HELLO TO ADULTSPresented by Joanne Burke (RGN RSCN)
(ANP for Haemophilia)
11th December 2015
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Transition at OHTCComprehensive Care Centre1200 patients with bleeding
disorders Haemophilia, VWD, Rare Disorders
Children & Adults together at OHTC until June 2015
No formal transition process June 2015 commenced RSG &
Hello Programme
MULTIDISCIPLINARY TEAM: 3 Adut Consultants 2 Paediatric Consultants 1 Haematology SpR (on rotation) 1 FY2 (on rotation) 2.8 Adult nurse specialists 2 Children’s nurse specialists 1 Research Nurses 1 adult physio 0.6 children’s physio 0.8 Nursing Assistant Lab Staff
Staff Education Programme
Presentation to adult & children’s teams – Transition & RSG
Presentation to other nurses in the Trust
Adolescent Health Programme – RCPCH e learningwww.e-lfh.org.uk/programmes/adolescent-health/more-information
Dr. Deborah Christie - Consultant Clinical Psychologist in Paediatric & adolescent health
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HELLO TO ADULTS QUESTIONNAIRE
Parents Hello to Adults Questionnaire
Progress Notes
Age 18 yrs. 7mnths
fXIII deficiency – diagnosed age 1/12
Lives with parents and younger brother
Treated monthly with fXIII concentrate
Transferred from DGH
Unable to self treat
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Case Study 1
CASE STUDY 1 QUESTIONNAIRE
CASE STUDY 1 PARENT QUESTIONNAIRE
PROGRESS CASE STUDY 1
Age 20 yrs 6 mnths
Severe Haemophilia A – strong family history
Lives with girlfriend & her family
Self treats with fVIII concentrate daily
Care always at OHTC
Case Study 2
CASE STUDY 2 QUESTIONNAIRE
PROGRESS CASE STUDY 2
PATIENT EDUCATION
http://hemophilia.aboutkidshealth.ca/En/Pages/default.aspx
Keeping in Touch
Open access
Haemtrack
Telephone follow up between clinic appts.
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QUESTIONS?