Jo Crawford CTRS, MSLBarrow Connection

Barrow Neurological Institute St. Joseph’s Hospital & Medical Center

&Dr. David Sattler

Department of PsychologyWestern Washington University

Bridging the Gap Between Hospital and Community

• 12,426 patients went through rehabilitation in the

State of Arizona in 2013

• 171,994 disabled residents in Maricopa County

• 11,511 are wheelchair users!!

Facts

Decreased length of stayAdjustment to injuryAdjustment to body imageEducation of family/friends

Decreased access to the community while on rehab

Decreased absorption of resources

Challenges in rehabilitation

In drug/alcohol abuse

In secondary conditions

In obesity

In unemployment

Consequences of a Non-Active Lifestyle

Organized activity

Cost

Equipment

Access

Trained staff

Barriers to Participation

Navigational tools needed for an active lifestyle

Educate the hospital and community

Membership is free

Meet our Connectors

The Barrow Connection-what we do

Increase access to living a fuller life in the areas of:

• Education & Work

• Health & Wellness

• Adapted Recreation & Sports

• Quality of life!

Barrow Connection- what we do

Barrow Connectors-Positive mentors

Membership card

Connector reaches out to new member

Provide resources and encouragement

Barrow Connectors- SCI

Family involvement

Complete a mentor training program

Contract agreement with BC/hospital

Monthly report

Barrow Connectors-Brain Injured

Survivors

• Arizona Disabled Sports• Arizona Bridge to Independent Living• Virginia G. Piper Sports & Fitness Center-

The Spo-Fit• Municipal Programs–Daring Adventures

• Other Rehab Hospitals in Arizona

• Valley-wide Community Agencies

Community Support & Partners

Partnerships

In medical stay

In secondary conditions

In drug/alcohol abuse

In obesity

Benefits to the BC Member

Communication of resources across the continuum of care

Collaboration with valley-wide agencies

Barrow Connectors-provide support & resources

Benefits to the BC Member

DPROJECT INDEPENDENCE

& EMPOWERMENT

PIE

Dignity Health Grants Community of Care Network

The P

IE C

om

munit

y

Target Population

• The target population- adults with disabilities of all ethnic and cultural backgrounds.

• Served on a cross-disability basis; the majority of people served have physical and/or neurological disabilities.

In Arizona 24,000 people have a spinal cord injury, and that number increases by 250 yearly; over 100,000 have some form of paralysis.

(Christopher and Dana

Reeve Foundation)

Each year, over 52,000 people in Arizona sustain a Traumatic Brain Injury.

(AZ Department of Health)

Did You Know….

PIEGoals

1. Decrease or prevent incidence of secondary conditions

2. Reduce inpatient admissions and ER visits

3. Enhance Quality of Life through health, fitness & nutrition; education/activities; socialization opportunities; peer support; & Community Transition resources

4. Identify system changes for our service delivery model to encourage a seamless family care transition with SJHMC

5. Conduct outreach /offer care transition to extended care facilities

Enhance Quality of Life

Barrow ConnectionThe initial focus :

neuro rehabilitation continuumAcute> rehab>outpatient>Center for Transitional Neuro rehabilitation New focus including:

Muhammad Ali Parkinson CenterBarrow Cranial Facial Centerand the Muscular Dystrophy program.

PIEOutcom

esBenchmarks Goal is 100 participants through the grant cycle for 2014 calendar year. Currently 140 participants are enrolled in the PIE program. Participants complete a pre-enrollment survey, with a follow-up assessment

at 3-month intervals.

Fitness Transition Results• Weight loss• Reduction of BMI• Gait improvement• Community Involvement

PIEOutcom

esTransportationBus and/or light rail passes have been provided to PIE participants who need transportation. This ensures continued and regular attendance to Spofit.

Wheelchair Skills Classescovered topics include: traveling with your chair, transferring, managing your environment and mechanics of your chair.

Empowerment Curriculum ClassesA 12 week Empowerment Series. Topics included: prevention of secondary conditions after SCI, psycho-social aspects of SCI, medical conditions after SCI, bladder and bowel management, sexuality and SCI, pain management and aging with SCI.

PIEOutcom

esEducational Programs Healthy Living Group - Healthy Living for Your Body &

Spirit Featured Topics: Nutrition, Music Therapy, Chronic Pain Management

Healthy Living Summer Series Online Educational Sessions Conferences

Services Resource Facilitation Brain Gym, 2x/month at SpoFit

50% of the

enrolled

participants

indicated

interest

in educational

classes.

Accident Avoidance Exercises

Skid Control

Barrow Connection Programs-Driving to Excel

Introduction to timed driving

Drive Safer with Hand

Controls

Barrow Connection Programs-Driving to Excel

• 157 participants

• 38 watercraft

• 150 volunteers

• Waterskiing

• Jet skiing

• Fishing

• Boat rides

• Kayaking

• Research

Barrow Connection ProgramsDayS on the Lake

•

Barrow Connection ProgramsDay on the Lake

Fundraising in a recession Employee givingGrantsFoundation involvement Fundraising events

Benefits includeDeveloping new partners-collaboration is

key! Exploring new programming Creativity is survival

Challenges & benefits with offering innovative programming

Collaboration between Barrow Connection and Western Washington University

Received Approval from the Barrow and Western Washington University Institutional Review Boards (IRBs) to conduct the project.

Research Project: Effects of Participation on Physical, Psychological, and Social Outcomes

Designing the Survey

Step 1

Conducted semi-structured interviews with a sub-set of participants.

• Participants discussed their experiences during and after event.

• We identified common themes as well as unique experiences.

Research Project: Methodology

Step 2

Wrote survey items.

Step 3

Administered the anonymous and confidential survey to Day on the Lake participants.

Research Project: Methodology

• Self-esteem & confidence• Positive emotions• Friends• Stress relief• Self-efficacy • Perceived abilities & attitudes after the event

• Family Relationships• Physical & health consequences

Research Project-focused areas

The REAL impact of access!

“It got me out of my shell and away fromthe TV!” Marc Askinazi

“It is so empowering!” Madilyn Stanton