Post on 07-May-2015
transcript
Health care reform and people
with HIV/AIDS
Courtney Mulhern-PearsonAugust 3, 2013
SAN FRANCISCO AIDS FOUNDATION 2
1
2
3
What does health care reform do?
What’s going on in California?
What can you do now?
SAN FRANCISCO AIDS FOUNDATION 3
Status quo = access to care crisis
The Current Crisis
42-59% of low-income people living
with HIV not in regular care
Impossible to obtain individual insurance and
few insured through
employer system
Medicaid/ Medicare are lifelines to care,
but disability standard means they
are very limited
Demand for Ryan White care and
services > funding
29% of people living with HIV
uninsured
SAN FRANCISCO AIDS FOUNDATION 4
Ryan White program not keeping pace with need
Sources: “Estimated Number of Persons Living with AIDS,” Centers for Disease Control and Prevention, http://www.cdc.gov/hiv/topics/surveillance/resources/reports/2007report/table12.htm; Ryan White Appropriations History, Heath Resources and Services Administration, ftp://ftp.hrsa.gov/hab/fundinghis06.xls. Inflation calculated using http://www.usinflationcalculator.com; www.cdc.gov/hiv/surveillance/resources/reports/2009report/pdf/table16a.pdf; “Funding, FY2007-FY2010 Appropriations by Program, hab.hrsa.gov/reports/funding.html
What does HCR actually do?
• Individual mandate: U.S. Citizens and Legal Residents must maintain health insurance coverage.
• Addresses Affordability: Provides subsidies for lower income people; Exemptions for hardship; Out of pocket caps on coverage
• Expands Coverage and creates a standard package of Benefits, including free preventive services
• Provides Consumer Protections
What does health care reform actually do?
New Insurance Options
Improves Medicaid (~ 60% of currently uninsured people with HIV):
• Expands eligibility to everyone below 138% FPL regardless of disability status
• provides essential health benefits (EHB); same package as traditional Medi-Cal in CA
• allows for free preventive services
Creates Private Insurance Marketplaces (~ 30% of current uninsured people with HIV):
• Federal subsidies up to 400% FPL• Called Covered California• eliminates premiums based on health/gender• provides EHB • supports outreach, navigation and enrollment• Allows for Basic Health Plan – not this year
New insurance options
Who is left out?
Undocumented immigrants:• Barred from state-based exchanges• Not eligible for non-emergency Medicaid • Eligible for restricted “emergency” Medicaid• Eligible for services through community health centers and/or
safety-net providers, Ryan White, Healthy San Francisco
Legally present immigrants:• Still face 5 year waiting period for Medicaid services
– California has chosen to move legally present immigrants into the marketplace with full wrap-around
• Can purchase with subsidies in Marketplace
Medically Fragile and perpetually out-of-care
Who’s left out?
Ryan White – Challenges for PLWH and their Providers
• Ryan White program (RW) – patient centered comprehensive HIV care
• Payer of last resort : RW can’t pay for services that can be provided under other coverage
• HCR expanded coverage means transitions – Transitions to new plans, providers, pharmacies – Once in new coverage, may need continued access
to some RW services:• Those not offered by other coverage: specific
types of case management, adherence, linkage to housing
• Help with costs: out of pocket and premium costs for care and medications
Challenges for people with HIV and their providers
“A Bridge to Health Care Reform” July 2011
• Low Income Health Program (LIHP) Partial and temporary county – based Medicaid expansion: Health PAC in Alameda– Ends December 31, 2013– State forgot to plan for people with HIV
• Alameda and LA finish PLWH transition 07/08, 2013
– Eligibility & delivery system varies by county• Eligibility range from 25% FPL to 200% FPL
– Met goal: serves > 550,000 uninsured Californians• Medi-Cal managed care expansion: moved most from
fee-for-service into Medi-Cal managed care plans
“A bridge to health care reform”
What Will Health Care Reform Bring in 2014?
• Medi-Cal (California’s Medicaid program) expansion
• A state run Marketplace - Covered California
• Transitions for people with HIV and providers:– From LIHP and RW to Medi-Cal expansion and Covered
California
– Considerations: Continuity of care with providers and pharmacy and integration (RW services working with new forms of coverage) strategies
What will change in 2014?
Covered California
• Limited, standardized plan offerings• Open enrollment October, 2013 - March 31, 2014• Assistance with enrollment and trouble shooting• Not clear how many HIV providers are in plan
networks• Most people with HIV will need assistance with
costs– Planning beginning for wrap around programs
• HIV - small population; “issues not on front burner”– Won’t get all we need/want in first year of development
Covered California
CA Assisters Program
• Assisters: entities and people who will be compensated for enrolling individuals in plans– Applications should be out soon– Training begins in August, 2013
• Navigators: entities that will outreach to specific populations that are uninsured after initial enrollment
The assisters program
Assisting with Cost in New Coverage
• State Office of AIDS beginning to plan for assistance with out of pocket and premium costs in Covered California
• Current programs OA Health Insurance Premium Payment Program (OAHIPP)and others pay only premiums– Programs not working well now– Need program development and
improvement• ADAP pay co-pays for ADAP drugs only• Need wrap around for primary care costs
Help with cost in new coverage
• Planning and funding services for new environment• Individual transition planning and assistance • Legal aid/benefits counseling for new systems• Does RW funding support outreach, linkage, engagement and retention in
care?
• HIV Services sustainability • Non-medical and prevention providers planning for sustainability
• Strategic partnerships • Medical settings sustaining coordinated care model
• CHC alignment, Medi-Cal managed care, Managed/Accountable Care structures, partnerships with community based organizations
• One planning model: SF Health Care Reform Task Force• Helping clients and providers transition and integrate• Recommendations, provider road map & client education templates
The role of local communities
Role of Individuals and Support Groups
Understand current health care coverageWhat services do you depend on and where do they come
from? Begin to consider your options in new environment
What changes are coming in your area and how do they affect you
Begin conversation with your HIV providers including about how they expect to offer services after 2014
Read and save information you receive Ask if you don’t understand materials Each one, teach one
Role of individuals and support groups
Health Care Reform Planning
“If we wait for governments, it’ll be too little,
too late. If we act as individuals, it’ll be too
little. But if we act as communities, it might
just be enough, just in time.”
Transition network
Health care reform planning
Resources
State HCR Information -www.statereforum.org
Enroll America
www.enrollamerica.org Center for Budget and
Policy Priorities - www.cbpp.org
Treatment Access Expansion Project – www.taepusa.org
Kaiser Family Foundation – www.kff.org
Families USA – www.familiesusa.org
National Health Law Program – www.nhelp.org
NASTAD – www.nastad.org
Health Resources and Services Administration –www.habhrsa.gov
Resources
CA Resources
Covered California – www.coveredca.com
Health Access - www.health-access.orgWestern Center on Law and Poverty –
www.wclp.orgNational Senior Citizens Law Center –
www.nsclc.orgHealth Consumer Alliance –
www.healthconsumer.org
California resources
Contact
Courtney Mulhern-Pearson, San Francisco AIDS Foundation
415.487-8008 cpearson@sfaf.org
Contact
SAN FRANCISCO AIDS FOUNDATION 21
sfaf.org1035 Market Street, Suite 400 | San Francisco, CA 94103