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Supporting Older Family
Carers Project
Else Wilson and Ambi Wildman
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Shared Lives
In 2009 NAAPS(now Shared LivesPlus) secured 2
year funding fromthe ScottishGovernment for a
project worker tosupport older family
carers
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Supporting Older Family Carers Project
• The project aims to support the needs ofolder family carers with sons/daughterswho have a learning disability and/or
autistic spectrum disorder by promotingShared Lives (previously known as AdultPlacement) so that this option can be
considered in future care planning
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Background
• As carers get older, what the future holds for their sonsand daughters becomes a real concern
• Various reports over recent years clearly indicate the
needs of older family carers such as emergencyplanning and future care needs for their sons anddaughters
Enable: Living from Day to Day
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Scotland’s Ageing Population
Demographic study indicates that
• The number of people of pensionable age inScotland is projected to rise by around 31 per
cent from 0.98 million in 2006 to 1.29 million in2031.
• The number of people aged 75 and over isprojected to increase by around 81% from 0.38million in 2006 to 0.69 million in 2031.
• 69% of carers aged 50 or more
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Learning disabilities
• 27,391 adults with learning disabilitieswere known to the 32 local authorities inScotland in 2010.
• Nationally there are now 6.4 people per1,000 population with a known learningdisability.
• There were over 5,845 adults with learningdisabilities aged 50-64 and 2,597 aged 65or older.
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Carers of adults with a learning disability
• 9,259 adults with a learning disabilityknown to local authorities in Scotland livedwith a family carer.
• 1,021 of the adults living with a familycarer were themselves aged 50- 64 and270 are 65 or over.
• The same as you? estimated that 25 percent adults in Scotland could be living witha family carer aged 65 or over
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Supporting Older Family Carers Projectthrough Shared Lives
Meets Scottish Government Outcomes:
• We live longer, healthier lives
• We have tackled significant inequalities in
Scottish society• We take pride in a strong, fair and inclusive
national identity
• Our public services are high quality, continually
improving, efficient and responsive to localpeople’s needs
• We have improved the life chances for children,young people and families at risk
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Self-directed Support (Scotland) Bill
Guiding principles
• Better outcomes - people are healthier andhappier
• Choice - people can choose the support theyneed
• Participation - people can make decisions abouttheir life
• Mutuality - people and social workers worktogether
• Equality - everyone can get good support
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Personalisation
“Personalisation enables the individual alone, or in groups, to find the right
solutions for them and to participate in the delivery of a service. From being the recipient of a service, citizens can become actively involved in selecting and shaping
the services they receive” Scottish Government 2009
http://www.scotland.gov.uk/Publications/2009/04/07112629/0
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The Same as You Report 2000
• Shared Lives was highlightedin the Same as You report
2000 as an example of goodpractice, being a flexible
community based provision
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Beginning of the Project
• The project has a steering group
• Research – to produce guidance for thedevelopment of Shared Lives services
• Main focus – to establish links with localauthorities, carers groups and otherorganizations, disseminating information andoffering presentations
• September 2010 – e-mail dissemination / pilotparticipation invited / interest indicated
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What the pilot sites offer
• Continuing support from the Shared Livesteam, working alongside LA staff, carers’
groups and other interested parties
• Information about the processes involvedin setting up schemes
• Guidance about good practice
• Involvement in focus groups – research
• Acknowledgement of participation
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Edinburgh Pilot Timeline
January Meeting with older family carers & birth parentsof son with a Shared Lives family
February/March Established a ‘PATH’
May Older family carers meet Shared Lives carersfrom different schemes
June 2 local coffee morning events
August Review and planning meeting
September - Review and agreement to work with several olderfamilies to establish initial introductions to SL carers
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What has worked well
• Participation of older family carers
• Collaboration and consultation
• Developing a project DVD
• Having a steering group and
researcher
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Challenges
• Financial Climate
• Organisational and staff changes
• Weather
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What has been learned
• Working together
• Involvement - benefits andchallenges
• Time
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What’s happening now?
• Completion of the project DVD
• Dissemination of DVD throughout
Scotland and elsewhere
• Beginning of the Perth Pilot
• Possible extension of the projectto March 2012
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Workshops
• From the perspective of olderfamily carers
• From the perspective of local
authority service providers.
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• Shared Lives is a tried and tested model ofcare which can offer support and choicewhen planning for the future
• THANK YOU AND ANY QUESTIONS
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References
http://www.scie.org.uk/publications/dementia/index.asp SCLD 2011 Statistics Release: Adults with learning
disabilities - implementation of ‘The same as you?’ Scotland 2010
Stewart F and Patterson E (2010) Caring in Scotland: Analysis of Existing Data Sources on Unpaid Carers in Scotland
www.scotland.gov.uk/socialresearch
Living from Day to Day (2008) A research project on OlderFamily Carers of People with Learning Difficulties
www.enable.org.uk