Difficulties, benefits and visionof 2-1-1 research collaboration

Matthew W. KreuterKate Eddens

Jason Q. PurnellDebbie Pfeiffer

Health Communication Research LaboratoryWashington University in St. Louis

Session goal

Explore 2-1-1/research collaboration

• Interactive

• Your opinions matter

Why this topic?

• Researchers “discovering” 2-1-1

• Balancing service & research

• Protecting 2-1-1 interests

Structure of the session

• Audience response survey

• Discussion of results

• A sample project

• Tomorrow

Audience response survey

Using your Handset

• Questions & answers on screen

• Numbers on slide = numbers on handset

• When countdown clock appears, push button on handset to answer

• Please leave Handset on chair when session is over.

Practice questions

Should the toilet paper roll go over or under?

1.Over

1.Under

You are stranded on a desert island. Which would you most want with you?

1.Your favorite food

1.Your favorite music

1.Your favorite book

1.Your own pillow

REAL questions

Background information

Which best describes your I&R?

1.2-1-1

1.Aging / Disability

1.Blended Crisis

1.Comprehensive I&R (non 2-1-1)

1.Other specialized

Which best describes your role in your I&R?

1.President, VP, or CEO

1.Executive or program director

1.Call center manager

1.Information specialist

1.Resource specialist

1.Data manager or research analyst

1.Training coordinator–Other

Evaluation of standard services

How often does your I&R prepare a formal evaluation report in print or online form?

1.Every few years

1.Once a year

1.More than once a year

1.Not on a consistent schedule

1.Don’t know/not sure

How would you rate the process used to evaluate your I&R?

1.Outstanding

1.Excellent

1.Very Good

1.Good

1.Fair

1.Poor–Don’t know/not sure

Evaluation of special initiatives

Has your I&R ever conducted a special initiative?

1.Yes

1.No

1.Don’t know/not sure

Has your I&R ever conducted a special initiative focused on personal finance?

1.Yes

1.No

1.Don’t know/not sure

Has your I&R ever conducted a special initiative focused on health?

1.Yes

1.No

1.Don’t know/not sure

How often does your I&R formally evaluate its special initiatives?

1.Every time

2.Some of the time

3.Almost never

4.Never

5.Don’t know/not sure

6.Not applicable

How would you rate the process used by your I&R to evaluate special initiatives?

1.Outstanding

2.Excellent

3.Very Good

4.Good

5.Fair

6.Don’t know/not sure

7.Not applicable

Media campaigns

Has your I&R ever conducted a media campaign to promote awareness or use of services?

1.Yes

1.No

1.Don’t know/not sure

How often does your I&R formally evaluate the effects of its media campaigns?

1.Every time

2.Some of the time

3.Almost never

4.Never

5.Don’t know/not sure

6.Not applicable

Work with researchers: Experience & perceptions

Has your I&R ever worked with researchers?

1.Yes

1.No

1.Don’t know/not sure

How would you rate your past experience working with researchers?

1.Very positive

2.Somewhat positive

3.Somewhat negative

4.Very negative

5.Don’t know/not sure

6.Not applicable

What would be your greatest concern about working with researchers?

1.There would be additional strain on staff & resources

2.Researchers may have different priorities than ours

3.Our stakeholders may not value research

4.Our callers may not benefit from research

5.Assuring we can protect the privacy of our data

6.I have some other concern

7.I don’t have any concerns

What would be your next greatest concern about working with researchers?

1.There would be additional strain on staff & resources

2.Researchers may have different priorities than ours

3.Our stakeholders may not value research

4.Our callers may not benefit from research

5.Assuring we can protect the privacy of our data

6.I have some other concern

7.I don’t have any concerns

What would be the most important benefitof working with researchers?

1.Strong evaluation methods

2.Help analyzing data

3.Potential for improved services

4.Access to research funding

5.Learning about program effectiveness

6.Some other benefit

7.I see no benefits

What would be the next most important benefit of working with researchers?

1.Strong evaluation methods

2.Help analyzing data

3.Potential for improved services

4.Access to research funding

5.Learning about program effectiveness

6.Some other benefit

7.I see no benefits

How interested would you be in forming a research partnership involving your I&R?

1.Extremely interested

2.Very interested

3.Somewhat interested

4.Not at all interested

Which best describes how valuable your responses are?

Thank you!

Please leave the Handseton your chair when session is over.

Building a 2-1-1 research consortium

Can research…

• …advance 2-1-1’s mission?

• …enhance 2-1-1’s services?

• …help secure 2-1-1 funding?

Building a 2-1-1 research consortium

Can 2-1-1…

• …build a knowledge base?

• …monitor population needs?

• …expand its scope of helping services?

Cancer risks in 2-1-1 callers in Missouri, North Carolina, Texas, and

WashingtonPresented at the Alliance of Information &

Referral Systems ConferenceRochester, NYMay 25, 2010

Jason Q. Purnell, PhD, MPH

Cancer Prevention & Control Research Network (CPCRN)

King County 2-1-1

United Way 2-1-1 Missouri

North Carolina 2-1-1

United Way 2-1-1 Houston

Study goals

1. To estimate the unmet cancer control needs of 2-1-1 callers

2. To compare findings from 2-1-1 to state and national rates

3. To demonstrate the feasibility of partnering with 2-1-1 systems for research

Risk Assessment• Six areas of cancer risk:

• Breast cancer screening (mammography)• Colorectal cancer screening (colonoscopy)• Cervical cancer screening (Pap test)• Human papillomavirus (HPV) vaccination• Smoking • Smoke-free homes and cars

• Provided appropriate cancer control referrals

Next steps

• Journal article reporting results• Ongoing studies integrating cancer referrals

into 2-1-1 systems• Exploring additional research collaborations

through work of consortium

Acknowledgments• Collaborators

• Katherine Eddens, Washington University• Peggy Hannon, University of Washington• Maria Fernandez, University of Texas• Matthew Kreuter, Washington University• Kurt Ribisl, University of North Carolina• Susan Gemmel, King County Crisis Clinic• Debbie Fagin, United Way 2-1-1 Missouri• Marti Morris, North Carolina 2-1-1

• 2-1-1 systems• King County 2-1-1• North Carolina 2-1-1, Centralized Call Center• United Way 2-1-1 Houston• United Way 2-1-1 Missouri

• Staff support• Debbie Pfeiffer, Bindu Kalesan, Susie Rath, Andrea Spray

• CDC