Welcome
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State / Regional Participation
• Alabama• Arizona• Florida• Louisiana• New York• Tennessee• Wisconsin
• Arkansas• California• Georgia• Maryland• Oklahoma• Texas• National Organizations
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Participating Organizations
• AHRQ• AAMC• The Bogatin Law Firm, PLC • Davis Wright Tremaine LLP• eHealth Initiative• Intel Corporation• Iowa Foundation for Medical
Care• Markle Foundation• My Health Choice• Regenstrief Institute• St. Jude Children Research
Hospital
• AHIMA• Avalere Health, LLC• CIGNA Government Services• DHHS/ONC• HCA• Internet2• Johnson and Johnson• Medical Banking Project• National Governors Association• Shared Health• Vanderbilt University• Woolley & Associates
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5©2006, Vanderbilt University
The Discussion
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7©2006, Vanderbilt University
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10©2006, Vanderbilt University
What We Learned from Our December Workshop
• Confidentiality and privacy are critical concerns• Differences of opinion are striking• There is a need for education across all sectors• There is no quick fix to the issues• Principles are essential• Some practices are widely held, some are controversial• Establishing trust is difficult, but achievable• Data-sharing agreements are essential for early adoption
in at least settings
11©2006, Vanderbilt University
12©2006, Vanderbilt University
Create a sense of a “virtual Community”Declare expectations from workshop
Identify major issues that must be addressed through the framework
Develop a set of principles and a common policy framework as basis for action
Explore the issues through case studies and discussionDevelop an initial set of responses to issues
Discuss as a group
Develop an attendee-specific approach for creating appropriatepolicies and agreements that address these issues and enable
data-exchange to take place
Approach
Day 1
Day 2
Ground Rules
Tom Lloyd