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  • 8/14/2019 Usability Guidance for Improving the User Interface and Adoption of Online Personal Health Records

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    UsabilityGuidanceforImprovingtheUserInterfaceandAdoptionof

    OnlinePersonalHealthRecordsKirstenPeters,M.S.MichaelNiebling,M.S.CassandraSlimmer,B.S.ThomasGreen,M.S.

    JaysonM.Webb,Ph.D.RobertSchumacher,Ph.D.

    UserCentric,Inc.

    February2009

    UserCentric,Inc.

    2TransAmPlazaDr.-Suite100

    OakbrookTerrace,IL60181

    +1.630.320.3900

    www.UserCentric.com

    Copyright2009UserCentric,Inc.

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    Version 1.1 Copyright 2009 User Centric, Inc. 2

    RevisionHistory:

    Version1.0: Initialrelease

    Feb2,2009

    Version1.1: Section4.4:AddedFactorAnalysistoUSEsurveydata.Feb24,2009

    Sections4.3-4.5:Correctedstatisticalreportingandclarifiedsomeofthe

    languagetoreduceconfusionsomereadershavereported.Therewereno

    resultingmaterialchangestofindingsorconclusions.

    Note: InconversationswiththeteamfromMicrosoftatthe2009TEPR

    ConferenceinPalmSprings,UserCentricbecameawarethatMicrosoftdoesnot

    claimorpromotethatHealthVaultisaPHRperse.Microsoftconsiders

    HealthVaultarobustdataplatformwithwhichthird-partyPHRsandothermedical

    informationsourcesinteract.Nevertheless,manyintheindustryandmedia

    considerHealthVaultsuserinterfacetobeaPHRandoneworthyofevaluationandcomparison.

    TechnicalContact:

    RobertSchumacher,Ph.D.2TransAmPlazaDr.-Suite100

    OakbrookTerrace,IL60181

    +1.630.320.3900

    [email protected]

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    Version 1.1 Copyright 2009 User Centric, Inc. 3

    UsabilityGuidanceforImprovingtheUserInterfaceandAdoptionofOnline

    PersonalHealthRecords

    1.Abstract

    DuringDecember2008andJanuary2009,theuserexperienceresearchfirmUserCentricconductedan

    independentcomparativeusabilitystudyoftwoexistingonlinepersonalhealthrecordapplications,

    GoogleHealthandMicrosoftHealthVault.(NeitherGooglenorMicrosoftcommissionedorparticipatedin

    thisstudyinanymanner.)Duringthisstudy,30participantscompletedkeytasksusingeachPHR

    applicationandprovidedqualitativefeedback,ratingsandpreferencedataonfivespecificdimensions:

    Overallusability,utility(usefulnessoffeatures),security,privacyandtrust.Participantsperformedupto

    seventasksonbothGoogleHealthandMicrosoftHealthVault,whichincludedthreetasksthatexplored

    eachapplicationsuniquefeatures.Midwaythroughthestudy,athirdPHRapplication,

    MyMedicalRecords.com,wasaddedtogatheradditionalqualitativedata.

    ThemajorityofstudyparticipantsfoundPHRstobeusefulandstatedthattheyhadaninterestinbuilding

    theirownPHRsafterthestudy.Overall,participantsindicatedthattheyfoundGoogleHealthmoreusable

    becausenavigationanddataentryofhealthinformationwaseasierthanontheotherapplications.

    ParticipantssaidthattheGoogleHealthapplicationutilizedmorefamiliarmedicalterminologyand

    providedapersistenthealthinformationprofilesummary.

    Basedonananalysisofthestudydata,UserCentrichasidentifiedthefollowingtrends:

    Usability

    Overall,participantslikedhowtheGoogleHealthinterfaceallowedthemtoquicklyentermedical

    information.Thelefthandnavigation,tabs,andprofilesummaryallcontributedtoafairlysmoothuser

    experiencefordataentry,whichisacriticalPHRtask.However,therewasstillroomforimprovement.

    Participantshadtroubleattachingdatestohealthinformation,figuringoutwheretostart,andfinding

    wheretheycouldaddanotherfamilymember.

    Ingeneral,participantshadmoretroublewiththeMicrosoftHealthVaultinterface.Themosttroublesome

    elementsweretheconfusingnavigation,thepresentationofalltermsinmedicaljargon,andthe

    inconsistencybetweendifferentdataentryelements.However,reactiontoMicrosoftHealthVaultwasnot

    completelynegativeeventhoughtheystruggledtoentertheirhealthinformation,severalparticipants

    stillreactedfavorablytotheveryhighlevelofdetailthesystemallowedthemtoenter.Inaddition,

    participantslikedtheabilitytoadddetailstoanitemimmediatelyafteraddingtheitemitself.This

    representedanefficientflowthatGoogleHealthdidnotprovide.

    Utility

    ParticipantsfoundPHRstobefairlydesirablebytheendofthestudy.ThePHRsbaselinefunctionality

    wasappealing,andbothGoogleHealthandMicrosoftHealthVaulteachhadafewwell-received

    exclusivefeatures.

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    GoogleHealthspreferenceonthisdimensionislikelyduetotwofactors.First,participantssometimes

    seemedtoconfuseutilitywithusability,eventhoughresearchersspecificallyaskedaboutusefulnessof

    features.This,alongwithGoogleHealthsbettereaseofuse,wouldexplainashiftinparticipantsutility

    preference.Second,GoogleHealthincludedthehighlydesirabledruginteractionfeature,whichwas

    rankedmostappealingoutofallthefeaturesinthepost-testquestionnaire.Thiswastheonlyoutstanding

    featureamongthesixPHR-exclusivefeatures,soitmayalsohaveboostedtheperceptionofGoogle

    Healthsutility.

    Security,PrivacyandTrust

    ThekeycontributorstoMicrosoftHealthVaultsmorefrequentpreferenceonsecurity,privacyandtrust

    wereastrongbrandimage,professional-lookingvisualdesignandahigherperceivedinformation

    content.

    However,eventhoughparticipantsmorecommonlypreferredMicrosoftHealthVaultforthesedimensions,

    whenratingthetwoPHRstheyscoredGoogleHealthalmostequallyashighly.GoogleHealthshigh

    ratingislikelyduetoitsbrandreputationanditsup-frontpresentationofthetermsofuseandlegal

    agreements.Oneimportantnegative,though,wasGooglesstrongpositioninginthesearchande-mail

    domains;itislikelythatthiscontributedtoMicrosoftHealthVaultsoverallpreferencehere.

    Overall

    UserCentricscomparativestudyfoundthatneitherGoogleHealthnorMicrosoftHealthVaultwereperfect

    applications;eachhadflawsintheuserexperiencewhichwereseentoreduceparticipantswillingnessto

    adoptPHRtechnology.However,participantspreferredGoogleHealthoverMicrosoftHealthVaultonthe

    whole,mainlyduetoGoogleHealthsgreatereaseofuse.Althoughfeatures,security,privacyandtrust

    certainlydidinfluenceparticipantsoverallevaluations,itiscriticaltonotethattheirmajordifficultieswith

    bothapplications-andtheirstrongestcriticisms-wererelatedtotheuserexperience.Improvementsto

    theuserexperiencethereforerepresentthelargestopportunityforimprovingthepatientsexperiencewith

    aPHR.

    Basedonthisusabilitystudy,UserCentrichasidentifiedseveralbestpracticestobeincludedina

    workingmodelforPHRinterfacesthatfacilitatesuseradoption.

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    2.Background

    InJanuary2009,PresidentObamaannouncedaninitiativetoconvertallmedicalrecordsusedby

    hospitalsandphysicianstoelectronichealthrecords(orEHRs)bytheyear2014.Asthisinitiativetakes

    shapeandmedicalrecordsbecomemoredigitized,PersonalHealthRecords(orPHRs)willbecomeanimportantintermediarybetweendoctorsdigitalversionofmedicalrecordsandanindividualsknowledge

    oftheirownhealthhistory.

    EHRsarebecominganincreasinglycommontoolforphysiciansandhospitals,whereEHRsarethought

    toimprovemostphysiciansefficiencyinpracticingmedicineandhelpprovidemorestandardizedcareto

    allpatients(Arnst,2006).ThesebenefitshavegenerallyacceleratedtherateofEHRadoption,and

    companiessuchasGoogleandMicrosoftarealreadystartingtocapitalizeonthistrendbycreatingfree

    orsubscription-basedPHRs.AsPHRsbecomemoreprevalent,itwillbeimportanttogainaclearer

    understandingofwhichfunctionsandfeaturesarelikelytobeadoptedbythepopulationatlarge.

    Inarecentreport,keyindustryanalystspredictedthatprovidingpatientswithaccesstotheirelectronichealthrecordswouldenhancethedoctor-patientrelationshipandreduceoverallhealthcarecosts

    (KaloramaInformation,2008).Oneapproachforprovidingaccesstopatientrecordsisthrougha

    PersonalHealthRecord(orPHR),whichisasoftwareapplicationortoolthatismaintainedbyindividuals

    basedontheirpersonalknowledgeabouttheirhealthand/orthehealthoftheirdependents.PHRscanbe

    usedtocollectandtrackpastandcurrenthealthinformationincludingconditions,symptoms,

    medications,allergies,immunizations,andemergencycontactinformation(AHIMA,2009a;AAFP,2006).

    HealthcareprofessionalsandmarketersarestartingtorealizethebenefitsofPHRsandareincreasingly

    focusedonhowtoincreasePHRacceptancebyimprovingtheirfunctionality.Forexample,ina

    presentationgiveninAprilof2008attheCenterforDiseaseControlsNationalCenterforHealth

    Marketing,thefirstrecommendationforachievingthesegoalswastoconductformalusertestingandmarketresearchonexistingPHRsystemstodetermineuserneeds,preferences,behaviorsandconcerns

    (Nall,2008).

    Currently,morethan60onlinePHRapplicationsareavailableforconsumerstochoosefrom(AHIMA,

    2009b).MajorsoftwareorganizationssuchasGoogleandMicrosoftarestartingtocapitalizeonthe

    increasingpopularityofPHRsbycreatingtheirownfreeorsubscription-basedonlinehealthrecord

    applications.Unfortunately,onlinePHRsvarywidelyintheircapabilitiesandinterfaces,whichmaymake

    itdifficultforindividualstochoosethebesttoolfortheirneeds.

    InordertogainabetterunderstandingofwhichfeaturesarenecessaryforaPHRapplicationtobe

    accessibleandacceptedbythepopulationatlarge,UserCentricchosetoexaminetwoprominentPHRsthroughausabilitytest.GoogleHealthandMicrosoftHealthVaultwereselectedforusabilitytestingdueto

    thewidespreadattentiongiventoeachtool.

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    3.Methodology

    DuringDecember2008andJanuary2009,UserCentricconductedacomparativeusabilitystudyoftwo

    existingonlinePersonalHealthRecords(PHRs):GoogleHealthandMicrosoftHealthVault.(Neither

    GooglenorMicrosoftcommissionedorparticipatedinthisstudyinanymanner.)ThehomepagesforbothapplicationsareshownbelowinFigure1.

    Figure1:HomepagesofGoogleHealth(left)andMicrosoftHealthVault(right)astheyinitiallyappeartousers.

    Thegoaloftheusabilitystudywastounderstandwhichfunctionsandfeaturesweremostpreferredby

    participantsandtoobservewhichareaswereassociatedwiththemosterrorsormisstepsonthepartof

    participants.DatacollectedfrombothPHRsincludedbothquantitativeandqualitativemeasuresonfive

    specificdimensions:overallusability,utility(usefulnessoffeatures),security,privacyandtrust.

    Overthecourseof4days,UserCentrictested30participantsduring75to90minutesessionsatitsuser

    researchfacilityinOakbrookTerrace,Illinois.ParticipantswererecruitedfromtheChicagometroarea

    usinganonlinerecruitmentscreenerdevelopedbyUserCentric.Participantsqualifiedforthestudy

    basedontheircurrentuseofonlinetoolstomanagesomeaspectsoftheirpersonallife(e.g.,bank

    accounts,onlinebillpayment,onlinecalendarsforpersonalschedules).Participantsincluded13menand

    17womenwithavariedagedistribution.2oftheparticipantswereaged18-21,10wereaged22-30,7

    wereaged31-40,3wereaged41-50,4wereaged51-60and4wereaged61to65.

    Uponarrival,participantswererequiredtosignaconsentformandanon-disclosureagreementwithUser

    Centric.Participantswerebriefedonthestudygoalsandproceduresandwereencouragedtotryto

    completespecifictasksinthewaytheynormallywould.Theywerealsoencouragedtothinkaloud

    duringthetasksandtoexpresstheiropinionsbothpositiveandnegativeabouttheirexperience

    duringthesession.Participantswerethenaskedaseriesofwarm-upquestionstounderstandtheir

    currenthabitsandinterestsinstoringandmanagingpersonalinformationonline.Next,astandardized

    descriptionofaPHRwasreadtoparticipantsinordertoassesseachparticipantsinitialinterestin

    creatingaPHRprofile.

    Beforethetasksbegan,eachparticipantwasprovideduniquetestaccountstousewhencreatingnew

    PHRprofilesoneachapplication.Allparticipantswerealsoprovidedafictionalhealthprofile,developed

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    byUserCentric,thatincludedbothchronicandacutemedicalconditionsaswellascommon

    immunizations,testresults,medications,andgeneraldemographicinformation.

    ParticipantswereaskedtocompleteseventasksoneachoftheGoogleHealthandMicrosoftHealthVault

    PHRapplications.ThefirstfourtaskswerecommontobothPHRs:CreateanewPHRprofileandenter

    healthinformation,addachildshealthprofiletothePHR,linkfromthePHRtoaphysiciansonlinehealth

    record,andupdatethePHRprofilewithanewcondition.Theremainingthreetasksforeachapplication

    addresseduniquefeaturesofthePHR.ThetasksspecifictoGoogleHealthwere:Locateadoctor,find

    outaboutpotentialdruginteractions,andlearnmoreinformationaboutaspecificmedicalcondition.The

    tasksspecifictoMicrosoftHealthVaultwere:Downloadinformationfromamedicaldevice,uploada

    medicaldocumenttothePHR,andsharethePHRprofilewithfamilyandfriends.

    Duringthetasks,researchersobservedparticipantsinteractionwiththePHRapplications,notedany

    participanterrorsormissteps,andrecordedparticipantscommentsandfeedback.Followingeachtask,

    participantswereaskedforadditionalfeedbackabouttheirexperience.Afterthelastfivetasks,

    researchersalsoaskedparticipantswhethertheyfoundthefeaturehighlightedinthattasktobevaluable

    oruseful.

    TheorderthatparticipantsusedtheGoogleandMicrosoftPHRapplicationswascounterbalancedacross

    participantstoreducepreferencebiasrelatedtopresentationorder.Duetotimeconstraints,notall

    participantscompletedalltasks,althoughaconcertedeffortwasmadetocollectdatafromanequal

    numberofparticipantsduringthePHR-specifictasks.

    AftercompletingalltasksforeachPHR,participantsprovidedfeedbackabouttheiroverallexperience

    andusinga7-pointLikertscaletoprovideratingsforthePHRapplicationsusability,utility,security,

    privacyandtrust.TheUSEquestionnaire,astandardizedusabilitysurvey,wasalsoadministeredafter

    usingeachPHRtogatherquantitativefeedbackaboutthatPHRsusefulness,satisfaction,andeaseof

    use.

    AftercompletingtasksonboththeGoogleHealthandMicrosoftHealthVaultapplications,participants

    wereaskedtodiscusstheiroverallexperienceandgeneralinterestinPHRs.Participantsalsoprovided

    forced-choicepreferencesbetweenthetwoPHRsonthefivedimensions(usability,utility,security,

    privacyandtrust),andwereaskedwhichPHRtheypreferredoverallandwhatspecificallymotivatedtheir

    choice.

    AthirdPHR,MyMedicalRecords.com(MMR),wasaddedmidwaythroughthestudyinordertoassessthe

    sitesclaimsthatitisthemostuser-friendlypersonalhealthrecordonthemarket

    (MyMedicalRecords.com,2007a).UserCentricwasalsointerestedindeterminingifparticipants

    commentsregardingtheGoogleandMicrosoftPHRapplicationsappliedtootherPHRs.Thelast12study

    participants(outof30)wereabletointeractbrieflywithanexistingPHRprofileonMMRoncetheyhad

    completedtheirexplorationofthefirsttwoPHRs.Afteraninitialfreeformexploration,participantswere

    askedtocompletetwotasks:AddinganallergytotheirprofileandlinkinginformationfromtheirGoogle

    HealthprofiletotheirMMRprofile.AfterinteractingwiththeMMRapplicationforseveralminutes,

    participantswereaskedtoindicatewhichPHRtheypreferredoverall:MMRortheirearlierPHR

    preference(eitherGoogleHealthorMicrosoftHealthVault).

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    Finally,allparticipantscompletedasurveyontheusefulnessofpotentialPHRfeatures(e.g.,sharing

    informationwithaphysician,learningaboutsideeffectstomedications),awardingratingsforeachof

    theseitemsona7-pointLikertscale.Attheendoftheirsessions,participantswerecompensatedfortheir

    time.

    4.FindingsfromUsabilityTestingwithGoogleHealthandMicrosoft

    HealthVault

    UserCentricsusabilitytestinggeneratedanumberofpreliminaryfindingsaboutparticipantsreactionsto

    twoPHRs:GoogleHealthandMicrosoftHealthVault.Thissectionwilldetailtheinteractionissuesand

    trendsthatwereobservedduringindividualsessions.

    Thissectionwillcover:Initialreactions,usabilitytestfindings,PHR-specificfeedback,theUSEand

    featuresquestionnaires,andadiscussionofMyMedicalRecords.com.Thetestfindingswillbeaddressed

    astheyrelatetoUserCentricsfivedimensionsofinterest:usability,utility,security,privacy,andtrust.

    4.1InitialReactiontoPHRs

    Basedonparticipantsresponsestothewarm-upquestionsatthebeginningoftheirsessions,only23%

    oftheparticipantswerefamiliarwiththeconceptofaPHR.However,afterlisteningtoastandardized

    descriptionofaPHR,76%oftheparticipantsindicatedtheywereinterestedinbuildingaPHRor

    managingtheirfamilymemberspersonalhealthinformationbyusingonlinetools.Participantslisteda

    numberofreasonsforthisinterest,includingtheabilitytomanagealloftheirfamilysrecordsinone

    locationandthetime-savingbenefitsofsharingofmedicalinformationwiththeirphysicianorhealth

    insuranceprovider.

    12outof30participantsindicatedthattheyfeltsecureaboutstoringtheirownorfamilymembers

    personalinformationonlinebasedontheirpositiveexperienceswithonlinebankingsites.Theyextended

    thisleveloftrusttohealthinformationaswell.28outof30participantsalsoindicatedtheywouldtrust

    onlinesourcesforhealth-relatedguidanceandsuggestions.(16participantsmentionedtheycurrentlyuse

    WebsitessuchasWebMDtochecksymptomsorresearchhealthtopics.)However,10participantssaid

    theywouldnotrelyonaWebsitetobetheirprimarysourceofinformation.

    4.2UsabilityTestFindings

    ParticipantscompletedthesamesetoftasksforboththeGoogleHealthandMicrosoftHealthVaultPHRapplications.Thesetwoapplicationswerechosenasrepresentativestimulitoexploreparticipants

    attitudesaboutPHRsonfivespecificdimensions(usability,utility,security,privacy,andtrust),soUser

    Centricsanalysisanddiscussionoftask-specificfindingswillfocusonthesecoredimensionsand

    integrateinformationfrombothPHRapplications.

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    4.2.1Usability

    ParticipantspreferredGoogleHealthssimplehomepage.

    Overall,participantsimpressionsofGoogleHealthshomepageweremorefavorablethanthoseof

    MicrosoftHealthVaults.Althoughparticipantswerenotdirectlyaskedtocomparethetwo,15participants

    volunteeredthattheyfavoredGoogleHealthshomepage,citingreasonssuchasitwaseasiertoaccess,itwaslessclutteredoritwaseasytonavigate.

    Incomparison,while5participantslikedthewaythatMicrosoftHealthVaultcontainedmoreinformation

    thanGoogleHealth,mostparticipantsdidnotperceivetheextrainformationasabenefit.Instead,they

    viewedthisadditionalinformationmorenegativelybecauseitmadeMicrosoftHealthVaultshomepage

    verybusy.

    Participantsstruggledtoidentifywheretheycouldstartenteringhealthinformation.

    ParticipantshadexpecteddirectionfrombothPHRsonwherehowtogetstartedenteringtheirpersonal

    information.However,theirfeedbacksuggestedthatneitherGoogleHealthnorMicrosoftHealthVaultclearlyindicatedthisstartingpoint.Thestartscreensforbothapplicationsareshownbelow(seeFigure

    2).Atleast7participantscommentedthatthelabelforGoogleHealthsAddtothisProfilelinkdidnot

    clearlyindicatethatthisservedasthestartpoint.Asoneparticipantstated,IfIwasstartingout,Iwould

    belookingforaninitialCreate[linkorbutton].ParticipantsalsocommentedthatMicrosoftHealthVault

    hadtoomanyoptionsortoomuchinformationtoread,whichmadethemuncertainwheretofocus.

    Figure2:HomepagesofGoogleHealth(left)andMicrosoftHealthVault(right)withthecurrentstartinglocationshighlighted.

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    Enteringmedicalinformationwasaclick-intensiveprocessonbothGoogleHealthandMicrosoft

    HealthVault.

    Onceparticipantsenteredahealthhistoryitem(e.g.,condition,medication,procedure),mostsaidthey

    expectedtoenteradditionalrelateddetailslikedates,dosage,causes,andstatus.InGoogleHealth,

    however,participantsalmostalwayshadtoclicktoadditionalscreenstoenteranydetailsbeyondthe

    itemsname.Whileenteringdetailsaboutaconditionlikeasthma,forexample,participantsexpressed

    frustrationthattheycouldnoteditinformationonasthmafromthehomepage.Theyinsteadneededto

    clickonalinkintheleftnavigationmenuorintheProfileSummarytoaccessaseparateConditionspage

    andthenselecttheEditlinkontheirAsthmaconditiontoadddetailsforit.

    TheonlyexceptiontothisissuewithinGoogleHealthwastheabilitytoaddatestresult(e.g.,atotal

    cholesterolresult)viaapopupwindow.Afterenteringthenameofthetestresult,participantscould

    immediatelyenterthetestdetailsviathepopup.Participantsreactedpositivelytothismodeofdataentry

    andsaidtheywouldhavepreferredtoentertherestoftheirhealthinformationonGoogleHealthinthe

    sameway(seeFigure 3).

    Figure3:AddingatotalcholesteroltestresultiteminGoogleHealth

    Similarly,8participantscommentedpositivelyonhowMicrosoftHealthVaultallowedthemtousethe

    samescreentoenterahealthitemandquicklypopulatedetailfields(SeeFigure4).

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    Figure4:AddingamedicationusingMicrosoftHealthVault

    However,thesheeramountofinformationrequestedbyMicrosoftHealthVaultoftenoverwhelmedsome

    participants.AlthoughsomefieldswereclearlymarkedOptional,researchersobservedatleast14

    participantssufferingfromcognitiveoverloadwhilereviewingallthefields.Participantsoftenstruggledto

    decidewhichfieldstopopulateandwhichtoleaveblank.Otherparticipantsinthestudyfeltdiscouraged

    becausetheydidnothavesufficientmedicalknowledgetofillinallthefieldsonvariousscreens.

    Ingeneral,whilebothPHRapplicationswereaffectedbydifferentproblems,participantswerefrustrated

    bythelevelofeffortrequiredtoentertheirmedicalinformation.

    ParticipantsappreciatedtheconfirmationprovidedbyGoogleHealthafterprofileinformationwas

    entered.

    Afterenteringmedicalinformation,participantsindicatedtheylikedthevisibleconfirmationprovidedby

    GoogleHealthsProfileSummary(seeninFigure5)becauseitincreasedtheirconfidencethattheyhad

    enteredtheirhealthdatacorrectly.

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    Figure5:GoogleHealthsProfileSummary

    Incontrast,participantsfoundthatafterenteringahealthiteminMicrosoftHealthVault,theystillneeded

    toreturntotheHealthInfoorHometabtoviewthedifferentinformationtypes.

    StraightforwardnavigationonGoogleHealthmadeaddingmedicalinformationsimpler.

    Overall,mostparticipantsfoundthataddinginformationwasarapidprocesswhentheyusedGoogle

    Healthduetotherelativelysimplenavigation.Participantssaidtheylikedtotheabilitytoquicklynavigate

    betweenthetopmenutabswhileenteringnewmedicalinformation.Thesetabscanbeseenbelow

    (Figure6).

    Figure6:GoogleHealthsnavigationtabs

    Participantslikedtheoptionofaccessingtheirmedicalinformationusingeitherthetopmenutabsorthe

    persistentleft-handmenu(Figure7).Asoneparticipantsaid,[This]sitewasmoreuserfriendly[because

    of]theleftnavigationbarandthetabsversushavingtoclickbacktothehomepagetoaddmorehealthconditions.ParticipantsgenerallyfoundGoogleHealthsredundantnavigationmodelsupportiveoftheir

    needs,regardlessoftheirpastexperiencewithPHRapplications.Theyalsofounditeasytolocatethe

    Addbuttonadjacenttothesearchfield,whichtheyusedforaddingmultipleconditions.

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    Figure7:GoogleHealthsredundantnavigation

    AlthoughMicrosoftHealthVaultalsousedtabsfornavigation,participantsfounditsinformation

    architecturetobedeeperandmorecomplex.Thisforcedparticipantstonavigatethroughseveralscreens

    toenterhealthinformation.WhenaddingasecondconditioninMicrosoftHealthVault,forexample,

    participantsneededtofirstselecttheHealthInfotabeventhoughmostthoughttheywerealreadyonthe

    HealthInfoscreen.Manyparticipantswereconfusedbythisandinadvertentlybecamelost,clicking

    betweenmanyotherscreensandtabs(Figure8)togetbacktotheHealthInfotab.

    Figure8:CommonplacesparticipantsclickedtoaddmoreinformationfromMicrosoftHealthVaultsHealthInfotab

    Participantsbecamemostfrustratedwiththeextraneousclicksnecessarytonavigatetoafrequently

    accessedpage.BecausetheprocessofenteringmorehealthinformationwaslessefficientwithMicrosoft

    HealthVault,participantsgenerallycitedGoogleHealthasbeingeasiertonavigate.

    Multiplesearchtoolsfacilitatedsearching,butmedicaljargonstymiedparticipants.

    Mostparticipantslikedtheauto-completefeaturethatbothGoogleHealthandMicrosoftHealthVault

    providedaspartoftheirSearchfields.BothPHRsalsoalloweduserstoenterdatanotfoundinthePHR

    databases.

    However,participantsfoundtheoverallprocessofsearchingfordatamucheasierusingGoogleHealth.

    Participantslikedtheflexibilityofbeingabletosearchfordatainseveralways,includingasearchfield

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    withauto-completeandascrollablealphabeticallistwhichallowedthemtofilterbythefirstletter(see

    Figure9).Thelatterwasusefulforthoseparticipantswhopreferredtoscanavailableconditions,

    medications,procedures,testresulttypes,orimmunizations.

    Figure9:Auto-completefunctionsonGoogleHealth(left)andMicrosoftHealthVault(right).

    Dependingonthetypeofhealthinformationparticipantsentered(e.g.,conditions,medications),Microsoft

    HealthVaultprovidedtwodifferentmethodsofdataentry.Forexample,itsometimesprovidedanopen

    fieldwiththeauto-completefunctionality.Inothercases,itprovidedadrop-downlistofchoices.

    Unfortunately,participantsoftenfeltthattheirchoicewasconstrainedbytheitemsintheMicrosoft

    HealthVaultdrop-downlist,becauseituseddifferentphrasingthanexpected.Someofthemedicaljargon

    wasalsoveryconfusingtoparticipants,whowerenotsurewhichofthedrop-downlistoptionstoselect.

    Forexample,manyparticipantslookedforflushotinthedropdownlistofimmunizationsbutoftendid

    notrecognizeinfluenzaasarelatedlabelforthesametopic.Oneparticipantnotedthatitwouldbe

    usefultohavebothflushotandinfluenzaavailableinthesamelist.

    Ingeneral,participantsexpectedtoeasilymatchtheirmedicaltermwiththecontentsofdrop-downlists.

    Theydidnotfeelthatthecurrentterminologydisplayedinthelistsadequatelysupportedtheirvariedand

    oftenlimitedunderstandingofmedicaljargon.

    Simplemedicallanguagewasstronglypreferredovertechnicaljargon.

    BothPHRsoftenusedmedicalterminologythatwasmoretechnicalthanparticipantswerecomfortable

    with.Thisphenomenaoftenreflectedagapbetweenparticipantslevelofknowledgeandthespecific

    medicalterminologyusedinthePHR.OfthetwoPHRapplications,GoogleHealthtendedtousemore

    familiarmedicallanguageandoftenprovidedmorethanonelabelforthesametopictoaidrecognitionby

    laypeople.

    WhenenteringinformationintoMicrosoftHealthVault,participantstendedtostrugglemore.Theyhad

    difficultyenteringboththetitleofahealthitemaswellasitsdetails.Specifically,participantshaddifficulty

    figuringoutwhichmedicaltermstoselectaswellastherelevantlevelofmedicalaccuracytousein

    HealthVault.Althoughseveralparticipantswantedtobeasmedicallyaccurateaspossible,theywerenot

    alwaysabletomakedistinctionsbetweenthemyriadmedicalconditionslistedbythePHR.Forexample,

    manyparticipantsindicatedtheyfeltuncomfortableguessingwhichtypeofinfluenzavaccinetheyhad

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    beengiven.Oneparticipantcommented,Aphysicianornursecoulddothis,butitsnotforaneveryday

    user.

    .

    Figure10:MicrosoftHealthVaultdropdownlistofimmunizations

    AbilitytoaddanadditionalhealthprofilewasfacilitatedinMicrosoftHealthVaultviapersistent

    linkingonmostscreens.

    ParticipantsweremuchmoresuccessfulinaddingafictionalrelativeshealthinformationtotheirPHR

    whenusingMicrosoftHealthVaultbecauseaAddRecordlinkwasconsistentlylocatedonalmostevery

    page.Incontrast,eightparticipantswereunabletolocateGoogleHealthsCreateanewprofilelink,

    whichwaslocatedatthebottomoftheleft-sidemenuwithtextthatappearedpalerthantherestofthe

    itemsinthemenu.

    Figure11:Createanewprofilelinkoftheleft-sidemenuofGoogleHealth

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    However,theconsistencyofMicrosoftHealthVaultsAddRecordlinkmayhavebeenpartofthereason

    someparticipantsincorrectlyinterpretedthelinkspurpose.Duringthefirsttask,someparticipants

    incorrectlyassumedthatthislinkwouldallowthemtoaddadditionalhealthinformationtotheirexisting

    PHR,butquicklyrealizeditstruepurposeduringtheirsessions.

    4.2.2 Utility

    Theusabilitystudyalsoidentifiedmanyfeaturesthatparticipantsfoundusefulandwhichmighthelp

    motivatethemtoadoptaPHRfortheirownuse.

    MostparticipantsthoughtPHRswouldbebeneficialfortrackingachroniccondition.

    Throughouttheusabilitysessions,participantsindicatedtheysawvalueinusingaPHRtokeeptrackof

    theirhealthhistory,especiallyifonehadachronicconditionthatmayinvolvefrequentchangesin

    treatmentandstatus.AdditionalresultsrelatedtoparticipantsperceptionofPHRvaluewillbediscussed

    inalatersection.

    Abilitytostorehealthinformationforfamilymemberswashighlyvalued.

    Theabilitytoeasilystorehealthrecordsformorethanoneindividual(e.g.,dependentsorspouse)was

    consideredveryimportanttoparticipants.However,noneofthethreePHRswetestedtrulyprovidedthis

    functionalityinaseamlessmanner.Participantsendedupprovidingvaluejudgmentsbasedontheideal

    interactiontheyimaginedthisfunctionwouldproduce.

    ParticipantswantedtolinkPHRhealthinformationwiththeirphysiciansrecords.

    ParticipantsalsoindicatedastrongdesiretolinkthehealthinformationstoredintheirPHRwiththeirphysiciansrecords.Participantssaidtheywouldideallywantthistobeatwo-waychannel.Specifically,

    participantswantedtheabilitytoautomaticallydownloadinformationfromtheirdoctorselectronichealth

    recordstomakedataentryoftheirPHReasierandmoreaccurateandalsowantedtobeabletoshare

    theirPHRwiththeirdoctorinordertoreducetheamountoftimespentfillingoutpaperworkduringoffice

    visits.

    GoogleHealthsDrugInteractionsfeaturewasperceivedasveryhelpful.

    TheDrugInteractionspageofGoogleHealthwasoneofthemostappreciatedfeaturesthatparticipants

    encounteredinthestudy.Participantsfoundthetwolevelsofwarning(Figure12)tobeveryusefuland

    seemedtotrusttheinformation.(Thisincludedthefewparticipantswhounderstood,bywayofthedisclaimer,toconsulttheirdoctor.)Oneparticipant,forexample,pointedoutthattheinteractionbetween

    prescriptionsandover-the-counterdrugsmightbeomittedfromconversationsbetweenpatientsand

    physicians,whichiswhyPHRsshouldcontainthistypeofcriticalinformation.

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    Figure12:GoogleHealthdruginteractions

    FindaDoctorfeaturewasvalued,especiallywhenlimitedtotheparticipantsinsuranceplan.

    WhileusingGoogleHealth,12outofthe16participantswhousedtheFindaDoctorfeaturesaidthey

    foundituseful,butthreeparticipantsindicatedtheywouldhavepreferredtheresultsbelimitedtotheir

    specificinsurancenetwork.OneparticipantalsorequestedalinkontheConditionsscreentophysicians

    whosespecialtiesarerelatedtotheconditionslistedintheirPHR.Mostparticipantsindicatedthelinkfor

    viewingdirectionstoadoctorslocationtobeoneofthemostusefulcomponentsofthisfeature.

    Referenceinformationonmedicalconditionsneededtobefromtrustedsources.

    ParticipantssaidthattheGoogleHealthscreenthatdisplayedadditionalinformationaboutacondition

    listedinthePHR(includingsymptoms,treatments,potentialcauses,andnews)wasalsointeresting.

    However,anumberofparticipantsindicatedthattheywouldrelyonthisfeaturemoreiftheyhadaclearer

    ideaofthesourceofthisreferenceinformation.

    Figure13:GoogleHealthSymptoms

    Nonetheless,participantsdescribedthisinformationaspresentedinanefficientwayandcommentedthat

    theavailabilityofreferenceinformationintheirPHRwouldreducetheeffortneededtoresearchtheir

    conditions.

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    AbilitytouploaddocumentstoMicrosoftHealthVaultwasconsideredpotentiallyhelpfulfor

    enteringpastmedicalhistory.

    ParticipantsnoticedthefeaturedofferedbyMicrosoftHealthVaultthatallowsuserstouploadamedical

    documentsdirectlytotheirprofile.11ofthe17participantswhousedthisfeaturefounditveryuseful,

    especiallyforthosewhoanticipatedstoringdocumentsfromtheirchildrensmedicalhistoryorcopiesof

    theirowndiagnosticscans.

    AbilitytoshareapersonalPHRwithfamilymembersandphysicianswasimportantforsome

    participants.

    12outofthe16participantswhosawthefeatureindicatedthatMicrosoftHealthVaultsabilitytoshare

    theirPHRhadvalue.Participantsanticipatedthatthisfeaturewouldbeespeciallyusefulwhencaringfor

    aparentorelderlyrelativewhohadaseparatePHR.However,mostparticipantsdidnotfinditusefulto

    sharetheirPHRinformationwithafriendorsomeoneelseoutsidetheirfamily.

    UploadinginformationfromamedicaldevicetoMicrosoftHealthVaultwasgenerallyconsidered

    useful.

    ParticipantswerebrieflyexposedtotheHealthVaultfeaturethatallowsuserstouploadinformationfroma

    medicaldevicedirectlyintothePHR.(Duetotimeconstraints,littlesessiontimewasdevotedtogathering

    feedbackonthistopic.)13outof18participantswhointeractedwiththisfeatureconsideredituseful.For

    example,oneparticipantsaidThiswouldbeveryhelpful.IfIhaddiabetes,Icoulduseitforglucose

    testing.OrIcoulduseitwithweightscalesorbloodpressure.However,oneparticipantexpressed

    concernthisfeaturewouldonlybevaluableiftheywereabletoentermultipledevicereadingsatonce.

    Thisparticipantexpectedthatsingledatauploadswouldlikelyrequiretoomuchtimeandwouldbe

    inconvenient.

    4.2.3 Security, Privacy, Trust

    Participantsrarelyexpressedconcernsrelatedtosecurity,privacy,ortrustwhilecompletingtheirtasks

    andprovidingfeedback.Ingeneral,participantsseemedtohavedifficultydifferentiatingbetweenthese

    threedimensionsandrarelymentionedconcernsspecifictoanyoneofthem.However,researchersdid

    recordsomenotableobservationsandfeedbackrelatedtothesethreedimensions.

    ParticipantswantedtransparentsourcesforthemedicalknowledgeprovidedonGoogleHealth.

    WhenreviewingthedruginteractionsandreferenceinformationaboutmedicalconditionsinGoogle

    Health,4outofthe22participantswhousedthisfeatureexpressedconcernsregardingthesourceofthis

    referenceinformation.Itwasnotimmediatelyclearwhatthesourceoftheinformationwas,whichmadethemwaryofrelyingonthisinformation.Theseparticipantssaidtheywerelookingforthenameofa

    knownmedicalcompanyoranendorsementbyaknownmedicalorganization.Someofthese

    participantswereconcernedthatthemedicalinformationprovidedmighthavebeenaccumulatedfrom

    variousInternetsourcesthatmayormaynothavebeenreliable.

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    SomeparticipantshadsecurityconcernsaboutlinkingtheirPHRtoaphysiciansEHR.

    Althoughsharinginformationwithaphysicianwasoneofthemostpopularfeaturesdiscussedinthis

    study,6ofthe30participantsdidmentionsomeapprehensionabouttheprivacyorsecurityofthislink.

    Forexample,oneparticipantsaidthatbasichealthinformationdoesn'tbotherme,butpersonalinfois

    worrisome.AnotherparticipantsaidIwouldneedsomesortofagreementorcontract.Theinformationis

    confidential.

    4.3PHR-SpecificQuestionsandRatings

    AftercompletingthetasksoneachPHR,participantswereaskedtoprovidetheirgeneralqualitative

    impressionsabouttheiroverallexperiencewiththatPHR.Participantresponsesgenerallyfocusedon

    eitherusabilityissuesencounteredduringtheirsessionsorfeaturesthatwereconsideredespecially

    useful(ornotuseful),whichfurtheremphasizestheimportanceofthesetwodimensionsonoverall

    preference.

    Duringindividualpost-PHRratings,GoogleHealthratedhigheronthedimensionsofeaseofuse

    andutilitywhileMicrosoftHealthVaultwasratedhigheronthedimensionsofprivacyandtrust.

    Participantswereaskedtousea7-pointLikertscaletoratethePHRacrossthesamefivedimensions:

    easeofuse,utility,security,privacy,andtrust.TheresultsoftheseratingsareshowninFigure14.

    Figure14:Participants'averageratingsonthefivedimensionsforeachPHR

    RatingswerehigherforGoogleHealthforeaseofuseandutility,althoughtherewasalargerdifference

    betweenthetwoPHRapplicationsonthedimensionofeaseofuse.Theaverageratingsforsecurity,

    privacyandtrustwereverycloseforthetwoPHRapplicationsalthoughGoogleHealthreceivedhigher

    ratingsforsecurityandMicrosoftHealthVaultreceivedhigherratingsforprivacyandtrust.

    ThissuggeststhatalthoughthedirectionofparticipantspreferencewasinfavorofGoogleHealth,the

    magnitudeofthisdifferencewasrelativelysmallbothGoogleHealthandMicrosoftHealthVault

    applicationswereperceivedasfairlysecure,privateandtrustworthy.

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    4.4USEQuestionnaires

    AftercompletingthetasksandratingsforeachPHR,participantswerealsogiventheUSEquestionnaire,

    astandardizedinstrumentdesignedtocollectsubjectivefeedbackonusabilityandrelatedconcepts.The

    USEquestionnairehasbeeniterativelydevelopedbyusabilitypractitionersandacademicstoestablisha

    consistentmethodologyforthecollectionofsubjectiveuserratings(Lund,1998).

    TheUSEQuestionnaireshowedthatGoogleHealthwasratedasbeingeasiertolearn,generally

    moreuseful,andeasiertousethanMicrosoftHealthVault.

    Figure15showsaverageratingsforthe29itemsontheUSEquestionnaire.GoogleHealthhadhigher

    averageratingsthanMicrosoftHealthVaultonallbutonequestion,wherethetwowereequal.The29

    questionsweregroupedinto4categoriesbasedontheresultsofafactoranalysisandanoverallaverage

    ratingwascomputedforeachcategory.Eachofthe4categorieshadhighinternalconsistencyamong

    theindividualquestions(Chronbachs>0.9ineachcase).Thenamesforthecategorieswere

    generatedbasedonthewordingofthequestionscontainedineach.GoogleHealthhadhigheraverage

    ratingsthanMicrosoftHealthVaultforeachofthecategories,andthedifferenceswerestatistically

    significantbeyondthep=0.05levelfor3ofthe4categories.

    Figure15:USEquestionnaireaverageratings.The29questionsaregroupedinto4categories(EasytoLearn,Useful,Easyto

    Use,Effective)basedontheresultsofafactoranalysis.Averageratingsareshownforeachcategory.A*meansthedifference

    betweentheaveragecategoryratingsforGoogleHealthandMicrosoftHealthVaultwerestatisticallysignificantbeyondthe

    p=0.05level.QuestionswithineachcategoryaresortedbydescendingaverageratingforGoogleHealth.

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    GoogleHealthwascomparedtoMicrosoftHealthVaultforeachofthe4ratingcategoriesusingbotha

    matched-pairst-testandaWilcoxonmatched-pairssigned-rankstest,whichproducesazscore.Table1

    summarizestheresultsofthesetwotypesoftests.Thepvaluesarefortwo-tailedtestsinbothcases.

    Google Microsoft Matched-pairst-test

    Wilcoxonmatched-pairs

    signed-rankstest

    M SD M SD t(df) p z p

    EasytoLearn* 5.60 1.00 4.97 1.32 t(29)=2.72 0.011 z=2.35 0.019

    Useful* 5.06 1.23 4.43 1.36 t(29)=2.60 0.014 z=2.39 0.017

    EasytoUse* 4.85 1.27 3.89 1.54 t(29)=3.25 0.003 z=2.78 0.005

    Effective 4.43 1.56 4.11 1.72 t(29)=1.57 0.128 z=1.02 0.307

    Table1.SummaryofstatisticaltestsonthedifferencebetweenaveragecategoryratingsforGoogleandMicrosoft.A*

    indicatesthatthedifferencewassignificantbeyondthep=0.05level.

    TheEffectivenesscategoryofquestionshadthelowestoverallaveragerating,andhadthesingle

    questionwiththeoveralllowestaverageratingsforbothproducts,IfeelIneedtohaveit.Thismight

    reflecttheperceivedvalueofPHRfunctionalityrelativetocurrentlifecircumstances.Participantswho

    reportedhavinghadfewerchronichealth-relatedissuesgenerallysawPHRsaslesscompellingthan

    thosewithchronicconditions,dependents,ormultiplemedications.

    EasytoUseratingsshowedthebiggestdifferencebetweenthetwoPHRapplicationsintermsofthe

    averagecategoryratingdifferencerelativetothestandarddeviations.Inaddition,thelowestoverall

    averageratingforMicrosoftHealthVaultwasgivenintheEasytoUsecategory.Theadvantagefor

    GoogleHealthwasconsistentacrossall10itemsinthiscategory.Asthenextsectiononfinal

    impressionsandoverallpreferencessuggests,participantsfoundGoogleHealthtobemorefamiliarand

    straightforwardanddirectoverallpreferenceratingsofEaseofUsewereconsistentwiththeEaseofUse

    categoryratingspresentedhere.

    4.5FinalImpressionsandOverallPreferences

    OnceparticipantshadtheopportunitytoreviewbothPHRtools,theywereaskedtocomparetheir

    experiencesusingboth.WhilemostparticipantsstartedtheirsessionnavetotheconceptofPHRs,most

    lefttheirsessionperceivingsomevalueintheconcept,with60%oftheparticipantsinterestedinbuilding

    theirownprofilesonline.

    Neartheendoftheirsession,participantswereaskedtoselectwhichPHRtheypreferredoveralloneach

    ofthefivedimensions:Overalleaseofuse,utility,security,privacyandtrust.Thepreferenceresultsare

    showninFigure16below.

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    Figure16:Overallpreferences

    GoogleHealthwasperceivedsignificantlyeasiertouse.

    MostparticipantspreferredGoogleHealth(80%)toMicrosoftHealthVaultintermsofperceivedeaseof

    use,2(1,N=30)=10.80,p=0.001.ParticipantscommentedthattheyfoundGoogleHealthsterminologyto

    bemorefamiliar,itsnavigationtobecleareranditsoverallprocessofenteringdatatobemore

    straightforward.TheyalsoperceivedtheoverallflowwithintheGoogleHealthasmoreefficientthan

    MicrosoftHealthVault.

    ParticipantsfoundperceivedutilityinGoogleHealthsfeatures.

    Intermsofutility,GoogleHealth(70%)waspreferredtoMicrosoftHealth, 2(1,N=30)=4.80,p=0.028).

    Participantsmostoftenindicatedtheyfoundthemostvalueinthedruginteractionsfeatureandthereferenceinformationaboutacondition(e.g.asthma).

    PreferencestowardsMicrosoftHealthVaultintermsofsecurity,privacyandtrustwerenot

    statisticallysignificantbeyondthep=0.05level.

    HealthVaulthadapreferentialedgeinthethreeremainingdimensions,althoughtheresultswerenot

    statisticallysignificantbeyondthep=0.05level.ParticipantspreferredMicrosoftHealthVaultintermsof

    security(60%),2(1,N=30)=1.20,p=0.27,privacy(66%),

    2(1,N=30)=2.79,p=0.06,andtrust(60%),

    2(1,N=30)=1.20,p=0.27).Participantsgavesimilarreasons(e.g.,brand,priorexperience)forpreferring

    MicrosoftHealthVaultforeachoftheseareas.

    Inafewcases,peoplegavesimilarreasonsforpickingHealthVaultforsecurityandprivacy:Idonttrust

    GoogleorImmorefamiliarwith[GoogleorMicrosoft]ortheymayhavehadexperiencewithMicrosoft

    fromasoftwaresecuritystandpoint.Overall,however,familiaritywithMicrosoftsbrandwastheprimary

    reasonforparticipantspreferenceshere.Also,someparticipantsfeltGoogleHealthwouldbelesssecure

    orprivatebecauseitwaslinkedwithsearchande-mailthroughtheGoogleWebapplicationsuite.

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    GoogleHealthwaspreferredoverall.

    WhenaskedwhichPHRtheypreferredoverall,participantschoseGoogleHealth,19to11(63%),

    2(1,N=30)=2.13,p=0.14.Thisresultisnotstatisticallysignificantbeyondthep=0.05level,butitdoes

    suggestthatearlierresultsregardingeaseofuseandusefulnesscouldbeimportantforoverall

    preference.RegardingtheiroverallpreferenceforGoogleHealth,15ofthe19participantsindicatedease

    ofuseasthedecidingfactorandothersindicatedtheypreferredGoogleHealthbecauseofthe

    usefulnessofitsfeatures.Onlytwoparticipantsbasedtheiroverallpreferencechoiceontrustor

    familiaritywithabrand.

    Patternsinpreferenceselectionswereevident.

    Therewasaninterestingpatterninthepreferencedatawhichseemstosupportaconnectionbetween

    easeofuseandutility.IfparticipantschosethesamePHRforeaseofuseandutility,theyalwayschose

    thatPHRoverall.Meanwhile,ifparticipantschosedifferentPHRsforeaseofuseandutility,whichever

    PHRtheypreferredforsecurity,privacyandtrustwasthesamePHRtheypreferredoverall.Onlytwo

    participantsviolatedthisrule,andtheychosethePHRtheypreferredforeaseofuse.

    Figure17:Patterninpreferencedataexplained

    Finally,therewasapatterninpreferencesbasedonageaswell.AsshowninFigure18below,younger

    participants(18-40yearsold,n=19)weremorelikelytochooseGoogleHealthasbotheasiertouseand

    preferredoverallascomparedtoolderparticipants(41-70yearsold,n=11).Apossibleexplanationhere

    isthatyoungerindividualsaremorefamiliarwithGooglescommonWebapplicationinterface,which

    madeGoogleHealtheasiertolearnandinturninfluencedparticipantsoverallpreferences.Itisalso

    tellingthattheageeffectislargerineaseofusethaninoverallpreferencethissupportstheconclusion

    thateaseofuseisastrongcomponentofoverallpreference,butnottheonlycomponent.

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    Figure18:Patternrelatedtooverallpreferenceandagegroup

    4.6FeaturesQuestionnaire

    Aftercompletingtheforced-choicepreferencesandprovidingfinalimpressions,participantsweregivena

    questionnairethataskedthemtorankhowusefultheywouldfindseveralfeatures.Thequestionnaire

    includedallsixofthePHR-exclusivefeaturesshownintesting,severalfeaturessharedbybothPHRs,

    andafewhypotheticalfeatures.TheresultsoftheseratingsareshowninFigure19below.

    Figure19:Usefulnessratingsofexclusive,sharedandhypotheticalfeatures

    Overall,GoogleHealthsexclusivefeatureshadhigheraverageratings,whichsupporteditsoverallutility

    preference.ThemostappealingfeaturewasReceivingautomateddruginteractionwarningsfromthe

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    PHR,whichonlyGoogleHealthsupported.Althoughtheotherexclusivefeatureshadsimilarratings,the

    inclusionofthedruginteractionsmayhavebeenenoughtopushGoogleHealthoverthetopwhen

    participantsgavetheiroverallpreferencebetweenthetwoPHRs(itwaschosenasmoreusefulby21of

    the30participants).

    Theleastdesirablefeatureshighlightedaninterestingtrendwhichmayberelatedtotheperceivedquality

    ofinformation.Threeofthelowest-rankedfeatureswereallowingotherstomodifyarecord,getting

    automatedtreatmentrecommendations,andreadingotherscommentsaboutdoctorsormedications.

    Sinceallthreeofthesefeaturesaresimilarinthattheyinvolvefindinginformationfromexternalsources

    otherthanhealthcarepractitioners,itcouldbethecasethatparticipantssimplywerenotconfidentinthe

    qualityofmedicalinformationtheywouldobtainbyusingaPHR.

    Finally,participantinterestwaspositiveformostofthehypotheticalfeatures,Thehypotheticalfeatures

    LearningaboutmedicationsideeffectsandCustomizingviewswereseenasespeciallydesirable.This

    isimportantinformationtoconsiderforthoseinterestedincreatingabetterPHRinterface.

    5.QualitativeParticipantFeedbackonMyMedicalRecords.com

    Midwaythroughthestudy,researchersatUserCentriclearnedofathirdPHR,knownas

    MyMedicalRecords.com(MMR),thathadbeencommonlyadvertisedasaneasytousetoolwithfeatures

    thatmanyoftheearlierparticipantshadexpressedinterestin(MyMedicalRecords.com,2007b).

    Therefore,UserCentricdecidedtoaddtasksrelatedtothisthirdPHRtotheendoftheremaining

    usabilitysessionsandcapturequalitativefeedback.

    AftertheyexploredthefirsttwoPHRs,thelast12participantswereabletobrieflyinteractwithMMR.

    However,sinceparticipantsexposuretoMMRwaslimitedcomparedtotheirmorethoroughexplorationofGoogleHealthandMicrosoftHealthVault,thethreeapplicationscannotbedirectlycompared.Figure

    20belowshowstheMMRmembershomepage.

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    Figure20:MyMedicalRecords.commembershomepage.Thefoldericons,pagebreak,andthelinktoaddmedicalinformationarehighlighted.

    Uponinitialinspectionofboththeinitiallandingpageandthemembershomepage,4outof12

    participantshadpositivereactions,sayingthepageseemedformalorpolished.However,8

    participantsdidnotpreferthehomepagesvisualpresentation,sayingitseemedbusyorunorganized.

    Participantsstruggledtofigureouthowtoentermedicalinformation.

    WhenparticipantswereaskedtoaddanitemtotheirexistingMMRprofile,manyindicatedtheyexpectedtobeabletoaddhealthinformationthroughoneofthetwelvefoldericonsshowninthemiddleofthe

    homepage.9outof12participantsexpressedfrustrationonthistask,sincethelinktoaddmedical

    informationwaslocatedbelowthefoldofthehomepageandmanyparticipantsrequiredthemoderators

    assistancetofindit.

    OncetheylocatedthecorrectlinktotheMedicalHistorypage,participantsagainstruggledtofindaway

    toaddmedicalinformation.Thetargetlinkforaddingnewitemswaslocatedontheverytopofthepage

    amongunrelatedfilteringfunctions.Instead,mostparticipantsattentionwasfirstdrawntotheredEdit

    linkswithinthemainbodyofthepage.BothoftheseitemsarehighlightedinFigure21below.

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    Figure21:MyMedicalRecords.commedicalhistorypage

    ParticipantslikedMMRsdataentryform.

    Theprocessofaddingmedicalinformationwaspositivelyregardedbythoseparticipantswhosawit.One

    positivefeatureofMMRwasthatsomeoftheformfieldswoulddynamicallyupdatebasedonwhatwas

    chosenfromtheDescriptiondropdown.Oneparticipantsaidthatthismadeiteasiertoinputdataon

    MMRthaneitherGoogleHealthorMicrosoftHealthVault,becausetheywouldbeabletoenteracategory(e.g.,Condition,Immunization,Medication)anditsdetailsinasinglestep.

    Figure22:Descriptiondrop-downwhenaddinginformationonMMR

    MostparticipantsdidnotseevalueinlinkingtheinformationoftwoPHRs.

    10ofthe11participantswhoattemptedtolinktheirGoogleHealthprofiletotheirMMRprofilewere

    successful.Twoparticipantscommentedthatthebuttonwaseasytofindandthatthefunctionwaseasy

    toaccessinoneclick.

    However,8ofthe11participantswereunsurewhytheywouldneedtolinktwoPHRsorevenwhyone

    wouldusemorethanonePHRatall.Threeparticipantssuggestedthatthefunctioncouldbeusefulif,for

    example,theirphysicianusedMMRwhiletheyusedGoogleHealth,oriftheywantedtoimport

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    informationfromanoldPHRastheymadeapermanentswitchtoanother.Twoparticipantsalsofelt

    unsureaboutthesecurityoflinkingtwoPHRsbecausetheirpasswordswouldbestoredinmorethanone

    place.

    AttheconclusionoftheirexperienceinteractingwithMMR,sixparticipantsreiteratedthattheyfound

    MMRunorganized,whichmadeithardertofindwhattheywerelookingfor.Whiletwoparticipants

    discoverednovelfunctionsandfeaturesontheapplication(e.g.,DentalandVeterinarianrecords),only

    oneofthe12participantssawenoughadditionalvalueinMMRtorankithigherthantheirearlierPHR

    preference.8ofthe12participantsindicatedtheyfoundtheirearlierpreferenceeasiertouseandtwo

    participantsmentionedthiswasespeciallytruesinceMMRrequiresasubscriptionfee.

    6.RecommendationsforImprovingPHRInterfaces

    ThisusabilitystudyallowedUserCentrictogainabetterunderstandingofwhatdidanddidnotworkin

    threePHRapplications:GoogleHealth,MicrosoftHealthVaultandMyMedicalRecords.com(MMR).WhilenoneofthePHRsstudiedhadaperfectinteractionmodel,thedatamotivatedUserCentrictodevelopa

    seriesofbestpracticestobeconsideredwhenimplementingaPHR.Thebestpracticesdiscussedbelow

    arebasedsolelyontheissuesobservedandfeedbackgivenbyparticipants,andleaveroomforfurther

    developmenttowardabetterPHR.

    Sinceperceivedsimplicityandeaseofusearekeystouserpreference,aPHRhomepageshould

    avoidunnecessaryvisualcomplexity.

    Duringtheusabilitytest,participantsshowedastrongpreferenceforthelayoutofGoogleHealths

    homepagewhencomparedwithMicrosoftHealthVaultshomepage,mainlyduetoitssimplicity.Google

    Healthusedaplaindesignonitshomepagewithonlycriticalnavigationandafewlinksprominentlydisplayed.Participantsfounditeasiertoaccess,lesscluttered,andeasytonavigate.Thisfocusona

    fewimportantpointsalloweduserstoquicklyscantheinformationpresentedandfindwhattheycamefor.

    APHRshouldonlydisplaynavigationandinformationnecessarytocompletecoretasksonits

    homepage.

    APHRshouldprovidestrongcuestohelpusersstartenteringhealthinformation.

    SincenewuserswillnotgenerallybetrainedtouseaPHR,aPHRapplicationshouldbedesignedto

    supportusersfromtheirfirstinteractionwithit.Inthestudy,participantshaddifficultywithhowtobegin

    enteringhealthinformationintoallthreePHRsandindicatedtheywerelookingforguidancefromthe

    applicationsonhowtostartthisprocess.ThisisespeciallyproblematicbecausethemainfunctionofaPHRistoenterhealthinformation,anditshouldbeeasyfornewuserstojumpinandenterhealthdata.

    Instead,aPHRshouldprovideastrongvisualcuetotheuserforhowtobeginenteringthisinformation,

    suchasawelcomepage,largebuttonorlinkrepresentingastartingpoint.

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    Usersshouldbeabletoadddetailsaboutahealthitem(e.g.,medication)immediatelyafter

    enteringitsname.However,thenumberofdetailfieldsdisplayedatonetimeshouldbelimitedto

    avoidoverwhelmingusers.

    Theprocessofenteringdatashouldbeassimpleaspossible,allowinguserstoenteritemsquicklywhile

    alsoprovidinganopportunitytoenterdetailsimmediately.BothofthetwoPHRstestedproveddifficultfor

    participantsinsomeaspectofdataentry.Forthemostpart,GoogleHealthprovidedaquickpathto

    enteringthenamesofhealthitems,butrequireduserstonavigatethroughmultiplescreenstoadddetails

    aboutthoseitems.Ontheotherhand,MicrosoftHealthVaultalloweduserstoadddetailsrightaway,but

    thesheeramountofentryfieldsdisplayedforeachhealthitemwasoverwhelmingforparticipants.

    BothendsofthisuserexperiencemustbeconsideredwhendesigningthedataentryprocessforaPHR.

    Participantsoverwhelminglypreferredtobeabletoenterdetailsaboutahealthitemonthesamescreen

    asitsname,soaPHRshouldsupportthisprocess.However,thePHRmustalsobedesignedtoensure

    thatitsusersarenotoverwhelmedwiththeamountofinformationtheyneedtoenter,possiblybylimiting

    theamountofdataentryfieldsdisplayedatonetime.

    Medicalinformationshouldbepresentedwithouttechnicaljargon.

    Non-technicallanguageshouldbeusedbyinPHRapplicationswheneverpossiblebecauseparticipants

    werefrequentlyconfusedbythemedicalterminologytheydidnotunderstand.Thiswasespecially

    apparentwhenmedicaltermswereusedasfielddescriptionsinMicrosoftHealthVault.Byusingfamiliar

    terminologyinlinks,fielddescriptions,andotherareas,aPHRwillprovideuserswithamuchcleareridea

    ofwhatinformationtheyarebeingaskedtoenter,whichwillinturnhelptoensuretheaccuracyofusers

    healthprofiles.

    Multiplemethodsofdataentryandsearch(e.g.,textentryfield,A-Zlist)shouldbesupported.

    BothGoogleHealthandMSNHealthVaultofferedauto-completefunctionalityforusersastheyentered

    text,butonlyGoogleHealthalsoofferedanA-Zlistofmedicalitemstochoosefrom.Participantsfromthe

    usabilitystudyenjoyedGoogleHealthsflexibility,withsomeparticipantspreferringtoidentifytheir

    specificmedicalissuesbybrowsingthroughtheA-Zlist,andotherspreferringtousethetextentryfield.

    BothofthesemethodsforenteringhealthinformationshouldthereforebeincludedinaPHRto

    accommodateabroadrangeofusers.

    Databasesofhealthinformationshouldincludemultipledescriptionsofthesamehealthitemsto

    accommodateusersdifferinglevelsofcomfortwithmedicalterminology.

    Participantsoftenfeltconstrainedbytheterminologysuggestedbytheauto-completefunctionalityinboth

    PHRsandsometimesdidnotknowwhichitemtochoosewhentheydidnotunderstandthelanguage

    used.Textentryfieldsshouldbeflexiblewhenidentifyingthemedicalitem(e.g.,medication,testresult,

    condition)userstypeintothem.ThePHRdatabaseshouldbeabletorecognizewhateverlevelof

    technicalterminologyusersarecomfortablewithbystoringmultipledescriptionsofthesamemedical

    item.Itshouldalsohelptobridgethegapbetweenlaymansknowledgeandmedicalterminologyby

    helpinguserstotranslatetheirunderstandingintoprecisemedicalterminology(e.g.,suggestingspellings,

    filteringconditionsvianaturallanguageprompts).

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    Aconfirmationshouldbedisplayedasitemsareaddedtoausersprofile.

    Duringthestudy,participantswerepleasedwiththeimmediate,detailedonscreenconfirmationprovided

    byGoogleHealthastheyaddedhealthitemstotheirprofiles.Theseusersfeltmoreconfidentthattheir

    itemswereaddedsuccessfully.OnMicrosoftHealthVault,however,changeswerenotconfirmed

    immediatelyforusers,insteadforcingthemtoclickbacktotheHealthInfoorHometabtoviewalistofall

    informationtypestheyhadentered.Aclearlyvisibleconfirmationofchangesmadetohealthitems,such

    asawindow,message,icon,orrunningprofile,shouldbeimplementedinPHRapplicationstoconfirm

    successfuldataentry.

    ProfilesummaryinformationshouldbedisplayedoneverypageofaPHR.

    AsparticipantsenteredmedicalinformationintheirGoogleHealthprofiles,theyappreciatedthe

    persistentProfileSummarythatupdatedeverytimetheyaddedanewitemormadeachange.This

    ProfileSummaryconfirmedchangesmadetotheprofileaswellasremindingparticipantswhat

    informationtheyhadalreadyenteredaboutthemselves.Thistypeoffunctionalitywouldbeausefulway

    foraPHRtoallowuserscontinualreferencetotheirprofiledata.

    PersistentnavigationshouldbemaintainedthroughoutaPHR.

    ManyparticipantsalsoindicatedtheyfoundGoogleHealtheasiertousebecauseofitsredundant

    navigationmodelwhichutilizedbothtab-basednavigationandapersistentleftnavigationmenu.Asa

    result,userscouldeasilynavigatefromonehealthhistoryitemtothenextbyusingeithermenu.PHR

    applicationsshouldincludesuchpersistentnavigationtoallowuserstoaccessanyfunctionontheWeb

    siteapplicationfromtheeachscreen.

    Theabilitytoaddafamilymembersprofileshouldbeprominentlydisplayedandeasytofind.

    Whileparticipantswereabletosuccessfullyfindthepersistentlinktoaddafamilymembershealthrecord

    onMicrosoftHealthVault,theywereveryfrustratedbyitslackofprominenceinGoogleHealth.Sinceone

    ofthecorefunctionsofaPHRistoenableuserstoinputdatanotonlyforthemselvesbutalsofor

    dependents,thisabilityshouldbeemphasizedinanyPHR.

    SomeparticipantswerealsoconfusedaboutthedifferentlabelsforthisfunctiononeachPHR,mainly

    duetotheuseofthepotentially-confusingtermsrecordorprofile.APHRthatusesaclearlabel(e.g.,

    AddaFamilyMember)wouldallowitsuserstoavoidthisissue.

    DrugInteractionfunctionalityshouldbeincluded.

    Oneofthemostpositivelyreceivedfunctionsthroughoutthestudywasthedruginteractiontoolavailable

    onGoogleHealth.Participantsalsoratedtheabilitytolearnaboutpossiblesideeffectstomedications

    quitehighlyinthefeaturesquestionnaireadministeredattheendofthestudy.However,some

    participantssaidthatthesefeatureswouldonlybevaluableiftheycamefromatrustedsourceandthey

    wouldlikelylooktotheirdoctorasaprimarysourceforthisinformation.

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    IfitispossibletointegrateinsuranceinformationintoaPHR,thetoolshouldincludetheabilityto

    findadoctor.

    AstheyusedthefeatureonGoogleHealth,someparticipantswereinterestedinbeingabletofinda

    doctor,butthisinterestwaslimitedtofindingdoctorswithintheirhealthinsuranceprovidersnetwork.

    Mostparticipantsfoundthelinktoseedirectionstoadoctorslocationtobeoneofthemostuseful

    componentsofthisfeature.Thisfeature,then,shouldonlybeincludedinaPHRifthetoolwasalsoable

    tointegrateusersinsuranceinformationtobettertargetsearches.

    IfanonlinePHRprovidesmedicalknowledge,thesourceofthatinformationshouldbeplainly

    showntouserssotheycanmaketheirownjudgmentsabouttheinformationsreliability.

    SomeparticipantswereinterestedintheReferencefeatureonGoogleHealththatdisplaysgeneral

    medicalinformationaboutaparticularcondition.However,theseparticipantswerealsoconcernedabout

    thereliabilityoftheinformation,sincethesourceswerenotvisible.APHRshouldconsiderimplementing

    afeaturethatdisplaysmedicalinformation,butthatalsoclearlylinkstoitssources.

    APHRshouldallowusersasecurelinktotheirphysicianshealthrecordsandallowthemtoboth

    uploadtoanddownloadfromtheirphysiciansEHRs.

    Sharinginformationwithaphysicianwasseenbymanyparticipantsasamainreasonformaintaininga

    PHR,makingitanessentialfeaturetoinclude.Usersshouldbeabletoimportdatafromaphysicians

    EHRtoavoidtherepetitionofdataentryintothePHR.Theabilitytoexportandsharefamilyhistory

    informationandsymptomswithaphysicianorotherfamilymemberswasalsohighlypraised,andshould

    besupportedbyPHRs.

    However,whenaccessinghealthinformationfromaproviderssystem,privacystandardsmayrequirea

    certainlevelofauthenticationwhichmustbeconsideredinthePHRdesign.Itmaybenecessaryfora

    PHRtoemploysecurepasscodesorothermeansofreliablyidentifyingindividuals.

    Itisimportanttoestablishbrandcredibility,asitisamotivatingfactorforuserstochooseaPHR.

    Asmentionedearlier,participantssaidtheywouldfeelmorecomfortablewiththeinformationgivenina

    PHRifitwasfromorendorsedbyaknowncompanyormedicalassociation.Brandcredibilitywillhelpto

    ensurethesuccessofanyPHR.

    APHRshouldhaveeasilyaccessibleprivacyagreementsandotherlegaldisclosures,inlanguage

    thatissimpletounderstand.

    Someparticipantsmentionedthattermsofuseandprivacypolicieswereunusuallyimportantinthe

    contextofaPHR.Becausetheseapplicationsinvolvepersonalhealthinformation,aPHRshouldmake

    certaintoprominentlyexplaintousershowtheirdatawillbehandled.However,itisalsocriticalthatthis

    informationbepresentedinareadableandsimpleformat,sothatusersarenotintimidatedbypagesof

    legaljargon.

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    Differenttypesofusersandtheirhealthneedsshouldbeconsciouslyaddressedwhendesigning

    functionalityforaPHR.

    BecausemanyparticipantssawsignificantvalueinusingaPHRiftheyhadachroniccondition,itis

    importantthattheidealPHRistailoredtothistypeofsituation.Althoughnotincludedinaspecifictaskin

    thestudy,theprocessofaddingmultipleupdatestothesameconditionwasnotstreamlinedbyanyofthe

    threePHRsstudied,whichmaylimittheirutilityforuserswiththesetypesofconditions.Considerauser

    withacomplicatedconditionlikebreastcancer.WhenthisuserinitiallysetsupherPHRprofile,shemay

    wanttoinputhercancersentirehistory,includingrelatedtestresults,treatmentregimens,medications

    andprocedures.

    Then,eachtimethestatusinherhealthchanges,thePHRwillneedtobeupdated.Thecurrentmodel

    usedbyallthreePHRsinthisusabilitystudysimplyallowsfornewlineitemstoasinglecategoryof

    information(e.g.,conditionormedication).TheidealPHRshouldallowuserswithsuchconditionstotie

    differenttypesofinformationtogetherundertheumbrellaofasinglemedicalissueandenableeasy

    updates.

    7.NextStepsforPHRApplications

    PerformingusabilitytestingonseveralpopularPHRsallowedUserCentrictogetacloser,morestudied

    perspectiveontheuserexperienceofPHRsaswellastheirmostvaluablefeaturesandfunctions.The

    wealthofdatagatheredfromtheresearchwasusedtoinformthedevelopmentofsomedesignbest

    practicesforPHRs.UserCentricencouragesfurthervalidationofthepreliminaryideassuggestedfor

    thesebestpracticesabove.

    Whilethereisstillmoretobelearnedinthisdomain,obtainingactualusersfeedbackandexperiencesisanessentialsteptoincreasingtherateofPHRadoption.Asafollow-uptothePHRusabilitytesting

    describedinthiswhitepaper,UserCentricconductedanonlinesurveytogatherfurtherdataonattitudes

    towardsPHRs.Althoughanalysisofthesurveydataiscurrentlyongoing,severalrelevanttrendshave

    beenidentified.

    Onecriticalpointisthatsurveyrespondentswerenottypicallypreparedtoinvestalargeamountoftime

    inconfiguringorupdatingtheirPHR.Mostcommonly,respondentswerewillingtospendbetween10and

    30minutessettinguptheirPHRandwerewillingtoupdateitonlymonthlyoryearly.Thishighlightsthe

    importanceofthePHRuserexperiencetoadoption;ifdataentryisdifficultorinefficient,thePHRmaynot

    beworththeuserstime.

    AnotherinterestingfindingincludedthefeaturesthatwouldmostdriverespondentstoadoptaPHR.

    Thesewere:

    Trackimmunizationrecords

    Securelyreceivetestresultsandinformationfromyourphysician

    Shareyourhealthinformationwithyourprimaryphysician

    Manageinsuranceinformationandmedicalbills

    Getremindersaboutregularcheckupsorrecurringtreatments.

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    Sharingonesinformationwiththeirphysicianwastheonlyoneofthesefeaturestobeincludedonthe

    questionnairegivenduringtheusabilitytesting,anditscoredhighlyinboththetestingandthesurvey.

    Theotherfourfeatureswereamongthosenewlyintroducedforthesurvey.

    Inadditiontothisonlinesurvey,UserCentricisconductinganonlinetestoftask-basedfirst-click

    responsestoassesstheeffectivenessofpagelayoutandterminologyusedinthethreePHRsevaluated

    intheusabilitystudy.

    Inthefuture,UserCentricwillreleaseamoredetailedreporttodiscussthesurveydataandits

    implications.Additionally,focusgroupsfeaturingindividualswithdistincthealth-relatedprofiles(e.g.,

    healthprofessionals,parents)arealsoplanned.

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    8.References

    AAFP(AmericanAcademyofFamilyPhysicians).(2006).AnintroductiontoPersonalHealthRecords.

    RetrievedJanuary26,2009,fromAAFPNews&PublicationsWebsite:

    http://www.aafp.org/fpm/20060500/57anin.html

    AHIMA(AmericanHealthInformationManagementAssociation).(2009a).WhatisaPersonalHealth

    Record?RetrievedJanuary26,2009,fromMyPHR.comWebsite:

    http://www.myphr.com/what/what_is_a_health_record.asp

    AHIMA(AmericanHealthInformationManagementAssociation).(2009b).HowtochooseaPHRsupplier.

    RetrievedJanuary26,2009,fromMyPHR.comWebsite:http://myphr.com/resources/phr_search.asp

    Arnst,Catherine.(2006).ThebestmedicalcareintheU.S.RetrievedJanuary26,2009,from

    BusinessWeekWebsite:

    http://www.businessweek.com/magazine/content/06_29/b3993061.htm?chan=tc&chan=technology_technology+index+page_best+of+the+magazine

    KaloramaInformation.(2008).OnlineaccessofpatienthealthrecordsaddsnewdimensiontoEMR.

    RetrievedJanuary26,2009,fromMSNBCMarketwireWebsite:

    http://www.msnbc.msn.com/id/28437746/

    Lund,A.M.(1998).Theneedforastandardizedsetofusabilitymetrics.Inthe Proceedingsofthe

    HumanFactorsandErgonomicsSociety42ndAnnualMeeting.SantaMonica,CA:HumanFactors

    andErgonomicsSociety,688-691.

    MyMedicalRecords.com.(2007a).MyMedicalRecords.comoffersfreeadvanceddruginformation/interactiontooltothepublic. RetrievedJanuary27,2009,fromMyMedicalRecords.com

    Website:http://www.mymedicalrecords.com/pressRoom.jsp

    MyMedicalRecords.com.(2007b).FormercongressmanRichardGephardtjoinscampaigntopromote

    availabilityofelectronichealthrecordsforallworkingAmericans. RetrievedJanuary26,2006,from

    PRNewsWire.comWebsite:http://www.prnewswire.com/cgi-

    bin/stories.pl?ACCT=104&STORY=/www/story/02-12-2007/0004525403&EDATE

    Nall,Janice.(2008).Proposedrecommendationsforusingsocialmediatoincreaseadoptionofand

    enhancethefunctionalityofPersonalHealthRecords(PHRs)[PowerPointslides].RetrievedfromU.S.

    DepartmentofHealthandHumanServicesWebsite:http://www.hhs.gov/healthit/ahic/materials/04_08/ce/nall_recs_files/textonly/index.html


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