IMPLEMENTATION OF HOSPICE – PALLIATIVE CARE IN
HUNGARY
Hungarian Hospice FoundationDr. Katalin Muszbek
Attitude to palliative care in the 80s
Cancer is equal with death and dying
80C% of people with advanced cancer died in hospitals in very poor conditions
Palliative care, pain and symptom control was not acknowledged
Attitude to palliative care in the 80s
Education of medical personnel was based on active treatments
Psychologıcal and spiritual aspects. communication skills, breaking bad news was not include into medical curriculum
Death and dying belonged to the taboos
SUFFERING PATIENTS…
Patients mainly die in hospitals
lonely depressed suffering of pain
and other symptoms
Palliative care should be adapted for quality end of life are in Hungary
Implementation of Palliative care in Hungary
Elements:1. Clinical activities: home care services
and palliative inpatient units2. Training programs for professionals
and volunteers3. Public education for changing public
beliefs to death and dying
Palliative care activities
- Home care- Palliative Inpatient unit- Day centre- Pain clinic- Palliative mobile team- Hospice House- Bereavement support group
SERVICE DEVELOPMENT IN HUNGARY 2008
49 organisations
12 inpatient unit (176 beds) 30 home care team 4 nursing home (34 beds) 2 day care centers 4 palliative care support team
Resource: Hungarian Hospice Palliative Association
HOSPICE-PALLIATIVE CARE IN HUNGARY IN 2008
No. of patients
in 2008: 4 527
in total: 30 468
Average time of care : inpatient: 28,6 days
home care: 48,4 days
Resource: Hungarian Hospice Palliative Association
HOSPICE-PALLIATIVE CARE IN HUNGARY IN 2008
Resource: Hungarian Hospice Palliative Association
Number of hospice professionals in Hungary
1995 2008
Physician 22 103
Nurse 74 509
Physiotherapist 8 73
Psychosocial professionals 10 53
Volunteers 28 133
Chaplain 6 35
Social worker 7 43
Dietetitian 5 40
Coordinator 11 46
Social therapist 2 9
Bereavement counsellor 0 14
DAY CENTRE
BEREAVEMENT SUPPORT GROUP
2. Education programs on palliative care
- Basic courses – 40 hours- Advanced courses for nurses– 40
hours- Courses for physicians- Courses for the members of
interdisciplinary team ( psychologists, social workers, physiotherapists)
BUT – lack of graduate and poor postgraduate education of physicians
2. Education programs on palliative care
Budapest Hospice House is an International Training and Resource Centre supported by OSI
- International courses for EasternEuropean and FSU countries
- 40 hours training courses- Conferences and Seminars
10th EAPC Conference, Budapest June 7 – 9, 2007
10th EAPC Congress Budapest
- 67 countries from all over the world- 2004 participants
3. Publicity campaign on hospice
Aims To promote the integration of
hospice-palliative care into national health service
To raise awareness of hospice-palliative care
To draw the attention of policy makers on suffering, dying patients
Elements of the campaigne
- 3 TV Spots were produced with famous artists
- 3 monthes were showen day by day 5 – 10 times in different TV channels
- Air time was given free of charge
Testimony
Kata Dobó Actress Movie Star Famous
model
Testimony
JUDIT HERNÁDI one of the
most popular actress
TV Star
Testimony
IVÁN MARKÓ
Ballet-dancer, choreographer famous
world-wide Bejart Ballet
Publicity campaign
Elements
Adverts in printed and online media 100 billboards across Budapest Indoor adverts Press conference Interviews about our activities
BILLBOARD
INDOOR POSTERS
Publicity campaign
Results (1)
Changes in awarenessof lay people
from 0% to 36 %
of professionalsgrowing demand for collaboration
More than 100 media publication in written and electronic media.
The campaign has drawn the attention on suffering people
Results
May 2002 opening of the BUDAPEST HOSPICE
HOUSE
Where is Hungary now?Increased number of PC services (2x since 2004)
Legal development: 2004
- Minimum standards of palliative care- Ministry of Health decree on finance
Finance: following the two year financial demonstration project for palliative care the health budget opened for new capacities in 2009
National development plan 2007-2013: integraton of Palliative Care into the National Health System
Palliative care and psychosocial care became an integrated part of National Cancer Control Program in 2006
Thank you for the attention!