Post on 17-May-2015
transcript
open science and open data@wilbanks
8 october 2013sao paulo, brazil
1.data = knowledge.
data regulated by...
data regulated by...
open is essential.it is not sufficient.
open is essential.it is not sufficient.
http://www.systemswiki.org/images/8/8a/Wisdom.png
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
EASY TO USENO OPEN LICENSE
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accessibility
adaptability
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NO OPEN LICENSEDOWNLOAD AVAILABLEDOCUMENTATION IN PDF
2.rationale for open data:
it makes for better science.
may the best (statistical) model win
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17 april 2013
ongoing...
SHOW ME THE CODE!
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Omberg, et al. Nature Gene*cs
accessibility
adaptability
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easeof mastery
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THREE OPTIONS TO DOWNLOADNO CLEAR LICENSEPRIVACY RESTRICTIONSMETADATA
accessibility
adaptability
leverage
easeof mastery
IMPACT OF PRIVATE INTERVENTION
68core projects
248researchers
28institutions
1070datasets
1723results
18papers in press
colorectal cancer subtyping
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3. science and culture are
on a collision course, driven by data
tension between anonymity and utility.
“more like plutonium than gold”
tension between expectation and reuse.
68% want their data shared for science
tension between value of individual and value of
aggregate.
$.50 to $2.50 for SSN, birthdate, etc.
$5 to $15 for credit, background checks.
~40 records for $2100
tension between “research” data and
“consumer” data.
“open” is the only beginningthat can adapt.
“open” is the only beginningthat can adapt.
john.wilbanks@sagebase.govwilbanks@nitrd.gov
@wilbanks