Living your best life after a breast cancer diagnosis.

#YSCSYMPOSIUM

JUNE 92018

NORTHYSC REGIONALSYMPOSIUM PA

PITTSBURGH,

SHERATON HOTEL,

PITTSBURGH

TO PITTSBURGH!WELCOME

I’m so glad to be spending the day getting to know you at YSC’s Regional Symoposium! This is YSC’s first conference in the Keystone State, and we’re super excited to be here.

There’s a word you’re going to hear a lot today: resilience. What does that mean, exactly? Resilience is defined, officially, as our ability to recover from difficulties. Some people call it “bouncing back” or “toughness” or “grit.” Whatever you call it, it’s a quality that can help you a lot whether you are a co-survivor, in-treatment, post-treatment or living with metastatic breast cancer.

We’ve gathered together an incredible roster of inspiring speakers, who will explore important topics like finances and healthcare, emotional and physical wellness, relationships and special topics just for co-survivors. After a full day of learning and connecting with peers, we’ll let loose with a dinner and dance party to celebrate you!

It’s our hope that today you learn something new, make a new friend and feel the power of the YSC community. And, whether you’re a survivor or co- survivor, we hope today serves as an important reminder that you are not alone in this experience.

Jennifer MerschdorfYSC CEOSurvivor

Smiles,

THE LINEUP

8:15 a.m. - 9:00 a.m. Morning Walk with YSC! MEET IN LOBBY

9:00 a.m. - 10:00 a.m.

Breakfast, Check-In and ConnectingADMIRAL FOYER AND REFLECTIONS

10:00 a.m. - 10:15 a.m.

WELCOME AND OPENING REMARKSADMIRAL

10:15 a.m. - 11:30 a.m.

GENERAL SESSION:Resiliency: Achieving Long-term Wellness Practical Matters: Financial Health, Estate Planning, and Your Legal Rights Sex and Intimacy: Let’s Talk about Sex and Body Image Co-Survivors : Finding Your Strengths and Caring for YouADMIRAL

11:30 a.m. - 11:45 a.m.

BreakREFLECTIONS

11:45 a.m. - 12:30 p.m.

Q&A with the ExpertsADMIRAL

12:30 p.m. - 1:30 p.m.

Lunch and Featured Lunchtime SpeakerADMIRAL AND REFLECTIONS

1:30 p.m. - 2:30 p.m.

BREAKOUT SESSION I Resiliency: Physical Wellness Practical Matters: Safeguarding Financial Health After a Breast Cancer Diagnosis Sex and Intimacy: Building Your Intimacy Toolbox Co-Survivors: Caring for You and Your Loved OneYou will find descriptions and room details on page 2

2:30 p.m. - 3:00 p.m.

Snack BreakSECOND FLOOR FOYER

3:00 p.m. - 4:00 p.m.

BREAKOUT SESSION II Resiliency: Emotional Wellness Practical Matters: Caring for You and Your Loved Ones Through Estate Planning Sex and Intimacy: Your Body Now Co-Survivors: What is Your Co-Survivor Superpower?You will find descriptions and room details on page 3

4:15 p.m. - 5:00 p.m.

Closing Talk and Wrap UpADMIRAL

5:00 p.m. - 6:30 p.m. Free Time and Get Ready to Party!

6:30 p.m. - 8:30 p.m.

Celebrate in the ‘Burgh: Dinner and Dance PartyREFLECTIONS

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Resiliency: Physical Wellness Kathleen Spadaro, PhD, PMHCNS, RN—Professor, Psychiatric & Mental Health Clinical Nurse Specialist

After a breast cancer diagnosis, your body can feel like it’s not your own- with challenges like weight change, fatigue or unfamiliar discomfort. Learn about natural ways to nourish your body, relieve side effects and feel power in your physical well-being. This session will focus on integrative methods like nutrition, exercise, acupuncture and gentle massage.

Practical Matters: Safeguarding Financial Health After a Breast Cancer Diagnosis Julie Olmsted, JD—Staff Attorney, Cancer Legal Care

After the emotional and physical impact of a breast cancer diagnosis, financial issues and decisions can be challenging. This session will provide an overview of the complex financial questions you and your family may face – employment, disability, health insurance, and more – as well as resources for navigating your way to solutions.

Sex and Intimacy: Building Your Intimacy Toolbox Sabitha Pillai-Friedman, PhD, LCSW, CST—Professor, Psychotherapist, Sex Therapist

Join this session to learn concrete tips for dealing with sex and intimacy after breast cancer. Discover how an open mind, strong communication skills and a little bit of creativity can help you rebuild and sustain this important part of your life.

Co-Survivors: Caring for You and Your Loved One Wendy Myers, MSW, LCSW—Director of Counseling, Cancer Caring Center Someone you love has breast cancer, and you want to know how you

can help. Be prepared to experience some strong emotions. Co-survivors can feel sad and overwhelmed. But, you can also experience tremendous rewards, discovering a sense of unity, common purpose and a deeper connection with the one you love. Learn what to expect of yourself and others during this time, and discuss how you can cope and offer support at the same time.

WHAT’S THE DEAL WITH THE DIFFERENT COLORED LANYARDS?The lanyards will help you meet people. Looking for someone who is newly diagnosed or a long-term survivor? Use this handy code (to the right) to figure out who everyone is.

Haselton 1

2

BREAKOUT SESSION 11:30 - 2:30 P.M.

Ellwood 1

Haselton 2

Ellwood 2

Resiliency: Emotional Wellness Kathleen Spadaro, PhD, PMHCNS, RN—Professor, Psychiatric & Mental Health Clinical Nurse Specialist

Many young women feel increased stress or complex emotions after a breast cancer diagnosis. This is totally normal. The good news is: there are everyday methods you can use to cope with the ups and downs you may be experiencing. In this session, you will hear about practices like yoga, meditation and talk therapy. Bring your questions and insights; leave feeling mentally rejuvenated.

Practical Matters: Caring for You and Your Loved Ones Through Estate Planning Julie Olmsted, JD—Staff Attorney, Cancer Legal Care

A breast cancer diagnosis brings up a lot of questions about your future. No matter where you are in your breast cancer experience, you may be wondering about estate planning: what is it, and do I really need it? These are topics every adult should think about. This session will provide an overview of estate planning and the documents you might need – will, trust, healthcare directive, power of attorney – to make sure you and your loved ones are protected.

Sex and Intimacy: Your Body Now Sabitha Pillai-Friedman, PhD, LCSW, CST—Professor, Psychotherapist, Sex Therapist

You’re not the only one looking in the mirror trying to understand what has happened to your body since your breast cancer diagnosis and treatment. Coming to terms with your new normal can be especially challenging as you face unexpected changes in your life and your body. Join this session for a chance to discuss how to see and embrace the strength and beauty of your body now and into the future.

Co-Survivors: What is Your Co-Survivor Superpower? Wendy Myers, MSW, LCSW—Director of Counseling, Cancer Caring Center

Ever wondered what kind of communicator you are? Everyone approaches conversations and relationships differently following a cancer diagnosis. The experience can be hard on you, too. Come talk to other co-survivors in an informal, relaxed environment. Take part in a fun exercise to identify your personal strengths and learn how to use them to communicate better with the survivor in your life.

Newly Diagnosed 0 – 1 Year = ORANGE

1-5 Years Since Diagnosis = LIGHT GREEN

6-9 Years Since Diagnosis = PURPLE

10+ Years Since Diagnosis = TEAL

Living with Metastatic Breast Cancer = YELLOW

Healthcare Professional = ROYAL BLUE

Co-Survivor = BURGUNDY

General = GRAY

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BREAKOUT SESSION 1I3:00 - 4:00 P.M.

Haselton 1

Ellwood 1

Haselton 2

Ellwood 2

YSC Face 2 Face (F2F) networks provide an opportunity for young women diagnosed with breast cancer to meet in person in their local communities. Find a list of current F2Fs below. If you don’t see one in your area, find out how you can start an F2F in your community at youngsurvival.org/ysc-f2f.

YSC State Leaders are volunteer advocates who represent YSC and act as a link between local communities and the YSC Regional Field Staff. They help identify local and state-wide resources for young women affected by breast cancer, and they provide outreach and education throughout their state. You can find the list of North State Leaders below. If you are interested in becoming a State Leader, check out youngsurvival.org.

CONNECTICUT F2F Milford:Erin Laverty F2F Greenwich:Jennifer McCaroll

ILLINOIS State Leaders:Dana StewartJen LinaresKatie ParkerMonique Pond Wilmington F2F: Stephanie Landis Bloomington F2F:Nichole Olson Stacey Wells

Chicago F2F:Jamie Bruner Schaumburg F2F: Mary Gleason

Peoria F2F: Katie Parker

INDIANAState Leader:Ali Szymenski

IOWADes Moines F2F:Bridget Nixon

KANSASOverland Park F2F:Rose Cooper KopeckyJulia Stegeman

Lawrence F2F: Cassandra Peters

MAINE State Leader:Rebecca Vincelette

Portland F2F: Rebecca Vincelette Ryann Chamberlain

MARYLAND State Leaders:Amber Blose Laurie Yori Riha

Bel Air F2F: Dawn WaltmanLaurie Yori Riha

Baltimore F2F: Tammy KestlerJennifer Hodson

John Hopkins F2F: Elizabeth Saylor

MASSACHUSETTSState Leader:Noel Peters

Higham F2F: Nicole Merhill Parnell

Topsfield F2F: Michelle Correnti

Worchester F2F: Lisa C WickMichelle Roberge

Framingham F2F: Chris Baer

MICHIGAN State Leaders:Alexis Schneider Maureen Parrish4

GET CONNECTED IN YOUR AREA

YSC North Region State Leaders and F2F Groups

Lansing F2F:Alexis Schneider

Transverse F2F:Katie Horvath Rebecca Galegos

Troy F2F:Sabrina Mayhew Angelia Samuel

Portage F2F:Christine Morse

MINNESOTA State Leaders:Eden Sonn Kathy Von Eschen

Minneapolis F2F:Carissa Vincent

MISSOURI State Leaders:Kristin RoseRebecca SteinerFelicia HarrisMaridith GarrettClare MacConnell

Columbia F2F: KayMaree Hader

Liberty F2F: Amanda George

Ozark F2F: Heidi Rankin

NEBRASKA State Leader:Amberly Connolly

Lincoln F2F: Amberly Connolly

NEW HAMPSHIRE Manchester F2F:Jennifer Beaudet

NEW JERSEYRed Bank F2F:Maria Jones Patricia Green

Princeton F2F:Jodi Inverso

Paramus F2F:Brook LasterPatti PasquinoKaren Rein

Montclair F2F:Hilary ConwayKeshia Boxton-Sessoms

NEW YORKState Leaders:Heather LaBrunaJoslyn McArdleAnnMarie OtisJennifer SmithJamie Pleva-Nickerson

Garden City F2F:Erin Nau Valerie Linet

Saratoga Springs F2F:Jen Benedict

Delmar F2F:Jessica Melchior Bronwyn Perez

NYC F2F:Gabriella Hohn

BHRP-NYC F2F:Jenny Echelman

NORTH DAKOTABismarck F2F:Ali WaldDesri NeetherAmy Milsten Sue Bowman

SOUTH DAKOTA State Leader:Katie Parker

Rapid City F2F: Katie Parker

WISCONSIN Milwaukee F2F:Lindsey Nathan O’Connor Laura Kueker

OHIO State Leaders:Laura D’AlessandroKathleen Bohley

Tracy DyckmanMelissa PaskvanJulie KlaskiLinda MielcarekMelissa Dunn

Beachwood F2F:Laura D’Alessandro

Cincinnati F2F:Melissa DunnMichelle Dickstein

Columbus F2F:Kristen KerrMelissa Richardson

East Columbus F2F: Julie KlaskiAngela Cardona

Westside Cleveland F2F:Amanda McGraw

PENNSYLVANIA State Leaders:Yolanda MurphyJennifer GianfrancescoJodi InversoTiffany O’Donnell

Newtown Square F2F:Caroline Abi-Khattar

Pittsburgh F2F:Jenny Wood Roberta Szpara

Norristown F2F:Kelly Romano Monica D’Antonio

Reading F2F:Vanessa ShurleyLynn Manganaro

State College F2F:Heather Sanford

Philadelphia F2F:Cara ScharfLeora HafriKathryn PuseyTiffany Nardela

Warminster F2F:Stacey Slater

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GET CONNECTED IN YOUR AREA

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