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Page 1: The Tie That Binds and Heals

The Tie That Binds and Heals

The Tie That Binds and Heals

Families’ Life Experiences with Mental with Mental IllnessIllness

Stressors, Coping, Adaptation, Stressors, Coping, Adaptation, RecoveryRecovery

____________________________________________________________________________________________________________________________________________________________________________________________________________________

Jody L Friesen Grande PhD LICSW BCD

Families’ Life Experiences with Mental with Mental IllnessIllness

Stressors, Coping, Adaptation, Stressors, Coping, Adaptation, RecoveryRecovery

____________________________________________________________________________________________________________________________________________________________________________________________________________________

Jody L Friesen Grande PhD LICSW BCD

Page 2: The Tie That Binds and Heals

Prevalence of Mental IllnessPrevalence of Mental Illness

22.1% of Americans ages 18 and older (one in five adults) receive a diagnosis of mental illness in a given year (NIMH)

Effects of mental illness touch many families (one in four)almost 50% of the United States population

66% of individuals diagnosed with mentalillness live with a family member withoutadequate support services

Even when individuals live separately, 60%of families continue to provide time,money, and social support on a daily or weekly basis

22.1% of Americans ages 18 and older (one in five adults) receive a diagnosis of mental illness in a given year (NIMH)

Effects of mental illness touch many families (one in four)almost 50% of the United States population

66% of individuals diagnosed with mentalillness live with a family member withoutadequate support services

Even when individuals live separately, 60%of families continue to provide time,money, and social support on a daily or weekly basis

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Statement of the ProblemStatement of the Problem

Families are the vital link between home and community and is the most powerful factor affecting the outcome of the individual’s recovery

Families are frustrated with a mental health system that is failing to consider their needs

Families are not included in treatment planning or collaboration efforts

Families are disappointed in the perceivedinadequacy and fragmentation ofmental health services

Families are angered by their negative experiencesin working with mental health professionals whocontinue to blame them

Families are the vital link between home and community and is the most powerful factor affecting the outcome of the individual’s recovery

Families are frustrated with a mental health system that is failing to consider their needs

Families are not included in treatment planning or collaboration efforts

Families are disappointed in the perceivedinadequacy and fragmentation ofmental health services

Families are angered by their negative experiencesin working with mental health professionals whocontinue to blame them

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Consequences to FamiliesConsequences to Families

Feelings of guilt and responsibility are intensified Feelings of alienation from mental health professionals Environmental climate of blame wears down effective

family relationships Experiences with mental illness weaken their ability to

support their family member

Poor person-environment fit between the complex and challenging needsof individuals diagnosed with mental illness, their families, and mental health professionals who are often ill equipped to provide appropriate mental health services--increasing objective burdens for families.

Feelings of guilt and responsibility are intensified Feelings of alienation from mental health professionals Environmental climate of blame wears down effective

family relationships Experiences with mental illness weaken their ability to

support their family member

Poor person-environment fit between the complex and challenging needsof individuals diagnosed with mental illness, their families, and mental health professionals who are often ill equipped to provide appropriate mental health services--increasing objective burdens for families.

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Goals of the Research StudyGoals of the Research Study

Family member’s experiences and perspectives were explored, focusing on family stressors, coping skills, and adaptation of families experiencing mental illness

Mental health professionals’ experiences and perspectives were explored, focusing on the challenges and rewards of working with families experiencing mental illness, as well as the availability of mental health services for families

The concepts about causation and recovery were examined with both family members and mental health professionals

Family member’s experiences and perspectives were explored, focusing on family stressors, coping skills, and adaptation of families experiencing mental illness

Mental health professionals’ experiences and perspectives were explored, focusing on the challenges and rewards of working with families experiencing mental illness, as well as the availability of mental health services for families

The concepts about causation and recovery were examined with both family members and mental health professionals

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Research QuestionsResearch Questions

What caregiving burdens do family members identify when managing a family member’s mental illness?

What types of self-care techniques do family members utilize when managing a family member’s mental illness?

What rewards and reciprocities (give and take)of human interaction have family membersexperienced with their family memberdiagnosed with mental illness?

From the families’ perspective what are theirexperiences with the mental health system and its services?

What caregiving burdens do family members identify when managing a family member’s mental illness?

What types of self-care techniques do family members utilize when managing a family member’s mental illness?

What rewards and reciprocities (give and take)of human interaction have family membersexperienced with their family memberdiagnosed with mental illness?

From the families’ perspective what are theirexperiences with the mental health system and its services?

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Research Questions (Continued)Research Questions (Continued)

From the perspective of mental health professionals, what are their experiences in working with families experiencing mental illness?

From the perspective of families and mental health professionals, how do they define and explain the following concepts and to what extent are these definitions/explanations congruent? Causation of mental illness Recovery for individuals diagnosed with mental illness and

their family members

From the perspective of mental health professionals, what are their experiences in working with families experiencing mental illness?

From the perspective of families and mental health professionals, how do they define and explain the following concepts and to what extent are these definitions/explanations congruent? Causation of mental illness Recovery for individuals diagnosed with mental illness and

their family members

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Significance of Research StudySignificance of Research Study

Acknowledge families’ life experiences Acknowledge affects mental illness has on all family

membersparents, siblings, spouses, and offspring

Provide a “voice” to family members

Mental health professionals receive a renewed understanding offamilies’ life experiences with mental illness

Enable mental health professionals to provide quality and effective mental health programs for families experiencing mental illness

Develop educational programs for families Develop training programs for mental health professionals

Acknowledge families’ life experiences Acknowledge affects mental illness has on all family

membersparents, siblings, spouses, and offspring

Provide a “voice” to family members

Mental health professionals receive a renewed understanding offamilies’ life experiences with mental illness

Enable mental health professionals to provide quality and effective mental health programs for families experiencing mental illness

Develop educational programs for families Develop training programs for mental health professionals

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Historical PerspectiveHistorical Perspective

Colonial times … it was the family’s responsibility to care for their family member experiencing symptoms of mental illness and bizarre behaviors

1700s … opening of the first asylum provides aglimpse of care removed from the family

1950s … deinstitutionalization with manyindividuals landing on their family’s doorstep

Today … families have been requiredto assume an increasingly heavy burdenof responsibility for the care of theirfamily member diagnosed with mental illness

Colonial times … it was the family’s responsibility to care for their family member experiencing symptoms of mental illness and bizarre behaviors

1700s … opening of the first asylum provides aglimpse of care removed from the family

1950s … deinstitutionalization with manyindividuals landing on their family’s doorstep

Today … families have been requiredto assume an increasingly heavy burdenof responsibility for the care of theirfamily member diagnosed with mental illness

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Primary Roles of FamiliesPrimary Roles of Families

The philosophical, economic, and political mood, which has encouraged the development of community care, has frequently come to simply mean care by the family

Caregiver … families assist and supervisetheir family member in obtaining theirbasic needs (e.g., shelter, food, finances)and teaching them activities of daily living(e.g., self-care, household chores

Case Manager … families can assume 30% or more of their waking hours in caring for their family member diagnosed with mental illness; helping them to connect to the mental health system, obtain services, medical and treatment options, and wade through the befuddling system of entitlement on a day-to-day basis

The philosophical, economic, and political mood, which has encouraged the development of community care, has frequently come to simply mean care by the family

Caregiver … families assist and supervisetheir family member in obtaining theirbasic needs (e.g., shelter, food, finances)and teaching them activities of daily living(e.g., self-care, household chores

Case Manager … families can assume 30% or more of their waking hours in caring for their family member diagnosed with mental illness; helping them to connect to the mental health system, obtain services, medical and treatment options, and wade through the befuddling system of entitlement on a day-to-day basis

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MethodologyMethodology

Qualitative and phenomenological research design A “warm” analysis, wherein empathy is integral to this

study in an attempt to make sense of, and interpret the meanings of and perceptions of how mental illness affects the lives of family

Hennepin County the largest populated county(23% of population) of Minnesota

Maximum variation sampling was used to identify participants who were likely to be “information-rich”

Qualitative and phenomenological research design A “warm” analysis, wherein empathy is integral to this

study in an attempt to make sense of, and interpret the meanings of and perceptions of how mental illness affects the lives of family

Hennepin County the largest populated county(23% of population) of Minnesota

Maximum variation sampling was used to identify participants who were likely to be “information-rich”

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Phase I - FamiliesPhase I - Families

40 participants; 10 family members from each family subgroup: parents, siblings, spouses, and offspring

Semi-structured in-person interview exploring the family member’s life experiences Coping, adapting, and managing a family member’s

mental illness Caregiving burdens and self-care techniques Experiences with mental health services Perceptions of the causation of mental illness Necessary components needed for recovery

Phenomenological approach provided an opportunity forfamily members to voice their experiences so that acomprehensive reflective analysis could portray the essencesof their life experiences with mental illness (Moustakas)

40 participants; 10 family members from each family subgroup: parents, siblings, spouses, and offspring

Semi-structured in-person interview exploring the family member’s life experiences Coping, adapting, and managing a family member’s

mental illness Caregiving burdens and self-care techniques Experiences with mental health services Perceptions of the causation of mental illness Necessary components needed for recovery

Phenomenological approach provided an opportunity forfamily members to voice their experiences so that acomprehensive reflective analysis could portray the essencesof their life experiences with mental illness (Moustakas)

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Phase II - Mental Health Professionals

Phase II - Mental Health Professionals

10 program directors from Minnesota Rule 29 Community Mental Health Clinics

Telephone interview or completing questionnaire via mail Explored their views about the challenges and rewards of

working with families experiencing mental illness Availability of services for families Training Stigma Causation of mental illness Needed components for recovery

Snapshot view of the connection of the person-in-environment perspective

10 program directors from Minnesota Rule 29 Community Mental Health Clinics

Telephone interview or completing questionnaire via mail Explored their views about the challenges and rewards of

working with families experiencing mental illness Availability of services for families Training Stigma Causation of mental illness Needed components for recovery

Snapshot view of the connection of the person-in-environment perspective

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Parents as ParticipantsParents as Participants

Coping with mental illness for an average of 13 years Majority of participants female (mother) All over the age of 50 Majority married All had some college experience; 80% had a college

degree Half retired; with over half reported incomes of over

$75,000 annually Majority indicated their religious affiliation as none All were Caucasian

Coping with mental illness for an average of 13 years Majority of participants female (mother) All over the age of 50 Majority married All had some college experience; 80% had a college

degree Half retired; with over half reported incomes of over

$75,000 annually Majority indicated their religious affiliation as none All were Caucasian

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Siblings as ParticipantsSiblings as Participants

Coping with mental illness for an average of 10 years Majority of participants female (sisters) Age 18 to 59, with half older than their brother/sister Majority of participants were either divorced or single

and never married Majority had some college experience; 50% had a college

degree Half employed; reported earning $35,000 to $49,999

annually Religious affiliations ranged from none to Catholic, Non-

denominational, Jewish, Lutheran, and Presbyterian All were Caucasian

Coping with mental illness for an average of 10 years Majority of participants female (sisters) Age 18 to 59, with half older than their brother/sister Majority of participants were either divorced or single

and never married Majority had some college experience; 50% had a college

degree Half employed; reported earning $35,000 to $49,999

annually Religious affiliations ranged from none to Catholic, Non-

denominational, Jewish, Lutheran, and Presbyterian All were Caucasian

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Spouses as ParticipantsSpouses as Participants

Majority knew about their spouses mental illness prior to their marriage; two whose mental illness appeared after their marriage are now divorced

Participants were half male (husbands) and half female (wives) Age 18 to 59 Majority of participants were married All had some college experiences; 60% had a college degree All were employed; half reported earning over $75,000

annually Religious affiliations ranged from none to Christian, Lutheran,

and Hindu Majority were Caucasian; with one identifying himself as

East Indian (Asian/Pacific Islander)

Majority knew about their spouses mental illness prior to their marriage; two whose mental illness appeared after their marriage are now divorced

Participants were half male (husbands) and half female (wives) Age 18 to 59 Majority of participants were married All had some college experiences; 60% had a college degree All were employed; half reported earning over $75,000

annually Religious affiliations ranged from none to Christian, Lutheran,

and Hindu Majority were Caucasian; with one identifying himself as

East Indian (Asian/Pacific Islander)

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Offspring as ParticipantsOffspring as Participants

Majority of participants where female (daughters) Age 28 to 49 Majority of participants were either divorced or

separated Majority had some college experience; over half had a

college degree Half employed; reported earning $35,000 to $49,999

annually Religious affiliations ranged from none to Christian,

Catholic, Lutheran, Mormon, and “Spiritual” Majority were Caucasian; with one identifying herself

as Hispanic/Latin

Majority of participants where female (daughters) Age 28 to 49 Majority of participants were either divorced or

separated Majority had some college experience; over half had a

college degree Half employed; reported earning $35,000 to $49,999

annually Religious affiliations ranged from none to Christian,

Catholic, Lutheran, Mormon, and “Spiritual” Majority were Caucasian; with one identifying herself

as Hispanic/Latin

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Most Devastating to FamiliesMost Devastating to Families

Ambiguous Loss defined as the lack of clarity which causes confusion and stress, and is often tormenting (Boss, 1999)

Disenfranchised Grief defined as the experience of grieving that cannot be openly acknowledged, publicly mourned, or socially supported, due to the stigma that often accompanies mental illness (Doka, 1989)

Parents loss of their own dreams andexpectations for their child

Siblings experience a loss of whotheir brother/sister had been

Spouses dreams and expectations of their marriage is shattered

Offsprings loss of a relationship with their parent diagnosed with mental illness

Ambiguous Loss defined as the lack of clarity which causes confusion and stress, and is often tormenting (Boss, 1999)

Disenfranchised Grief defined as the experience of grieving that cannot be openly acknowledged, publicly mourned, or socially supported, due to the stigma that often accompanies mental illness (Doka, 1989)

Parents loss of their own dreams andexpectations for their child

Siblings experience a loss of whotheir brother/sister had been

Spouses dreams and expectations of their marriage is shattered

Offsprings loss of a relationship with their parent diagnosed with mental illness

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Subjective Burdens -- Emotional Distress

Subjective Burdens -- Emotional Distress

Sadness__grief, loss, depression, helplessness and hopelessness Parents primary response

Anger__frustration; not knowing what to do, where to go, or how to help Siblings, Spouses, and Offspring primary response

Sadness__grief, loss, depression, helplessness and hopelessness Parents primary response

Anger__frustration; not knowing what to do, where to go, or how to help Siblings, Spouses, and Offspring primary response

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Subjective Burdens (Continued)Subjective Burdens (Continued)

Parents found themselves overwhelmed with caring for an adult son/daughter Question their own parenting skills Greatest fear is what will happen to their child if they are no longer

available Siblings reported feeling trapped, bitter, and resented the loss of

parents time Presumed the role of caregiving for their parents Greatest fear were concerns of their own mental health

Spouses identified their anger as “excruciating” (BM) Emotional abuse was suggested by several spouses Greatest fear relates to the loss of their relationship

Offspring identified their anger as unmanageable and chaotic, which appears to reflect the environment in which they grew up Self-focus to get their needs met Greatest fear were concerns of their own mental health

Parents found themselves overwhelmed with caring for an adult son/daughter Question their own parenting skills Greatest fear is what will happen to their child if they are no longer

available Siblings reported feeling trapped, bitter, and resented the loss of

parents time Presumed the role of caregiving for their parents Greatest fear were concerns of their own mental health

Spouses identified their anger as “excruciating” (BM) Emotional abuse was suggested by several spouses Greatest fear relates to the loss of their relationship

Offspring identified their anger as unmanageable and chaotic, which appears to reflect the environment in which they grew up Self-focus to get their needs met Greatest fear were concerns of their own mental health

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Objective Burdens -- Daily Challenges

Objective Burdens -- Daily Challenges

Symptoms of mental illness Loss of family

Parents … changes in their physical environment Spouses … loss of their relationship Siblings and Offspring … changes in family dynamics

Symptoms of mental illness Loss of family

Parents … changes in their physical environment Spouses … loss of their relationship Siblings and Offspring … changes in family dynamics

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Objective Burdens (Continued)Objective Burdens (Continued)

Parents take on the caregiving role for their adult children out of responsibility or guilt Actively involved in their child’s treatment Loss of personal time, career and retirement plans

Siblings struggle with communication and how to motivate their brother/sister Future caregiving responsibility Own mental health concerns

Spouses are frustrated with being their husband/wife’s caregiver Emotional abuse Communication concerns

Offspring found themselves having to “grow up” sooner than normal due to caregiving responsibilities Issues of feeling safe and secure Continued caregiving responsibilities as their parent ages

Parents take on the caregiving role for their adult children out of responsibility or guilt Actively involved in their child’s treatment Loss of personal time, career and retirement plans

Siblings struggle with communication and how to motivate their brother/sister Future caregiving responsibility Own mental health concerns

Spouses are frustrated with being their husband/wife’s caregiver Emotional abuse Communication concerns

Offspring found themselves having to “grow up” sooner than normal due to caregiving responsibilities Issues of feeling safe and secure Continued caregiving responsibilities as their parent ages

Page 23: The Tie That Binds and Heals

Coping -- A Process of AdaptationCoping -- A Process of Adaptation

Humbling experience for parents Lesson of compassion, empathy, and acceptance for

siblings, spouses, and offspring

Parents -- values and belief system, education, connection to others

Siblings -- connection with others, values and belief system, family

Spouses -- values and belief system, family, education Offspring -- self care, family, connecting with others

Humbling experience for parents Lesson of compassion, empathy, and acceptance for

siblings, spouses, and offspring

Parents -- values and belief system, education, connection to others

Siblings -- connection with others, values and belief system, family

Spouses -- values and belief system, family, education Offspring -- self care, family, connecting with others

Page 24: The Tie That Binds and Heals

Mental Health System -- Family Perception

Mental Health System -- Family Perception

Communication Limitations Policy of “family inclusion” which includes acceptance,

validation, acknowledgement, and respect Education Limitations

Advice in how to maximize their family member’s potential Coping skills in answering the following questions, What do I

say? How do I deal with him/her? Am I helping or hurting? Boundary setting (self-care vs. caregiving), problem-solving

skills, time management, anger management, stress management, and emotional regulation

Need to learn self-care skills and be ableto answer the question, Who am I?

Knowledge and information about mental illness Groups, specific to parents, siblings, spouses,

offspring; possible mentor or sponsors as you wouldfind in AA or Alanon groups

Resources available

Communication Limitations Policy of “family inclusion” which includes acceptance,

validation, acknowledgement, and respect Education Limitations

Advice in how to maximize their family member’s potential Coping skills in answering the following questions, What do I

say? How do I deal with him/her? Am I helping or hurting? Boundary setting (self-care vs. caregiving), problem-solving

skills, time management, anger management, stress management, and emotional regulation

Need to learn self-care skills and be ableto answer the question, Who am I?

Knowledge and information about mental illness Groups, specific to parents, siblings, spouses,

offspring; possible mentor or sponsors as you wouldfind in AA or Alanon groups

Resources available

Page 25: The Tie That Binds and Heals

Strength of Mental Health SystemStrength of Mental Health System Parents focused on the mental health system as a whole

“We could not live without it” (RL) Sibling’s focused on the mental health services their

brother/sister was receiving Group home, in-home services, medications

Spouses focused on their husband/wife’s willingness and motivation in obtaining appropriate services “For somebody who is willing and motivated to use; tow

work to get better, that has a good therapist, a good doctor, that is willing; who is on mediation and is willing to work with the medications, than the tools are there for them to get better … but, if the person is not willing to get better, there are not checks and balances” (RL)

Offspring’s focused on mental health professionals Resourceful, knowledgeable, supportive

Parents focused on the mental health system as a whole “We could not live without it” (RL)

Sibling’s focused on the mental health services their brother/sister was receiving Group home, in-home services, medications

Spouses focused on their husband/wife’s willingness and motivation in obtaining appropriate services “For somebody who is willing and motivated to use; tow

work to get better, that has a good therapist, a good doctor, that is willing; who is on mediation and is willing to work with the medications, than the tools are there for them to get better … but, if the person is not willing to get better, there are not checks and balances” (RL)

Offspring’s focused on mental health professionals Resourceful, knowledgeable, supportive

Page 26: The Tie That Binds and Heals

Recovery ProcessRecovery Process Acceptance; accountability/responsibility and the “do”

attitude/desire to recover Support Network including friendships/companionship of

peers Family Support Medication Management Individual and group therapy Aftercare services for mental health monitoring and follow-

through

Medication, access to good therapy, good family and friend network,support network outside of therapy … your

environment needs to be supporting meaning you knowwhere you are, doing something that you feelis worthwhile--a positive environment (CW)

Acceptance; accountability/responsibility and the “do” attitude/desire to recover

Support Network including friendships/companionship of peers

Family Support Medication Management Individual and group therapy Aftercare services for mental health monitoring and follow-

through

Medication, access to good therapy, good family and friend network,support network outside of therapy … your

environment needs to be supporting meaning you knowwhere you are, doing something that you feelis worthwhile--a positive environment (CW)

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Challenges/Rewards of Working with Families

Challenges/Rewards of Working with Families

Resistance by the client to include families Family member not available … deceased, living far

away, burned out, or just not wanting involvement Projective nature of relationship -- you are the problem

and we are not

Being able to education family members, validating, and seeing client develop a quality of life with the help and support of family

Resistance by the client to include families Family member not available … deceased, living far

away, burned out, or just not wanting involvement Projective nature of relationship -- you are the problem

and we are not

Being able to education family members, validating, and seeing client develop a quality of life with the help and support of family

Page 28: The Tie That Binds and Heals

Recommendations for FamiliesRecommendations for Families

Involvement in the first (intake) session Provide a history of symptoms Be willing to help, listen and have a willingness to

adapt to changes Support, encouragement, and validation to their family

member

Involvement in the first (intake) session Provide a history of symptoms Be willing to help, listen and have a willingness to

adapt to changes Support, encouragement, and validation to their family

member

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Implications for Practice & PolicyImplications for Practice & Policy

Individuals Diagnosed with Mental Illness

Development of a Recovery Program, including the following components: Renewing hope and commitment Redefining self Incorporating illness Being involved in meaningful activities Overcoming stigma Assuming control Empowered and exercising citizenship Managing symptoms Being supported by others

Individuals Diagnosed with Mental Illness

Development of a Recovery Program, including the following components: Renewing hope and commitment Redefining self Incorporating illness Being involved in meaningful activities Overcoming stigma Assuming control Empowered and exercising citizenship Managing symptoms Being supported by others

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Implications for Practice & Policy (Continued)

Implications for Practice & Policy (Continued)

Family Needs

Information about mental illness; hands-on-training about mental illness

Development of skills for coping with and managing mental illness Development of self-care skills Development of caregiving skills; families are looking for

information in helping their family member diagnosed with mental illness to maximize their potential and develop an authentic quality of life

Psychoeducational groups for families specificallyaddressing the needs of all family members -- parents, siblings, spouses, and offspring;providing informational and emotional supportin a holistic family-centered atmosphere

Family Needs

Information about mental illness; hands-on-training about mental illness

Development of skills for coping with and managing mental illness Development of self-care skills Development of caregiving skills; families are looking for

information in helping their family member diagnosed with mental illness to maximize their potential and develop an authentic quality of life

Psychoeducational groups for families specificallyaddressing the needs of all family members -- parents, siblings, spouses, and offspring;providing informational and emotional supportin a holistic family-centered atmosphere

Page 31: The Tie That Binds and Heals

Implications for Practice & Policy (Continued)

Implications for Practice & Policy (Continued)

Mental Health Professionals

Development of educational programs addressing the following issues: Collaboration with family Basic information on mental illness Stress management skills for families Utilization of the mental health system Helping family members meet their own needs Behavioral issues Manage professional and ethical issues,

including issues of confidentiality

Mental Health Professionals

Development of educational programs addressing the following issues: Collaboration with family Basic information on mental illness Stress management skills for families Utilization of the mental health system Helping family members meet their own needs Behavioral issues Manage professional and ethical issues,

including issues of confidentiality

Page 32: The Tie That Binds and Heals

Implications for Practice & Policy (Continued)

Implications for Practice & Policy (Continued)

Mental Health System Families are not using the mental health system as

intended as a result of their negative experiences (e.g., excluded, ignored, disrespected)

Mental health services may be available but due toa complicated system that is fragmented anddisconnected the delivery of services is ineffective

Family members and mental health professionalsare all seeking ways of better communicationand yet this need continues to be unmet …development of a communication policy is neededwhich includes acceptance, validation, acknowledgement,and respect for all parties involved

Mental Health System Families are not using the mental health system as

intended as a result of their negative experiences (e.g., excluded, ignored, disrespected)

Mental health services may be available but due toa complicated system that is fragmented anddisconnected the delivery of services is ineffective

Family members and mental health professionalsare all seeking ways of better communicationand yet this need continues to be unmet …development of a communication policy is neededwhich includes acceptance, validation, acknowledgement,and respect for all parties involved

Page 33: The Tie That Binds and Heals

LimitationsLimitations

Small sample of families in Minnesota solicited from mental health organizations that typically advocate for individuals and families experiencing mental illness and may have more knowledge and information than families not yet connected to mental health services

Participants were primarily Caucasian from middle class backgrounds and urban population and the research study focused on adults diagnosed with mental illness and did not address the issues of families with children (under the age of 18) experiencing mental illness and their unique challenges

Program directors were difficult to engage in theresearch study due to limited time availability

Small sample of families in Minnesota solicited from mental health organizations that typically advocate for individuals and families experiencing mental illness and may have more knowledge and information than families not yet connected to mental health services

Participants were primarily Caucasian from middle class backgrounds and urban population and the research study focused on adults diagnosed with mental illness and did not address the issues of families with children (under the age of 18) experiencing mental illness and their unique challenges

Program directors were difficult to engage in theresearch study due to limited time availability

Page 34: The Tie That Binds and Heals

To My Family and FriendsTo My Family and Friends

We can only be said to be alive in those momentswhen our hearts are conscious of our treasures

(Thornton Wilder)

We can only be said to be alive in those momentswhen our hearts are conscious of our treasures

(Thornton Wilder)


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