Statement on the quality of spinal cord injury

rehabilitation and management

Frans Penninx London, 3 September 2012

www.escif.org

www.escif.org

Introduction and background

•  Topic of the ESCIF congress 2011

•  Logical continuation of the ‘Centralisation’ report

•  Working group: Gunilla Åhrén, Jane Horsewell

and Frans Penninx

•  Endorsed by Assembly of Delegates, May 2012

•  ‘Quality’ is defined from the perspective of people living with spinal cord injury (SCI)

www.escif.org

Monitoring quality •  Organisational perspective  Spinal Cord Injury Centre

 cornerstone: patient-centred and goal-oriented

 rehabilitation outcomes measured and evaluated

•  Chronological perspective

 various “care events” from injury / diagnosis of SCI “all the way” to life-long follow-up and (self) management

 benchmarking procedure to define and describe standards

www.escif.org

Accreditation and evaluation •  Accreditation of SCI units

  SCI specific

  focus on person served

•  Accreditation of SCI professionals   when are SCI professional qualified?

  (inter)national standards, audit system / visitation

  ISCoS approved / endorsed training centres

•  Patient evaluation   hospitals, wards and members of staff

www.escif.org

Measuring outcomes

•  Individual level: SCIM, BobScore, life-long effort

•  Organisational level: keep it simple

•  Investment / costs: value based

•  Registries, but don’t ‘standardise rehabilitation’

to fit the registries!

www.escif.org

Statement / conclusions

•  Statement consists of 12 points

•  People with SCI must have a voice, also in this

•  Statement largely grounded in earlier work

•  Not all can be implemented immediately

•  There are differences between countries

•  Contribution to (inter)national discussions

www.escif.org

This ESCIF statement can be downloaded:

www.escif.org

For reactions / questions contact:

Gunilla Åhrén 1stexecutive@escif.org Jane Horsewell president@escif.org Frans Penninx frans.penninx@dwarslaesie.nl

ESCIF would like to thank Coloplast for financial support in the preparation of this report.