Thank you for joining us today and supporting this very important work.

For more information on Yorkshire and the Humber Clinical Networks and

our work programmes, please visit our website: www.yhscn.nhs.uk.

Acknowledgments

We would like to thank the members of the Y&H SCN CYP Transitions Task and Finish

Group for their time and dedication in putting this resource together:

Dr Eric Kelly Emma Andrews Jackie Backhouse Sarah Boul

Dr Fiona Campbell Andrew Clarke Helen Collinson Annie Darby

Carole Gelder Lee Golze Ruth Hayward Clare Hillitt

Bushra Ismaiel Natalie Lyth Carl Mackie Karen McNicholas

Angela Monaghan Sue Morgan Priya Narula Karen Poole

Louise Porter Philomena Scott Sally Smith Denise Stewart

Rachel Tattersall Leona Thorpe Elizabeth Waddington Emm Irving

Yorkshire and the Humber

Children’s Strategic Clinical Network

Launch

28th June 2016

Northern Ballet, Leeds

#yhtransition

To launch and use the Yorkshire and the Humber;

Transition Guidance for Commissioners and Toolkit for Providers.

To support collaborative working in order to respond and meet the needs of Children and

Young People (CYP) as they transition from children’s to adult services by exploring

opportunities to:

Gain a deeper understanding of adolescence and the needs of young people.

Understand the impact of transition from a patient and parents perspective

Develop relationships across children’s and adults.

Create a young people friendly culture and approach across services.

Develop the workforce & workforce models.

Identifying:

Priorities for transition across the region.

Issues, challenges and barriers for transition across the region.

Steps for moving forward ‘making transition happen’.

Introduction and Aims of the Day Notes

Notes Morning Agenda

Time Agenda

09:00 – 09:20 Registration / Refreshments

09:20 – 09:25 Welcome & Housekeeping Emma Andrews, Quality Improvement Manager, Yorkshire and the Humber Clinical Networks

09:25– 09:40 Introduction Fiona Campbell, Clinical Lead, Yorkshire and the Humber Clinical Networks

09:40 – 09:55 The National Context Elizabeth Stephenson, NHS England

09:55 – 10.20 Transition: getting into young peoples' HEEADSSS!! Rachel Tattersall, Consultant Adolescent Rheumatologist, Sheffield Teaching Hospital

10:20 – 10:30 Transition from a Patient’s and Parent’s Perspective Tom Banks and Roz Banks,

Refreshments

10:45 – 10:55 Young People’s Involvement: Transition Toolkit Logo Design Harriett Wright, Community Project Worker, Healthwatch Leeds.

10:55 – 11:05 Young People’s Involvement: CYP Transition Charter Robyn Wainwright and Caitlin Boyle, Doncaster Youth Council Members

11:05 – 12:00 Yorkshire and the Humber Transition Toolkit & Guidance Emmerline Irving, Quality Improvement Lead, Yorkshire and the Humber Clinical Networks

Lunch

Afternoon Agenda

Time Agenda

13:00 – 13:15 Hassan’s Transition Story Hassan Nazir

13:15 – 13:25 Kirklees Transition Task and Finish Group Carl Mackie, Public Health Manager, Kirklees Council

13:25 – 13:40

Alder Hey 10 Step Model Jacqui Rogers, Trust Transition Nurse Lead, Alder Hey NHS Foun-dation Trust

13.40 – 14.00

Leeds Teaching Hospital Trust Louise Porter, Lead Nurse, Healthcare Transition of Children and Young People Sue Morgan MBE, Teenage Cancer Trust Nurse Consultant

14:00 – 15:00 Locality Workshops: Making Transition

Break

15:10 – 15:15 Children are our Future

15:15 – 15:45 Transition Q&A Panel Speakers

15.45 – 16.00 Final Thoughts Fiona Campbell, Clinical Lead, Yorkshire and the Humber Clinical Networks

Close

Delegate List

Sarah Boul sarah.boul@nhs.net Clinical Networks

Sarah Bowman sarah.bowman@sth.nhs.uk NHS

Sharon Cope sharon.cope@hotmail.co.uk Healthwatch Rotherham

Sharon Bowring sharon.bowring@anhst.nhs.uk Airedale NHS Foundation Trust

Sheila Roberts sheila.roberts@midyorks.nhs.uk Mid Yorkshire Hospitals NHS Trust

Shelley Williams shelley.williams@midyorks.nhs.uk NHS

Shirley Murray shirley.murray@sth.nhs.uk Sheffield Teaching Hospital’s

Sidiq Ali sidiquali@gmail.com Pfba Bradford

Su Dipti sdipti@nhs.net LCH

Sue Lloyd susan.lloyd@sth.nhs.uk Sheffield Teaching Hospital

Sue Morgan suemorgan@nhs.net LTHT

Suzanne Cuthbert suzanne.cuthbert2@nhs.net Leeds Teaching Hospitals

Suzanne Lamb suzanne.lamb@nhs.net Harrogate and District Foundation Trust

Swasti Shekhar swastishekhar@gmail.com Yorkshire and Humber

Tabia Afsar tabia.afsar@bradford.nhs.uk NHS Bradford Districts Clinical Commissioning Group

Tara Harness tara.harness@nhs.net North Lincolnshire CCG

Terrie Mcniffe terrie.mcniffe@nhs.net Barnsley Hospital

Tracy Gamble tracy.gamble1@nhs.net CHCPCIC

Valda Forbes valda.forbes@gmail.com Sheffield Children's Hospital

Valerie Wilson valerie.wilson@bradford.nhs.uk Bradford CCGs

Victoria Ray vray@nhs.net LYPFT

Yen Andersen yenandersen@nhs.net Leeds North CCG

Zoe Neill zoeneill@gmail.com Leeds North CCG

Delegate List

Neil Barber neil.barber@bdct.nhs.uk Bradford District Care Foundation Trust

Nichola Butler nichola.butler@sch.nhs.uk Sheffield Children's Trust

Nicola Heenan nicola.heenan@hey.nhs.uk Hull Royal Infirmary

Nicola Godley Nicola.godley@midyorks.nhs.uk Mid Yorkshire NHS

Nigel Pasrkes nigel.parkes@rotherhamccg.nhs.uk Rotherham CCG

Nigel Mills nigel.mills@gosh.nhs.uk GOSH

Olivia Pereira olivia.pereira@midyorks.nhs.uk Midyorks NHS

Patrick Otway p.otway@nhs.net NHS Barnsley CCG

Phil Scott philomena.scott@sth.nhs.uk Sheffield Teaching Hospitals

Pippa Jackson pippajackson1@nhs.net Sheffield Teaching Hospitals

Prashant Mani prashant.mani@midyorks.nhs.uk Mid Yorkshire Hospitals NHS Trust

Priya Narula priya.narula@sch.nhs.uk Sheffield Children's Hospital

Rachel Wigin rachel.wigin@hdft.nhs.uk Harrogate District FT

Rachel Tattersall rachel.tattersall@sth.nhs.uk Sheffield Teaching Hospital

Rajeev Gupta rajeev.gupta@nhs.net Barnsley Foundation Hospital

Rob Mayall rob.mayall1@gmail.com ADCS

Ruth Gordon ruth@ruthgordonassociates.co.uk Leeds CCGs

Ruth Hayward ruth.hayward@bradford.nhs.uk NHS Bradford Districts CCG

Ruth Aseervatham ruth.aseervatham@locala.org.uk Locala

Sadie Millington sadie.millington@hey.nhs.uk Hull and East Yorkshire NHS Trust

Safeen Rehman safeen.rehman@healthwatchwakefield.co.uk Healthwatch

Sally Smith sally.smith@york.nhs.uk York Teaching Hospitals

Sally Jennians sally.jennians@york.nhs.uk York Hospital

Sandhya Jose sandhya.jose@hey.nhs.uk Hull Royal Infirmary

Sandra Wilby sandra.wilby@nhs.net Y&H Clinical Network

Sandra Singleton noarsfarm@yahoo.co.uk Blackpool teaching hospital NHS trust

Saqib Iqbal sbalsiq@yahoo.co.uk Barnsley Hospital

Please find us and ask if you need any help.

Clare Hillitt Clinical Network Manager

clare.hillitt@nhs.net

Emmerline Irving Quality Improvement Lead

emmerline.irving@nhs.net

Meet Your Team for Today

Emma Andrews Quality Improvement Manager

emma.andrews1@nhs.net

Speaker Biographies

Emma Andrews Quality Improvement Manager

Emma joined the Clinical Networks in November 2013. Emma’s role involves seeking collaboration between Commissioners, Providers and other key stakeholders across the Yorkshire and Humber region. This work aims to ensure high quality equitable children’s health services as close to home as is safely possible. Emma joined the NHS in 2004 and has spent her NHS career so far working within Networks. This has provided a great opportunity to understand the complexity of health service and working with multiple stakeholders, an opportunity to facilitate change to enable improved services. Her career has also involved working in the New Zealand Health Service initially working with a large provider trust and latterly in the Planning and Funding Division.

Fiona Campbell

Consultant Paediatrician and Diabetologist at Leeds Children’s Hospital

Dr.Fiona Campbell is a actively involved in delivering direct patient care alongside holding a number of strategic medical management roles. She is the Clinical Lead for the National Children and Young People Diabetes Network at NHS England and the Clinical Lead for the Pediatric Diabetes Peer Review Quality Assurance Programme. Dr.Campbell is the Clinical Lead for Child Health in the Strategic Clinical Network (Children’s and Maternity) in Yorkshire and Humber and the Officer for Clinical Standards and Quality Improvement at the Royal College of Paediatrics and Child Health. She has recently taken on the role of Children and Young Peoples representative on the DUK Council of Healthcare Professionals.

Dr Campbell has been involved with many different service improvement initiatives in diabetes care. She sat on the DH Making Every Young Person with Diabetes Matter Implementation Group and Insulin Pump Working Group. She was the Paediatric Clinical Expert involved in NICE TA151 insulin pump guideline group in 2008. She co authored the 5 year National Children and Young Peoples Diabetes Service Improvement Implementation Plan 2013-2018 published by NHS Diabetes in 2013.

Dr. Campbell is also very interested in diabetes quality of care standards for children and young people including those in transition and welcomes the recently published NICE Guidance on Transition and the NHS England Diabetes Transition Specification. She advocates for effective . As part of this work she has been involved in the development of the four Masters Modules in CYP Diabetes Care, Insulin Pump/CGM management, Advanced Technologies in Diabetes Care and the Generic Transition Module run by the University of York. She was also involved in the development and writing of the Foundation Level 1 e learning module in CYP Diabetes care. More recently she has turned her attention to developing self- management education programmes for children with diabetes and their families focusing on education at the time of diagnosis and the ongoing support programme of education required to get best outcomes for the children with diabetes and their families.

Delegate List

Kate Scott Kate.poole@locala.org.uk Locala

Kate Horne kate.horne@calderdale.gov.uk PH, CMBC

Kathryn Wright kathryn.wright@york.nhs.uk York Hospital

Katie Holmes katie.holmes@york.nhs.uk York Hospital

Katie Mortimer katie.mortimer@york.nhs.uk York Hospital

Katie Simpson katie.simpson@rdash.nhs.uk RDaSH

Kay Dickinson kay.dickinson@rdash.nhs.uk RDaSH

Laila Fish laila.fish@nhs.net PCU

Laura Jackson lh_jacko@live.co.uk North West Coast SCN

Laura Whixton laura.whixton@nhs.net YH CYPMH CN

Laura Abbott laura.abbott@chilypep.org.uk CHILYPEP

Lauren King Lauren.King@nelincs.gov.uk North East Lincolnshire Council

Lee Golze lee.golze@doncasterccg.nhs.uk DCCG

Leona Thorpe leona.thorpe@northyorks.gov.uk NYCC

Lesley White lesley.white@hullcc.gov.uk Hull Council

Linda Pickering linda.pickering@britishkidney-pa.co.uk British Kidney Patient Association

Lisa Rowlands lisa.rowlands@nhs.net Yorkshire Ambulance Service

Lorraine Rogers Lorraine.rogers@sth.nhs.uk Operational Delivery Networks Management Team

Lorraine Fox lorraine.fox@hdft.nhs.uk Harrogate District NHS Foundation Trust

Louise Porter louise-c.porter@nhs.net Leeds Teaching Hospitals

Louise Potts louise.potts@uclh.nhs.uk University College London Hospitals

Mais Al-Hity mais.al-hity@bradford.nhs.uk Bradford Districts CCG

Margot Carson margotcarson@nhs.net CYP North West Diabetes Network

Maria Forsythe maria.forsythe@sth.nhs.uk Sheffield Teaching Hospitals

Marissa Carroll marrisa.carroll@nhs.net Leeds North CCG/LYPFT

Michele Kent michele.kent@hey.nhs.uk Hull and East Yorkshire NHS

Michelle Place michelle.place1@nhs.net NHS England

Morna Cooke morna.cooke@wakefieldccg.nhs.uk Wakefield CCG

Naomi Clasper naomiclasper@nhs.net Scarborough and Rydale CCG

Delegate List

Helen Wheat helen.wheat@bradford.gov.uk Bradford Council Transitions Team

Helena Dent helena.dent@nhs.net North Lincolnshire CCG

Hima Bindu

Avatapalle hima_july5@yahoo.com Leeds Teaching Hospitals

Ian Holdsworth ian.holdsworth@wakefieldccg.nhs.uk NHS Wakefield CCG

Jacqui Rogers jacqui.rogers@alderhey.nhs.uk NHS Alder Hey

Jaimie Martin jaimie.martin@bdct.nhs.uk Bradford District Care Trust

Jane Wallington jane.wallington@bthft.nhs.uk Bradford Teaching Hospitals Foundation trust

Jane Patrickson jane.patrickson@rdash.nhs.uk RDaSH

Jane Mischenko jane.mischenko@nhs.net Leeds CCGs

Jane Newton jane.newton4@nhs.net Rotherham CCG

Jane Webster jane.webster@hdft.nhs.uk HDFT

Janet Hargreaves Janet.hargreaves@awcccg.nhs.uk Airedale, Wharfedale and Craven CCG

Jeanette Lawson jeanette.lawson@nhs.net Leeds North CCG

Jenney Dennis jenny.dennis@nhs.net Barnsley Hospital

Joanna Barszczak joannabarszczak@aol.co.uk Healthwatch

Joanne Pons Joanne.pons@sth.nhs.uk Sheffield Teaching Hospitals NHS Trust

Judith Bentley judith.bentley@midyorks.nhs.uk Mid Yorkshire Trust

Julia Redgrave julia.redgrave@calderdale.gov.uk Calderdale Council

Julie Balahura julie.balahura@bdct.nhs.uk Bradford District Care Trust

Julie Bruce julie@pfba.org.uk The Parents' Forum for Bradford and Airedale

Julie Naylor julie.naylor@york.nhs.uk York Hospital

Karen McNicholas karen.mcnicholas3@nhs.net Partnership Commissioning Unit

Karen O'Brien karen.o'brien6@nhs.net Barnsley CCG

Karen Walmsley karen.walmsley@bradford.nhs.uk Bradford CCG

Karen McMahon karen@moatend.com Healthwatch Leeds

Karen Poole karen.poole@northkirkleesccg.nhs.uk North Kirklees Clinical Commissioning Group

Karen Walmsley karen.walmsley@bradford.nhs.uk NHS Bradford CCG

Karen O'Neill karen.o'neill@lthtr.nhs.uk Lancashire teaching Hospital

Speaker Biographies

Elizabeth Stephenson Children and Young People Policy Lead, NHS England

Elizabeth works in NHS England on the coordination of national health policy relating to children and young people. Previously to that, Elizabeth worked on improving quality of services and patient outcomes within the Medical Directorate of NHS England, after joining the organisation from the Department of Health where she held several policy roles and worked as Private Secretary to two Ministers of State for Care Services, Paul Burstow and Norman Lamb MP.

Rachel Tattersall Adolescent Rheumatologist, Sheffield Teaching Hospital BMedSci 1992, Mb ChB 1995, MRCP 1998,FRCP 2012, PhD 2013

Rachel Tattersall is an Adolescent Rheumatologist and clinical lead for the integrated Sheffield MSK service. She works in Sheffield at both Sheffield Children’s Hospital and Sheffield Teaching Hospitals. With rheumatology teams at both hospital trusts she runs a seamless service for 10-25 year old patients designed to make the transition from children's’ to adult services as smooth as possible, to give young people in the service as many choices about their care as possible and to support their families. She qualified in Medicine in 1995 and trained in adult rheumatology in Yorkshire and in paediatric rheumatology in Nottingham taking up her consultant post in Sheffield in 2008. She works nationally to promote adolescent rheumatology for the Royal College of Physicians, the British Society for Rheumatology, the British Society for Paediatric and Adolescent Rheumatology and she is chair of BANNAR, the Barbara Ansell National Network for Adolescent Rheumatology. Her research interests are in medicines decision-making and patient agendas in health care. Her interests outside work revolve around her 3 adolescent children!

Speaker Biographies

Harriet Wright Community Project Worker, Healthwatch Leeds

harriet@healthwatchleeds.co.uk

I’m a part time Community Project Worker for Healthwatch Leeds and I

lead on all of our work relating to children and young people.

I co-ordinate a brilliant group of young volunteers called Youth Watch

Leeds who help make sure that young people’s voices are heard in health

and social care services.

http://www.healthwatchleeds.co.uk/youthwatch

Roz Banks Parent

I live with my husband and son Tom just outside York but work in Leeds running a group involved in medical research. Having been completely unaware of the prevalence of mental health issues in young people before Tom became ill, I am pleased to see the much higher profile and funding emphasis which appears to be happening in this area.

Tom Banks Service User

I am 19 years old and live with my family and dog just outside York. I first became ill just before my 15th birthday and have been under the care of CAMHS both as an outpatient and an inpatient until I transitioned across to adult services 16 months ago. I work full-time as a healthcare assistant in endoscopy which I really enjoy and hope eventually to become a paramedic.

Delegate List

Chantelle Parke chantelle.parke@chilypep.org.uk CHILYPEP

Chetna Patel chetna.patel8@nhs.net Y&H Clinical Network

Christina Vickers christina.vickers@midyorks.nhs.uk Mid Yorkshire Hospitals

Claire Gratrick claire.gratrick@midyorks.nhs.uk Mid Yorkshire NHS

Clare Hillitt clare.hillitt@nhs.net Y&H CN and Senate

Corinne Harvey corinne.harvey@phe.gov.uk PHE

Daniel Devitt Daniel.Devitt@nhs.net Healthy London Partnership

Darren Rickett darren.rickett@rotherham.gov.uk RMBC

Debi Hemingway debi.hemingway@nhs.net NHS England

Deborah Howard debrah.howard@bdct.nhs.uk Bradford District Care NHS Foundation Trust

Denise Stewart denise.stewart@bthft.nhs.uk Bradford Teaching Hospitals NHS Foundation Trust

Elaine Harrison elaine.harrison@hey.nhs.uk Hull and East Yorkshire NHS Trust

Emma Andrews emma.andrews1@nhs.net YHSCN Children's

Emma Royle emma.royle@rotherhamccg.nhs.uk NHS Rotherham CCG

Emmerline Irving emmerline.irving@nhs.net YH, Maternity CN

Eric Kelly erickelly@nhs.net NMG

Fiona Campbell fiona.campbell26@nhs.net LTHT

Fiona Jones Fiona.jones@gosh.nhs.uk Great Ormond Street Hospital

Frank McGhee frank.mcghee@derby.gov.uk National Transformation Adviser, Dep’t of Health

Fred Bascombe fred.bascombe@bradford.gov.uk CBMDC

George Voulgaris george.voulgaris@rdash.nhs.uk RDASH

Gillian Impey gillian.impey@bradford.gov.uk Bradford Council Transitions Team

Harjit Hunjan harjit.hunjan@midyorks.nhs.uk Mid Yorkshire NHS Trust

Hayley Corrigan hayley.corrigan@nhs.net North Lincolnshire CCG

Hazel Carsley Hazel.Carsley@calderdaleccg.nhs.uk Calderdale CCG

Heidi Fewings Heidi.Fewings@nhs.net CHCPCIC

Helen Collinson helen.l.collinson@hey.nhs.uk Hull and East Yorkshire NHS Trust

Delegate List

Adam Willey adam.willey@northlincs.gov.uk North Lincolnshire Council

Ailsa Grassam ailsa.grassam@york.mhs.uk York Hospital NHS Foundation Trust

Alex Albus alex.albus@northderbyshireccg.nhs.uk North Derbyshire, Hardwick & Erewash CCGs

Alison Iliff alison.iliff@phe.gov.uk Public Health England

Alison Carter alison.carter@rdash.nhs.uk RDaSH

Alison Cockerill Alison.cockerill@nhs.net East Riding CCG

Alison Conchie alison.conchie@anhst.nhs.uk Airedale NHS Trust

Allison grove allison.grove@midyorks.nhs.uk Mid Yorkshire Hospitals NHS Trust

Amanda Jackson amanda.jackson3@nhs.net NLAG

Andrew Clarke andrew.clarke14@nhs.net YH,CYPMH,CN

Andrew Cohen tlindsay2@nhs.net Lincoln Green medical centre

Andy Maddison andrew.maddison@doncaster.co.uk Doncaster Council

Angela Gilroy angela.gilroy@swyt.nhs.uk South West Yorkshire Trust

Angela Monaghan amonaghan@martinhouse.org.uk Martin House Children's Hospice

Anna Ford anna.ford@sch.nhs.uk Sheffield Children's NHS Trust

Annette Gowland annette.gowland@york.nhs.uk York Hospital

Annie Darby anniedarby@nhs.net NAViGO CIC

Annie Beedle annie.beedle@hdft.nhs.uk HDFT

Annmarie Talbot annmarie.talbot1@nhs.net NLAG

Barbara Murray barbara.murray@rdash.nhs.uk RDaSH

Benita Powries benita.powrie@nhs.net

Bernie Dawson bernie.dawson@nhs.net NHS Hull CCG

Bev Chesman b.chesman@nhs.net NHS

Carl Mackie carl.mackie@kirklees.gov.uk Kirklees Council

Carole Gelder carole.gelder@millhouse.me.uk LTHT / University of York

Carrie McKenzie c.mckenzie@healthwatchsheffield.co.uk Healthwatch Sheffield

Catherine Grasby catherine.grasby@bthft.nhs.uk Bradford Hospitals trust

Robyn Wainwright Secretary for Doncaster Youth Voice, Member of Youth Parliament.

Hello my name is Robyn. I am 18 years old and am studying Maths, art and

drama in my second year of Sixth Form.

I have many interests including art, performing art, theatre technical and

Cubs.

I am currently the Secretary for Doncaster Youth Voice and also a deputy

member of youth parliament.

Speaker Biographies

Caitlin Boyle youth councillor and a member of youth parliament for Doncaster south

My name is Caitlin Boyle and I'm 17 years old. I am currently studying

fine art, politics and English language.

I am a youth councillor and a member of youth parliament for

Doncaster south.

Speaker Biographies

Emmerline Irving Quality Improvement Lead

Emmerline joined the SCN in May 2014 and over the past 2 years has been work-

ing for the Children's Network and will now continue working as part of the

Maternity Clinical Network, working with providers, commissioners, service users

and 3rd party organisations to improve children's services across Yorkshire and the

Humber.

Emmerline started her career as Youth & Community Worker. After a short period

as a Community Health Development Worker, leading on a Health Action Zone in

Wakefield, Emmerline returned to Bradford Youth Service to manage a Joint Young

People’s Health Development Programme.

Emmerline joined the NHS in 2007 as a Public Health Specialist for Kirklees PCT,

working on a number of portfolio's including the commissioning of Maternity

services and services for children and families. Before leaving Public Health

Emmerline was the Project Lead for a transformation programme across Kirklees,

focusing on a system wide transformation and integration of children’s and family

services across Health and Social Care.

Hassan Nazir Young Person

I’m 23 years old I was diagnosed with congenital muscular dystrophy at 3 months old. I

write my own music and lyrics as a hobby and I aspire to be a music producer in the future.

I also go out with my friend and try live my life to the fullest with out letting my condition

control what I can and can’t do.

Provider Flow Chart

Provider Flow Chart Speaker Biographies

Carl Mackie Public Health Manager, Kirklees Council

“I have been working in a variety of Public Health roles for the last 12 years. I currently work for Kirklees Council as Public Health Manager and lead on a number of areas including improving Children and Young People’s health outcomes. Specifically, I lead on the commissioning of both Kirklees School Nursing and Sexual health services.

I am passionate about supporting Children and Young People to have good mental and emotional

wellbeing and I strongly believe that effective Transitioning and supporting young people to

prepare for adulthood will help achieve this.”

Jacqui Rogers Transition Nurse Service Lead, Alder Hey NHS Foundation Trust

Jacqui qualified as an RGN in 1990, as a Registered Midwife in 1992, and as a

Health Visitor in 2001. She has always been passionate about caring for

women and children, and implementation of the Public Health agenda.

After completing a Master’s Degree in Business Management in the Public

Sector, she experienced some time in general management as a service

manager trying to influence change. However she missed the patient contact

and returned to a Nursing role as Transition Service Nurse Lead at Alder Hey,

and has been leading with Dr Lynda Brook the development of the 10 -steps

Transition Framework on behalf of the Trust.

She has great passion and insight into this role professionally and on a

personal level, as two of her four children have long term conditions and will

require Transition to adult services and lifelong care.

Speaker Biographies

Louise Porter, RN Child, Dip HE, BA hons

Lead Nurse Healthcare Transition of Children and Young People Leeds Teaching Hospitals Trust (LTHT)

I qualified as a children’s nurse in 1996 and have worked at LTHT in children’s services in medicine, Neurology, Neurosurgery, General and Specialist Surgery. I spent 10 years as a ward manager of the children’s surgical ward and a year as Matron for Children’s Surgery. In my current role which is a 3 year project role, I am assessing and developing transition pathways for all services across LTHT. With approximately 37 services requiring transition pathways and more than 10 supporting services we are one of the largest trusts in the country to attempt to provide a consistent approach to transition for all patients and services.

Transition has historically been a difficult area of work in healthcare and with transition high on many peoples agendas at the moment, it has been a fantastic opportunity for me to support the development of a tool kit for transition, for the Yorkshire and Humber region, to develop a more consistent approach to transition which will improve young people’s experience as they move from children’s to adult services. It is essential that we keep young people engaged with services to improve health outcomes in the future.

Sue Morgan, MBE Teenage Cancer Trust Nurse Consultant

Sue has been working in the field of Teenage and Young Adult Cancer for the past 20 years. She was at the founding meeting of TYAC, a professional group, and has been a Board member ever since. She is a very proud parent of the young people’s conference ‘Find Your Sense of Tumour,’ which happens twice a year and reaches around 400 young people each year. She has been a part of the team leading the successful development of TYA cancer services in Leeds and the Yorkshire and Humber region, along with an innovative outreach service to all young people.

She has presented at many conferences locally, nationally and internationally and, with others, has ensured that the model of care to which we all aspire in the UK, is shared across the world. Sue also sits on a number of national TYA groups, Boards and advisory committees in the UK all of which promote the on-going development of TYA cancer care.

More recently she is working in teenage developments across the disease spectrum, especially in Leeds. She helps to facilitate the Leeds Hospitals Youth Forum, has been working with others to develop the recently launched Leeds Children’s Hospital TV www.lchtv.com. Transition is a process which maps all of the work of TYA cancer Care and she has been privileged to be part of leading the implementation across the Leeds Hospitals.

She attributes the success of this growing interest and development of the young people’s specialty in hospitals to the ‘par excellence’ team work amongst dedicated multi professionals and is very proud and honoured to have been a part of it all!

Commissioner Flow Chart

About the Toolkit and Guidance

The aim of this portal is to ensure that providers and commissioners have a single

point of access to a pathway, resources and key guidance.

The resources in this toolkit and guidance will help service providers and

commissioners, develop, improve, implement and embed good practice for children,

young people and their families moving from children’s to adult services.

A checklist is provided for you to access your current service provision, identify gaps,

areas for improvement and to develop new services. By following this flow chart you

will be guided through the pathway and directed to resources to allow you to estab-

lish evidence based best practice services for your population.

We hope you find the resource useful.

Y&H Transition Champions

Name Provider/Commissioner Email

Dr Fiona Campbell Provider— LTHT fiona.campbell26@nhs.net

Carole Gelder Provider Trust & York University carole.gelder@nhs.net

Bushra Ismaiel Commissioners—Doncaster CCG bushra.ismaiel@dbh.nhs.uk

Louise Porter Transition lead—LTHT louise-c.porter@nhs.net

Rachel Tattersall Provider—STHT rachel.tattersall@sth.nhs.uk

Andrew Clarke Clinical Network CYPMH andrew.clarke14@nhs.net

Sue Morgan Provider—LTHT suemorgan@nhs.net

Philomena Scott Provider—STHT philomena.scott@sth.nhs.uk

Leona Thorpe Provider—North Yorkshire County

Council leona.thorpe@northyorks.gov.uk

Ruth Hayward Commissioner—CCG ruth.hayward@bradford.nhs.uk

Carl Mackie Public Health—Kirklees carl.mackie@kirklees.gov.uk

Priya Narula Provider—SCH priya.Narula@sch.nhs.uk

Annie Darby Provider—NAVIGO anniedarby@nhs.net

Karen Poole Commissioner—CCG karen.poole@northkirkleesccg.nhs.uk

Emm Irving Clinical Networks emmerline.irving@nhs.net

Children and Young People's Transition Charter