31st Alzheimer Europe Conference Resilience in dementia

31st Alzheimer Europe Conference Resilience in dementia: Moving beyond the COVID-19 pandemic

Online / 29 November-1 December 2021Programme Book

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Index

Welcome ......................................................................................................................................................3

Organiser and conference committee ...........................................................................................................5

Sponsors .......................................................................................................................................................7

Programme outline .......................................................................................................................................8

Detailed programme ...................................................................................................................................11

Quick oral presentations .............................................................................................................................20

Poster presentations ...................................................................................................................................26

Keynote speakers ........................................................................................................................................28

The Alzheimer Europe Conference received funding under an operating grant from the European Union’s Health Programme (2014-2020).

The contents represent the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

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Welcome Dear colleagues and friends,

I am delighted to invite you to the 31st Alzheimer Europe Conference which will be organised online from 29 November to 1 December 2021.

This year’s conference will be held under the motto “Resilience in dementia: Moving beyond the COVID-19 pandemic”. We wish to showcase how people with dementia, their carers, Alzheimer’s associations, policy makers, health and social care professionals, researchers and industry adapted to the ongoing COVID-19 pandemic and how new and innovative ways were found to diagnose, treat, care and provide support in these challenging times.

We have identified a number of key topics for which we would like participants to submit abstracts for oral, quick oral and poster presentations and which cover two broad fields: Resilience and the COVID-19 pandemic and Societal and medical issues. In addition, we have chosen a number of topics for which we are looking to receive abstracts for quick oral and poster presentations only. We hope to build on the success of previous years where we received over 500 abstracts for oral and poster presentations.

As organisers, we are deeply grateful to the health programme of the European Union which supports the activities of Alzheimer Europe in general and this Annual Conference in particular. This support and the sponsorship of our corporate partners make it possible for us to provide highly competitive registration rates for a truly unique conference.

I hope that many of you will use the opportunity to submit an abstract to share your own experiences, projects, initiatives and research and i look forward to welcoming you online for another unique networking and learning opportunity.

Iva Holmerová

Chairperson / Alzheimer Europe

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Organisers

Host organisations The 31st Alzheimer Europe Conference online is organised by:

Alzheimer Europe

14, rue Dicks L-1417 Luxembourg Tel. : +352-29 79 70 Fax : +352-29 79 72 [email protected] www.alzheimer-europe.org

Organising and Programme Committee

• AUER Stefanie, Danube University Krems, Austria • BANERJEE Sube, Brighton and Sussex Medical School, United Kingdom • BINTENER Christophe, Alzheimer Europe, Luxembourg • BIRCK Cindy, Alzheimer Europe, Luxembourg • BLANKMAN Kees, Faculty of Law, Vrije Universiteit Amsterdam, Netherlands • BLOM Marco, Alzheimer Nederlands, Netherlands • BOADA Mercè, Barcelona Alzheimer Treatment and Research Center, Spain • BOOR ELLIS Kate, Alzheimer Europe, Luxembourg • BRADSHAW Angela, Alzheimer Europe, Luxembourg • CHATTAT Rabih, Università di Bologna, Italy • DIAZ Ana, Alzheimer Europe, Luxembourg • FRANCO MARTIN Manuel, University Rio Hortega Hospital, Spain • GEOGHEGAN Carmel, EWGPWD Supporter, Ireland • GEORGES Jean, Alzheimer Europe, Luxembourg • GOVE Dianne, Alzheimer Europe, Luxembourg • GUILLORY Gwladys, Alzheimer Europe, Luxembourg • HEISE Bernd, European Working Group of People with Dementia (EWGPWD), Germany • HOLMEROVA Iva, Czech Alzheimer Society, Czech Republic • INNES Anthea, University of Salford, United Kingdom • JANSEN Sabine, Deutsche Alzheimer Gesellschaft, Germany • MABIRE Jean-Bernard, Fondation Médéric Alzheimer, France • McLOUGHLIN Pat, Alzheimer Society of Ireland, Ireland • MEILAND Franka, Afdeling Ouderengeneeskunde, Netherlands • MILLER Owen, Alzheimer Europe, Luxembourg • O'ROURKE Diana, NICE • O'SHEA Eamon, NUI Galway, Ireland • PRADIER Laurent, Sanofi, France • QUAID Kevin, European Working Group of People with Dementia (EWGPWD), Ireland • RIBALDI Federica, Geneva University Hospital, Switzerland • ROBERTS Chris, European Working Group of People with Dementia (EWGPWD), United Kingdom • SCERRI Anthony, University of Malta, Malta

mailto:[email protected]

http://www.alzheimer-europe.org/

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• SCERRI Charles, Malta Dementia Society, Malta • SZCZESNIAK Dorota, Wroclaw Medical University, Poland • TOLSON Debbie, University of the West of Scotland, United Kingdom • TSOLAKI Magda,Panhellenic Federation of Alzheimer’s Disease and Related Disorders, Greece • VAN LAER Ikuko, European Working Group of People with Dementia (EWGPWD) supporter, Belgium • VERNOOIJ-DASSEN Myrra, Radboud University Medical Centre Nijmegen, Netherlands • WALDEMAR Gunhild, University of Copenhagen, Denmark • WESTERLUND Karin, Alzheimer Sverige, Sweden • WOODS Bob, Bangor University, United Kingdom • ZINCKE dos REIS Maria do Rosario, APFADA, Portugal

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Sponsors Alzheimer Europe gratefully acknowledge the support they have received for the 31st Alzheimer Europe Conference.

Public support The 31st Alzheimer Europe Conference received funding under an operating grant from the European Union’s Health Programme (2014–2020).

The content of the 31st Alzheimer Europe conference represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/ or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

Gold sponsors

Bronze sponsors

abbvie

ADDI

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Programme outline Monday, 29 November 2021

Room Plenary room Breakout 1 Breakout 2 Breakout 3 Breakout 4 Quick Oral Presentations

Poster exhibition

12.45-13.00 Live music QOP1. Resilience and COVID-19

POS1. Resilience and COVID-19 13.00-13.30 Opening ceremony

13.30-14.00 K1. Keynote lecture 14.00-14.15 Break

14.15-15.30 P1. Adapting day and community care P2. Arts and culture P3. Neuronet P4. INTERDEM

15.30-16.00 Break and active promotion of quick oral presentations and posters

16.00-17.15

P5. Learning the lessons of COVID-19

in nursing and residential care

P6. Gender and sexuality P7. Neuronet P8. INTERDEM

17.30-18.30 SS1. RECAGE

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Tuesday, 30 November 2021


Poster exhibition

08.45-09.00 Live music QOP2. Care and support

POS2. Care and support

09.00-10.15 PL2. Lessons from

the COVID-19 pandemic

10.15-10.45 Coffee break - Quick oral and poster presentations - Networking

10.45-12.00 P9. Maintaining

dementia as a public health priority

P10. Rehabilitation in dementia

P11. Sponsored parallel: Brain health

Scotland

P12. Sponsored parallel: DZNE. Ethnic minorities

12.00-13.00 Lunch break and cooking class 13.00-14.00 SS2. EWGPWD SS3. Roche 14.00-14.15 Coffee break

14.15-15.30 P13. Mental health

and dementia during the pandemic

P14. Intergenerational

dementia initiatives P15. Neuronet P16. INTERDEM

15.30-15.45 Coffee break and poster exhibition

15.45-17.00

PL3. Innovations in dementia diagnosis and care through new technologies

17.15-18.15 SS4. Global Coalition on Aging SS5. ADDI

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Wednesday, 1 December 2021


Poster exhibition

08.30-08.45 Live music QOP3. Policy and societal aspects

POS3. Policy and societal aspects 08.45-09.10 K2. Keynote lecture

09.10-10.15 PL4. Dementia as a

public health challenge


10.45-12.00

P17. New ways of diagnosing dementia and of recruiting and assessing research

participants

P18. Young onset dementia

P19. Sponsored parallel: bPRIDE and

MIRIADE

P20. Sponsored parallel: EAN/EADC

12.00-13.00 Lunch break and yoga class 13.00-14.00 SS6. Biogen SS7. TauRx 14.00-14.15 Coffee break

14.15-15.30 P21. Telecare and counselling

P22. Risk factors and prevention P23. Neuronet P24. INTERDEM


15.45-17.00

PL5. Round table discussion – Beyond

the pandemic: Reinventing

dementia care and treatment

17.00-17.30 Closing ceremony

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Detailed programme

Monday, 29 November 2021 12.45-13.00 (Plenary Room) Live music

13.00-13.30 (Plenary Room) Opening ceremony

Welcome and introductory comments by • Conference Hosts • Iva Holmerová, Chairperson, Alzheimer Europe • Chris Roberts, Chairperson, European Working Group of People with Dementia • Marjolein de Vugt, Chairperson, INTERDEM • Hans Kluge, WHO

13.30-13.45 (Plenary Room) K1. Inspirational intro: Kevin Quaid (Ireland): Resilience in dementia – adapting to the COVID-19 pandemic as a dementia advocate

13.45-13.55 (Plenary Room) Questions and answers with keynote speaker

13.55-14.00 (Plenary Room) Live music

14.00-14.15 Break

14.15-15.30 Parallel sessions

(Breakout 1) P01. Adapting day and community care Chairperson: Pat McLoughlin (Ireland)

• P01.1. Grant Gibson (United Kingdom): The impact of COVID-19 on community organisations supporting people with dementia; how did organisations and staff sustain their resilience during a time of crisis.

• P01.2. Carolien Smits (Netherlands): Cocreation in Covid-19 times: Developing inclusive tools for community living people with dementia, family carers and care professionals: the POLAR study

• P01.3. Nikki Lorimer (United Kingdom): A Person-Centred Approach to Remodeling Day Care

• P01.4. Matthew Harrison (United Kingdom): Developing the 4 Key principles of online community support for people affected by dementia

• P01.5. Marie Poole (United Kingdom): Adapting post-diagnostic dementia support in England and Wales during the COVID-19 pandemic

(Breakout 2) P02. Arts and culture Chairperson: Cindy Birck (Luxembourg)

• P02.1. Danai Theodosopoulou (United Kingdom): Memories are made of this: Developing evidence for the conceptual base for the use of personalised music in dementia care

• P02.2. Jeni Sinclair (United Kingdom): Saturdays Doon The JM

• P02.3. Martin Quirke (United Kingdom): Housing for Cognitive Health: A Pilot Study in Co-Design using Virtual Reality

• P02.4. WITHDRAWN

• P02.5. Judy Williams and Marie Brett (Ireland): 'Yes, But Do You Care?'

(Breakout 3) P03. Neuronet: Elevating the patient voice: public involvement in Innovative Medicines Initiative neurodegeneration projects

Chairperson: Dianne Gove (Luxembourg)

• P03.1. Ana Diaz (Luxembourg): Alzheimer Europe’s work to promote Public Involvement in dementia research

• P03.2. Stina Saunders and Eileen Penman (United Kingdom): The European Prevention of Alzheimer’s Dementia Research Participant Panel

• P03.3 Johanna Graeber (Germany): Patient Involvement and Engagement in IDEA-FAST

• P03.4 Alison Keogh (Ireland): A roadmap of activity to develop patient and public involvement and engagement structures in Mobilise-D

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This session is organised by NEURONET

(Breakout 4) P04. Interdem: Leaving University after PhD? Opportunities and experiences across sectors

Chairperson: Frans Verhey and Fania Dassen (Netherlands)

With the participation of:

• Jesper Van Thor (Netherlands)

• Joeke van der Molen- van Santen (Netherlands)

• Saartje Burgmans (Netherlands)

• Joris Wiersinga (Netherlands)

This session is organised by INTERDEM

15.30-16.00 Break and active promotion of quick oral presentations and posters

16.00-17.15 Parallel sessions

(Breakout 1) P05. Learning the lessons of COVID-19 in nursing and residential care Chairperson: Jim Pearson (Scotland, United Kingdom)

• P05.1. Sarah Swift (United Kingdom): Locked Out: Learning from the loved ones of care home residents in Scotland during the COVID-19

• P05.2. Lorna Hart-Thomson (United Kingdom): Action On Rights - Alzheimer Scotland

• P05.3. Jasper De Witte (Belgium): Resilience of nursing home residents in times of COVID-19: a shared responsibility and the need for a tailored approach

• P05.4. Victoria Tischler (United Kingdom): Culture Box: provision of creative activities and public health materials to people with dementia in care homes during the pandemic

• P05.5. Andrea Capstick (United Kingdom): Living and working in UK care homes during the COVID-19 pandemic: evidence from the front line

(Breakout 2) P06. Gender and sexuality Chairperson: Dianne Gove (Luxembourg)

• P06.1. Linda McAuliffe (Australia): Sexuality and cognitive impairment in residential aged care: Staff perspectives

• P06.2. Megan Oglesby (Ireland): Exploring Dementia Service Access and Avoidance by LGBTQ+ Older Adults in Ireland: A mixed method study


• P06.4. Maaret Meriläinen (Finland): Sexuality of people with dementia and their spousal caregivers

(Breakout 3) P07. Neuronet: Collaboration and best practice: common challenges & lessons learned from the Innovative Medicines Initiative neurodegeneration portfolio

Chairperson: Carlos Diaz (Spain)

• P07.1. Carlos Diaz (Spain): The Neuronet approach: supporting collaboration and showcasing achievements

• P07.2. Lennert Steukers (Belgium): Data sharing & Re-use

• P07.3. Dalia Dawoud (United Kingdom): Health Technology Assessment/Regulatory

• P07.4. Angela Bradshaw (Luxembourg): Ethics & Patient Privacy

• P07.5. Lewis Killin (Spain): Sustainability


(Breakout 4) P08. Interdem: Social health as a driving force in dementia prevention and living well with dementia

Chairperson: Myrra Vernooij-Dassen (Netherlands)

• P08.1. Clarissa Giebel (United Kingdom): COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey

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• P08.2. Heinrick Wiegelman (Germany) and Marta Lenart (Poland): Measures of social health in the context of cognitive decline and dementia – Results of a systematic review

• P08.3. Myrra Vernooij-Dassen (Netherlands): Social health and prevention of dementia

• P08.4. Martin Orrell (United Kingdom): DISTINCT: Using social health principles to improve the applicability and effectiveness of technology in dementia care


17.30-18.30 Special symposia

(Breakout 1) SS1. REspectful CAring for the AGitated Elderly: an overview of the RECAGE project (a project funded by EU H2020 programme)

Chairperson: Mario Possenti (Italy)


• Sara Fascendini (Italy): Introduction

• Cristina Jori (Italy): The RECage Clinical Trial

• Carlo Alberto Defanti (Italy): Preliminary data on the concomitant qualitative study

This symposium is organised by RECAGE

Tuesday, 30 November 2021 8.45-9.00 (Plenary Room) Live Music

9.00-10.15 (Plenary Room) PL2. Lessons from the COVID-19 pandemic

• PL2.1. Jim Pearson (Scotland, UK): Reinventing counselling and home support during the pandemic

• PL2.2. Pat McLoughlin (Ireland): Protecting people with dementia in residential care – what we did right and what we got wrong!

• PL2.3. Miia Kivipelto (Sweden): Multimodal prevention studies and lifestyle changes during the COVID-19 pandemic


10.45-12.00 Parallel Sessions

(Breakout 1) P9. Maintaining dementia as a public health priority Chairperson: Owen Miller (Luxembourg)

• P09.1. James White (United Kingdom): Alzheimer’s Society Report: Worst Hit

• P09.2. Aine Teahan (Ireland): Supporting family carers of people with dementia past the pandemic: A discrete choice experiment of public preferences for enhanced services and supports

• P09.3. Clarissa Giebel (United Kingdom): Amplifying dementia as a global public health problem: A cross-country comparison of the impact of COVID-19 pandemic

• P09.4. Anders Gustavsson (Sweden) and Wiesje van der Flier (Netherlands): European estimates on the number of persons across the Alzheimer’s continuum

• P09.5. Lone Storgaard and Mai Myhre (Norway): Almas house - Knowledge Service during the COVID-19 pandemic

(Breakout 2) P10. Rehabilitation in dementia Chairperson: Myrra Vernooij-Dassen (Netherlands)

• P10.1. Alison McKean (United Kingdom): Co-design of digital solutions to rehabilitation and dementia – a partnership project between the Scottish Dementia Working Group and AHPs

• P10.2. Nikolas Dietzel (Germany): Differences in the assessment of the relevance of support services between family caregivers and professional dementia experts: digiDEM Bayern

• P10.3. Trish O’Sullivan (Ireland): Education and training to support physiotherapists working in dementia care: a scoping review

• P10.4. Emma O’Brien (Ireland): Memory Technology Resource Rooms; Evaluation of the Role, Contribution and Value to People with Dementia in Ireland

• P10.5. Lisa Cronin (Ireland): "Accessing specialist palliative care for people with dementia"

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(Breakout 3) P11. Physical Activity, Sport & Nutrition for Brain Health Chairperson: Craig Ritchie (United Kingdom)


• Emma Stevenson (United Kingdom)

• Willie Stewart (United Kingdom)

• Stephanie Adams (United Kingdom)

• Craig Ritchie (United Kingdom)

This session is organised by Brain Health Scotland

(Breakout 4) P12. Dementia & migration – EU-atlas & the situation in two selected countries Chairperson: Jochen René Thyrian (Germany)

• P12.1. Jessica Monsees (Germany), Tim Schmachtenberg (Germany) and Maria Isabel Cardona (Germany): Dementia & migration – EU-atlas

• P12.2. Marco Canevelli (Italy): Provision of care for migrants with cognitive disturbances: a nationwide survey on the preparedness of Italian dementia services

• P12.23 Peter Bekkhus-Wetterberg (Norway): The process of increasing awareness of the challenges of cognitive testing in ethnic minority groups and people with low educational levels in Norway

This session is organised by DZNE

12.00-13.00 Lunch break and cooking class


(Plenary) SS2. Resilience and dementia

Chairperson: Chris Roberts (United Kingdom)

• SS2.1. Margaret McCallion (United Kingdom)

• SS2.2. Nigel Hullah (United Kingdom)

• SS2.3. Erla Jόnsdόttir (Iceland)

Live Q&A with all speakers, Chris Roberts.

This session is organised by members of the EWGPWD

(Breakout 2) SS3. Building Resilience in Health Systems for People with AD: Early Detection and Timely Diagnosis in a COVID-19 World

Chairperson: Jo Browning (Switzerland)

• SS3.1. Sasha Bozeat (Switzerland)

• SS3.2. Richard Perry (United Kingdom)

• SS3.3. Jan De Lepeleire (Belgium)

• SS3.4. Jayne Goodrick (United Kingdom)

This symposium is organised by Roche

14.00-14.15 Coffee break


(Breakout 1) P13. Mental health and dementia during the pandemic Chairperson: Iva Holmerová (Czech Republic)

• P13.1. Laura O’Philbin (Ireland): One Year of Caring & Coping with Dementia in COVID-19

• P13.2. Els Bakker (Netherlands): Psychosocial effects of COVID-19 measures on (pre-)dementia patients during 2nd lockdown

• P13.3. Dianne Gove, Ana Diaz (Luxembourg) and members of the EWGPWD: Involving people with dementia in research during the pandemic: challenges and learnings

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• P13.4. Lisa Waterink (Netherlands): The impact of one year of COVID-19 restrictions on lifestyle activities and mental health in older adults: a population-based questionnaire

• P13.5. Luisa Bartorelli (Italy): Dementia in the Time of Covid

(Breakout 2) P14. Intergenerational dementia initiatives Chairperson: Sabine Jansen (Germany)

• P14.1. Fania Dassen (Netherlands): The Adoption project: Raising awareness on dementia in primary schools and improving wellbeing in people living with dementia through an intergenerational initiative

• P14.2. Ciara O’Reilly (Ireland): Intergenerational Dementia Intervention – the Buddy Programme

• P14.3. Fusun Kocaman (Turkey): Children Are Learning Dementia

• P14.4. Lorène Gilly (France): “What if we talk about Alzheimer’s disease?” – An educational booklet for children

• P14.5. Ilaria Chirico (Italy): Young people’s perspectives on parental dementia: a systematic review

(Breakout 3) P15. Neuronet: From bench to bedside: preclinical research in Innovative Medicines Initiative neurodegeneration projects

Chairperson: Craig Ritchie (United Kingdom)

• P15.1. Shruti Desai (Netherlands): PD-MitoQUANT: Quantification of mitochondrial morphofunction in neuronal cells

• P15.2. Tania Fowke (Netherlands): Modeling ischemic stroke in a triculture neurovascular unit on-a-chip

• P15.3. Yang Shi (United Kingdom): Structure-based classification of tauopathies and identification of PET ligand binding sites

• P15.4. Jannis Wißfeld (Germany): Alzheimer’s Disease-protective Variant of CD33 Increases Microglial Activation


(Breakout 4) P16. INTERDEM: Sharing best practice e-health interventions in dementia Chairperson: Franka Meiland (Netherlands)

• P16.1. Franka Meiland (Netherlands): The JAIN challenge: lessons learned from the Dutch version and call for the World JAIN challenge

• P16.2. Manuel Franco (Spain): Setting up Field labs: pilot in SPAIN

• P16.3. Marco Blom (Netherlands): The role of people with dementia and family carers in creating and assessing AI solutions enhancing quality of life

• P16.4. Wijnand Ijsselstein (Netherlands): Artificial Intelligence and the Challenges of Living with Dementia: An interdisciplinary, multi-lab approach to design warm smart care solutions



15.45-17.15 (Plenary Room) PL3. Innovations in dementia diagnosis and care through new technologies

• PL3.1. Martin Traber (Switzerland): The importance of flexible care settings and home care management in clinical trials within a rapidly changing COVID-19 environment

• PL3.2. Adrian Wagg (Canada): Improving continence care of nursing home residents thanks to new technologies

• PL3.3. Petra Ritter (Germany): Augmenting diagnosis, inferring mechanisms, and predicting intervention outcomes in neurodegenerative disease through personalized Virtual Brain Cloud simulations


• Stella Kyriakides – European Commissioner for Health and Food Safety


(Breakout 1) SS4. The road behind and the road ahead: measuring the performance of 10 European governments on Alzheimer’s disease

Chairperson: Mike Hodin (USA)

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• SS4.1. Mike Hodin (USA)

• SS4.2. Paola Barbarino (United Kingdom)

• SS4.3. Sagar Sane (USA)

Panel discussion with the participation of:

• Debbie Abrahams (United Kingdom)

• Lorène Gilly (France)

• Pablo Martinez-Lage (Spain)

• Helen Rochford-Brennan (Ireland)

This session is organised by Global Coalition on Aging.

(Breakout 2) SS5. The Importance of Sharing Global Alzheimer’s Disease Data in Search of Novel Treatments and Cures

Chairperson: Tetsuyuki Maruyama (United States) With the participation of:

• Craig Ritchie (United Kingdom)

• Miia Kivipelto (Sweden)

This session is organised by ADDI

Wednesday, 1 December 2021 8.30-8.40 (Plenary Room) Live Music

8.40-8.45 (Plenary Room) Welcome to final day

8.45-9.00 (Plenary Room) K2. Patrick Ettenes (United Kingdom): Inclusive dementia care: the needs of the LGTBQ community

9.00-9.10 (Plenary Room) Question and answer session

9.10-10.15 (Plenary Room) PL4. Dementia as a public health challenge

• PL4.1. Hana Brouliková (Czech Republic): Czech National Action Plan for Alzheimer’s Disease andRelated Illnesses 2020 – 2030: First Implementation Steps and Lessons Learned during the Pandemic

• PL4.2. Maria Teresa Ferretti (Italy): Are we getting better at taking sex and gender differences inAlzheimer’s care into account?

• PL4.3. Gill Livingston (United Kingdom): Preventable causes of dementia and their publichealth implications



Breakout 1) P17. New ways of diagnosing dementia and of recruiting and assessing research participants

Chairperson: Charles Scerri (Malta)

• P17.1. Aniek van Gils (Netherlands): The (non)sense of computer tools in memory clinics – aninternational survey study assessing the views of professionals, patients and care partners

• P17.2. Daphne ter Huurne (Netherlands): Remote telephone-based assessment and the additional clinical use of speech features in the Semantic Verbal Fluency task

• P17.3. Adam Smith (United Kingdom): Reviewing the impact of the COVID-19 pandemic on Join Dementia Research volunteer registrations and study recruitment in the United Kingdom

• P17.4. Nora Hoen (Germany): Impaired central recognition of non-verbal environmental sounds in mildAlzheimer’s disease and MCI

• P17.5. Thanos Stavropoulos (Greece): Digital Biomarkers for Alzheimer’s Disease in a Real-Living SmartHome Environment: the RADAR-AD Tier 3 Study

(Breakout 2) P18. Young onset dementia Chairperson: Marco Blom (Netherlands)

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• P18.1. Romy van Rickstal (Belgium): For people with young-onset dementia and their caregivers advance care planning should focus on ‘what matters to them now and in the future’

• P18.2. Louise Ritchie (United Kingdom): Working post diagnosis of dementia: the development of a collaborative approach to research involvement

• P18.3. Esther Gerritzen (United Kingdom): Peer support through Zoom: experiences of people with Young Onset Dementia

• P18.4. Suzanne Gray (United Kingdom): Living with a diagnosis of frontotemporal dementia: What helps and hinders?

• P18.5. Stevie Hendriks (Netherlands): Worldwide prevalence and incidence of young-onset dementia

(Breakout 3) P19. bPride/MIRIADE: Fluid biomarkers as strategic tools for counteracting dementia Chairperson: Charlotte Teunissen (Netherlands)

• P19.1. Charlotte Teunissen (Netherlands): General info about BBB and intro of MIRIADE and bPRIDE

• P19.2. Marta del Campo (Netherlands): bPRIDE consortium: blood protein identification to discriminate dementias

• P19.3. Katharina Bolsewig (Netherlands): Biomarker development for dementia with Lewy bodies

• P19.4. Leighann Kimble (USA) and Ekaterina Mavrina (Netherlands): The Innovation Process in Biomarker Discovery: Exploring the Collaborative Context of MIRIADE

This session is organised by bPride and MIRIADE

(Breakout 4) P20. Joint EADC/EAN Symposium on MCI: diagnosis, disclosure and management Chairperson: Kristian Steen Frederiksen (Denmark)

• P20.1. Kristian Steen Frederiksen (Denmark): Disclosing a difficult diagnosis: practical recommendations for the disclosure of MCI

• P20.2. Frank Jessen (Germany): Patient perception of biomarker results

• P20.3. Giovanni Frisoni (Italy): Diagnostic challenges and biomarkers in early AD

• P20.4 Lutz Frölich (Germany): Treatment in MCI and early AD: a changing landscape

This session is organised by EAN and EADC

12.00-13.00 Lunch break and yoga class

13.00-14.00 Special symposium

(Breakout 1) SS6. The Importance of Brain Health and its impact on Alzheimer's Disease Chairperson: Karin Hellsvik (USA)

• SS6.1. Kenny Brooks (USA)

This session is organised by Biogen

(Breakout 2) SS7. Late-stage clinical trial conduct during COVID-19: challenges, lessons, and the future for Alzheimer’s disease management

Chairperson: Serge Gauthier (Canada)

• SS7.1. Serge Gauthier (Canada): Introduction: the shifting patient pathway in AD

• SS7.2. Sonya Miller (United Kingdom): Conducting a phase 3 trial in a global pandemic – how we managed our trial

• SS7.3. Linda Sommerlade (United Kingdom): New diagnostic tools for early detection and monitoring of dementia

• SS7.4. Bjoern Schelter (United Kingdom): Data collection during COVID-19 and dementia insights

This session is organised by TauRx

14.00-14.15 Coffee break


(Breakout 1) P21. Telecare and counselling Chairperson: Franka Meiland (Netherlands)

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• P21.1. Rinat Cohen (Israel): Improving Communication between Staff and Family of Non-Communicative Patients at Israeli Geriatric Facilities by Using a Mobile App also during the COVID-19 Outbreak

• P21.2. Hannah Christie (Netherlands): Financing the sustainable implementation of eHealth interventions for caregivers of people with dementia: Lessons from nine Dutch case studies

• P21.3. Claudio Di Lorito (United Kingdom): Keeping physically active through tele-rehab during the pandemic: Results from the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) study

• P21.4. Michael Reichold (Germany): eHealth interventions for dementia in times of Covid-19: using WordPress plugins as a flexible dissemination for dementia service providers

• P21.5. Natalie Elliott and Rebecca Cicero (United Kingdom): Ask us About Dementia – a Pilot Study

(Breakout 2) P22. Risk factors and prevention Chairperson: Ana Diaz (Luxembourg)

• P22.1. Leonie Visser (Sweden): Reasons of patients and their care partners for visiting the memory clinic: the ABIDE project

• P22.2. Esmé Eggink (Netherlands): Attitudes and views on healthy lifestyles for the prevention of dementia and cardiovascular disease among older adults with low socioeconomic status: a qualitative study


• P22.4. Kathrin Steichele (Germany): The effects of exercise programs on cognition, activities of daily living, and neuropsychiatric symptoms in people with dementia - A systematic review

• P22.5. Francesca Farina (Ireland): Examining the relationship between fear of dementia and modifiable risk factors in mid-life

(Breakout 3) P23. Neuronet: Looking to the future: Impact of the Innovative Medicines Initiative’s neurodegeneration portfolio

Chairperson: Lennert Steukers

• P23.1. Fatima Salih (United Kingdom): Outcomes from the consultation on the IMI neurodegenerative disease research agenda

• P23.2 Carlos Diaz (Spain): Neuronet’s NEURO Cohort, Knowledge Base & Asset Map


• Laurent Pradier (France)

• Angela Bradshaw (Luxembourg)

• Martin Hofmann-Apitius (Germany)


(Breakout 4) P24. Interdem: Training next generation in psychosocial care in Dementia Chairperson: Marjolein de Vugt and Rabih Chattat (Netherlands)

• P24.1. Giovanni Ottoboni (Italy): SiDeCar Project, a curriculum of studies in dementia care for the next generation of European Higher Education

• P24.2. Alexander Kurz (Germany): INDEED online: an educational intervention for professions involved in dementia care

• P24.3. Fania Dassen (Netherlands): Interdem Academy. European network for training of early stage researchers involved in psychosocial research

• P24.4: Niels Janssen (Netherlands): The INTENSE project: improving dementia care through self-experience



15.45-17.00 (Plenary room) Round table discussion: Beyond the pandemic: Reinventing dementia care and treatment

With introductory presentations by:

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• Craig Ritchie (United Kingdom): From dementia prevention to brain health • Lutz Frölich (Gemany): Are we ready to change the diagnosis and treatment paradigm? • Marjolein de Vugt (Netherlands): Improving the support and care of people at the dementia stage

17.00-17.05 (Plenary room) Singing from Forget Me Nots Choir (Ireland)

17.05-17.15 (Plenary room) Closing ceremony

• Interaction with participants • Wrap up of the conference • Concluding comments by Iva Holmerová, Chairperson • Invitation to 32nd Alzheimer Europe Conference in Bucharest

17.15-17.30 (Plenary room) Singing from Forget Me Nots Choir (Ireland)

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Quick oral presentations

Monday, 29 November Quick oral presentations – QOP1. Resilience and COVID-19

• QOP1-01. Anthony Scerri (Malta): Lived experiences of nurses working in dementia units during the COVID-19 pandemic: lessons learned

• QOP1-02 Pablo Baldomir Puga (Spain): The work of associations in times of COVID

• QOP1-03 Anthea Innes (Greece): The experiences of people living with dementia and their care partners in the North West of England during the lockdown and as restrictions are eased

• QOP1-04 Suzie Noten (Netherlands): "I felt even more alone": impact of COVID19 restrictions on loneliness and social needs from the perspective of residents, family members and volunteers in nursing homes

• QOP1-05 Gayle Madden (United Kingdom): Resilience in Admiral Nurses during the COVID-19 pandemic

• QOP1-06 Lewis Arthurton (United Kingdom): From Plan to Impact IV: Progress towards targets of the WHO Global action plan on dementia

• QOP1-07 Kevin Rabiant (France): Counselling and dialogue ethical unit

• QOP1-08 Alice Edtmayer (Austria): Dementia and COVID-19 - exchange of experiences and chances for the future

• QOP1-09 Petya Nikolova (Bulgaria): Influence of the obligatory quarantine related to COVID-19 pandemic on caregivers of people with dementia

• QOP1-10 Viktoria Hoel (Germany): Social health among German care recipients with dementia during COVID-19, and the role of technology to promote social participation

• QOP1-11 Viktoria Hoel (Germany): Dyadic coping through COVID-19 with and without social technology: Experiences from community-dwelling people with dementia and their spouse

• QOP1-12 Michael Reichold (Germany): Designing and implementing an IT architecture for a digital multicenter dementia Registry: digiDEM Bayern

• QOP1-13 Natasha Morgan (United Kingdom): Community Makers Project

• QOP1-14 Jo Baxter (United Kingdom) A future for personalised care - discussion paper

• QOP1-15 Katarzyna Lion (Australia): Learning from family carers during COVID-19: An international perspective of residential aged care experiences

• QOP1-16 Marianna Tsatali (Greece): Online interventions: their effect on mental and emotional health in Greek older adults with Mild Cognitive Impairment (MCI) during the second quarantine period.

• QOP1-17 Marianna Tsatali (Greece): Cognitive and behavioural effects of the first Quarantine imposed in Spring 2020 due to the Coronavirus 19 in people living Dementia: a longitudinal study

• QOP1-18 WITHDRAWN


• QOP1-20 Leah Macaden (United Kingdom): COVID Dementia Education in Care Homes [codech]

• QOP1-21 Shirley Evans (United Kingdom): How Meeting Centres have continued to support people affected by dementia and flourish in the UK despite the pandemic

• QOP1-22 Erik Børve Rasmussen (Norway): Can a one-button screen improve the quality of life among people with dementia? Highlights from a research & innovation project, using social tech in elderly care in Norway.

• QOP1-23 Lillian Hung (Canada): Staff's resilience: COVID-19 outbreak in a Canadian Long-Term Care home

• QOP1-24 Charlotte van Corven (Netherlands): Family caregivers’ perspectives on their interaction and relationship with people living with dementia in a nursing home

• QOP1-25 Clarissa Giebel (United Kingdom): Are visits allowed? The impact of the COVID-19 pandemic on care home visitation and care delivery in the UK

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• QOP1-26 Andrew Harding (United Kingdom): Lessons learnt from undertaking dementia nursing home research remotely & online during a global pandemic: Tales from two advance care planning implementation studies

• QOP1-27 Elleke Landeweer (Netherlands): How to respond in better ways? Moral judgments and advises from residents, family members and volunteers in nursing homes concerning restrictive COVID-19 measures

• QOP1-28 Hannah Christie (Netherlands): Digitizing dementia care during COVID-19: Lessons from the scaling-up of Partner in Balance

• QOP1-29 Claudio Di Lorito (United Kingdom): Unexpected increase in physical exercise during the first lockdown of COVID-19 in England in people with dementia: What are the implications for future community care?

• QOP1-30 Anja Leist (Luxembourg): Management of long-term care in Luxembourg during the COVID-19 pandemic

• QOP1-31 Ilaria Chirico (Itlay): COVID-19 and the role of technology in dementia: an international study

• QOP1-32 Alexander Kurz (Germany): Making a virtue of necessity: how the COVID-19 pandemic promotes dementia care

• QOP1-33 Volodia Tourtchine (France): Learning despite the pandemic

• QOP1-34 Bernadette Horgan-Edmead (Ireland): Day care service provision for people with dementia: A qualitative study with family carers in Ireland

• QOP1-35 Nina Possemis (Netherlands): Clinical validation of automatically derived digital features from the Verbal Learning Test (VLT) in early diagnostics of cognitive impairment and dementia.

• QOP1-36 Elizabeth O'Donnell (Ireland): Strategies used by care home staff to manage responsive behaviours of residents with dementia during the COVID-19 pandemic

• QOP1-37 Margrét Guðnadóttir (Iceland): Living with dementia at home: Getting and adapting to specialised day-care support

• QOP1-38 Nancy Brown (United Kingdom): Enhancing Dementia Care during the Corona Pandemic: Zooming from Home

• QOP1-39 Gabriela Pacas Fronza (Australia): Psychotherapy via Telehealth to Reduce Anxiety in Persons Living with Cognitive Impairment

• QOP1-40 Raphael Gould (United Kingdom): Reasons for refusal in MCI research • QOP1-41 Catherine James (United Kingdom): Feasibility of using a personal assistant for dementia (PAD)

in individuals with early-stage dementia • QOP1-42 Sarah Gregory (United Kingdom): The associations between stressful life events, Alzheimer’s

disease biomarkers and cognition in the EPAD Longitudinal Cohort Study •

Tuesday, 30 November Quick oral presentations – QOP2. Care and support

• QOP2-01 Cathal Blake (Ireland): A qualitative evidence synthesis of the experiences of people living with young onset dementia and their families.

• QOP2-02 Cathal Blake (Ireland): Marginalised voices: A mixed-methods study of the needs, experiences and quality of life of people living with younger onset dementia.

• QOP2-03 Trine Holt Clemmensen (Denmark): “I know his needs better than my own”

• QOP2-04 Trine Holt Clemmensen (Denmark): Development and Field-testing of the Dementia Carer Assessment of Support Needs Tool (DeCANT)

• QOP2-05 Frida Svedin (Sweden): Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA)

• QOP2-06 Julie Miller (United Kingdom): Testing the delivery of post-diagnostic support from primary care - learning from an improvement programme

• QOP2-07 Maud Hevink (Netherlands): How do people with dementia, care partners and healthcare professionals experience support after a dementia diagnosis: qualitative results from the COGNISANCE study

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• QOP2-08 Laura Bavelaar (Netherlands): Guidance for family about comfort care in dementia: a comparison of an educational booklet adopted in European countries over 15 years

• QOP2-09 Priscilla Doyle (Ireland): The feasibility and acceptability of a pilot Comprehensive Resilience-building psychosocial Intervention (CREST) for people with memory problems/dementia in the community

• QOP2-10 Sara van de Schraaf (Netherlands): Care needs and wishes of patients with vascular cognitive impairment and their informal caregivers: a qualitative study.

• QOP2-11 Lieve Van den Block (Belgium): A mixed-methods process evaluation of an advance care planning intervention in nursing homes

• QOP2-12 Simone Anna Felding (Germany): “At first, I thought it makes no sense. But then I began to like him” – Results from a scoping review on acceptance of social robots in nursing homes

• QOP2-13 Federica D'Andrea (United Kingdom): Olfactory stimulation in dementia care: a rapid review

• QOP2-14 Helma Verstraeten (Netherlands): Facilitators and Barriers of the Implementation of a Personalised Integrated Stepped Care Approach to prevent or treat Neuropsychiatric Symptoms (the STIP-Method)

• QOP2-15 Bindi Dhesi (United Kingdom): My Future Wishes

• QOP2-16 Kielan Arblaster (United Kingdom): The Dementia Pathway

• QOP2-17 Jean-Bernard Mabire (France): Psychosocial interventions for people with dementia: a guide to improve knowledge, understanding and implementation.

• QOP2-18 Matthew Gibb (Ireland): Disclosing a diagnosis of young onset dementia:a best practice model

• QOP2-19 Carmel McKenna (Ireland): 'Some Dance to Remember': The psychosocial effects arising from the introduction of an adaptive Irish Céilí dance programme for people with dementia and their carers.

• QOP2-20 Tamara Backhouse (United Kingdom): An observational study of personal care interactions with people with advanced dementia in family and care-home settings

• QOP2-21 Claudia Dinand (Germany): Enhancing dyadic interaction of persons with behavioral variant frontotemporal dementia and their carers. A qualitative change evaluation of video feedback at home

• QOP2-22 Sandra Oppikofer (Switzerland): Music Mirrors: investigating an adaptive intervention supporting the activities of daily life for people living with dementia

• QOP2-23 Steve McFadyen (United Kingdom): Movement for Change – Sport England and Alzheimer’s Society Partnership

• QOP2-24 Yvonne Koster (Netherlands): Creating a website for people with dementia

• QOP2-25 Anja Bieber (Germany): Improving dementia care through self-experiences: a scoping review

• QOP2-26 Lynn Flannigan and Jill Carson (United Kingdom): A co-ordinated approach to post diagnostic support: The Critical Success Factors

• QOP2-27 Ina Fischer (Germany): Keeping the balance: What makes a good dementia telephone helpline?

• QOP2-28 Josephine Rose Tan (Netherlands): Development of the Fotoscope App: A tool for creating meaningful connections between nursing home residents with dementia and their carers

• QOP2-29 Siobhan Fox (Ireland): Conducting Site Evaluations to Inform a new Community Model of Palliative Care for People with Dementia

• QOP2-30 Susanne van den Buuse (Netherlands): Advance care planning for people with dementia

• QOP2-31 Julia Mackenzie (United Kingdom): Delivering High Quality Post Diagnostic Support During the Covid-19 Pandemic - Alzheimer Scotland

• QOP2-32 Maud Daemen (Netherlands): Evaluating the Dutch RHAPSODY program: a web-based educational and skill-building program for caregivers of persons with young-onset dementia

• QOP2-33 Golnaz Atefi (Netherlands): The potential utility of Acceptance and Commitment Therapy for informal caregivers: a systematic review

• QOP2-34 Elaine Hunter (United Kingdom): A co-ordinated and strategic allied health professions approach to rehabilitation in dementia to improve outcomes.

• QOP2-35 Aisling Flynn (Ireland): Virtual reality for older adults living with dementia: A multi-stakeholder perspective

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• QOP2-37 Nathan Stephens (United Kingdom): Scaling up a community-based intervention for people affected by dementia: what is the value?

• QOP2-38 Stephanie Kipfer (Switzerland): Improving relationship quality between persons with dementia and their informal caregivers with a psycho-educative intervention

• QOP2-39 Emma Finch (Ireland): Cognitive Stimulation Therapy (CST): An inpatient Speech and Language Therapy (SLT) intervention study

• QOP2-40 Sara Bartels (Netherlands): Measuring momentary cognition in a memory clinic sample with mild cognitive impairment using the experience sampling method: an exploratory validation study

• QOP2-41 Claire Bamford (United Kingdom): Improving primary care based post-diagnostic support for people living with dementia and their families

• QOP2-42 Laëtitia Ngatcha-Ribert (France): Psychosocial interventions in 5 cognitive-behaviour units: results to a European audience

• QOP2-43 Gianna Kohl (United Kingdom): Predictors of discomfort with diagnostic disclosure by people with dementia: A cross-country comparison between the UK and the Netherlands

• QOP2-44 Lucas Paletta (Austria): Personalised Activation and Motivation for Multidomain Training with the Socially Assistive Robot AMIGO Using a Coach-Companion Framework

• QOP2-45 Jane Wilcock (United Kingdom): Design of a co-developed online resource for people living with dementia, carers and healthcare professionals in the first twelve months post diagnosis (COGNISANCE)

• QOP2-46 Phebe Das (Netherlands): Feasibility of the SOCAV-in-Primary-Care psychosocial intervention - Lessons learned.

Wednesday, 1 December Quick oral presentations – QOP3. Policy and societal aspects

• QOP3-01 Katie Davis (United Kingdom): Dementia-friendly research: Findings from co-research with people living with dementia

• QOP3-02 David Lazris (USA): Understanding perceptions of Motor Cognitive and Movement Programs in African American women with Mild Cognitive Impairment

• QOP3-03 Leontine Groen - van de Ven (Netherlands): Challenging behaviour in migrants with dementia at home: experiences of their nurses and informal caregivers.

• QOP3-04 Paula Hain (United Kingdom): "The Mosaic Approach" to Music & Movement for PLWD and carers. This unique approach fosters connection and togetherness, with physical, social and emotional benefits.

• QOP3-05 Christina Manietta (Germany): Characteristics of dementia-friendly hospitals: An integrative review

• QOP3-06 Marieke Hoevenaar-Blom (Netherlands): Prevention of dementia using mobile phone applications (PRODEMOS)

• QOP3-07 Karen Watchman (United Kingdom): Alzheimer’s Disease International World Alzheimer Report 2021 – Journey to a Diagnosis of Dementia

• QOP3-08 Jetske van der Schaar (Netherlands): “You have Alzheimer’s, but no dementia (yet)”: considerations regarding a diagnosis of AD based on biomarkers.

• QOP3-09 Stephanie Van Asbroeck (Netherlands): Increasing knowledge on dementia risk reduction in the general population: results of a public awareness campaign

• QOP3-10 Fiona Foley (Ireland): Culture change for dementia - A coalition led response to raising awareness of dementia and inspiring stakeholders to create dementia inclusive communities

• QOP3-11 Chloe Place (United Kingdom): Fiestas, Statues and Spirituality: Collective Rituals as Community Dementia Care in Andalusia

• QOP3-12 Sigurd Lauridsen (Denmark): Using literature and narrative medicine to promote management of ethical dilemmas in life with dementia

• QOP3-13 Anne Leinonen (Finland): Awareness raising campaign in Finland:” The power of touch”

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• QOP3-14 Claudia Kaiser (Germany): Museums as places for cultural participation of people with dementia

• QOP3-15 Iris Linden (Netherlands): Development of a patient decision-aid to improve shared decision-making regarding a timely dementia diagnosis: the exploration phase

• QOP3-16 Frederik Schou-Juul (Denmark): Ethical issues in dementia guidelines for people with dementia and informal caregivers: A qualitative review of dementia guidelines.

• QOP3-17 Mary Michael (USA): Agitation and End-of-Life: Towards an Advance Directive that Prepare for Agitation and Behavioral Symptoms in Alzheimer’s Disease

• QOP3-18 Mary Michael (USA): Mapping the Lived Experiences: The Dyad Journey of People with Agitation in Alzheimer’s and Their Care Partners

• QOP3-19 Mignon Schichel (Netherlands): Stimulating age-friendly communities: Results from implementing the Senior Friendly Communities project for age-friendly municipality policies

• QOP3-20 Natasha Morgan (United Kingdom): Better ways to bank: innovating to support people living with dementia to manage their day-to-day finances

• QOP3-21 Ana Diaz (Luxembourg): Facilitating the involvement of people with and at risk of Alzheimer’s dementia in prevention research: The EU-FINGERS example

• QOP3-22 Kees Blankman (Netherlands): Deciding where to live

• QOP3-23 Thomas Tannou (France): Exploring decision-making capacity of Alzheimer's disease patients using fMRI and interviews: a proof of concept.

• QOP3-24 Saskia Kuliga (Germany): Dementia-sensitive planning of urban environments: interviews with planners focused on perspective-taking

• QOP3-25 Lukas Duffner (Nertherlands): Can engagement in cognitively stimulating and social leisure activities compensate for other dementia risk factors? A prospective cohort study

• QOP3-26 Wendy Ranking (United Kingdom): Scottish Dementia Working Group - Members Blogs

• QOP3-27 Saloua Berdai-Chaouni (Belgium): Dementia care for an ethnically diverse population: a new conceptual lens

• QOP3-28 Cara Rooney (United Kingdom): Digital art workshops: encouraging creativity and connections during the pandemic

• QOP3-29 Cara Rooney (United Kingdom): ‘Reconnect’ Project: A collaboration to create a comfortable virtual environment and counteract social isolation during the pandemic

• QOP3-30 Anne Keefer (Germany): Assessing the fitness to drive of people with cognitive impairment: a systematic review of the current evidence

• QOP3-31 Nikki Lorimer (United Kingdom): Visiting a Virtual V&A Dundee

• QOP3-32 Heleen Hendriksen (Netherlands): A Web-Based Tool to Support the Diagnostic Process of Memory Clinics: Clinicians, Patients, and Care Partners’ Evaluation of ADappt using the Think Out Loud Method

• QOP3-33 Christina Chmelirsch (Germany): Nutritional status of people with dementia in the domestic environment: the Bavarian Dementia Survey (BayDem)

• QOP3-34 Josephine Lambregts (Netherlands): Creating dementia-friendly municipalities with the Dementia Scan

• QOP3-35 Anne de Boer (Netherlands): Future-proof housing for people with dementia

• QOP3-36 Franka Bakker (Netherlands): Towards a framework of living well with dementia

• QOP3-37 David Krivec (Slovenia): Reducing stigma and the best practices in addressing isolation and stress with people living with dementia during COVID-19

• QOP3-38 Fanny Monnet (Belgium): Information provided to people with dementia and their carers on advance care planning: a content analysis of dementia associations’ websites in Europe

• QOP3-39 Kay Deckers (Netherlands): Study Design of FINGER-NL: a Multidomain Lifestyle Intervention in Dutch Older Adults to Prevent Cognitive Decline

• QOP3-40 Michael Smith (United Kingdom): Living with dementia in supported housing: Findings from a systematic review and thematic synthesis of qualitative research.

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• QOP3-41 Milena von Kutzleben (Germany): Migrant live-in carers for people with dementia: moral conflicts and ideas of good dementia care. An analysis of social media and online group discussions.

• QOP3-42 Cæcilie Lützau Larsen (Denmark): Dementia-friendly environments in social housing areas

• QOP3-43 Volodia Tourtchine (France): Culture, Alzheimer and the Covid-19 pandemic

• QOP3-44 Jordan Savold (USA): Assessing and Improving Health Equity and Access to Healthcare to African- Americans with Alzheimer’s Disease

• QOP3-45 Francesca Mangialasche (Sweden): Dementia prevention though a personalized medicine methodology, based on Artificial Intelligence and Machine Learning: the European LETHE project

• QOP3-46 Chiara Brück (Netherlands): Projections of quality adjusted life years lost due to dementia, 2020-2050: a population-based microsimulation study

• QOP3-47 Tatzer Verena (Austria): „We want to participate!“ – The journey of a public library, museum and information service point towards dementia-friendliness"

• QOP3-48 Iris van der Heide (Netherlands): Effects of an educational intervention on quality of life and knowledge about dementia, among family caregivers of people with dementia and with a migrant background.

• QOP3-49 Nathan DeJong (Netherlands): White Matter Network Structure as a Substrate of Cognitive Reserve in Cerebral Small Vessel Disease: The Maastricht Study

• QOP3-50 Kenny Chi Man Chui (Hong Kong): "Mind Your Words" - Promoting Dementia Inclusive Language and Change of Perception in Dementia Care in Hong Kong

• QOP3-51 Ira Haraldsen (Norway): AI-Mind: artificial intelligence as key for dementia prevention for people affected by Mild Cognitive Impairment

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Poster presentations

Monday, 29 November Poster presentations – POS1. Resilience and COVID-19

• POS1-01 Sevilay Luiken-Dalli (Netherlands): Day care COVID-19 & Dementia During the covid we looked for ways to keep in touch with the clients (elderly migrants). Co-creation is very important in this.

• POS1-02 Silvia Mangili (Italy): Relationship between built environment and dementia during covid-19 pandemic

• POS1-03 Anne Martin (United Kingdom): Overcoming the COVID-19 constraints on person-centred dementia care: a narrative inquiry of experiences of residential care staff in Belgium

• POS1-04 Jan Beattie (United Kingdom): Dementia and COVID-19 – Scotland’s national action plan to continue to support recovery for people with dementia and their carers

• POS1-05 Marta Lenart (Poland): The role of social health in dementia during the SARS-CoV-2 pandemic

• POS1-06 Yasha Najifi (United Kingdom): Online Adaption of Accelerated Experience-Based Co-Design Methods for use in Dementia Carer Research Following the Covid 19 Pandemic.

• POS1-07 Ruslan Leontjevas (Netherlands): Telehealth and telecommunication in nursing homes during COVID-19 anti-epidemic measures in The Netherlands

• POS1-08 Efthymia Efthymiopoulou (Greece): "Here for you"

• POS1-09 WITHDRAWN

• POS1-10 Lillian Hung (Canada): Staff’s attitude towards the use of telepresence robots in Canadian long-term care homes

• POS1-11 Adam Smith (United Kingdom): Reviewing the impact of the COVID-19 pandemic on Join Dementia Research volunteer registrations and study recruitment in the United Kingdom

Tuesday, 30 November Poster presentations – POS2. Care and support

• POS2-01 Wei Qi Koh (Ireland): Recommendations for Implementing Pet Robots for People with Dementia in Nursing Homes: A Mixed Methods Study Protocol

• POS2-02 Hanne Kaae Kristensen (Denmark): The Danish version of QUALIDEM - a dementia-specific quality of life instrument

• POS2-03 Marie-Pierre Gagnon (Canada): Barriers and facilitators to digital health solutions: Perceptions of older adults with mild cognitive impairment and caregivers of people living with dementia

• POS2-04 Efthymia Efthymiopoulou (Greece): Effects of holistic program on cognitive function and CSF neurodegenerative biomarkers in Alzheimer’s disease: a randomized, double-blind, placebo-controlled trial

• POS2-05 Anja Bieber (Germany): Self-experience practices in dementia care: A qualitative study in four European countries

• POS2-06 Elien Van Hout (United Kingdom): Does getting entangled with thoughts influence the relationship between perceived burden and carer anxiety?

• POS2-07 Leentje De Wachter (Belgium): MOre NUrtering and More Empowerment Nested in Technology (MONUMENT)

• POS2-08 Anna-Eva Prick (Netherlands): Effects of individual music therapy on behaviour problems and quality of life in people living with dementia in nursing homes: A randomized controlled trial

• POS2-09 Aisling Flynn (Ireland): Designing a virtual reality familiarisation environment for older adults living with dementia

• POS2-10 Christian Wrede (Netherlands): An integrated digital care collaboration platform to support home-based dementia care: A mixed-methods evaluation

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Wednesday, 1 December Poster presentations – POS3. Policy and societal aspects

• POS3-01 Wendy Chambers (United Kingdom): Integrating digital platforms to deliver a biopsychosocial rehabilitation approach in Dementia.

• POS3-02 Marc Wortmann (Netherlands): Dementia Photo Exhibition as an Awareness Tool

• POS3-03 Raymond Smith (United Kingdom): The experiences of people living with dementia, informal carers and healthcare professionals of utilising integrated care: findings from a qualitative evidence synthesis

• POS3-04 Yukio Sakurai (Japan): A Combined Model of Guardianship and Supported Decision-Making to Protect Elderly People with Dementia: Cases for Australia, Europe, and Japan

• POS3-05 Efthymia Efthymiopoulou (Greece): Access to dementia services for refugees and people from minority ethnic groups in Greece

• POS3-06 Efthymia Efthymiopoulou (Greece): Factors affecting the social stigma of Alzheimer's disease in Greek population




• POS3-10 Olivier Constant (Belgium): Dementia in Cultural Mediation - Improving quality of life through arts and culture

• POS3-11 Manik Kharismayekti (Netherlands): ALZINed Online Sessions: Maintaining support for people with dementia and caregivers during COVID-19 pandemic

• POS3-12 Stefanie Auer (Austria): On the way to a Dementia-competent society in Austria: E-learning for different professional groups

• POS3-13 Jennifer Waymont (United Kingdom): Brain Health in Scotland: Current Landscape and Future Directions.

• POS3-14 Hanna Brinkmann (Austria): The Krems Arts Education & Dementia Initiative (KAEDI) – Increasing Scientific Evidence

• POS3-15 Nikolas Dietzel (Germany): Case management for people with dementia in the home setting: a systematic review of randomized controlled trials

• POS3-16 Elaine Hunter (United Kingdom): Rehabilitation in dementia: Designing digital self-management support with people with dementia

• POS3-17 Hsiu-Chuan Huang (Taiwan): Respiratory Muscle strength dysfunctions Induce Pneumonia In Alzheimer`s disease

• POS3-18 Yi-Chin Tang (Taiwan): Advance Decisions and Their Influencing Factors for People with Dementia and Their Families in Taiwan

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Keynote speakers

Hana Marie Broulikova Hana Marie Broulikova, PhD is a health economist specializing in mental health and dementia. She holds a position of a postdoctoral researcher at the Department of Health Sciences, Vrije Universiteit Amsterdam. She was responsible for the development of the national dementia strategy at the Ministry of Health of the Czech Republic. Currently, she advises the ministry on its implementation.

In her research, Dr. Broulikova investigates the effect of timely dementia diagnosis on care utilization and costs using nationwide healthcare registers. She specifically focuses on the question whether early interventions may reduce also health problems and healthcare utilization that tend to be primarily attributed to other diseases.

She continues collaborating with the Department of Public Mental Health, National Institute of Mental Health, where she previously worked on an evaluation of the ongoing reform of mental health care in Czechia. She was awarded a Fulbright Scholarship for a research stay at the Mailman School of Public Health, Columbia University as well as prizes by the Czech Alzheimer Foundation and the Czech Demographic Society.

Patrick Ettenes Patrick Ettenes is living with HIV and early onset dementia. He is involved with many groups and organisations to raise understanding and awareness around these conditions and he has been extremely proactive in highlighting the needs of LGBT+ people affected by dementia. Among his many notable endeavours have been a long running association with Alzheimer’s Society and his ongoing work with LGBT Foundation in the UK. As a key advisor to both these organisations he helped to launch an innovation programme called Bring Dementia Out, which since 2019 has been working with the care and housing sectors to improve services for LGBT+ people affected by dementia. As a result of this work, Patrick was awarded Positive Role Model of the Year in 2019 at The National Diversity Awards and in 2021, he was one of 10 everyday LGBTQ heroes honoured at the Attitude Pride Awards. Patrick is a much sought-after speaker and writer and has featured in many media interviews throughout the UK, Canada and Barbados - where he is originally from. Now living in Manchester, Patrick has made a commitment to dedicate much of his time to support other LGBT people affected by dementia and is especially delighted to be working with Alzheimer Europe. He wishes to share his experiences in the hope that this will empower others to access the support that they need and to help organisations to support those who may be living alone or who come from other seldom-heard groups. Maria Teresa Ferretti Maria Teresa is a neuroimmunologist and science advocate with over 10-year international experience in the field of Alzheimer’s disease, and a unique expertise on sex and gender medicine.

After a master in Pharmaceutical Chemistry in 2005 (University of Cagliari, Italy) and a stage at the Center of Excellence for Drug Discovery of GlaxoSmith&Kline (Harlow, England), she obtained a PhD in Pharmacology and Therapeutics at McGill University (Montreal, Canada) in 2011 with a thesis on the role of inflammation in Alzheimer’s Disease with Dr. Claudio Cuello.

In 2011 she moved back to Europe and joined the Nitsch’s lab (University of Zurich, Switzerland) as postdoc and group leader, to further study the role of the immune system in Alzheimer’s. During this time, she performed deep immunophenotyping of animal models of Alzheimer’s and established in the lab the first protocols for multidimensional characterization of human blood cells using mass cytometry.

In 2016 Maria Teresa co-founded the non-profit organization called ‘Women’s Brain Project’ (WBP, CHE-369.271.906). The non-profit studies sex- and gender specific characteristics in brain and mental diseases such as Alzheimer, migraine, multiple sclerosis, depression etc as the gateway to precision medicine (www.womensbrainproject.com).

Her work as WBP Chief Scientific Officer has led to several scientific publications in leading journals including Nature, Science and PNAS, policy papers, books and book chapters, three TED-x talks by WBP (https://youtu.be/9nWpkv0o55U), and coverage by both the national (Sonntagszeitung, SwissInfo, NZZ, Le Temps) and the international press (including BBC, The Independent, Sciences et Avenir, Financial Times, La Stampa, ELLE Italy).

https://web.archive.org/web/20211108153549/https:/www.alzheimer-europe.org/Glossary/dementia

https://web.archive.org/web/20211108153549/https:/www.alzheimer-europe.org/Glossary/diagnosis

https://web.archive.org/web/20211108153617/http:/www.womensbrainproject.com/

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Maria Teresa currently serves as the Chief Scientific Officer of the organization; she is also an external teacher at the Medical University of Vienna. Austria. As WBP Chief Scientific Officer she is a sought-after speaker, and gives regular talks, lectures and presentation, both at scientific and lay public meetings, including CME courses. She is a Faculty member of the Course for Advance studies (CAS) on gender medicine at University of Zurich (Switzerland) and member of the Advisory Board of the Mary Horrigan Connors Center for Women's Health and Gender Biology at the Women’s and Brigham’s Hospital in Boston. She is the editor of the book ‘Sex differences in Alzheimer’s Disease’ published by Elsevier. In 2021, with Dr Antonella Santuccione Chadha, co-founder and CEO of WBP, she co-authored the book ‘Una bambina senza testa’ (Edizioni Mondo Nuovo), a semi-fictional book dedicated to brain and mental diseases.

Lutz Frölich Lutz Frölich is Head of the Department of Geriatric Psychiatry, Central Institute for Mental Health, Mannheim, Germany. He received his MD degree from Heidelberg University and is board certified Psychiatrist/Psychotherapist. In 1998, he became Assistant Professor for Psychiatry and Psychotherapy at Frankfurt University and in 2003, Professor of Geriatric Psychiatry at Heidelberg University, Germany. His research had focussed on the pathophysiology of Alzheimer’s disease through animal models (Heidelberg University) and post mortem human brain tissue (Würzburg University). His current research is on clinical dementia research, e.g. the role of biomarkers, clinical management of dementia and clinical trials in Alzheimer’s disease. He is member of National and International Guideline Committees, and Chair of the European Alzheimer’s Disease Consortium (EADC). He also is Deputy Chair of the Ethics Committee of the Medical Faculty Mannheim, University of Heidelberg. Miia Kivipelto Miia Kivipelto, MD, PhD, is Professor in Clinical Geriatrics at Karolinska Institutet (KI), Center for Alzheimer Research and senior geriatrician and Director for Research & Development of Medical Unit Aging at Karolinska University Hospital, Stockholm, Sweden. Part of her Nordic Brain Network multidisciplinary research team (around 100 researchers and clinical staff) is located at University of Eastern Finland and Imperial College London, UK, where she has part time position as Professor. Her frontline research findings have been published in leading journals (330+ publications, H-index 76) and she has received numerous prestigious awards. Dr. Kivipelto’s translational research focuses on the prevention, early diagnosis and treatment of cognitive impairment, dementia and Alzheimer’s disease (AD). Through epidemiological studies, Prof. Kivipelto has identified various lifestyle and vascular risk factors for dementia and interactions with genetic factors and clarified underlying mechanisms. She is the PI of the landmark FINGER trial and founder and scientific leader of World-Wide FINGERS network. Professor Kivipelto is often invited to leading global dementia conferences and task forces.

Hans Kluge Dr Hans Henri P. Kluge is the WHO Regional Director for Europe. His term began on 1 February 2020, following his nomination by the WHO Regional Committee for Europe and appointment by the WHO Executive Board. Throughout his career, beginning as a family doctor in Belgium, along a journey to Somalia, Liberia, the prisons in Siberia, former Soviet Union countries, Myanmar and the Democratic People’s Republic of Korea, and most recently leading the Division of Health Systems and Public Health at WHO/Europe for a decade, Dr Kluge has always been committed to achieving better health for all with a focus on the vulnerable. As Regional Director, Dr Kluge’s vision for the WHO European Region is “United action for better health”, working in partnership to achieve universal health coverage, address health emergencies and promote healthier populations. Dr Kluge is from Belgium. He is married and has two daughters. Gill Livingston Gill Livingston is Professor of Psychiatry of Older People, head of mental health care of older people’s research department and deputy director of the Division of Psychiatry, University College London. She is also a consultant psychiatrist working in the memory clinic, Camden &Islington NHS Foundation Trust in the UK.

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Her research focuses on intervention to help people with dementia and their families. She leads the Lancet Standing Commission on Dementia Prevention, Intervention and Care. They contained the life course analysis of potentially modifiable risks in dementia with specific recommendations about what individuals and policy makers can do. This has impacted on policy as well driven research and increased awareness. She works to the commission’s strapline “Acting now on dementia prevention, intervention, and care will vastly improve living and dying for individuals with dementia and their families, and in doing so, will transform the future for society.” She has devised and tested successful interventions to help people and families with dementia. She is an NIHR Senior Investigator. Pat McLoughlin Pat worked in consultancy prior to becoming CEO of the Alzheimer Society of Ireland in 2016. He was previously CEO of two Health Authorities, Deputy CEO of the Irish Health Service Executive and Director of public hospitals. He was also CEO of Ireland's Payments Clearing System. He joined the Board of Alzheimer Europe in October 2018. Jim PearsonJim is Alzheimer Scotland's Director of Policy & Research and is responsible for Alzheimer Scotland's public policy engagement. He has a background in welfare rights and a particular interest in promoting as well as protecting the rights of people living with dementia. He played a significant role in developing Scotland's Charter of Rights for people with dementia and their carers, which puts human and other legal rights at the heart of each commitment of Scotland's first and second dementia strategies. Jim has an MBA from Glasgow Caledonian University and joined the Board of Alzheimer Europe in 2014. Kevin Quaid Limerick native Kevin Quaid was diagnosed with Lewy Body Dementia in 2017 aged 53, after being diagnosed firstly with Parkinson. He is a member of the Irish Dementia Working Group as well as vice chair of the European Working Group of People with dementia and co founder of Lewy body Ireland. Kevin is an avid GAA fan and speaks about the fighting spirit of the Limerick hurling team in 2018 and the fact they never gave up. He brings that same spirit to his life with dementia. Kevin is married to Helena. He has three children, three stepchildren and five grandchildren. This family man is an adventurer who spent time in Australia and loves to travel. After his diagnosis Kevin realised there was a lack of information about his particular form of dementia and wrote a book called “Lewy Body Dementia, Survival and Me”. He was one of the first patients in the world to write a book about Lewy Body Dementia from the patient’s point of view as well as his family’s point of view, He has since written a second book called “I am KEVIN not Lewy”. He is now an active advocate and through his work with the Irish Dementia Working Group supported by The Alzheimer Society of Ireland raises awareness about the condition through speaking engagements and media appearances. In Oct 2018 Kevin spoke at the annual AlzTalks event organised by The Alzheimer Society. He spoke about the difference between Lewy body dementia and other forms of the disease and his need to be part of his community. In 2019 he spoke at the Alzheimer Europe Conference in The Hague and impressed an international audience the importance of hearing the voice of people living with dementia. Community is important to Kevin and he has started a Memory Café in Kanturk County Cork to support others living with the disease in his area. During Covid19 Kevin has continued to be an advocate – using Zoom to connect with policy makers and other people living with dementia. Craig Ritchie Prof Ritchie is the Professor of Psychiatry of Ageing at the University of Edinburgh. His interests lie in translational epidemiology and clinical trials for the secondary prevention of dementia. His work in this field dates back to 1997 when he worked in the laboratory of Prof Colin Masters in the University of Melbourne before returning to UCL in 2000 to complete his PhD through an MRC Health Services Research Fellowship. He was appointed as

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Senior Lecturer in Old Age Psychiatry at Imperial College London in 2007 and whilst in that post was R&D Director at West London Mental Health Trust from 2010-14 and Deputy Director of the London Northwest NIHR Clinical Research Network. In 2014 he returned to his native Scotland to take up a Chair in Psychiatry of Ageing at the University of Edinburgh. In 2015 he established the Centre for Dementia Prevention and that year took on the academic leadership role of the EPAD (European Prevention of Alzheimer’s Dementia) Programme. In 2017 he was elected as Chair of the Scottish Dementia Research Consortium and in 2020 has become the inaugural Director of Brain Health Scotland. He has over 250 academic publications and secured almost £100M of grant funding in his career to date. Petra Ritter Petra Ritter is full Professor and director of the Brain Simulation Section at the Berlin Institute of Health, Charité University Medicine Berlin. Her research focus is the integration of neuroimaging and computational neuroscience for eHealth applications. She serves as lead of several large-scale consortia and projects such as the Charité & BIH Virtual Research Environment, the National Research Data Infrastructure Initiative in Neuroscience and the European Open Science Cloud project VirtualBrainCloud. She additionally served as lead of the Co-design Project The Virtual Brain in the EU Flagship Human Brain Project. Prof. Ritter holds an ERC Consolidator grant. She studied medicine at the Charité University Medicine Berlin and did clinical traineeships at the universities UCLA and UCSD in Los Angeles and San Diego, the Mount Sinai School of Medicine in New York and the Harvard Medical School in Boston. Chris Roberts Chris Roberts is living with emphysema and with mixed dementia, Vascular and Alzheimer. He spends a lot of my time raising awareness of dementia, its symptoms, services and support to dispel the stigma that is associated. He speaks to and educates all citizens across the globe, wherever and whenever he can supported by his wife Jayne Goodrick. "I’m very proud to part of Alzheimer Europe as a Member of the European Working Group of People With Dementia." Chris is also:

• An Ambassador for Alzheimer’s Society UK/Cymru • Co-Founder & Member of the 3Nations Dementia Working Group (England, N. Ireland and Wales) • Honorary Fellow & Lecturer in MSc Dementia Studies, School of Healthcare Sciences, Bangor

University • Salzburg Global Fellow (International Seminar 587.) • Member of Dementia Alliance International (DAI) & former Board Member • BSI Committee Member (British Standards Institution CH/315).

Marjolein de Vugt She is as Professor of Psychosocial Innovations in dementia. Trained as a neuropsychologist, she works as a clinical researcher and as a clinician in the memory clinic of the Maastricht University Medical Center+ (MUMC+). Her line of research pertains to psychosocial needs care and support in dementia with a particular focus on young onset dementia, the use of technology and eHealth to improve the quality of life of people with dementia and their care partners. She is the initiator of successful eHealth interventions like Partner in Balance, InLife, and the Braincoach. These eHealth products are now being implemented on a national and international scale, which is illustrative for her efforts not only to develop innovations, but also to make them available for many people with dementia and caregivers. She is co-director of the Alzheimer Center Limburg, which integrates activities of Maastricht University and the University Hospital and accommodates more than 50 researchers and clinicians of various disciplines. She is also chair elect of the European network on research into early detection and timely intervention in dementia (INTERDEM). Martin Traber Martin Traber is a trained medical doctor and specialist in pharmaceutical medicine with a passion for transforming healthcare putting patients first. Over the last two decades, Martin has been involved in developing

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and bringing medical innovation to patients around the world. Currently serving as Global Medical Lead at Roche, Martin is excited about our shared ambition to transform together how Alzheimer's disease is diagnosed and treated, to preserve what makes people who they are. Martin's specific interests include health equity and access to care which are accentuated by recent developments, including the covid19 pandemic. Adrian Wagg Dr. Adrian Wagg is a specialist in Geriatric and General Internal Medicine with expertise in health services research. He is currently Professor in the Department of Medicine at the University of Alberta and Professor of Continence Sciences at the University of Gothenburg, Sweden. Dr. Wagg holds the Alberta Health Services Chair in Healthy Ageing. His research interests involve improving care for people with urinary incontinence, community engagement and the quality of care for older people in nursing homes. He is active in national and international clinical practice guideline development and is the Co-Chair of the International Consultation on Incontinence; prior to this he was General Secretary of the International Continence Society. He has published over 200 peer reviewed papers in addition to book chapters and other scholarly works on the subject. Dr. Wagg has significant front-line experience in healthcare administration and systems development, a strong knowledge of operational issues and an in-depth perspective of healthcare of older Albertans. In his service to the community, Dr. Wagg was until recently President of the Canadian Continence Foundation and participates in numerous other activities promoting health literacy and the healthy ageing of seniors.

Conference Hosts Kim Coppes Kim Coppes is a conference-host, online moderator-facilitator, interviewer, trainer and teamcoach. With a background in journalism, theatre and communication. She is a true allrounder and works in various branches: in healthcare and science, government, sustainability and for entrepeneurs, traffic, industry, food, education, consultancy, finance and art. She initiated Mastering Moderation, a successful training for conference-moderators, and she is touring Europe with the international edition of the course. Jean Georges Jean Georges is the Executive Director of Alzheimer Europe. Before joining the organisation on 1 November 1996, he worked as a journalist and as a parliamentary assistant to members of the Luxembourg and European Parliament. His main duties in Alzheimer Europe include:

• support of the Board, • liaison with the member organisations and other European umbrella organisations, • personnel and financial issues, • fundraising and • overall project management of the various projects of the organisation.

32nd Alzheimer Europe Conference Building bridgesBucharest, Romania5-7 December 2022www.alzheimer-europe.org/conferences #32AEC

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31st Alzheimer Europe Conference Resilience in dementia

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