Searching for quality information via pubmed and other sources

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Many patients spend considerable amounts of time on the internet searching for quality disease and treatment information. David Oziel walks through the well know PubMed search engine and some of derivative websites which enable users to sort through scientific publications for their disease. David Oziel is a consultant in the field of Internet health information. He is specialized in databases, quality of medical information, disease classification, and Web 2.0 tools. He also teaches information management at Paris Universities. His background includes biochemistry and information science studies. He participated to the creation of Orpha.net and was the responsible for the information of the rare disease database. During nine years, his areas of responsibility included relationship with the members of the Scientific Committee, database quality, training for Orpha.net teams in Europe and coordination of their activity.

transcript

Searching for quality information

via

Pubmed and other sources

Medical information on the WebMedical information on the Web

Web : 1991Web : 1991

2010 : 200 million websites (Netcraft)

SourcesSources

Public (universities, hospitals, medical libraries,…)

Private (labs, medical websites,…)

Publishers

Support groups

Individuals

Search toolsSearch tools

Search enginesSearch engines

Robots

Search on full text

GatewaysGateways

Information evaluated, selected, organized

MedlinePlus (National Library of Medicine)

DatabasesDatabases

Collection of information concerning a defined

domain, organized and described with precise and

specific keywords.

DiseasesDiseases NORD Genetics Home Reference Orphanet

Scientific articles PubMedPubMed

OrphanetOrphanet

5 languages5 languages / 5 700 diseases / 5 700 diseases

Full text EncyclopaediaFull text Encyclopaedia Review articles on rare diseases (500 in english,

300 in french) Summaries (2 000 in english, french,…)

Information on rare diseasesInformation on rare diseases / 36 countries : / 36 countries : search programs, diagnosis tests, clinics, support search programs, diagnosis tests, clinics, support groups,…groups,…

Organisation and indexation of the databaseOrganisation and indexation of the database

Fabry disease

Alpha-galactosidase A deficiency

Research programs

Clinical trials

Drugs

Clinics

Diagnosis

Texts on diseases

PersonsAnderson-Fabry disease

AddressesAngiokeratoma, diffuse

PubMedPubMed

Bibliographic databaseBibliographic database 19 million citations, 5 000 publications19 million citations, 5 000 publications

Medline (1971) PubMed (PubPubMed (Publiclic Med Medlineline): 1997): 1997

2 millions of connexions a day2 millions of connexions a day

NLMNLM (National Library of Medicine, 1836) 7 millions of documents7 millions of documents

Biomedical domainBiomedical domain Diseases, pharmacology, biology, care, public Diseases, pharmacology, biology, care, public

health, health economy, ethics,…health, health economy, ethics,…

Thesaurus

MeSH : Medical Subject Headings