigure 3).
Figure3:AddingatotalcholesteroltestresultiteminGoogleHealth
Similarly,8participantscommentedpositivelyonhowMicrosoftHealthVaultallowedthemtousethe
samescreentoenterahealthitemandquicklypopulatedetailfields(SeeFigure4).
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Figure4:AddingamedicationusingMicrosoftHealthVault
However,thesheeramountofinformationrequestedbyMicrosoftHealthVaultoftenoverwhelmedsome
participants.AlthoughsomefieldswereclearlymarkedOptional,researchersobservedatleast14
participantssufferingfromcognitiveoverloadwhilereviewingallthefields.Participantsoftenstruggledto
decidewhichfieldstopopulateandwhichtoleaveblank.Otherparticipantsinthestudyfeltdiscouraged
becausetheydidnothavesufficientmedicalknowledgetofillinallthefieldsonvariousscreens.
Ingeneral,whilebothPHRapplicationswereaffectedbydifferentproblems,participantswerefrustrated
bythelevelofeffortrequiredtoentertheirmedicalinformation.
ParticipantsappreciatedtheconfirmationprovidedbyGoogleHealthafterprofileinformationwas
entered.
Afterenteringmedicalinformation,participantsindicatedtheylikedthevisibleconfirmationprovidedby
GoogleHealthsProfileSummary(seeninFigure5)becauseitincreasedtheirconfidencethattheyhad
enteredtheirhealthdatacorrectly.
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Figure5:GoogleHealthsProfileSummary
Incontrast,participantsfoundthatafterenteringahealthiteminMicrosoftHealthVault,theystillneeded
toreturntotheHealthInfoorHometabtoviewthedifferentinformationtypes.
StraightforwardnavigationonGoogleHealthmadeaddingmedicalinformationsimpler.
Overall,mostparticipantsfoundthataddinginformationwasarapidprocesswhentheyusedGoogle
Healthduetotherelativelysimplenavigation.Participantssaidtheylikedtotheabilitytoquicklynavigate
betweenthetopmenutabswhileenteringnewmedicalinformation.Thesetabscanbeseenbelow
(Figure6).
Figure6:GoogleHealthsnavigationtabs
Participantslikedtheoptionofaccessingtheirmedicalinformationusingeitherthetopmenutabsorthe
persistentleft-handmenu(Figure7).Asoneparticipantsaid,[This]sitewasmoreuserfriendly[because
of]theleftnavigationbarandthetabsversushavingtoclickbacktothehomepagetoaddmorehealthconditions.ParticipantsgenerallyfoundGoogleHealthsredundantnavigationmodelsupportiveoftheir
needs,regardlessoftheirpastexperiencewithPHRapplications.Theyalsofounditeasytolocatethe
Addbuttonadjacenttothesearchfield,whichtheyusedforaddingmultipleconditions.
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Figure7:GoogleHealthsredundantnavigation
AlthoughMicrosoftHealthVaultalsousedtabsfornavigation,participantsfounditsinformation
architecturetobedeeperandmorecomplex.Thisforcedparticipantstonavigatethroughseveralscreens
toenterhealthinformation.WhenaddingasecondconditioninMicrosoftHealthVault,forexample,
participantsneededtofirstselecttheHealthInfotabeventhoughmostthoughttheywerealreadyonthe
HealthInfoscreen.Manyparticipantswereconfusedbythisandinadvertentlybecamelost,clicking
betweenmanyotherscreensandtabs(Figure8)togetbacktotheHealthInfotab.
Figure8:CommonplacesparticipantsclickedtoaddmoreinformationfromMicrosoftHealthVaultsHealthInfotab
Participantsbecamemostfrustratedwiththeextraneousclicksnecessarytonavigatetoafrequently
accessedpage.BecausetheprocessofenteringmorehealthinformationwaslessefficientwithMicrosoft
HealthVault,participantsgenerallycitedGoogleHealthasbeingeasiertonavigate.
Multiplesearchtoolsfacilitatedsearching,butmedicaljargonstymiedparticipants.
Mostparticipantslikedtheauto-completefeaturethatbothGoogleHealthandMicrosoftHealthVault
providedaspartoftheirSearchfields.BothPHRsalsoalloweduserstoenterdatanotfoundinthePHR
databases.
However,participantsfoundtheoverallprocessofsearchingfordatamucheasierusingGoogleHealth.
Participantslikedtheflexibilityofbeingabletosearchfordatainseveralways,includingasearchfield
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withauto-completeandascrollablealphabeticallistwhichallowedthemtofilterbythefirstletter(see
Figure9).Thelatterwasusefulforthoseparticipantswhopreferredtoscanavailableconditions,
medications,procedures,testresulttypes,orimmunizations.
Figure9:Auto-completefunctionsonGoogleHealth(left)andMicrosoftHealthVault(right).
Dependingonthetypeofhealthinformationparticipantsentered(e.g.,conditions,medications),Microsoft
HealthVaultprovidedtwodifferentmethodsofdataentry.Forexample,itsometimesprovidedanopen
fieldwiththeauto-completefunctionality.Inothercases,itprovidedadrop-downlistofchoices.
Unfortunately,participantsoftenfeltthattheirchoicewasconstrainedbytheitemsintheMicrosoft
HealthVaultdrop-downlist,becauseituseddifferentphrasingthanexpected.Someofthemedicaljargon
wasalsoveryconfusingtoparticipants,whowerenotsurewhichofthedrop-downlistoptionstoselect.
Forexample,manyparticipantslookedforflushotinthedropdownlistofimmunizationsbutoftendid
notrecognizeinfluenzaasarelatedlabelforthesametopic.Oneparticipantnotedthatitwouldbe
usefultohavebothflushotandinfluenzaavailableinthesamelist.
Ingeneral,participantsexpectedtoeasilymatchtheirmedicaltermwiththecontentsofdrop-downlists.
Theydidnotfeelthatthecurrentterminologydisplayedinthelistsadequatelysupportedtheirvariedand
oftenlimitedunderstandingofmedicaljargon.
Simplemedicallanguagewasstronglypreferredovertechnicaljargon.
BothPHRsoftenusedmedicalterminologythatwasmoretechnicalthanparticipantswerecomfortable
with.Thisphenomenaoftenreflectedagapbetweenparticipantslevelofknowledgeandthespecific
medicalterminologyusedinthePHR.OfthetwoPHRapplications,GoogleHealthtendedtousemore
familiarmedicallanguageandoftenprovidedmorethanonelabelforthesametopictoaidrecognitionby
laypeople.
WhenenteringinformationintoMicrosoftHealthVault,participantstendedtostrugglemore.Theyhad
difficultyenteringboththetitleofahealthitemaswellasitsdetails.Specifically,participantshaddifficulty
figuringoutwhichmedicaltermstoselectaswellastherelevantlevelofmedicalaccuracytousein
HealthVault.Althoughseveralparticipantswantedtobeasmedicallyaccurateaspossible,theywerenot
alwaysabletomakedistinctionsbetweenthemyriadmedicalconditionslistedbythePHR.Forexample,
manyparticipantsindicatedtheyfeltuncomfortableguessingwhichtypeofinfluenzavaccinetheyhad
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beengiven.Oneparticipantcommented,Aphysicianornursecoulddothis,butitsnotforaneveryday
user.
.
Figure10:MicrosoftHealthVaultdropdownlistofimmunizations
AbilitytoaddanadditionalhealthprofilewasfacilitatedinMicrosoftHealthVaultviapersistent
linkingonmostscreens.
ParticipantsweremuchmoresuccessfulinaddingafictionalrelativeshealthinformationtotheirPHR
whenusingMicrosoftHealthVaultbecauseaAddRecordlinkwasconsistentlylocatedonalmostevery
page.Incontrast,eightparticipantswereunabletolocateGoogleHealthsCreateanewprofilelink,
whichwaslocatedatthebottomoftheleft-sidemenuwithtextthatappearedpalerthantherestofthe
itemsinthemenu.
Figure11:Createanewprofilelinkoftheleft-sidemenuofGoogleHealth
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However,theconsistencyofMicrosoftHealthVaultsAddRecordlinkmayhavebeenpartofthereason
someparticipantsincorrectlyinterpretedthelinkspurpose.Duringthefirsttask,someparticipants
incorrectlyassumedthatthislinkwouldallowthemtoaddadditionalhealthinformationtotheirexisting
PHR,butquicklyrealizeditstruepurposeduringtheirsessions.
4.2.2 Utility
Theusabilitystudyalsoidentifiedmanyfeaturesthatparticipantsfoundusefulandwhichmighthelp
motivatethemtoadoptaPHRfortheirownuse.
MostparticipantsthoughtPHRswouldbebeneficialfortrackingachroniccondition.
Throughouttheusabilitysessions,participantsindicatedtheysawvalueinusingaPHRtokeeptrackof
theirhealthhistory,especiallyifonehadachronicconditionthatmayinvolvefrequentchangesin
treatmentandstatus.AdditionalresultsrelatedtoparticipantsperceptionofPHRvaluewillbediscussed
inalatersection.
Abilitytostorehealthinformationforfamilymemberswashighlyvalued.
Theabilitytoeasilystorehealthrecordsformorethanoneindividual(e.g.,dependentsorspouse)was
consideredveryimportanttoparticipants.However,noneofthethreePHRswetestedtrulyprovidedthis
functionalityinaseamlessmanner.Participantsendedupprovidingvaluejudgmentsbasedontheideal
interactiontheyimaginedthisfunctionwouldproduce.
ParticipantswantedtolinkPHRhealthinformationwiththeirphysiciansrecords.
ParticipantsalsoindicatedastrongdesiretolinkthehealthinformationstoredintheirPHRwiththeirphysiciansrecords.Participantssaidtheywouldideallywantthistobeatwo-waychannel.Specifically,
participantswantedtheabilitytoautomaticallydownloadinformationfromtheirdoctorselectronichealth
recordstomakedataentryoftheirPHReasierandmoreaccurateandalsowantedtobeabletoshare
theirPHRwiththeirdoctorinordertoreducetheamountoftimespentfillingoutpaperworkduringoffice
visits.
GoogleHealthsDrugInteractionsfeaturewasperceivedasveryhelpful.
TheDrugInteractionspageofGoogleHealthwasoneofthemostappreciatedfeaturesthatparticipants
encounteredinthestudy.Participantsfoundthetwolevelsofwarning(Figure12)tobeveryusefuland
seemedtotrusttheinformation.(Thisincludedthefewparticipantswhounderstood,bywayofthedisclaimer,toconsulttheirdoctor.)Oneparticipant,forexample,pointedoutthattheinteractionbetween
prescriptionsandover-the-counterdrugsmightbeomittedfromconversationsbetweenpatientsand
physicians,whichiswhyPHRsshouldcontainthistypeofcriticalinformation.
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Figure12:GoogleHealthdruginteractions
FindaDoctorfeaturewasvalued,especiallywhenlimitedtotheparticipantsinsuranceplan.
WhileusingGoogleHealth,12outofthe16participantswhousedtheFindaDoctorfeaturesaidthey
foundituseful,butthreeparticipantsindicatedtheywouldhavepreferredtheresultsbelimitedtotheir
specificinsurancenetwork.OneparticipantalsorequestedalinkontheConditionsscreentophysicians
whosespecialtiesarerelatedtotheconditionslistedintheirPHR.Mostparticipantsindicatedthelinkfor
viewingdirectionstoadoctorslocationtobeoneofthemostusefulcomponentsofthisfeature.
Referenceinformationonmedicalconditionsneededtobefromtrustedsources.
ParticipantssaidthattheGoogleHealthscreenthatdisplayedadditionalinformationaboutacondition
listedinthePHR(includingsymptoms,treatments,potentialcauses,andnews)wasalsointeresting.
However,anumberofparticipantsindicatedthattheywouldrelyonthisfeaturemoreiftheyhadaclearer
ideaofthesourceofthisreferenceinformation.
Figure13:GoogleHealthSymptoms
Nonetheless,participantsdescribedthisinformationaspresentedinanefficientwayandcommentedthat
theavailabilityofreferenceinformationintheirPHRwouldreducetheeffortneededtoresearchtheir
conditions.
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AbilitytouploaddocumentstoMicrosoftHealthVaultwasconsideredpotentiallyhelpfulfor
enteringpastmedicalhistory.
ParticipantsnoticedthefeaturedofferedbyMicrosoftHealthVaultthatallowsuserstouploadamedical
documentsdirectlytotheirprofile.11ofthe17participantswhousedthisfeaturefounditveryuseful,
especiallyforthosewhoanticipatedstoringdocumentsfromtheirchildrensmedicalhistoryorcopiesof
theirowndiagnosticscans.
AbilitytoshareapersonalPHRwithfamilymembersandphysicianswasimportantforsome
participants.
12outofthe16participantswhosawthefeatureindicatedthatMicrosoftHealthVaultsabilitytoshare
theirPHRhadvalue.Participantsanticipatedthatthisfeaturewouldbeespeciallyusefulwhencaringfor
aparentorelderlyrelativewhohadaseparatePHR.However,mostparticipantsdidnotfinditusefulto
sharetheirPHRinformationwithafriendorsomeoneelseoutsidetheirfamily.
UploadinginformationfromamedicaldevicetoMicrosoftHealthVaultwasgenerallyconsidered
useful.
ParticipantswerebrieflyexposedtotheHealthVaultfeaturethatallowsuserstouploadinformationfroma
medicaldevicedirectlyintothePHR.(Duetotimeconstraints,littlesessiontimewasdevotedtogathering
feedbackonthistopic.)13outof18participantswhointeractedwiththisfeatureconsideredituseful.For
example,oneparticipantsaidThiswouldbeveryhelpful.IfIhaddiabetes,Icoulduseitforglucose
testing.OrIcoulduseitwithweightscalesorbloodpressure.However,oneparticipantexpressed
concernthisfeaturewouldonlybevaluableiftheywereabletoentermultipledevicereadingsatonce.
Thisparticipantexpectedthatsingledatauploadswouldlikelyrequiretoomuchtimeandwouldbe
inconvenient.
4.2.3 Security, Privacy, Trust
Participantsrarelyexpressedconcernsrelatedtosecurity,privacy,ortrustwhilecompletingtheirtasks
andprovidingfeedback.Ingeneral,participantsseemedtohavedifficultydifferentiatingbetweenthese
threedimensionsandrarelymentionedconcernsspecifictoanyoneofthem.However,researchersdid
recordsomenotableobservationsandfeedbackrelatedtothesethreedimensions.
ParticipantswantedtransparentsourcesforthemedicalknowledgeprovidedonGoogleHealth.
WhenreviewingthedruginteractionsandreferenceinformationaboutmedicalconditionsinGoogle
Health,4outofthe22participantswhousedthisfeatureexpressedconcernsregardingthesourceofthis
referenceinformation.Itwasnotimmediatelyclearwhatthesourceoftheinformationwas,whichmadethemwaryofrelyingonthisinformation.Theseparticipantssaidtheywerelookingforthenameofa
knownmedicalcompanyoranendorsementbyaknownmedicalorganization.Someofthese
participantswereconcernedthatthemedicalinformationprovidedmighthavebeenaccumulatedfrom
variousInternetsourcesthatmayormaynothavebeenreliable.
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SomeparticipantshadsecurityconcernsaboutlinkingtheirPHRtoaphysiciansEHR.
Althoughsharinginformationwithaphysicianwasoneofthemostpopularfeaturesdiscussedinthis
study,6ofthe30participantsdidmentionsomeapprehensionabouttheprivacyorsecurityofthislink.
Forexample,oneparticipantsaidthatbasichealthinformationdoesn'tbotherme,butpersonalinfois
worrisome.AnotherparticipantsaidIwouldneedsomesortofagreementorcontract.Theinformationis
confidential.
4.3PHR-SpecificQuestionsandRatings
AftercompletingthetasksoneachPHR,participantswereaskedtoprovidetheirgeneralqualitative
impressionsabouttheiroverallexperiencewiththatPHR.Participantresponsesgenerallyfocusedon
eitherusabilityissuesencounteredduringtheirsessionsorfeaturesthatwereconsideredespecially
useful(ornotuseful),whichfurtheremphasizestheimportanceofthesetwodimensionsonoverall
preference.
Duringindividualpost-PHRratings,GoogleHealthratedhigheronthedimensionsofeaseofuse
andutilitywhileMicrosoftHealthVaultwasratedhigheronthedimensionsofprivacyandtrust.
Participantswereaskedtousea7-pointLikertscaletoratethePHRacrossthesamefivedimensions:
easeofuse,utility,security,privacy,andtrust.TheresultsoftheseratingsareshowninFigure14.
Figure14:Participants'averageratingsonthefivedimensionsforeachPHR
RatingswerehigherforGoogleHealthforeaseofuseandutility,althoughtherewasalargerdifference
betweenthetwoPHRapplicationsonthedimensionofeaseofuse.Theaverageratingsforsecurity,
privacyandtrustwereverycloseforthetwoPHRapplicationsalthoughGoogleHealthreceivedhigher
ratingsforsecurityandMicrosoftHealthVaultreceivedhigherratingsforprivacyandtrust.
ThissuggeststhatalthoughthedirectionofparticipantspreferencewasinfavorofGoogleHealth,the
magnitudeofthisdifferencewasrelativelysmallbothGoogleHealthandMicrosoftHealthVault
applicationswereperceivedasfairlysecure,privateandtrustworthy.
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4.4USEQuestionnaires
AftercompletingthetasksandratingsforeachPHR,participantswerealsogiventheUSEquestionnaire,
astandardizedinstrumentdesignedtocollectsubjectivefeedbackonusabilityandrelatedconcepts.The
USEquestionnairehasbeeniterativelydevelopedbyusabilitypractitionersandacademicstoestablisha
consistentmethodologyforthecollectionofsubjectiveuserratings(Lund,1998).
TheUSEQuestionnaireshowedthatGoogleHealthwasratedasbeingeasiertolearn,generally
moreuseful,andeasiertousethanMicrosoftHealthVault.
Figure15showsaverageratingsforthe29itemsontheUSEquestionnaire.GoogleHealthhadhigher
averageratingsthanMicrosoftHealthVaultonallbutonequestion,wherethetwowereequal.The29
questionsweregroupedinto4categoriesbasedontheresultsofafactoranalysisandanoverallaverage
ratingwascomputedforeachcategory.Eachofthe4categorieshadhighinternalconsistencyamong
theindividualquestions(Chronbachs>0.9ineachcase).Thenamesforthecategorieswere
generatedbasedonthewordingofthequestionscontainedineach.GoogleHealthhadhigheraverage
ratingsthanMicrosoftHealthVaultforeachofthecategories,andthedifferenceswerestatistically
significantbeyondthep=0.05levelfor3ofthe4categories.
Figure15:USEquestionnaireaverageratings.The29questionsaregroupedinto4categories(EasytoLearn,Useful,Easyto
Use,Effective)basedontheresultsofafactoranalysis.Averageratingsareshownforeachcategory.A*meansthedifference
betweentheaveragecategoryratingsforGoogleHealthandMicrosoftHealthVaultwerestatisticallysignificantbeyondthe
p=0.05level.QuestionswithineachcategoryaresortedbydescendingaverageratingforGoogleHealth.
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GoogleHealthwascomparedtoMicrosoftHealthVaultforeachofthe4ratingcategoriesusingbotha
matched-pairst-testandaWilcoxonmatched-pairssigned-rankstest,whichproducesazscore.Table1
summarizestheresultsofthesetwotypesoftests.Thepvaluesarefortwo-tailedtestsinbothcases.
Google Microsoft Matched-pairst-test
Wilcoxonmatched-pairs
signed-rankstest
M SD M SD t(df) p z p
EasytoLearn* 5.60 1.00 4.97 1.32 t(29)=2.72 0.011 z=2.35 0.019
Useful* 5.06 1.23 4.43 1.36 t(29)=2.60 0.014 z=2.39 0.017
EasytoUse* 4.85 1.27 3.89 1.54 t(29)=3.25 0.003 z=2.78 0.005
Effective 4.43 1.56 4.11 1.72 t(29)=1.57 0.128 z=1.02 0.307
Table1.SummaryofstatisticaltestsonthedifferencebetweenaveragecategoryratingsforGoogleandMicrosoft.A*
indicatesthatthedifferencewassignificantbeyondthep=0.05level.
TheEffectivenesscategoryofquestionshadthelowestoverallaveragerating,andhadthesingle
questionwiththeoveralllowestaverageratingsforbothproducts,IfeelIneedtohaveit.Thismight
reflecttheperceivedvalueofPHRfunctionalityrelativetocurrentlifecircumstances.Participantswho
reportedhavinghadfewerchronichealth-relatedissuesgenerallysawPHRsaslesscompellingthan
thosewithchronicconditions,dependents,ormultiplemedications.
EasytoUseratingsshowedthebiggestdifferencebetweenthetwoPHRapplicationsintermsofthe
averagecategoryratingdifferencerelativetothestandarddeviations.Inaddition,thelowestoverall
averageratingforMicrosoftHealthVaultwasgivenintheEasytoUsecategory.Theadvantagefor
GoogleHealthwasconsistentacrossall10itemsinthiscategory.Asthenextsectiononfinal
impressionsandoverallpreferencessuggests,participantsfoundGoogleHealthtobemorefamiliarand
straightforwardanddirectoverallpreferenceratingsofEaseofUsewereconsistentwiththeEaseofUse
categoryratingspresentedhere.
4.5FinalImpressionsandOverallPreferences
OnceparticipantshadtheopportunitytoreviewbothPHRtools,theywereaskedtocomparetheir
experiencesusingboth.WhilemostparticipantsstartedtheirsessionnavetotheconceptofPHRs,most
lefttheirsessionperceivingsomevalueintheconcept,with60%oftheparticipantsinterestedinbuilding
theirownprofilesonline.
Neartheendoftheirsession,participantswereaskedtoselectwhichPHRtheypreferredoveralloneach
ofthefivedimensions:Overalleaseofuse,utility,security,privacyandtrust.Thepreferenceresultsare
showninFigure16below.
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Figure16:Overallpreferences
GoogleHealthwasperceivedsignificantlyeasiertouse.
MostparticipantspreferredGoogleHealth(80%)toMicrosoftHealthVaultintermsofperceivedeaseof
use,2(1,N=30)=10.80,p=0.001.ParticipantscommentedthattheyfoundGoogleHealthsterminologyto
bemorefamiliar,itsnavigationtobecleareranditsoverallprocessofenteringdatatobemore
straightforward.TheyalsoperceivedtheoverallflowwithintheGoogleHealthasmoreefficientthan
MicrosoftHealthVault.
ParticipantsfoundperceivedutilityinGoogleHealthsfeatures.
Intermsofutility,GoogleHealth(70%)waspreferredtoMicrosoftHealth, 2(1,N=30)=4.80,p=0.028).
Participantsmostoftenindicatedtheyfoundthemostvalueinthedruginteractionsfeatureandthereferenceinformationaboutacondition(e.g.asthma).
PreferencestowardsMicrosoftHealthVaultintermsofsecurity,privacyandtrustwerenot
statisticallysignificantbeyondthep=0.05level.
HealthVaulthadapreferentialedgeinthethreeremainingdimensions,althoughtheresultswerenot
statisticallysignificantbeyondthep=0.05level.ParticipantspreferredMicrosoftHealthVaultintermsof
security(60%),2(1,N=30)=1.20,p=0.27,privacy(66%),
2(1,N=30)=2.79,p=0.06,andtrust(60%),
2(1,N=30)=1.20,p=0.27).Participantsgavesimilarreasons(e.g.,brand,priorexperience)forpreferring
MicrosoftHealthVaultforeachoftheseareas.
Inafewcases,peoplegavesimilarreasonsforpickingHealthVaultforsecurityandprivacy:Idonttrust
GoogleorImmorefamiliarwith[GoogleorMicrosoft]ortheymayhavehadexperiencewithMicrosoft
fromasoftwaresecuritystandpoint.Overall,however,familiaritywithMicrosoftsbrandwastheprimary
reasonforparticipantspreferenceshere.Also,someparticipantsfeltGoogleHealthwouldbelesssecure
orprivatebecauseitwaslinkedwithsearchande-mailthroughtheGoogleWebapplicationsuite.
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GoogleHealthwaspreferredoverall.
WhenaskedwhichPHRtheypreferredoverall,participantschoseGoogleHealth,19to11(63%),
2(1,N=30)=2.13,p=0.14.Thisresultisnotstatisticallysignificantbeyondthep=0.05level,butitdoes
suggestthatearlierresultsregardingeaseofuseandusefulnesscouldbeimportantforoverall
preference.RegardingtheiroverallpreferenceforGoogleHealth,15ofthe19participantsindicatedease
ofuseasthedecidingfactorandothersindicatedtheypreferredGoogleHealthbecauseofthe
usefulnessofitsfeatures.Onlytwoparticipantsbasedtheiroverallpreferencechoiceontrustor
familiaritywithabrand.
Patternsinpreferenceselectionswereevident.
Therewasaninterestingpatterninthepreferencedatawhichseemstosupportaconnectionbetween
easeofuseandutility.IfparticipantschosethesamePHRforeaseofuseandutility,theyalwayschose
thatPHRoverall.Meanwhile,ifparticipantschosedifferentPHRsforeaseofuseandutility,whichever
PHRtheypreferredforsecurity,privacyandtrustwasthesamePHRtheypreferredoverall.Onlytwo
participantsviolatedthisrule,andtheychosethePHRtheypreferredforeaseofuse.
Figure17:Patterninpreferencedataexplained
Finally,therewasapatterninpreferencesbasedonageaswell.AsshowninFigure18below,younger
participants(18-40yearsold,n=19)weremorelikelytochooseGoogleHealthasbotheasiertouseand
preferredoverallascomparedtoolderparticipants(41-70yearsold,n=11).Apossibleexplanationhere
isthatyoungerindividualsaremorefamiliarwithGooglescommonWebapplicationinterface,which
madeGoogleHealtheasiertolearnandinturninfluencedparticipantsoverallpreferences.Itisalso
tellingthattheageeffectislargerineaseofusethaninoverallpreferencethissupportstheconclusion
thateaseofuseisastrongcomponentofoverallpreference,butnottheonlycomponent.
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Figure18:Patternrelatedtooverallpreferenceandagegroup
4.6FeaturesQuestionnaire
Aftercompletingtheforced-choicepreferencesandprovidingfinalimpressions,participantsweregivena
questionnairethataskedthemtorankhowusefultheywouldfindseveralfeatures.Thequestionnaire
includedallsixofthePHR-exclusivefeaturesshownintesting,severalfeaturessharedbybothPHRs,
andafewhypotheticalfeatures.TheresultsoftheseratingsareshowninFigure19below.
Figure19:Usefulnessratingsofexclusive,sharedandhypotheticalfeatures
Overall,GoogleHealthsexclusivefeatureshadhigheraverageratings,whichsupporteditsoverallutility
preference.ThemostappealingfeaturewasReceivingautomateddruginteractionwarningsfromthe
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PHR,whichonlyGoogleHealthsupported.Althoughtheotherexclusivefeatureshadsimilarratings,the
inclusionofthedruginteractionsmayhavebeenenoughtopushGoogleHealthoverthetopwhen
participantsgavetheiroverallpreferencebetweenthetwoPHRs(itwaschosenasmoreusefulby21of
the30participants).
Theleastdesirablefeatureshighlightedaninterestingtrendwhichmayberelatedtotheperceivedquality
ofinformation.Threeofthelowest-rankedfeatureswereallowingotherstomodifyarecord,getting
automatedtreatmentrecommendations,andreadingotherscommentsaboutdoctorsormedications.
Sinceallthreeofthesefeaturesaresimilarinthattheyinvolvefindinginformationfromexternalsources
otherthanhealthcarepractitioners,itcouldbethecasethatparticipantssimplywerenotconfidentinthe
qualityofmedicalinformationtheywouldobtainbyusingaPHR.
Finally,participantinterestwaspositiveformostofthehypotheticalfeatures,Thehypotheticalfeatures
LearningaboutmedicationsideeffectsandCustomizingviewswereseenasespeciallydesirable.This
isimportantinformationtoconsiderforthoseinterestedincreatingabetterPHRinterface.
5.QualitativeParticipantFeedbackonMyMedicalRecords.com
Midwaythroughthestudy,researchersatUserCentriclearnedofathirdPHR,knownas
MyMedicalRecords.com(MMR),thathadbeencommonlyadvertisedasaneasytousetoolwithfeatures
thatmanyoftheearlierparticipantshadexpressedinterestin(MyMedicalRecords.com,2007b).
Therefore,UserCentricdecidedtoaddtasksrelatedtothisthirdPHRtotheendoftheremaining
usabilitysessionsandcapturequalitativefeedback.
AftertheyexploredthefirsttwoPHRs,thelast12participantswereabletobrieflyinteractwithMMR.
However,sinceparticipantsexposuretoMMRwaslimitedcomparedtotheirmorethoroughexplorationofGoogleHealthandMicrosoftHealthVault,thethreeapplicationscannotbedirectlycompared.Figure
20belowshowstheMMRmembershomepage.
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Figure20:MyMedicalRecords.commembershomepage.Thefoldericons,pagebreak,andthelinktoaddmedicalinformationarehighlighted.
Uponinitialinspectionofboththeinitiallandingpageandthemembershomepage,4outof12
participantshadpositivereactions,sayingthepageseemedformalorpolished.However,8
participantsdidnotpreferthehomepagesvisualpresentation,sayingitseemedbusyorunorganized.
Participantsstruggledtofigureouthowtoentermedicalinformation.
WhenparticipantswereaskedtoaddanitemtotheirexistingMMRprofile,manyindicatedtheyexpectedtobeabletoaddhealthinformationthroughoneofthetwelvefoldericonsshowninthemiddleofthe
homepage.9outof12participantsexpressedfrustrationonthistask,sincethelinktoaddmedical
informationwaslocatedbelowthefoldofthehomepageandmanyparticipantsrequiredthemoderators
assistancetofindit.
OncetheylocatedthecorrectlinktotheMedicalHistorypage,participantsagainstruggledtofindaway
toaddmedicalinformation.Thetargetlinkforaddingnewitemswaslocatedontheverytopofthepage
amongunrelatedfilteringfunctions.Instead,mostparticipantsattentionwasfirstdrawntotheredEdit
linkswithinthemainbodyofthepage.BothoftheseitemsarehighlightedinFigure21below.
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Figure21:MyMedicalRecords.commedicalhistorypage
ParticipantslikedMMRsdataentryform.
Theprocessofaddingmedicalinformationwaspositivelyregardedbythoseparticipantswhosawit.One
positivefeatureofMMRwasthatsomeoftheformfieldswoulddynamicallyupdatebasedonwhatwas
chosenfromtheDescriptiondropdown.Oneparticipantsaidthatthismadeiteasiertoinputdataon
MMRthaneitherGoogleHealthorMicrosoftHealthVault,becausetheywouldbeabletoenteracategory(e.g.,Condition,Immunization,Medication)anditsdetailsinasinglestep.
Figure22:Descriptiondrop-downwhenaddinginformationonMMR
MostparticipantsdidnotseevalueinlinkingtheinformationoftwoPHRs.
10ofthe11participantswhoattemptedtolinktheirGoogleHealthprofiletotheirMMRprofilewere
successful.Twoparticipantscommentedthatthebuttonwaseasytofindandthatthefunctionwaseasy
toaccessinoneclick.
However,8ofthe11participantswereunsurewhytheywouldneedtolinktwoPHRsorevenwhyone
wouldusemorethanonePHRatall.Threeparticipantssuggestedthatthefunctioncouldbeusefulif,for
example,theirphysicianusedMMRwhiletheyusedGoogleHealth,oriftheywantedtoimport
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informationfromanoldPHRastheymadeapermanentswitchtoanother.Twoparticipantsalsofelt
unsureaboutthesecurityoflinkingtwoPHRsbecausetheirpasswordswouldbestoredinmorethanone
place.
AttheconclusionoftheirexperienceinteractingwithMMR,sixparticipantsreiteratedthattheyfound
MMRunorganized,whichmadeithardertofindwhattheywerelookingfor.Whiletwoparticipants
discoverednovelfunctionsandfeaturesontheapplication(e.g.,DentalandVeterinarianrecords),only
oneofthe12participantssawenoughadditionalvalueinMMRtorankithigherthantheirearlierPHR
preference.8ofthe12participantsindicatedtheyfoundtheirearlierpreferenceeasiertouseandtwo
participantsmentionedthiswasespeciallytruesinceMMRrequiresasubscriptionfee.
6.RecommendationsforImprovingPHRInterfaces
ThisusabilitystudyallowedUserCentrictogainabetterunderstandingofwhatdidanddidnotworkin
threePHRapplications:GoogleHealth,MicrosoftHealthVaultandMyMedicalRecords.com(MMR).WhilenoneofthePHRsstudiedhadaperfectinteractionmodel,thedatamotivatedUserCentrictodevelopa
seriesofbestpracticestobeconsideredwhenimplementingaPHR.Thebestpracticesdiscussedbelow
arebasedsolelyontheissuesobservedandfeedbackgivenbyparticipants,andleaveroomforfurther
developmenttowardabetterPHR.
Sinceperceivedsimplicityandeaseofusearekeystouserpreference,aPHRhomepageshould
avoidunnecessaryvisualcomplexity.
Duringtheusabilitytest,participantsshowedastrongpreferenceforthelayoutofGoogleHealths
homepagewhencomparedwithMicrosoftHealthVaultshomepage,mainlyduetoitssimplicity.Google
Healthusedaplaindesignonitshomepagewithonlycriticalnavigationandafewlinksprominentlydisplayed.Participantsfounditeasiertoaccess,lesscluttered,andeasytonavigate.Thisfocusona
fewimportantpointsalloweduserstoquicklyscantheinformationpresentedandfindwhattheycamefor.
APHRshouldonlydisplaynavigationandinformationnecessarytocompletecoretasksonits
homepage.
APHRshouldprovidestrongcuestohelpusersstartenteringhealthinformation.
SincenewuserswillnotgenerallybetrainedtouseaPHR,aPHRapplicationshouldbedesignedto
supportusersfromtheirfirstinteractionwithit.Inthestudy,participantshaddifficultywithhowtobegin
enteringhealthinformationintoallthreePHRsandindicatedtheywerelookingforguidancefromthe
applicationsonhowtostartthisprocess.ThisisespeciallyproblematicbecausethemainfunctionofaPHRistoenterhealthinformation,anditshouldbeeasyfornewuserstojumpinandenterhealthdata.
Instead,aPHRshouldprovideastrongvisualcuetotheuserforhowtobeginenteringthisinformation,
suchasawelcomepage,largebuttonorlinkrepresentingastartingpoint.
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Usersshouldbeabletoadddetailsaboutahealthitem(e.g.,medication)immediatelyafter
enteringitsname.However,thenumberofdetailfieldsdisplayedatonetimeshouldbelimitedto
avoidoverwhelmingusers.
Theprocessofenteringdatashouldbeassimpleaspossible,allowinguserstoenteritemsquicklywhile
alsoprovidinganopportunitytoenterdetailsimmediately.BothofthetwoPHRstestedproveddifficultfor
participantsinsomeaspectofdataentry.Forthemostpart,GoogleHealthprovidedaquickpathto
enteringthenamesofhealthitems,butrequireduserstonavigatethroughmultiplescreenstoadddetails
aboutthoseitems.Ontheotherhand,MicrosoftHealthVaultalloweduserstoadddetailsrightaway,but
thesheeramountofentryfieldsdisplayedforeachhealthitemwasoverwhelmingforparticipants.
BothendsofthisuserexperiencemustbeconsideredwhendesigningthedataentryprocessforaPHR.
Participantsoverwhelminglypreferredtobeabletoenterdetailsaboutahealthitemonthesamescreen
asitsname,soaPHRshouldsupportthisprocess.However,thePHRmustalsobedesignedtoensure
thatitsusersarenotoverwhelmedwiththeamountofinformationtheyneedtoenter,possiblybylimiting
theamountofdataentryfieldsdisplayedatonetime.
Medicalinformationshouldbepresentedwithouttechnicaljargon.
Non-technicallanguageshouldbeusedbyinPHRapplicationswheneverpossiblebecauseparticipants
werefrequentlyconfusedbythemedicalterminologytheydidnotunderstand.Thiswasespecially
apparentwhenmedicaltermswereusedasfielddescriptionsinMicrosoftHealthVault.Byusingfamiliar
terminologyinlinks,fielddescriptions,andotherareas,aPHRwillprovideuserswithamuchcleareridea
ofwhatinformationtheyarebeingaskedtoenter,whichwillinturnhelptoensuretheaccuracyofusers
healthprofiles.
Multiplemethodsofdataentryandsearch(e.g.,textentryfield,A-Zlist)shouldbesupported.
BothGoogleHealthandMSNHealthVaultofferedauto-completefunctionalityforusersastheyentered
text,butonlyGoogleHealthalsoofferedanA-Zlistofmedicalitemstochoosefrom.Participantsfromthe
usabilitystudyenjoyedGoogleHealthsflexibility,withsomeparticipantspreferringtoidentifytheir
specificmedicalissuesbybrowsingthroughtheA-Zlist,andotherspreferringtousethetextentryfield.
BothofthesemethodsforenteringhealthinformationshouldthereforebeincludedinaPHRto
accommodateabroadrangeofusers.
Databasesofhealthinformationshouldincludemultipledescriptionsofthesamehealthitemsto
accommodateusersdifferinglevelsofcomfortwithmedicalterminology.
Participantsoftenfeltconstrainedbytheterminologysuggestedbytheauto-completefunctionalityinboth
PHRsandsometimesdidnotknowwhichitemtochoosewhentheydidnotunderstandthelanguage
used.Textentryfieldsshouldbeflexiblewhenidentifyingthemedicalitem(e.g.,medication,testresult,
condition)userstypeintothem.ThePHRdatabaseshouldbeabletorecognizewhateverlevelof
technicalterminologyusersarecomfortablewithbystoringmultipledescriptionsofthesamemedical
item.Itshouldalsohelptobridgethegapbetweenlaymansknowledgeandmedicalterminologyby
helpinguserstotranslatetheirunderstandingintoprecisemedicalterminology(e.g.,suggestingspellings,
filteringconditionsvianaturallanguageprompts).
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Aconfirmationshouldbedisplayedasitemsareaddedtoausersprofile.
Duringthestudy,participantswerepleasedwiththeimmediate,detailedonscreenconfirmationprovided
byGoogleHealthastheyaddedhealthitemstotheirprofiles.Theseusersfeltmoreconfidentthattheir
itemswereaddedsuccessfully.OnMicrosoftHealthVault,however,changeswerenotconfirmed
immediatelyforusers,insteadforcingthemtoclickbacktotheHealthInfoorHometabtoviewalistofall
informationtypestheyhadentered.Aclearlyvisibleconfirmationofchangesmadetohealthitems,such
asawindow,message,icon,orrunningprofile,shouldbeimplementedinPHRapplicationstoconfirm
successfuldataentry.
ProfilesummaryinformationshouldbedisplayedoneverypageofaPHR.
AsparticipantsenteredmedicalinformationintheirGoogleHealthprofiles,theyappreciatedthe
persistentProfileSummarythatupdatedeverytimetheyaddedanewitemormadeachange.This
ProfileSummaryconfirmedchangesmadetotheprofileaswellasremindingparticipantswhat
informationtheyhadalreadyenteredaboutthemselves.Thistypeoffunctionalitywouldbeausefulway
foraPHRtoallowuserscontinualreferencetotheirprofiledata.
PersistentnavigationshouldbemaintainedthroughoutaPHR.
ManyparticipantsalsoindicatedtheyfoundGoogleHealtheasiertousebecauseofitsredundant
navigationmodelwhichutilizedbothtab-basednavigationandapersistentleftnavigationmenu.Asa
result,userscouldeasilynavigatefromonehealthhistoryitemtothenextbyusingeithermenu.PHR
applicationsshouldincludesuchpersistentnavigationtoallowuserstoaccessanyfunctionontheWeb
siteapplicationfromtheeachscreen.
Theabilitytoaddafamilymembersprofileshouldbeprominentlydisplayedandeasytofind.
Whileparticipantswereabletosuccessfullyfindthepersistentlinktoaddafamilymembershealthrecord
onMicrosoftHealthVault,theywereveryfrustratedbyitslackofprominenceinGoogleHealth.Sinceone
ofthecorefunctionsofaPHRistoenableuserstoinputdatanotonlyforthemselvesbutalsofor
dependents,thisabilityshouldbeemphasizedinanyPHR.
SomeparticipantswerealsoconfusedaboutthedifferentlabelsforthisfunctiononeachPHR,mainly
duetotheuseofthepotentially-confusingtermsrecordorprofile.APHRthatusesaclearlabel(e.g.,
AddaFamilyMember)wouldallowitsuserstoavoidthisissue.
DrugInteractionfunctionalityshouldbeincluded.
Oneofthemostpositivelyreceivedfunctionsthroughoutthestudywasthedruginteractiontoolavailable
onGoogleHealth.Participantsalsoratedtheabilitytolearnaboutpossiblesideeffectstomedications
quitehighlyinthefeaturesquestionnaireadministeredattheendofthestudy.However,some
participantssaidthatthesefeatureswouldonlybevaluableiftheycamefromatrustedsourceandthey
wouldlikelylooktotheirdoctorasaprimarysourceforthisinformation.
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IfitispossibletointegrateinsuranceinformationintoaPHR,thetoolshouldincludetheabilityto
findadoctor.
AstheyusedthefeatureonGoogleHealth,someparticipantswereinterestedinbeingabletofinda
doctor,butthisinterestwaslimitedtofindingdoctorswithintheirhealthinsuranceprovidersnetwork.
Mostparticipantsfoundthelinktoseedirectionstoadoctorslocationtobeoneofthemostuseful
componentsofthisfeature.Thisfeature,then,shouldonlybeincludedinaPHRifthetoolwasalsoable
tointegrateusersinsuranceinformationtobettertargetsearches.
IfanonlinePHRprovidesmedicalknowledge,thesourceofthatinformationshouldbeplainly
showntouserssotheycanmaketheirownjudgmentsabouttheinformationsreliability.
SomeparticipantswereinterestedintheReferencefeatureonGoogleHealththatdisplaysgeneral
medicalinformationaboutaparticularcondition.However,theseparticipantswerealsoconcernedabout
thereliabilityoftheinformation,sincethesourceswerenotvisible.APHRshouldconsiderimplementing
afeaturethatdisplaysmedicalinformation,butthatalsoclearlylinkstoitssources.
APHRshouldallowusersasecurelinktotheirphysicianshealthrecordsandallowthemtoboth
uploadtoanddownloadfromtheirphysiciansEHRs.
Sharinginformationwithaphysicianwasseenbymanyparticipantsasamainreasonformaintaininga
PHR,makingitanessentialfeaturetoinclude.Usersshouldbeabletoimportdatafromaphysicians
EHRtoavoidtherepetitionofdataentryintothePHR.Theabilitytoexportandsharefamilyhistory
informationandsymptomswithaphysicianorotherfamilymemberswasalsohighlypraised,andshould
besupportedbyPHRs.
However,whenaccessinghealthinformationfromaproviderssystem,privacystandardsmayrequirea
certainlevelofauthenticationwhichmustbeconsideredinthePHRdesign.Itmaybenecessaryfora
PHRtoemploysecurepasscodesorothermeansofreliablyidentifyingindividuals.
Itisimportanttoestablishbrandcredibility,asitisamotivatingfactorforuserstochooseaPHR.
Asmentionedearlier,participantssaidtheywouldfeelmorecomfortablewiththeinformationgivenina
PHRifitwasfromorendorsedbyaknowncompanyormedicalassociation.Brandcredibilitywillhelpto
ensurethesuccessofanyPHR.
APHRshouldhaveeasilyaccessibleprivacyagreementsandotherlegaldisclosures,inlanguage
thatissimpletounderstand.
Someparticipantsmentionedthattermsofuseandprivacypolicieswereunusuallyimportantinthe
contextofaPHR.Becausetheseapplicationsinvolvepersonalhealthinformation,aPHRshouldmake
certaintoprominentlyexplaintousershowtheirdatawillbehandled.However,itisalsocriticalthatthis
informationbepresentedinareadableandsimpleformat,sothatusersarenotintimidatedbypagesof
legaljargon.
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Differenttypesofusersandtheirhealthneedsshouldbeconsciouslyaddressedwhendesigning
functionalityforaPHR.
BecausemanyparticipantssawsignificantvalueinusingaPHRiftheyhadachroniccondition,itis
importantthattheidealPHRistailoredtothistypeofsituation.Althoughnotincludedinaspecifictaskin
thestudy,theprocessofaddingmultipleupdatestothesameconditionwasnotstreamlinedbyanyofthe
threePHRsstudied,whichmaylimittheirutilityforuserswiththesetypesofconditions.Considerauser
withacomplicatedconditionlikebreastcancer.WhenthisuserinitiallysetsupherPHRprofile,shemay
wanttoinputhercancersentirehistory,includingrelatedtestresults,treatmentregimens,medications
andprocedures.
Then,eachtimethestatusinherhealthchanges,thePHRwillneedtobeupdated.Thecurrentmodel
usedbyallthreePHRsinthisusabilitystudysimplyallowsfornewlineitemstoasinglecategoryof
information(e.g.,conditionormedication).TheidealPHRshouldallowuserswithsuchconditionstotie
differenttypesofinformationtogetherundertheumbrellaofasinglemedicalissueandenableeasy
updates.
7.NextStepsforPHRApplications
PerformingusabilitytestingonseveralpopularPHRsallowedUserCentrictogetacloser,morestudied
perspectiveontheuserexperienceofPHRsaswellastheirmostvaluablefeaturesandfunctions.The
wealthofdatagatheredfromtheresearchwasusedtoinformthedevelopmentofsomedesignbest
practicesforPHRs.UserCentricencouragesfurthervalidationofthepreliminaryideassuggestedfor
thesebestpracticesabove.
Whilethereisstillmoretobelearnedinthisdomain,obtainingactualusersfeedbackandexperiencesisanessentialsteptoincreasingtherateofPHRadoption.Asafollow-uptothePHRusabilitytesting
describedinthiswhitepaper,UserCentricconductedanonlinesurveytogatherfurtherdataonattitudes
towardsPHRs.Althoughanalysisofthesurveydataiscurrentlyongoing,severalrelevanttrendshave
beenidentified.
Onecriticalpointisthatsurveyrespondentswerenottypicallypreparedtoinvestalargeamountoftime
inconfiguringorupdatingtheirPHR.Mostcommonly,respondentswerewillingtospendbetween10and
30minutessettinguptheirPHRandwerewillingtoupdateitonlymonthlyoryearly.Thishighlightsthe
importanceofthePHRuserexperiencetoadoption;ifdataentryisdifficultorinefficient,thePHRmaynot
beworththeuserstime.
AnotherinterestingfindingincludedthefeaturesthatwouldmostdriverespondentstoadoptaPHR.
Thesewere:
Trackimmunizationrecords
Securelyreceivetestresultsandinformationfromyourphysician
Shareyourhealthinformationwithyourprimaryphysician
Manageinsuranceinformationandmedicalbills
Getremindersaboutregularcheckupsorrecurringtreatments.
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Sharingonesinformationwiththeirphysicianwastheonlyoneofthesefeaturestobeincludedonthe
questionnairegivenduringtheusabilitytesting,anditscoredhighlyinboththetestingandthesurvey.
Theotherfourfeatureswereamongthosenewlyintroducedforthesurvey.
Inadditiontothisonlinesurvey,UserCentricisconductinganonlinetestoftask-basedfirst-click
responsestoassesstheeffectivenessofpagelayoutandterminologyusedinthethreePHRsevaluated
intheusabilitystudy.
Inthefuture,UserCentricwillreleaseamoredetailedreporttodiscussthesurveydataandits
implications.Additionally,focusgroupsfeaturingindividualswithdistincthealth-relatedprofiles(e.g.,
healthprofessionals,parents)arealsoplanned.
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8.References
AAFP(AmericanAcademyofFamilyPhysicians).(2006).AnintroductiontoPersonalHealthRecords.
RetrievedJanuary26,2009,fromAAFPNews&PublicationsWebsite:
http://www.aafp.org/fpm/20060500/57anin.html
AHIMA(AmericanHealthInformationManagementAssociation).(2009a).WhatisaPersonalHealth
Record?RetrievedJanuary26,2009,fromMyPHR.comWebsite:
http://www.myphr.com/what/what_is_a_health_record.asp
AHIMA(AmericanHealthInformationManagementAssociation).(2009b).HowtochooseaPHRsupplier.
RetrievedJanuary26,2009,fromMyPHR.comWebsite:http://myphr.com/resources/phr_search.asp
Arnst,Catherine.(2006).ThebestmedicalcareintheU.S.RetrievedJanuary26,2009,from
BusinessWeekWebsite:
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KaloramaInformation.(2008).OnlineaccessofpatienthealthrecordsaddsnewdimensiontoEMR.
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Lund,A.M.(1998).Theneedforastandardizedsetofusabilitymetrics.Inthe Proceedingsofthe
HumanFactorsandErgonomicsSociety42ndAnnualMeeting.SantaMonica,CA:HumanFactors
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MyMedicalRecords.com.(2007a).MyMedicalRecords.comoffersfreeadvanceddruginformation/interactiontooltothepublic. RetrievedJanuary27,2009,fromMyMedicalRecords.com
Website:http://www.mymedicalrecords.com/pressRoom.jsp
MyMedicalRecords.com.(2007b).FormercongressmanRichardGephardtjoinscampaigntopromote
availabilityofelectronichealthrecordsforallworkingAmericans. RetrievedJanuary26,2006,from
PRNewsWire.comWebsite:http://www.prnewswire.com/cgi-
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Nall,Janice.(2008).Proposedrecommendationsforusingsocialmediatoincreaseadoptionofand
enhancethefunctionalityofPersonalHealthRecords(PHRs)[PowerPointslides].RetrievedfromU.S.
DepartmentofHealthandHumanServicesWebsite:http://www.hhs.gov/healthit/ahic/materials/04_08/ce/nall_recs_files/textonly/index.html