Current status of work related to disability statistics in China
APEC-PKU Health Science Academy (HeSAY) ,
Institute of Population Research, Peking University
9 Nov., 2018
Xiaoying Zheng Yanan Luo
APEC Health Science Academy, Peking University (HeSAY)
Disability all around the world
1 in17 people in China
have a disability. That is
82.96 million people (2006)
Chinese disability statistics
system
APEC Health Science Academy, Peking University (HeSAY)
Current status of work related to disability statistics in China
Launching the large-scale
population surveys
Establishing storage bank
and intelligent database
system for disabilities
Internationalization and
standardization of disability
statistic work
Low cost of disability
prevention and intervention
program
APEC Health Science Academy, Peking University (HeSAY)
Launching the large-scale
disability national surveys
APEC Health Science Academy, Peking University (HeSAY)
The large-scale disability surveys
National Sample Survey of Disability in China, 1987
N=1,579,314, 31 Provinces, 424 Counties
01
National Sample Survey of Disability in China, 2006
N=2,526,145, 31 Provinces, 734 Counties
02
National Monitoring and Survey of Social and Health
for Disability Household in China, 2007-201403
National special survey and monitoring of the basic
service conditions and demand information data of the
disabled, 2015-2017
04
Pop
ula
tion
ba
sed su
rvey
s
APEC Health Science Academy, Peking University (HeSAY)
Measurement
Survey questions
Physicians for
further disability
screening and
confirmation
To confirm the
severity of the
disability and its
primary causes
Screening and
confirmation
APEC Health Science Academy, Peking University (HeSAY)
Total population and disabled population size
forecasting (2006-2050)
7000
9000
11000
13000
15000
17000
19000
2006
2008
2010
2012
2014
2016
2018
2020
2022
2024
2026
2028
2030
2032
2034
2036
2038
2040
2042
2044
2046
2048
2050
年份
残疾
人口
(万
人)
120000
125000
130000
135000
140000
145000
150000
155000
总人
口(
万人
)
残疾总人口 总人口
Year
Total Population
with disabilities
Total
Population(10
,00
0 p
erso
ns)
(10
,00
0 p
erso
ns)
APEC Health Science Academy, Peking University (HeSAY)
视力残疾
0.00
2.00
4.00
6.00
8.00
10.00
12.00
0-4 5-9 10-
14
15-
19
20-
24
25-
29
30-
34
35-
39
40-
44
45-
49
50-
54
55-
59
60-
64
65-
69
70-
74
75-
79
80-
84
85+
年龄组(岁)
残疾
现患
率(
%)
2006年 1987年
Visual disability
听力言语残疾
0.00
5.00
10.00
15.00
20.00
25.00
0-4 5-9 10-
14
15-
19
20-
24
25-
29
30-
34
35-
39
40-
44
45-
49
50-
54
55-
59
60-
64
65-
69
70-
74
75-
79
80-
84
85+
年龄组(岁)
残疾
现患
率(
%)
2006年 1987年
Hearing and Speech disability
Prevalence rate on different types of disability by age in 1987 and 2006
智力残疾
0.00
0.50
1.00
1.50
2.00
2.50
3.00
0-4 5-9 10-
14
15-
19
20-
24
25-
29
30-
34
35-
39
40-
44
45-
49
50-
54
55-
59
60-
64
65-
69
70-
74
75-
79
80-
84
85+
年龄组(岁)
残疾
现患
率(
%)
2006年 1987年
Intellectual disability
肢体残疾
0.00
1.00
2.00
3.00
4.00
5.00
6.00
7.00
8.00
9.00
10.00
0-4 5-9 10-
14
15-
19
20-
24
25-
29
30-
34
35-
39
40-
44
45-
49
50-
54
55-
59
60-
64
65-
69
70-
74
75-
79
80-
84
85+
年龄组(岁)
残疾现患率(
%)
2006年 1987年
Physical disability
精神残疾
0.00
0.10
0.20
0.30
0.40
0.50
0.60
0.70
0.80
0.90
0-4 5-9 10-
14
15-
19
20-
24
25-
29
30-
34
35-
39
40-
44
45-
49
50-
54
55-
59
60-
64
65-
69
70-
74
75-
79
80-
84
85+
年龄组(岁)
残疾现患率(
%)
2006年 1987年
Mental disability
APEC Health Science Academy, Peking University (HeSAY)
The Prevalence of Disability across Provinces in China
Congenital Disability Acquired Disability
10
APEC Health Science Academy, Peking University (HeSAY)
• Population ageing, combined with the fact that disability has focused
attention on the future changing of ageing population by many researches.
• China is experiencing a process of population ageing of PwDs
Population ageing of PwDs?
-600 -400 -200 0 200 400 600
0-4
10-14
20-24
30-34
40-44
50-54
60-64
70-74
80-84
年龄组
残疾人口规模(万人)
男性 女性
-4000 -3000 -2000 -1000 0 1000 2000 3000 4000 5000
0-4
10-14
20-24
30-34
40-44
50-54
60-64
70-74
80-84
年龄组
残疾人口规模(1987)
女 男
32%53%
1987 2006
6000 4000 2000 0 2000 4000 6000 4000 3000 2000 1000 0 1000 2000 3000 4000 5000
Persons with disabilities (thousand)Persons with disabilities (thousand)
Male MaleFemale Female
11
APEC Health Science Academy, Peking University (HeSAY)
Annually average growth rate of older adults and
older adults with disability (2006-2050)
3.27
2.44
3.97
3.46
4.783.89
4.354.83
2.022.04
0.00
1.00
2.00
3.00
4.00
5.00
6.00
2010 2020 2030 2040 2050
Year
(%)
people with disability at 60+ total population at 60+
12
APEC Health Science Academy, Peking University (HeSAY)
Establishing the disabilities
storage bank and intelligent
database system
APEC Health Science Academy, Peking University (HeSAY)
Inner Mongolia—3 counties
Hebei—5 counties
Shanxi—11 counties
Sichuan—Chengdu
Disabilities storage bank (Congenital disability)
The intelligent, information-based biological information and environmental
specimen
APEC Health Science Academy, Peking University (HeSAY)
Accurately description the characteristics of unstructured data
Actively learning for the change in data pattern
Extraction for structured information effectively
Intelligent database system platform
Standpoint
judgement
Trajectory
excavation
Tendency
prediction……
Convolutional
Neural
Network
Text analysisTime series
analysis
Multi-
objective
analysis
Parallel computing framework
Big data management system(Data model, data organization,
load balancing, query processing…)
WebEX: data extraction
Personal
interview survey
Literature
and report
Structure
database ……
DATAI-WebEX
Acquired disability
Intelligent database system: extraction disability data
APEC Health Science Academy, Peking University (HeSAY)
Acquired disability
Cloud database manager: disability data management
The speed of data inquiry are maximize
Data transmission costs are minimizedIntelligent database system platform
Standpoint
judgement
Trajectory
excavation
Tendency
prediction……
Convolutional
Neural NetworkText analysis
Time series
analysis
Multi-
objective
analysis
Parallel computing framework
Big data management system(Data model, data organization,
load balancing, query processing…)
WebEX: data extraction
Personal
interview survey
Literature
and report
Structure
database ……
It provides large-scale disability data
information and efficient resource
guarantee for the sustainability of
disability research in China
APEC Health Science Academy, Peking University (HeSAY)
Internationalization and
standardization of disability
statistic work
APEC Health Science Academy, Peking University (HeSAY)
Internationalization and standardization
Disabled-themed Events
during the 22nd APEC
Economy Leader’s Week
Forum on “Equal Access, Inclusive Development”
Disability: integrate into
society and enjoy the
fruits of economic and
social development
APEC Health Science Academy, Peking University (HeSAY)
Updated Chinese version of WG short set
and extended questions on disability
Published in extremely important
Chinese journal in coming
Exporting WG questions on disability in China
Internationalization and standardization
APEC Health Science Academy, Peking University (HeSAY)
The Chinese version of WG
short set and extended
questions on disability
100 counties
Disability prevention pilot program
In future
Plan to use WG questions in 100
counties disability prevention
pilot program to exam their
reliability and validity in China
Updated other WG questions
into Chinese version
APEC Health Science Academy, Peking University (HeSAY)
Low cost of disability prevention
and intervention program
APEC Health Science Academy, Peking University (HeSAY)
The Law of Disability
Protection in China, 1990
Five year work program for
disability in China, 1988
The Law of Maternal and Children
Health Care in China, 1994
China's action plan to improve
the quality of birth and reduce
birth defects and disability
(2002-2010), 2002
Opinions of the CPC Central
Committee and the State Council on
promoting the development of the
cause of the disabled, 2008
National Disability Prevention
Action Plan (2016-2020)
Important disability polices in China
APEC Health Science Academy, Peking University (HeSAY)
APEC-PKU Health Science
Academy, Peking University
(HeSAY) / Institute of
Population Research, Peking
University was appointed as the
experts group leader of by the
State Council, PRC and China
Disabled Persons’ Federation.
Disability prevention and intervention
APEC Health Science Academy, Peking University (HeSAY)
National Disability Prevention Action Plan
(2016-2020)
Prevention at three levels
Primary Prevention
National Day of disability prevention
1ST: 2017/08/25
NCD caused disability
Injury caused disability
Secondary Prevention
Prenatal/neonatal diseases/NCD screening
Tertiary Prevention
Every disability has rehabilitation services
By 2020,
1. The number of production safety accidents and casualties decreased
by more than 10 percent.
2. The mortality rate of 10,000 vehicles decreased by 6 percent when
road traffic safety management was strengthened.
3. The rate of cataract surgery is increasing over 2000.
APEC Health Science Academy, Peking University (HeSAY)
Lv LiangLiulin
Zhongyang
Jiaokou
Jin ZhongHeshun
Birth Defects Intervention Pilot Program
Healthy Growth Project: 4 Counties in Shanxi
Effectiveness of Folic Acid
Fortified Flour for Prevention
of Neural Tube Defects
The risk of NTDs had dropped
down 68.2%;
The disease burden of NTDs
had dropped down 58.5%;
The scale of NTDs affected
household had dropped down
21000 from 2002- 2004.
Low cost of disability prevention and intervention program
APEC Health Science Academy, Peking University (HeSAY)
National Comprehensive Pilot Program for
Disability Prevention (100 counties, China)
Establishing and improving the
organizational management system and
working mechanism for disability prevention.
Implement the comprehensive prevention and
intervention measures for disability to
effectively control the occurrence and
development of disability.
Establishing a disability reporting system
form an unified disability information
management system, and improving the
standards for disability prevention
Low cost of disability prevention and intervention program
APEC Health Science Academy, Peking University (HeSAY)
Prenatal
screening and
diagnosis
1
Intervention
project
publicity and
education
Screening and
diagnosis of
disability in
children
32
Disability
reporting
system
4
By 2020, the coverage rate of prenatal
screening will reach more than 80%, and the
prenatal diagnosis rate of suspected
abnormal pregnant women should reach
more than 50%;
To build a network for prenatal screening
and diagnosis, and standardize the
implementation of consultation, and explore
the experience of prenatal screening and
prenatal diagnosis
By 2020, the screening rate of disabled
children aged 0-6 years old will be over
85%, and the diagnostic rate of
screening increased to more than 50%.
To establish a mechanism for screening
and diagnosing children’s disabilities
and standardize the screening services
for children, and to explore the
experience of disability screening and
diagnosis for children
Improving for the utilization
rate of disability prevention.
Improving disability service
satisfaction.
By 2020, the awareness rate of
prevention knowledge was
60%, and the prevalence rate
of disability prevention
knowledge was 80%.
The management system of disability
reporting system will be established,
and the process of information reporting
will be standardized.
Comprehensive understanding of the
occurrence and causes of disability in
the experimental area
Pilot Project for National Comprehensive Pilots for
Disability Prevention (100 counties in China)
Low cost of disability prevention and intervention program
APEC Health Science Academy, Peking University (HeSAY)
Low cost of disability prevention pilot program
Standpoint
judgement
Trajectory
excavation
Tendency
prediction
Outliers
detection… …
Active Learning Artificial intelligence analysis algorithms
2856 counties in China
100 countiesDecreasing the economy and time cost of pilot program
Maintain the accuracy of data extraction, improving the extraction efficiency,
reducing the cost of comprehensive intervention on disability prevention.
Low cost of disability prevention and intervention program
APEC Health Science Academy, Peking University (HeSAY)
After achievement the success of pilot program, the model of vertical disability
reporting system application can be formed and then rolled out nationally.
Vertical disability reporting system
Low cost of disability prevention and intervention program
Low cost and high efficiency
APEC Health Science Academy, Peking University (HeSAY)
Constructing the work platform of
prenatal screening and prenatal
diagnosis information; establishing a 0
to 6 years old children's disability
screening management mechanism;
setting up the defense work of chronic
disease, infectious disease, and mental
illness; strengthening the precise
treatment and rehabilitation services.
Perfecting the disability
prevention work system;
enhancing the awareness and
ability of disability prevention;
decreasing the disability
incidence into a low level.
Everyone to be involved in health, share
health, and be responsible for health
Extending the disability prevention pilot modelEnabling everyone to be involved in health, share health, and be responsible for health
Future direction of disability statistics in China
THANKS
Dean: Prof. Xiaoying Zheng
Assistant: Dr. Chao Guo;
Dr. Yanan Luo
Web: http://ipr.pku.edu.cn
Tel/Fax: +86-10-62751974
Contact